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I agree with these steps. Except for the smoking part. Smoking is not good for health. Also, leave it alone works great but a little lip balm or petroleum jelly would be good for daily lip support.   [End]
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hi, i’ve just started to get this! have you found anything that’s helped? or the name of it? thanks   [End]
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Simplest and cheapest solution is a britta or zero water filter for your drinking and washing water. They’re roughly equal to the purified bottled water you’re buying. Reverse osmosis (high quality) tap filters are very expensive, but they are the way to de-floridate water (besides distilled water). Most molecules sink when bound with for example calcium bentonite or activated charcoal (common purifying materials) but flouride and chlorine float. You can home-build a system for distilling water. It’s decently efficient if you live in the desert states, but you need to take care ...
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Since toothpaste and mouthwash contain floride, as well as tap water, I decided to use purified bottled water at room temperature to rinse and wash my face. I started yesterday using purified bottled water and today I’ve noticed a slight difference in the size of the tiny bumps on my face, the bumps appear to be smaller and less noticeable! I was also wondering if you could boil tap water to remove all the chemicals and floride in it and then once the water has cooled to room temperature, use it to wash and rinse my face with it. QUESTION: Are those chemicals evaporated into the air or doe ...
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Hi! Did you ever get your faced cleared up? I had the exact same thing happen to me. It was horrible and my doctor would not believe it either and I made them remove the Mirena!   [End]
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Thank you so much for sharing the benefits of violet extract for PD.   [End]
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Ok it’s been over 3 years since my post. While Mama nature cream was and still is a good cream it was a topical treatment, not the cure all. This situation results from something that’s imbalanced internally and shows up as a rash on the exterior of your body. I took some time to really reflect on my post (hence 3 years) and I can tell you that the one thing that did seriously help me without buying too many products was Blue Ice fermented cod liver oil. I started taking two capsules a day and am now down to one a day. I’ve noticed drastic results. I don’t have POD anymore, ever si ...
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Hemp is good for chronic inflammation. So, this must be an inflammation problem for you whatever the cause of inflammation.   [End]
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I have no idea what caused my peeling lip (only my bottom lip - my top lip was always fine). It started many years ago out of no where and I never found the cause. I tried every cream, balm, ointment, oil, etc. I could find, including steroid creams and fungus treatments. I did tons of my own research, saw dermatologists, changed my diet, changed my toothpaste, took nutritional supplements, drank buckets of water, stopped it all and did nothing to see if that would work. I tried everything. Nothing worked and it was affecting me terribly emotionally. The peel would happen consisistently ab ...
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Thanks for sharing this with us. Could you tell what caused your peeling lips? From what i have read on ulta website there are only comments about healing chapped/dry lips, not peeling. Please tell us more.   [End]
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I suffered for years and years. I found a cure that worked for me and healed my lips in days. Hempz lip ointment. It has hemp (cannabis) seed oil in it (not the drug form marijuana). It is available online or from stores like Ulta.   [End]
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I think i wont use steroid cream but we will see   [End]
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Yeah sorry maybe I shouldn’t have said that about moisturising and leaving them alone because there is merit in it. What I was trying to say is it’s important to remove the irritants but I guess it’s been said enough times. The steroid cream/ointment will prolong the healing because it’s designed to stop the inflammation but that’s part of the healing cycle so it’s needed.   [End]
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Im pretty sure that I got this from lip picking and I believe that they would heal by themselves, if I moisture them and don’t peel, eat healthy and exercise, and if I quit smoking while this process I would actually be grateful :) waiting for weather to start running. My strategy for now is leaving my lower lip alone, and peeling upper while i feel the crusts are too big, but not using my teeth, sugar mixed with olive and honey in the evening, so i can imidiatelly put something on them to make sure no bateria gets in there. We will see how it goes, im trying to change my attitude about th ...
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I would not leave them alone I would get them manageable so that you do not feel they look bad. There is a lot of misinformation on this board about leaving them alone and moisturising them. It isn’t necessary. As I said there is a sequence of things and the most important is removing sources of irritation such as that found in hygiene products. You could in theory leave them alone for years but if you are applying contact irritants they will never heal because you are constantly re-damaging them. Sorry if this goes against some of the other advise on here. Personally, I have done the leav ...
