Can someone give me ideas for the po... 
Blistering Fate
12 y
12,206
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WARNING, LONG AND PROBABLY VERY BORING THREAD
Hello everybody. I have 20 years old,male. This has to be the best (and more frustrating lol) forum for the "invisible illnesses" So ive been fooling around Internet for about a year and some more and finally I ended here. My symptoms flared up years ago but I didnt start reacting until they degenerated BADLY.
I have high suspects of leaky gut, candida, heavy metal poisoning,adrenal fatigue (which is only a symptom of the former right?), overload of toxins, probably neurotoxins stuck in teh brain, very clogged liver etc...
I have been diagnosed as Asperger in the past. Just some time to now Ive been discovering the link between autism and a lot of diseases with gut problems, detoxification pathways altered or genetically prone to be dysfunctional etc etc
So im posting this is several forums, that I feel are related with my problems, because im sure in each one of them are people who can give an insight or clue. If they are not in the correct place, feel free to delete it! But not all of them please hehe
My symptoms are too much and too sad to write them down... im sick of that. Instead of that I have a lot of tests that if you guys get armied whit patience I will really appreciate you to take a look and comment... The tests show more accuratelly and coldly my condition that my whines.
But some crucial symtpoms are: worsening eczema in sides of the nose and nostrils and in the front of the head, dandruff, stunt growth since 17-18, depression, social phobia, erectile dysfunction, bloating with all meals, insomnia, fatigue, headaches, psychotic attacks with coffe or some supps, lowered capability of attention...
Finally, I have a VERY , VERY important question... looking a my tests... FROM WHICH PART WOULD YOU START THE RECOVERY? Liver? Candida? Gut permeability? Heavy metal chelation? I have the knowledge for healing (hopefully) all these things but I dont know where to start. I am aware that doing one of these things before other can put you into real trouble or dont help at all.
Im in the hands of the Dr Georges Mouton already, and he is really an expert, but our appointments are so rare... and anyway I need to gather all the info I can, this condition worses every year and I know for sure I will end mental if I dont improve soon. Im pretty crazy already, I write poems about the unreality that surround me haha what a queer, I have memory loss and stuff like that. Anhedonia, depersonalization, derealization yada yada yada.
PLASMA AMINOACIDS
ASPARTIC ACID 3.46 mg/L Reference range: 1.5 - 4.5
GLUTAMIC ACID 6.33 mg/L Reference range: 7.0 - 19.5
ALANINE 21 mg/L Reference range: 10.5 - 46.5
ARGININE 9 mg/L Reference range: 8.7 - 33
ASPARRAGINE 5 mg/L Reference range: 3 - 27
CISTINE 1.6 mg/L Reference range: 1.7 - 21
CITRULINE 3.15 mg/L Reference range: 2.8 - 13.1
FENILANANINE 8.09 mg/L Reference range: 5.08 - 15
GLYCINE 10.96 mg/L Reference range: 3.5 - 29
GLUTAMINE 58 mg/L Reference range: 49 - 145
HIDROXILISINE-1 <0.81 mg/L Reference range: <6
HIDROXIPROLINE <0.66 MG/L Reference range: <4.5
HISTIDINE 19 mg/L Reference range: 7 - 16.5
ISOLEUCINE 7 mg/L Reference range: 3 - 11
LEUCINE 13.51 mg/L Reference range: 6 - 23
LISINE 10.53 mg/L Reference range: 8 - 30
METHIONINE 2.24 mg/L Reference range: 1 - 8
3-METHILHISTIDINE <0.85 mg/L Reference range <1.7
ORNITINE 2.27 mg/L Reference range: < 13.5
PROLINE 11.63 mg/L Reference range: 5 - 34.5
SERINE 9.46 mg/L Reference range: 4.5 - 23
TAURINE 7 mg/L Reference range: 10-27
TYROSINE 7.07 mg/L Reference range: 1.5 - 16.5
TREONINE 9.65 mg/L Reference range: 3.5 - 28
TRIPTOPHAN 8.77 mg/L Reference range: 7 - 23.5
VALINE 24.85 mg/L Reference range: 11.5 - 35.1
SEROTONIN SERUM 146 mg/L Reference range: 40 - 400
Leucocytes 4 Range 4-12
Neutrophils 51% Range 45-70
Plateletes 143 Range 150-400
Vitamin B12 1204 pg/mL Range: 300-805
Folic Acid 31 ng/mL Range 2-1
Ionized calcium 39 mg/L Range: 40-52
VITAMIN D25-hydroxy-Vitamin D 16 ng/mL Range 30-60
(I have to say that I was taking Methyl Guard by Thorne Research until 10 days before the tests, maybe the vitamins remained that high because of the supplementation)
Cholesterol total 155 Range 140-220
Triglycerides 79 mg/dL Range 30-170
CHolesterol HDL 38 mg/dL Range 40-109
Cholesterol LDL 101 mg/dL Range 0-114
There there are a lot of things I cannot understand. It seems like I have several acids ****ed in the body, low gadoleic acid, low acid transvacc. , high acid docosapentaenoic, low alphalinoleic, low eicosapentaenoic acid, low gammalinoleic, low oleic, low linoleic... and excessive ratio of AA/EPA, W6/W5 and LN/DGLA all of them high, especially the AA/EPA...
