Re: Kidney Disease, Chronic Nephritis, Dialysis
Wolf,
I see that it has been a while since you last posted. I hope you are doing well. I am about to start the incurables program with stage 5 kidney failure and was hoping to get some advice. My kidney disease occurred last year at the age of 29 from a rare blood disease called TTP that destroyed most of my platelets thereby plugging up my kidneys and causing scarring. I was on dialysis for 10 months along with plasmapheresis. It made me so sick every time i had dialysis, i would vomit and get terrible migraines and my blood pressure would go up to about 190/120 some times. I told them I was going off dialysis because it was ruining my quality of life. they said high potassium would kill me, but it has been 14 months since then and while i have not felt well or great in that time I am certainly not dead and its better than feeling that sick all the time.
I am in agreeance with everyone who said that dialysis is a mechanical vampire that literally sucks the life out of you. Perhaps prolonging your life very briefly but completely destroying it in the end, causing all manner of pain and suffering via the deadly chemicals and aweful diet and fluid restrictions that are recommended.
Anyhow, I did well for a while after getting off dialysis trying to eat right, but soon fell in to a depression after living with the swelling and fatigue and toxicity and my kidneys not getting any better. I had always thought that it would just magically go away, me being so young for all this and everything, and I admit I mostly tried the method of ignoring it and hoping it would go away. I also hadn't changed my diet much (still eating meat and salty stuff) and wasn't exercising because I was just feeling so crappy all the time. And then, to top it off, one of the blood pressure meds I had been on for the last year, HYDRALAZINE, gave me drug-induced lupus for almost 6 months. None of my 4 doctors could figure out where the vasculitis/uticaria and leg ulcerations were coming from and almost had me put on this million $ a year drug ECULIZUMAB, along with high doses of steroids (60 mg/day) until my nephrologist one day realized "oh, that's a side effect of hydralazine! why didn't i think of that before?", after 6 months of horribly painful ulcers and rashes on my legs feet arms and hands that had me on oxycodone for a month, completely constipated, swollen, and miserable. I stopped taking the hydralizine and it immediately went into remission. which brings me to the present day.
Its new years, and I am done with this. I ordered the incurables program last night and have been eating raw food and drinking juice for a few days now to get ready. I talked to my nephrologist about this today and he seemed skeptical and unimpressed at best, saying that my potassium would get out of control and put me in the hospital. I read on your post that while you were doing the program your potassium got a bit high. I was wondering if you had any better luck with certain fruits of veggies. I know to stay away from oranges, tomatoes, and bananas etc. Could you take the potassium broth? Did your kidney function improve after doing the fast? We agreed that I would start the fast and if my potassium levels started going up in the first week or so I would stop doing it. Any advice you have for me, or anyone else for that matter, would be GREATLY appreciated. By the way, my creatinine is around 4.2, and my hematocrit is 25 so I am very anemic as well. Thank you for taking the time to read this!
Danica
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