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Im taking probiotics and eating healthly. Its been 4 days of leave alone and ive already peeled biggest crust... I cant stand this ... Skipped school again   [End]
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Yes I would agree CNM. I found the new skin was crinkly and very delicate. I have symptoms very similar to rhinitis as you describe. A coarse dryness in the nasal passage which was very uncomfortable and random intense sneezing. I’ve only ever been patch tested for contact chemicals and not airborne allergies like dust. The test picked up a few sensitivites to common substances found in cosmetics like balsam of peru and sandalwood oil. I avoided exposure to these substances but still found my nose issues continued. I’ve always suffered from drymouth and extreme thirst. At the mome ...
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I wasn’t looking for anything about rice, but I just saw something which stated rice is poisoned with arsenic and remembered that I replied today to you about rice.   [End]
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In this time that I was ”eating” my lips I was smoking weed, a lot of times from a dirty glass and was taking 3 antibiotics for a Staphylococcus aureus (which I was born with too) in a row cause I was sick and everything what doctor can do is antibiotics of course. And also what do you think about using this steroid creams? I got this of them, my dermatologist said to apply one for a week and second for another (just on those holes). I dont want this to get worse, I’m really sceptical about using anything that strong.   [End]
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Thanks you all for this advices, i have recently bought a natural toothpaste but im not sure if its sls free. Crustnomore you are probably right with this, but without taking medicines I would sneeze 100 times a day and this would cause more cracking and bleeding. Crustnomore you are right I have had dry lips before ec, I was so sick about that (which could be cured easily by every f***in Chapstick but whatever...) I literally was licking my lips all the time and taking the skin off with my teeth.. through months. Now I have big holes in my lips from doing this, which produces kind of no ...
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Hi Kutiyoung, I am sorry to hear of your troubles. I mentioned this in various threads and I probably sound like a broken record but I think Exfoliative Chelitis is connected with xerostomia (insufficient saliva production). You mentioned that you are allergic to pollen and dust and that you have been taking medication your whole life to fix this. You have a few factors which would cause xerostomia 1) lifelong allergies which I’m guessing causes your nose to be somewhat blocked (hence, cause of mouth-breathing, either unconsciously while awake or while sleeping). 2)medication ...
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Hi Kutiyoung, I’m sorry to hear you’ve been having trouble with this. I’m one of the ones that has had EC for 20+ years (I’m 31) and at my lowest I have felt the same way. My EC is in remission now but due to the nature of the condition it affects everyone differently and even success stories are full of ambiguity because it’s difficult to know actually what made the change. There are many that are cured without ever really knowing the reason. The most important first step is to look at your environment. What is coming into contact with your lips that may be making the problem worse. ...
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Grains such as rice can cause irritation. One may not be allergic to dairy (i.e. eggs), but they could still have a food sensitivity. You could try eliminating all grains including rice to see if it makes a difference. Then, try eliminating eggs to see if it makes a difference.   [End]
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Thanks for your response. Im allergic to Pollen and dust since I was born, but it’s almost impossible that I have food allergies, cause I’m already on anti Candida diet, and all I eat are eggs, vegetables and unfortunately rice cause I don’t have much time to cook meals. I’m also taking pills. Before I was taking Xyzal nearly all of my life, about a week ago dermatologist prescribed me Jovesto instead which I’m taking right now. I already bought a natural toothpaste and I always put something on my lips before brushing teeth like Vaseline to avoid these contact that you mentioned. Thanks f ...
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Once you open sores on your lips, foods you eat gets directly into your blood stream, and that is the easiest way to develop new allergies. That is the most common way how people with eczema develop allergies to topical treatments. The same may happen with toothpaste, or anything else you put on your lips (shampoo, soap, lotions, drinks, ). Find out what you are allergic to, or what you are intolerant of. It may be a way to solve your EC. To deal with anxiety, do some EFT tapping. It is about 80% effective for anxiety, if you do it 10 min a day. Clearing Fear a ... [Video Embedded Here]
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Hi, I made an account here cause im struggling with exfoalitive chelitis for about a 1.5 year. My ”disease” was caused by biting, licking and actually ripping off the skin from my mouth using my teeth. Before I used to have Nice, Pink mouth. My lower lip is inflamed, and upper has got nasty scars covered with cornflakes, and got both of them turned dark red instead of pink. I used everything, aloes, alantan, Vaseline, zinc creme. I also quit eating sugar and supplements myself with vitamins A,B3,D, zinc and omega 3 daily and even steroid creams for a couple of days, which dermatologist hav ...