Test inflammatory ET. RHUMAT.
Reactive Protein 0.4 mg/dL Range 0- 0.49
HEPATIC TESTS
GOT 28 U/L Range 10-37
Gamma-GT 37 U/L Range 8-61
GPT. ALANINE AMINOTRANSF. 62.0 U/L Range: 0-41
ANTIOXIDANT STATUS
Gluthatione reduced 54 mg% G. R. Range 56-84
Vitamin E 8.7 hg/mL Range 10- 19
Vitamin A 48 hg/dL Range: 43-111
Beta Carotene 159 ng/mL Range 75-500
Coenzyme Q10 334 ng/dL Range 670-990
Vitamin B6 141 ng/dL Range 88-456
ENDOCRINOLOGY
Thyroid Antibodies:
Anti-thyroglobuline 118 UA/mL Range <100
Anti-TPO 30 UA/mL Range <16
Estradiol 36 pg/mL Range <30
Testosterone 8149 Range 3000-10000
Pregnenolone 3.87 ng/mL Range 3.90- 13.50
DHEA sulfate 206 ng/dL Range 200- 610
IGF-1 477 ng/dL Range 190-490
Urine analysis
Iode 103 hg/24h Range 170-280
Sodium 91 mEq/24h Range 100-220
Chlorures 82 mEq/24h Range 110-225
Calcium 50.7 mg/24h Range 140-280
THYROID URINE
T3 1020 pmol/24h 800-2500
T4 719 pmol/24h 550-3160
STEROIDS URINE
Androsterone 3.38 mg/24h Range: 2.10-6.30
11-OH-Androsterone 0.52 mg/24h Range: 1.20-2.60
Etiocholanolone 0.91 mg/24h Range: 1.90-5.70
DHEA 3.12 mg/24h Range: 0.05-1.40
Tetrahydrodeoxycortisol 0.26 mg/24h Range: 0.05-2.30
Tetrahydrocortisone 0.78 mg/24 h Range: 2.40-5.20
Tetrahydrocortisol 0.78 mg/24h Range: 1.50-3.30
Allo-tetrahydrocortisol 0.91 mg/24h Range: 1.0-2.60
Total 17-OH-steroides 15.5 hg/24h Range: 15.6-58.1
IgG Specifics ( food allergies )
F245-Eggs 80.70 mg/L Range <30
F77-B-lactoglobuline 110.00 mg/L Range <18
F78 Caseine 58.60 mg/L Range <20
F26 Pork 35.90 mg/L Range <14
F83 Chicken 29.30 mg/L Range <10
F4-Wheat 44.80 mg/L Range <12
F79-Gluten 54.10 mg/L Range <12
F92-Banana 80.50 mg/L Range <40
F50-Mackerel 25.70 mg/L Range: <10
F215-Lettuce 23.40 mg/L Range: <10
F9-Rice 29.30 mg/L Range: <10
F14-Soja 26.20 mg/L Range: <10
F35-Potatoes 29.00 mg/L Range: <11
F202-Cashews 77.40 mg/L Range: <17
F48-Onion 32.20 mg/L Range: <10
F280-Black pepper 38.60 mg/L Range: <11
F33-Orange 31.90 mg/L Range: <14
F25-Tomato 33.10 mg/L Range: <11
THOSE ARE MY MOST COMMON FOODS HE MADE ME A QUESTIONARY :(
Thanks everyone willing to help!
