Hello Melanderso,

Great to hear from you! The doctor Myhill report that you posted is the one I am taking with me to my doctor! It makes perfect sense and is the only thing I have seen which completely fits my symtoms. I have been tested for auto immune diseases and Lupus which came back negative.

I like your line about not buying a car with .... Very good! I might try that one! I think my main plan is to try and stay calm. I have tended to get either extremely angry (to the point where I was scared that I might be violent) or to cry (or both). Maintaining control has to be the key otherwise they seem to assume we are mental. Thank you for you comment and good luck on this roller coaster!

love Clare x

Great articles - thanks for posting them! With my continued neurological issues and muscle weakness, I've become more and more worried about other diseases I might have developed. Reading these articles makes me remember again that the silicone reaction might be playing more of role than I realize. I guess it's just that because I'm 13 months post, I feel like my recovery should be further along (or finished!) and that because I'm not back to normal, something else must be wrong.

I continue to believe that adrenal weakness/fatigue play a large role in autoimmune/hormone/thyroid/autonomic dysfunction. I've been reading from here:

http://www.drlam.com/articles/adrenal_fatigue_related_conditions.asp?page=1#1


This explains so much of what I'm experiencing with autoimmune issues, allergies, autonomic dysfunction, and obvious hormone imbalance. And it even points out that for someone in this state, lab work and tests can be fairly normal even though one definitely is not functioning normally.

If the adrenal fatigue is the reason for the body's reaction to the silicone (and subsequent autoimmune condition) and hormone imbalance, it makes sense to work on strengthening the adrenals as a part of the recovery. Maybe that's what helps the body to "burn out" on the silicone reaction in time. Maybe women with stronger adrenal function are the ones with the Mirena who have NOT had a reaction (yet, anyway!). Maybe it explains why I started having a more severe reaction after the strep throat infections I couldn't get rid of last year. Maybe the Mirena weakened me, which allowed me to develop the strep (which I had NEVER had before), and then this weakened my adrenals sufficiently to allow the downward spiraling of my health and development of autoantibodies. Maybe the hormones in the IUD further upset the adrenal/hormonal balance in the body (which is addressed in the article). Maybe this is why many women have finally recovered in time. They get the IUD out, try to focus on healing, which strengthens their adrenal system, and then they stop posting on this forum! ;) At least I'd like to think that many of the women, especially from a few years ago, no longer post because they are better.

Any thoughts? Does this make sense? Sorry to ramble. I'm just thinking out loud on my keyboard.

~Diana

Hey Clare! How are you? Any luck getting your silicone levels tested? I plan to see a neurologist bc I noticed my speech has been slurred, my train of thought has been limited and panic attacks came back so I'm asking they test my silocone levels too hopefully they will but anyways have u gotten any better since ur mirena removal. If so, what have you done to improve. Please help by replying!