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Hey, i’m actually in England but yes i’m trying multiple probiotics :)   [End]
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prescript assist   [End]
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hii crust no more ec on my lips start from lips meeting area. sometimes it also happen on inside of lips , not deep inside, just on little slope area. i was saying that it forms inside when i put some thing on lips, but it is forming on inside area without anything on lips.   [End]
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Hi Questlf, Where does the EC skin start for you most of the time? At that part where the lips meet? Does it not start slightly inside the mouth? For me, I get crusting on the inner lip area all the time. If I use aquaphor on the outer dry lips (the vermilion), it causes the crusts to fall off the outer part of the lip (the vermilion) and makes the skin there raw. But the crust remains on the inner lip area. If I use the saliva gel on the inner lip area, it stops the crusting there.   [End]
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tergot i only have ec no other health issue all normal no stomach bloating, pain etc   [End]
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hii crust no more the skin you are talking about in the picture inside lip area. it happen with me when i apply something on Lips. when i don’t use anything skin doesn’t come on inside area, only on outer area of lip or at place where lips meet, not on inside meeting area.   [End]
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Tergot (and Questlf), Thanks for your message(s). People here are free to pursue whatever approach to EC they find most helpful. I’m not necessarily opposed to a holistic model of health. I’m not uncritical of allopathic medicine either. However, my experience with alternative medicine, having had CFS for ten years, is that it tends to lead to wasting a lot of time and money chasing rainbows. It tends to give hope but is not necessarily useful beyond that in most cases. There is also a misconception that alternative medicine is natural and therefore not risky or dangerous ...
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Tergot, try the EFt tapping therapy ... [Video Embedded Here]   [End]
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Yeah I also have/had a lot of dermatitis as well as EC and I don’t think they are separate issues. i think they have the same cause. Sun helps me too. I also use an anti-dandruff shampoo but I think we should both accept that using a product to disguise the dandruff is not solving it, only masking it. Focusing on killing yeast or strategies to kill yeast should not need to factor into your thinking process, it should be something your body keeps under control without you thinking about it. Aim to get to the point where these problems are resolved without having to micromanage them, ...
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The reason I use the term thrush and perioral dermatitis interchangeably is because I see them both as having gut dysbiosis as the same route cause and I also don’t have a 100% diagnosis of either. Dermatologists have not been of much use to me. If you search citrobacter on here there are many examples of it : http://www.curezone.org/forums/search.asp?q=citrobacter+freundii&action=Search what I found so eerie was how many of my symptoms were described by others with this bacterial infection. No specific mention of EC though but MANY skin related issues. GI = gastrointestinal. ...
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My hair and chin beard had dandruff and crusts for having seborrhoeic dermatitis i think.Once i started vichy anti-dandruff shampoo included selenium sulfide which kill yeasts, hair dandruff totally gone and chin beard area get clearly better.Maybe yeasts and fungals proliferated in lips too.Maybe sun is healing my lips due to sun is killing yeasts and fungis.I must do required tests for that possibility.   [End]
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tergot thanks for updating ****Cipro WARNING** *** it has serious side effects. very serious. you are first person i have seen here at EC Forum with complex series of illnesses. i have a question what is perioral thrush. (where you have this thrush, you are saying around nose )   [End]
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tergot what is GI test   [End]
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I think a lot of your research is well founded and that I’ve come to the same conclusion about candida not being the problem it is made out to be. Ultimately it is a yeast we need to live and is kept in check by the vast majority of people, only overgrowning when not challenged by beneficial bacteria. The point is why is it overgrowing and what can you do? Is it actually the problem at all? A comprehensive GI test will show you exactly what is going on and a good naturopath, but there are people here that just don’t do it. They think they are going to cure their EC from treating it a ce ...
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Erdem, the short answer is no. Sebum is not in itself harmful- it’s just a way the body tries to naturally moisturise itself. However, bacteria and fungi tend to proliferate in the sebum, especially when there is too much of it. This can cause problems. Your doctor thinks you have sebhorric dermatitis on the lips. The cause of Sebhorric dermatitis is not totally clear but we know it occurs when the skin produces too much sebum and fungi proliferate in the sebum, causing the body to respond with an inflammatory reaction (redness, crusting etc). Hyperkeratosis is part of the abno ...