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- Re: Can someone give me ideas for th... SeattleK
12 y
11,295
This is a reply to # 1,919,604Advertisement
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Can sympathize with the frustration of losing your youth, I'm male in early 20's as well - 'invisible illnesses' very difficult to keep your head above water. My only advice would be to say that you will probably have to try to treat all or atleast most the issues at once. AF won't ever get better if you have candida, candida won't get better if you have heavy metals, heavy metals can't be chelated unless your adrenals are stronger etc. it goes round and round. My favorite vitamin is zinc because it can help with a lot of these issues at once, but see what works for you.
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- Re: Can someone give me ideas for th... Marie64
12 y
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This is a reply to # 1,919,624HI!
I am doing a nutritional balancing protocol through Dr Larry Wilson and he covers a lot of issues on his site.
http://www.drlwilson.com/
Go to "Read all Articles" look and 1 and 2 for good inf.
He helps to balance the body while detoxing and also takes care of candida .
Marie- Re: Can someone give me ideas for th... Blistering Fate
12 y
11,310
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- Re: Can someone give me ideas for th... #122035
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This is a reply to # 1,919,693alcohol, food additives ,dairy,wheat,stress,sugar,overeating, food additives ,eating on the run,fast food, and all the other bad things we consume like candy bars,bad oils etc.
- Re: Can someone give me ideas for th... #122035
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- Re: Can someone give me ideas for th... Blistering Fate
12 y
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- Re: Can someone give me ideas for th... Blistering Fate
12 y
11,223
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This is a reply to # 1,919,624Yeah I have gases with every meal and inflammed prostate, I can say that I am more like an ill grandpa that a young person LOL. I dont have an orgasm since 3 years, probably more. In fact, I dont feel "young" anymore and I watch in a different way to my young relatives who are fooled by things like the alcohol or drugs comsuption, but my hope is that treating this will make me change, be more positive and less... hmm pathetic. My life is just becoming a more and more a narrow path to death or madness if I dont treat it.
Zinc is pretty good yeah, Ive taken it some time ago and felt like it increased mildy my testosterone, and it is good for leaky gut too.
Im more concerned with my low vit B6 actually, zinc levels seem ok.Advertisement
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- Re: Can someone give me ideas for th... Marie64
12 y
11,239
- Re: Can someone give me ideas for th... sd2345
12 y
11,474
This is a reply to # 1,919,604Have you considered parasites as a possible cause? Most of your symptoms and a few of your test results could indicate that as well.
A parasite/bowel cleanse could possibly eliminate your symptoms and save you a lifetime of medical issues if you were to find it out now.
There could be other causes of course, but intestinal worms could be the cause of most of your symptoms, and go hand in hand with candida, AF, leaky gut, clogged liver, and some of the skin/hair issues. The neurological issues you describe are what I experienced with mine, actually all of them except the coffee, but I have been drinking it for years so that one does not bother me.
Just something to consider while you are trying to figure this out.- Re: Can someone give me ideas for th... Blistering Fate
12 y
11,137
This is a reply to # 1,919,652That is very interesting! Thank you a lot for taking the time of answering me. It could be the cause of everything... who knows, one has to become his own doctor since mainstream medicine just give us psych drugs and PD5 inhibitors to bandaid the problems.
Well, I have drank coffe only like 7 times in my life lol in any case its not only coffe... weed makes me paranoid, and very anxious. Almost anything that can affect the mind will trigger my mental issues... even the active forms of b12 and folic acid makes me feel pretty weird some times. Actually alcohol makes me feel really relaxed and I used to enjoy being drank because it stopped my excessive sweating which makes me stink in 1-3 hours, no matter deodorant or showers...
I am planning purchasing Dr Schulze Intestinal Formula 1 and 2, would this work as a parasite/bowel cleanse?
So, did you recovered from the parasites? How are you doing nowadays?Advertisement
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- Re: Can someone give me ideas for th... Blistering Fate
12 y
11,008
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This is a reply to # 1,919,684BTW I want to say that I DIDNT upload that image hahahah wtf is that? Its a majorette? o__O - Re: Can someone give me ideas for th... sd2345
12 y
11,202
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This is a reply to # 1,919,684lol, you can change that avitar you know!
I'm still working on my little friends, but I have had several periods when I have been mostly clear, and all those symptoms go away totally. I hesitate to suggest it to people who havent considered it, most want to believe it could not happen to them, I've been there. It's good that you are open to the possibility.
If you haven't ordered it yet, you might consider buying from Uniquity on the natural healing forum, not only is her's cheaper, but she also has a parasite blend of herbs to take with it. I haven't tried her stuff yet, but plan to as it gets great reviews and for alot less than I have paid for Dr. Schulz's products from his website.
Good luck to you!- Re: Can someone give me ideas for th... zed12
12 y
11,168
This is a reply to # 1,919,700Some of your symptoms show classic histadelia symptoms (high histamine). High histamine can occur with copper toxicity. Search for "laredo7" on these forums and check out her newest posts on this.
If this is the case, then it makes complete sense that folic acid and B12 worsen your symptoms. High histamine foods could also do this. Your histidine levels are also above range, which MAY point to high histamine because its the precursor to it.
Anyway, google it and you'll find a lot of info.
I am pretty sure I am low histamine. I don't sweat and cannot produce tears in my eyes. I NEVER have headaches. I have paranoid type symptoms/social anxiety. Some symptoms seem to overlap between the two conditions.Advertisement
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- Re: Can someone give me ideas for th... Blistering Fate
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11,045
This is a reply to # 1,919,913Yeah during this last year some people pointed out that my problems seems to include high histamine.
But that is just a symptom doesnt it? The real cause has to be copper toxicity or something similar. That is what we need to target all here in my opinion, the root or roots causes of our problems.- Re: Can someone give me ideas for th... zed12
12 y
11,062
This is a reply to # 1,919,944Raising histamine reduces copper. If you really want to get to the ultimate root cause of it, it'll be at the mental/ emotional/ spiritual level. :) good luck!
- Re: Can someone give me ideas for th... joegrane
12 y
11,334
RN SUCCESS
This is a reply to # 1,920,007== I'm sorry to hear about your difficult case but in some ways I can identify with your situation. I struggled for roughly 20 yrs with a long list of symptoms that doctors could not resolve until recently. You are fortunate that the Science is now available so you can get better now; however it generally is a long process.
== I'm glad to hear that you realize you have a heavy metal problem. Your symptoms and test results SCREAM heavy metals, especially mercury. I wish I could sit with your for an hour or two to explain it. It would make so much sense to se how Hg fouls up the body chemistry and causes so many of your problems! We see it so many times in the chelation and autism groups. Thankfully so many of us are improving but it is a long process.
== Your story reminds me quite a bit of one of the teen members of a chelation group I've been in for a couple of years. He is still an active member so you could contact him if you like. These are two of his many updates to the group.
http://health.groups.yahoo.com/group/frequent-dose-chelation/message/64260
http://health.groups.yahoo.com/group/frequent-dose-chelation/message/52916
TAURINE 7 mg/L Reference range: 10-27
== Don't skimp on magnesium!! Cutler explains in his books--noamalgam.com
TRIPTOPHAN 8.77 mg/L Reference range: 7 - 23.5
== Body make serotonin--vs sadness depression, etc & melatonin--sleep related from it. People often take 5htp which is the next step away from it, including a close female friend who is now sleeping for the first time in her adult life. She is doing many other things too--Cutler Protocol chelation, etc.
Neutrophils 51% Range 45-70
== Mercury has a negative impact on neutrophils and candida so we are wise to stay on top of the situation. My impression is that we should not expect to fully resolve the problem without chelaiton. At the bottom of this page is a video clip of a neutrophil having some candida for lunch :) http://en.wikipedia.org/wiki/Neutrophil_granulocyte
Vitamin B12 1204 pg/mL Range: 300-805
== Be careful. Too much B12 can make some people irritable. Doctors love the $ from giving IVs--beware.
VITAMIN D25-hydroxy-Vitamin D 16 ng/mL Range 30-60
== No brainer here.
It seems like I have several acids ****ed in the body
== Sorry I don't know the chemistry here but remember reading about it in Andy Cutler's book, Amalgam Illness.
Gluthatione reduced 54 mg% G. R. Range 56-84
== You'll want to learn about this. It is the big gun antioxidant and detox chemical in the body. It is virtually always low when HMs heavy metals are involved. Be careful though. Just taking it as a supplement can cause problems, especially if you don't tolerate high sulfur/thiol foods. Also we don't want to just kick up Hg/mercury like dusting your living room with a leaf blower. Much more on this concept and how to increase glutathione in sane ways if requested.