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Hi everyone, well my EC is still in remission but I continue to suffer from my other long term skin issues. I am in the 3rd week of an 8week program which is designed to eliminate a bacterial infection I have of citrobacter freundii. This was picked up on a stool analysis I had which identified it. The prescriptive agents to treat this are : ciprofloxacin tetracycline trimethoprim/sulfa and the natural agents are: berberine oregano plant tannins uva-ursi I have done enough research to know to avoid the antibiotic options and so the routine I am following is prescr ...
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CrustNoMore, thanks for your response.Yes i have fordyce spots on lips espacially on upper-mid lip area. You said that sebum can be medium for fungal proliferation but i wonder that can excess sebum activity/production cause hyperkeratosis on lips alone.(i mean irrevelant to fungal) Also i will consider protopic.   [End]
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How is the protopic going? Am thinking of asking for this next time I go to the derm.   [End]
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Erdem, Your doctor’s point is very interesting. Do you have fordyce spots on your lips? A lot of people on the forum seem to report that they have fordyce spots on the lips. Lips don’t usually have oil glands but fordyce spots are sebaceous glands in an abnormal position. ” Fordyce granules are sebaceous glands that are located in the vermilion zone of the lips and the oral mucosa. Historically, these sebaceous glands have been considered ectopic[MEANING: they don’t belong there]; however, because they are such a common clinical finding in the oral cavity, Fordyce granules shou ...
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You wrote: ”2. There is some sort of autoimmune response to food, which caused the lips to peel. Once not eating, the autoimmune response stop being triggered.” You are right about this. But, most likely, it is not just autoimmune response to all the food you ate. Usually, people react to just a very few food items, like milk, gluten, soy, corn, wheat, peanuts, strawberries, tomatoes, shrimps, etc. Research the Elimination-Rotation diet . What you did was just a first part of that diet, total elimination of all foods. When your symptoms disappear while eating no food, it ...
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Interestingly my doctor said that i have hyperkeratosis on lips due to sebum production on lips.i have also seborrheic dermatitis and my t-zone(especially nose) is very oily.she said that this hyperkeratosis likely seconder symptom of seborrheic. Generally my lips is clearly better in summer,sun improves my lips and when i told this she replied that sun stops sebum activity in my lips.she gave me acnegen(accutane) 10 mg.i was very surprised but somehow i believed her then i started acnegen but it lasts only 7 days because i noticed depressive mood and some other side effects i though ...
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crust no more i had bad health in past foggy mind, tiredness, acne, sleepiness after doing breakfast all of this has gone. i fear of allopathic medicines very much because they have side effects. yes canestan is available here, both in tablets and cream. i have canestan cream of bayer company. have tried but doesn’t show any change. i give emphasis on curing ec naturally. i have read little on hyperkeratosis, i have inflammation some time more some time mild.   [End]
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Questlf, Do you have anything like Canesten duo capsule available in your country? This medicine is an antifungal that is not made for the mouth (it is made for the vagina) but it is edible. If you are very desperate, maybe I can post you some medicines to try if that would be helpful. Personally form my research, I think EC is a form of retention hyperkeratosis of the lips that occurs in response to chronic inflammation. A lot of people’s biopsy results on this forum came up as showing hyperkeratosis. EC also looks very similar to the retention hyperkeratosis on this lady’s fac ...
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crust no more yes it is true people have full blown up oral thrush but don’t have EC. besides Candida, i have nothing more to do. in my country, nystatin is not available. i am thinking of using yakult probiotics and swishing it in mouth.   [End]
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Questlf, I know this is going to sound strange but I read in a medical article that for treatment of oral thrush you can get vaginal pessaries and dissolve them in your mouth. ”Nystatin tablets (500 000 IU) are commonly used for treatment of oral candidosis and so are the vaginal pessaries (100 000 IU). The latter are highly efficacious when used orally as long as the patient is persuaded to take them. The bitter taste of the tablets results in poor patient compliance.7” So if you can’t get Nystatin you may be able to get vaginal pessaries locally to see if that improves things. ...