Coenzyme Q10 334 ng/dL Range 670-990
== Antioxidant and helps the body/mitochondria make energy more efficiently. Nice supplement if you can afford it.
Pregnenolone 3.87 ng/mL Range 3.90- 13.50
== This is the mother adrenal hormone. One of the places where Hg fouls up adrenals is fairly close to where the body makes pregnenolone. I really like the effect of low doses so does a friend. It think it is a no brainer that everyone with an Hg problem take at least small doses of it. It is never a cure-all but it is less expensive than many alternatives--adrenal meds, creams, etc. However you should get the issue resolved with the "sex hormones" before taking too much--maybe zinc? More here --note DHEA is not abbreviated.
http://en.wikipedia.org/wiki/File:Steroidogenesis.svg
DHEA sulfate 206 ng/dL Range 200- 610
== Sulfation is very commonly a problem with Hg. We often have trouble with transsulfuration and production of taurine and sulfate which are at the end of the production line. This is very complex but when you start treating this, many things improve! More on these in Cutler's book and in the Links of the yahoo chelation groups 10,000+ members and 2000 posts per month. Have you tried Epsom Salt foot baths--magnesium sulfate in the evening?
Sodium 91 mEq/24h Range 100-220
== Not uncommon with adrenal problems. One of the adrenal hormones is aldosterone which handles sodium and potassium regulation. Beware of your potassium too--learn about the sfx of too high and too low.
Androsterone 3.38 mg/24h Range: 2.10-6.30
11-OH-Androsterone 0.52 mg/24h Range: 1.20-2.60
DHEA 3.12 mg/24h Range: 0.05-1.40
== You can see in the wikipedia image above how DHEA gets converted to the various sex hormones. Hg fouls up so many enzymes so you can expect that we who are Hg toxic don't make some conversions well. I'm fairly sure that zinc is very important and may indeed be the missing link. I remember that BillyMadison--from the story above--reported that his low T symptoms improved somewhat on zinc. Cutler explains that Zn and Hg are similar. They are close to each other on the periodic chart. Hg displaces Zn in various body chemicals and thus disables that chemical's positive benefits. This could be why Zn is okay on your tests; however it does not mean that you have adequate Zn where it is needed.
IgG Specifics ( food allergies )
== I've heard so many stories from members of the chelation groups that they can only eat a few foods without problems. This gets so much better when you learn what is going on and how to mitigate against it. As chelation removes the Hg it gets better too. Hg fouls up production of certain enzymes. Learn about DPP-IV. However you also should do some testing to determine if you are a high or low plasma cysteine. An exclusion diet can be useful here too. It is complex so I'll get into it if you request.
"Zinc is pretty good yeah, Ive taken it some time ago and felt like it increased mildy my testosterone, and it is good for leaky gut too."
== Cutler thinks it is one of the most important things to take when Hg is involved but it is not always well tolerated in the beginning as you read in BillyMadisons's story.
== Get your iron/ferritin levels checked too.
== Many in the chelation groups start with a simple hair test. There are 600 posted here with symptoms so members can discuss.
http://livingnetwork.co.za/chelationnetwork/hairtest/hairtest3/
Re comment about root cause at the mental/ emotional/ spiritual level:
== In a way this is true. You need the determination to keep looking for clues and better answeres. Sadly I did not do this for the first 10 yrs of my illness. However over the past 10 yrs I have been doing it and my health is now back in the normal range for my age. It has been such a long struggle but it has been worth it. Hang in there. You are on the right track. Medicine now has answers for you that they did not have when I got sick 20 yrs ago! Go for it. You are still so young and have so much ahead of you to enjoy!!!
== Best regards,
== Joe, 1.75 yrs Cutler Protocol and improving nicely. My bone density that had not been responding to traditional treatments and medicine from my doctor improved an impressive 8% in just a couple of years on chelation. I had work exposure to Cd and Pb which are nasty when present with Hg.
http://health.groups.yahoo.com/group/frequent-dose-chelation/message/50190
Japanese mass cadmium poisoning http://en.wikipedia.org/wiki/Itai-itai_disease
Note: it seems that Cd + Hg result in catecholamine problems.- Re: Can someone give me ideas for th... Blistering Fate
12 y
11,141
This is a reply to # 1,920,138Advertisement
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Ive read the posts by that guy. Yeah definetley I can fit in Heavy metal poisoned category. My suffering is also difficult to make others to understand, my personality and in general my entity is harmed and atrophied by something, and HM looks like a very plausible cause, among others that, sadly, I think can co-occur, like parasites, copper toxicity etc.