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crust no more i think candida in mouth is continuously infecting lips, that may be reason topical fungal cream does not work. no I haven’t tried gel, can’t get at my place and also if i use any thing peeling spreads.   [End]
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Questlf, Don’t give up hope! There is an answer. We just need to keep looking to find it. I personally think candida is not the answer. If so, topical antifungals would work or at least improve things a bit, which has not been my experience at all. I think candida may be part of the answer for some people but it is not the full answer. Did you try the saliva gel protocol? I have had some good improvements with this. I am not cured. Maybe 40-50% improved.   [End]
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Roma Singh which probiotics you took?   [End]
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crust no more candida is only hope for me i am healthy and no dry mouth. no bloating or any other illness in body. also drink enough water all day you have done deep research on finding possible cause.   [End]
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Hi there, While I wouldn’t discourage you from taking probiotics if you feel it helps you, I very much doubt candida is the root cause of exfoliative chelitis and that exfoliative chelitis is directly connected with intestinal issues. The alternative health world likes to attribute almost every illness out there to candida (I know because I have had CFS for over ten years and been on multiple anti-candida diets on the advice of alternative health practitioners with no success whatsoever). The idea that multiple illnesses are caused by candida is not supported by scientific evidence. ...
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You definitely have gut microbial imbalance SI CEO you have taken so many antibiotics. Take probiotics everyday with meals. Include Kimchi, sauerkraut, kefir, yougurt in your foods everyday. Also figure out what foods triggers lip peeling. Obviously when stopped eating lips were not peeling, so look at your foods, culprit is right there. Fix your gut. Archus   [End]
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I’m not sure what the reason. I imagine it could be one of three things. 1. My gut biome (good and bad bacteria) changed with the antibiotics I recently took, which somehow stopped the lips peeling 2. There is some sort of autoimmune response to food, which caused the lips to peel. Once not eating, the autoimmune response stop being triggered. 3. I was really hydrated from all the water? My best guess is that when my body is not digesting food properly, due to an imbalanced gut flora, it sets off an autoimmune response which causes skin conditions like peeling lips and da ...
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romanasingh, you wrote: ”I drank only water for 2 weeks and my lips stopped peeling. Once I returned to eating, my lips began to peel again.” Do you know what does it mean when your lips stop peeling when on water only, but they began to peel once you start eating again ? WS   [End]
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Did you get tested for Candida overgrowth and food allergies? If probiotics help stop the crusting/peeling, try continuing them. From your name, it seems you’re Indian. If you’re in India, try Yakult or yogurt everyday.   [End]
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## Short Story Hi Guys. My lips severely reduced peeling, to the point where it was essentially no longer an issue twice. Once, I took probiotics which returned my digestion back to normal, and caused my dandruff and peeling lips to essentially go away. (I experince loose stools due to antiobitic induced IBS). Unfortunately my digestion went back to being bad after more antiobiotics. Due to the tummy pain, I drank only water for 2 weeks and my lips stopped peeling. Once I returned to eating, my lips began to peel again. At the moment my lips are experiencing moderate peelin ...
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you are thining and weakening lip epidermis unknowningly. 0.1% is strongest one. using for long period will do harm than any help.   [End]
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of course some people will see good results with protopic it is primary used for dermatitis. EC is in my strong opinion a form of dermatitis wether it be atopic dermatitis or sebrohic dermatitis or contact dermatitis its a form of dermatitis the reason theres so much confusion is because the location of the manifestation. If everybody just looks at the symptoms its quite obvious. Red inflammed crusty/scaly/thickening skin which is constantly getting secondary infections which is due to a cell which protects the healthy bacterias which control the environment of the balance between good and ...
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What happens if you don’t use the Protopic for three days straight? Do you get build-up/crusts?   [End]
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Oh and the ointment is 0.1%, twice a day.   [End]
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2 months ago my dermatologist prescribed me Elidel to pretty much use until my lips get better, but it wasn’t doing anything. So after using it for a month, I asked for Protopic instead, and lo and behold a few weeks later peeling just completely stopped. I don’t think I have ever reached this point as far as EC goes, and I’ve had it for about 6 years now. I don’t see myself stopping Protopic anytime soon since my lips are still a bit inflamed and get irritated easily, but the swelling has gone down as well. Really recommend trying Protopic. It does have an unpleasant sensation the ...
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I now have a different view http://www.curezone.org/forums/fm.asp?i=2178162#i on current Christianity to this http://www.curezone.org/forums/fm.asp?i=2184050#i My opinion on Christianity is now different, I don’t support a lot of it, I agree hope would have been important in the past, it is important now and it is important in the future but a lot of what is preached in the Bible is not acceptable, hopefully others in the past, now and in the future felt, feel or will feel the same. http://www.curezone.org/forums/fm.asp?i=2178162#i Basically I hope for the direction according to wha ...