Especially its true that I have panic for most of social interactions and in general I tend to avoid them like the plague. I literally suffer of psychosomatic itches and pains sometimes because of social phobia. Also, im like him in more aspects, people doesnt think by themselves how sick I am by my appearance. However, my face and body are degenerating subtly every year, its just that I am still pretty good looking and that fools people into think im healthy.
The question is about chelation... obviously. The cure. It takes years doesnt it? That is pretty bad news, my situation is already very unstable. Even with this tests my fathers almost hate me for failing university for years now (I normally just avoid going to class, instead I read books in the Library or wander around the city) I mean, if I cant convince people that my "disease" is real, they just think im a lazy-crazy sad idiot. My mind, in the other hand is very near to crash because of all these crazy, hideous years. But well I can expect improvements in the meantime of chelation right?
I know I need to read Andy Cutlers books and begin posting in those sites you kindly gave me :), but can you answer one very important thing? Can you embark in a heavy metal detox program with a permeable gut (leaky gut) and clogged liver or do you need to address them first?
About hair analysis... I dont know, a lot of people claim it is pure quackery. What is the more accurate test for heavy metals? Maybe Urine DMSA challenge? I am HIGHLY interested in testing for HM, obviously.
And I shouldnt do anything with cilantro, choleralla or on my own right? It seems you can hurt youself a lot with impulsive moves in chelation.
Oh and some things more. In the past I have been vaccinated like 10 times (for like 5-6 illnesess, the usual in my age and country,spain, my brothers have been vaccinated more) and I also used an antiperspirant called ODABAN which contains 20% of aluminum chloride... I think those two things or one of them were possibly the cause of everything. Ive read that aluminum also have a lot of effects, especialy in the nervous system/brain area. What do you think? I used the antiperspirant with frequency for two years, for the incredible sweating that school made me have (I dont sweat at home , nothing, zero, its 100% social phobia...) I spent months during those two years without using it though, but the months I used it I did it in large quantities. Idiot me.
Curiously, my worst symptoms began being obvious at second year of using odaban... It really can be that the vaccines made me Asperger or whatever you call it and was the odaban what finished the job. Or maybe I borned with the detoxification pathways screwed, a lot of autist people have a specific gene that makes your prone to accumulate heavy metals. That would explain why vaccines and odaban affected me much more than the others (I sincerely believe that mercury in vaccines can be a Conspiracy for dumbing down society, like fluoride in tap water). I dont know if I had fillings I gotta ask my parents. I barely remember that I had something in my mouth in the childhood that was pretty annoying lol
Aluminum is succesfully removed with Malic acid and/or ALA right? Its R-Lipoic-Acid better maybe?
Thank you immensely.- Re: Can someone give me ideas for th... Blistering Fate
12 y
11,154
This is a reply to # 1,920,196I mean, I was already "socially awkward" in my childhood... I always have had friends (still have some of them now...) and I even had a girlfriend for a while but since I can remember I suffered a lot with social interactions. So that is why im thinking in vaccines and/or being borned with genetical mutations. I cant find the link now, but I readed that some people born with impaired pathways of HM detoxification and tend to accumulate them, thats why those people develop invisible illnesses with heavy metals amounts took from the enviroment,food etc that doesnt affect so greatly to normal people.
Honestly im pretty sure that genetic can play a major role in WHY I have this.
- Re: Can someone give me ideas for th... joegrane
12 y
11,217
RR Educational
This is a reply to # 1,920,196Advertisement
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The question is about chelation... obviously. The cure. It takes years doesnt it?
== When people tolerate normal doses of chelator people get quite a bit of improvement in the first year. After that the gains tend to slow down. There are a lot of very encouraging 1 yr updates in the chelation groups. By about 9 months it was really clear that I was getting better. Family members could tell too. I can't tell you how it feels to be sick for 10+ yrs and have your many doctors not know what is wrong and then to finally find something that is working!
== I'm not trying to give you false hope. HMs aren't the problem for everyone! It just makes sense to me that if the doctors have not made much progress on a person's long list of symptoms and they can be due to HMs, it makes good sense to look into it.
That is pretty bad news, my situation is already very unstable. Even with this tests my fathers almost hate me for failing university for years now
== You read in BillyMadison's post that he had trouble getting his parents on his side. There were many, many other similar posts on the topic. We provided him with links to more informaton for his folks. There are plenty of audio and video clips--I'll include some below. Also Cutler's Amalgam Illness book has lists of symptom clusters to help folks with diagnosis. We have to understand that this is going to sound like a cheap Science fiction novel to friends and relatives. We have to provide them with solid information from scientists who are studying it.
(I normally just avoid going to class, instead I read books in the Library or wander around the city) I mean, if I cant convince people that my "disease" is real, they just think im a lazy-crazy sad idiot. My mind, in the other hand is very near to crash because of all these crazy, hideous years. But well I can expect improvements in the meantime of chelation right?
== You can show them you are not lazy by collecting information on possible causes of the problems. Honestly, it is probably best to take a year off from school if you get some positive test results and positive response from a trial round of chelation. You can then focus on stabilizing your symptoms with appropriate medicine and supplements. Also the first year is when you have the most sfx while on round. After you get that behind you, and get the gains fromthe first year of chelation and supplements you should be able to chelate with modest doses and still go to school.
I know I need to read Andy Cutlers books
== His books are not really intended to be read cover to cover. They are reference material. You look up the sections you need based on your symptoms and the toxins or problematic elements (ie copper) in your hair and other tests.
and begin posting in those sites you kindly gave me :),
== They will become more helpful when you get some test results to discuss. Even an inexpensive hair test is a good way to start. You can then followup on suspicious areas.
but can you answer one very important thing? Can you embark in a heavy metal detox program with a permeable gut (leaky gut) and clogged liver or do you need to address them first?
== Cutler is absoutely clear that they gut problems don't keep the chelators from being absorbed. Candida does affect your choice of chelator or at least doses. DMSA generally is problematic with candida/yeast. Some of the really sick autistic kids have trouble with ALA but not the adults--usuallly. DMPS is generally well tolerrated in the early rounds but is more expensive in North America where a doctor has to be involved.
== DMSA and DMPS get excreted via kidney so that buys you time to work on the liver. ALA gets excreted via stool, but most people do some DMSA or DMPS before adding the ALA. ALA can move Hg across the blood brain barrier--in *both* directions so it is nice to clear out the blood before using ALA.
About hair analysis... I dont know, a lot of people claim it is pure quackery. What is the more accurate test for heavy metals? Maybe Urine DMSA challenge? I am HIGHLY interested in testing for HM, obviously.
== Testing for HMs STINKS--short of autopsy! I did a provoked urine and hair tests in the same month. the hair test reported low levels of Hg but the provoked urine reported none--
== Also consider the urine porphyrins. Cutler expains some of the positives and difficulties wtih this test in a doc in the frequent dose chelation group--cf interview with Schauss.
== Cutler's is just another theory on using the hair test for indications of the *effects* of HMs on essential elements. More on that in this discussion, incl an early version of his theory. His hair test book has a mature version--noamalgam.com
http://onibasu.com/archives/am/2200.html
And I shouldnt do anything with cilantro, choleralla or on my own right? It seems you can hurt youself a lot with impulsive moves in chelation.
== Yes, lots of bad stories about "impulsive moves". Most of the worst stories I've heard have been when people used cilantro. Apparently something in it is actually a chelator that can move Hg into the brain and across the placenta into a child--really sad stories here! It just has not been well studied yet. Do your homework, ask around. The Hg has been in you for decades. It will wait a couple of months more while you come up with a good plan.
Oh and some things more. In the past I have been vaccinated like 10 times (for like 5-6 illnesess, the usual in my age and country,spain, my brothers have been vaccinated more)
== Themerosol, a mercury containing preservative, is the primary concern but not the only one. They often use aluminum as an adjuvant--immune system stimulant.
and I also used an antiperspirant called ODABAN which contains 20% of aluminum chloride... I think those two things or one of them were possibly the cause of everything. Ive read that aluminum also have a lot of effects, especialy in the nervous system/brain area. What do you think? I
== Yes aluminum is thought to be nasty when present with aluminum. There are some staggering statistics from Boyd Haley, PhD, former chairman of the chemistry dept at the University of Kentucky. He is an excellent source of information. In general I've found the PhD chemists to be more informative than medical doctors.
http://health.groups.yahoo.com/group/frequent-dose-chelation/message/50190
Curiously, my worst symptoms began being obvious at second year of using odaban... It really can be that the vaccines made me Asperger or whatever you call it and was the odaban what finished the job. Or maybe I borned with the detoxification pathways screwed, a lot of autist people have a specific gene that makes your prone to accumulate heavy metals. That would explain why vaccines and odaban affected me much more than the others (I sincerely believe that mercury in vaccines can be a Conspiracy for dumbing down society, like fluoride in tap water)
== Most likely a combination of all of them and much more--beware of tuna and some seafoods too. Boyd Haley expains in his paper below and other talks.