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sounds like you have a vector borne diease as well. like lyme.   [End]
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i actually put it on 3 times a day thats not the method you dont seem to get it the goal is to not pick and rub the skin off thats what im talking about and isnt it funny that danki left her lips alone you keep talking about her lol maybe thats what cured her why dont you talk about that even tho i dont think the leave alone method is a good idea without a moisturiser it would take alot longer to heal but it worked out for her and you keep talking about her yet call it useless when it cured her anyways i wish you the best as well   [End]
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anyways dude where just going round in circles. if you think your going to heal a inflammatory immune skin condition by placing some form of lip balm on constantly good luck with it. wish you all the best   [End]
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what do you mean he didnt know go see his website and read what he says he was just being silly saying he dontknow because right after that he says what curedhim and hes clear about it go read his site he details it   [End]
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i tried prednissone it did nothing at all so my doctor said theres no point of going on imuran because they all work the same way will get the same results   [End]
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lol you dont brush off the build up when yours not healed with lines you will just get raw skin that is not the method he did not brush it off untill he was heal and had the top layer back with the lines back without raw skin did you do that no you did not you told him your self your lips get raw and burn like hell when you brush it off how do you expect to heal if you do that causing more inflammation and it was 2 without proof i barely beleive so i did that as just 1 with proof witch is danki and it didnt work out for you not only that it did nothing at all witch means everything else wo ...
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1 girl? did you not read? there has been 3 cures from imuran... i clearly stated the 3 people. and unfortunately sorry to inform you but iv been doing constant moisture method for about 14 months now and ”brushing” it off just like daniel miller explained. It hasn’t done anything for me its a great way to ”manage the condition” but theres still symptoms and i 100% know if i didn’t constantly manage it my ec would return to its fullest within 1 week. i even bought the exact same lip balms as daniel. Go and watch his video clips in detail he clearly states he isn’t sure what actually cured h ...
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if you want me to remind you he said he left his lips alone for several months untill he got the top layer back and the lines back and after that he got tiny dead skin build up he just brushed off untill he eventually got cured and its important to leave it untill you get the top layer back because the goal is to stop the inflammation but then you talk about 1 girl who got cured and still talk about her treatment that failed for you but talk about another who has worked for many more and say its useless thats not right man anyways i hope you understand now how he got cured because those ar ...
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only 2 has been cured because i tried prednisone with no success either and daniel stated in his video what he did and its clear that it worked you can see the progress what do you mean you dont know how he got cured look at his videos and his progress first half of his lip got cured then the inner lips at the end and im doing the same for several months now and half my bottom lip and almost entire top lip is cured its unbelievable im just saying if your gonna take 2 people who got cured out of plenty and say there is hope for it but say the leavealone method moisture is useless is not rig ...
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well if you actually would like to know maybe you should read all of danikis posts all of patrickchao’s posts and read through the asian forum were another women had successful treatment with imuran.. so out of 6 or 7 people that have tried immunosuppressants 3 have been successful pretty good % rate for success if you ask me. In regards to daniel miller well i think everyone is a bit confused even daniel claimed he wasn’t sure exactly what cured him he clearly stated this in his youtube video clips. i don’t know of anyone else that has cured their lips through constant moisture method.
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you keep talking about danki because shes the only one who got cured from imuran but you dont talk about daniel miller how the leavealone with moisture method worked for him and many others dont say its useless unless you tried it for 1 year like he did or atleast speak for you self and say it didnt work for you because it clearly worked for others and what you keep talking about hasn’t   [End]
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and how about daniel miller actually the only one proving anything worked and you trying imuran and immunosuppressive witch actually proved that doesnt work but your still talking about it like it would work thats ironic   [End]
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It would be more convenient if all posters were descriptive in the message title about the exact treatment or cure so one would know whether or not to click on it for more information. Merry Merry   [End]
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thats right longterm lots of posts are full of dribble and people continuing to talk about stuff thats been done and tested and failed over and over again. and thats not true i do think there are some people who write and posts good quality stuff but like i said not many... if you read through the forum and search certain treatments and key words you can find all the info which has previously been mentioned. some people don’t even read through threads before posting and are always bouncing off topic which makes it difficult to spend lots of time reading dribble. i think its best to keep ea ...