Aluminum is succesfully removed with Malic acid and/or ALA right? Its R-Lipoic-Acid better maybe?
== Yes, also I use magnesium malate as one of my types of magnesium. Cutler thinks Al comes down as Hg comes out too.
== Studies on lipoic acid used the regular ALA as the chelator. Therefore it is not wise to use R ALA for chelation. We don't know if it works as well for that purpose and why spend the extra $.
== These are heavy but you want to learn before jumping in. There is much more from Cutler in the yahoo groups.
Video from U of Calgary of neuron cell membrane damage esp @ 2 min.
http://www.youtube.com/watch?v=GDnfeIwd0wI
http://commons.ucalgary.ca/mercury/
The video by B. Haley explains more of the related biochemistry.
http://www.myspace.com/video/vid/7383821
Boyd Haley debunks the ADA claim: Only minute amounts of mercury are released from amalgam
http://www.youtube.com/watch?v=LnfBhdT7uU0
http://www.youtube.com/watch?v=2WM1c7VSP70
There is a paper by Haley on the genetic component in the Files of the frequent dose chelation group.
== Good luck.
== Joe
- Re: Can someone give me ideas for th... Blistering Fate
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- Re: Can someone give me ideas for th... zed12
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This is a reply to # 1,919,700What if I do first a bowel/colon cleanse like the one from blessed herbs or the schulze one and later or WHILE Paradex, a formulation from Biotics Research which seems a reputable company?
What protocol did you followed for getting "them" out?
Im thinking in ruling out every possibility and candida and parasites are there.- Re: Can someone give me ideas for th... Abigail9292
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This is a reply to # 1,922,401Trust me, from long experience--it is extremely tiring on your body to do a candida cleanse and blessed herbs tells you to use only fruit juice which is THE WORST THING for someone with all the classic adrenal dysfunction symptoms that you have. You are right that it is WAY early in your life to be having these symptoms. I am much older than you, in my 40s, and I spent over 20 years trying this kind of crazy cleanse and this dr. and that dr. and just BE VERY CAREFUL with these cleanses! They are SO HARD on your systme and they will not clear out the candida, it will just come back because your system is too weak to fight it off.
I wish I had found my adrenal specialist when I was in my 20s, it would have saved my youth and I would feel a lot better now. I wasted SO MUCH MONEY on massive vitamins and stuff for candida and parasites and heavy metals blah blah blah--i am sure some of it helped but until I found someone who truly knew how to heal my adrenals it was all for naught because my body just couldn't heal until my adrenals healed. It isall about activating the REST & DIGEST nervous system so you are not constantly in the FIGHT OR FLIGHT nervous system.
WHich I am kind of getting into now because I feel so worried about everybody on these boards having dangeous information and not having a good doctor to truly heal their adrenals!
THE UNDERLYING CAUSE IS THE ADRENALS. Most docs even so called adrenal specialists have no clue how to do this.
Please, instead of some dangerous and exhausting cleanse, check out Nourishing Traditions by Sally Fallon and try the WEston A Price diet--this is the safest way to get yourself better. A long-term, slow change that replenishess you.
Bone broth is key, as is grass-fed butter preferably RAW. Those will help you detox and support your adrenals.
Meditation, sleep by 1030 pm, removal of big stressors from your life.
Good luck and blessings--Abby
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- Re: Can someone give me ideas for th... Abigail9292
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This is a reply to # 1,922,401Sorry I forgot to tell you if you do want an adrenal specialist it is dr. neville in QUakertown PA, he treats people internationally, you can come stay or he does phone appts, maybe even skype but maybe not, they are not the most internet-savvy over there!
I truly hope you feel better, this is horrible to be suffering through in your 20s especially!!!
Abby
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