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read my posts. and get ya self a hobby(that girl)   [End]
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well my friend its actually a world first and no one has tried this drug so it could possibly work. I’m not saying its a guarantee I’m just saying its something new and targeted therapy for inflammatory skin conditions. yes it won’t cure us but it could be a great treatment which fully manages and clears the symptoms. which i would and many other would be very happy to have. there are people in the world that go to doctors and get successful treatments. i was previously against them till i realised and came to common sense that this condition is very rare and difficult to treat. I’m sur ...
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Unbelievable, you trust them. 10 yrs for another f***ing drug that can mess your body and doesn’t cure a shit. It’s discouraging.   [End]
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He stated that he’s unable to try it because it’s only available in the USA, not his country right now. I chimed in this thread because it’s tiring to read lots of posts he writes stating how everyone’s posts suck except for one or two posters he names. And everyone else’s posts suck.   [End]
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Calm down jeez ! It’s you who are ugly by insulting everybody !!   [End]
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why don’t you go get it your self and inform us instead of tellilng others to do it?? youre ugly   [End]
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i havent i seen the link you posted just like before that comment its nothing to be exited about like i said but who knows its better then talking about nonesence and spending thousands on test that end up being pointless   [End]
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what do you think your doctor prescribed you steroid pills and ointments.. hello thats what they use for atopic dermatitis and other forms of dermatitis. In fact everything that has ever worked on this forum for people 99% of the time is what they use for people who suffer from dermatitis conditions. The hard part is what kind of dermatitis it is. and to be honest i don’t care if i ever ”cure” this condition i just want a treatment that completely clears the symptoms like imuran did for daniki. people have lots of conditions they manage and live a long happy life with treatments   [End]
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i think tiger actually googled and read the articles i put up about the ointment and realised it is a world first and is completely different to standard ointments and creams we have previously tried. Like i said it might work it might not work but at least its something brand new that no one has ever tried. and its a targeted therapy and the first new treatment in dermatitis in over 8 years. definitely something to bring hope to us.   [End]
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http://www.curezone.org/forums/fm.asp?i=2347843#i   [End]
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there trying to drag you into the crazy talk jsl   [End]
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i dont bash anyones theories. in my opinion this forum just continually dribbles about old theories and treatments and we all seem to get no where. reason why theres only ever been a handful of cures. Lets face the facts. I actually barley come on here anymore because i read the same stuff week in week out and its been going on for YEARS. when someone actually tries something new or something that makes sense and could work i enjoy reading stuff like that. FINALLY SOMETHING NEW SO OF COURSE ITS POSITIVE!   [End]
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didn’t say that mate. happy for you to post what ever you want but on this thread can we please just discuss the new treatment which was mentioned just so it doesn’t go back and forward off topic. i actually think you post some good stuff.   [End]
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Well it wouldn’t be worth me opening a thread or Pming you about something you don’t want to discuss and I do respect your wishes for me not to post anymore so I won’t. I hope this is your answer and that other people find this to be so.   [End]
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I think he said a test showed that he had an autoimmune disease. But he blew it off or doesn’t focus on this. However, it could be the cause of his EC. What test was this and what type of autoimmune disease is this? Posts like this remind me of a political figure who says only his ideas are the greatest while bashing everyone else’s ideas in a condescending manner.   [End]
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I don’t think ec is atopic.. and new medicine will be expensive in usa price will be 580 dollar(60gram) in my contury(korea) more expensive if it work but not permanent sososososo expensive I saw improvement improved part build up sometimes.. but very thin I can rud them off. but then build up very thin I think thin part have reduced inflammation I don’t no what reduce inflammation I think there is way to cure I think something make my inflammation worse now I saw again improvement the middle of December in this period I used steroid ointment and pills (steroid ...
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Mate iv told you iv done it all.. had 3 private lab stool tests the expansive ones.. iv told you results came back with slight dysbiosis.. which probably a third of the world has so its no biggie the issue with stool test is your gut bacteria is constantly changing depending on your intake of different variety of foods. iv had my hormones cortisol levels thyroid all that checked and its all normal. I will say this for the last time the only thing ever found was i had high elevated levels of inflammatory cytokines in my biopsy. Now i recently had standard blood tests and something a ...
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Ok fair enough. So you’ve been tested for gluten sensitivity and it’s all come back negative? Been tested for lyme and it’s all negative? Had stools samples/blood tests and no digestive or hormonal issues? No inflammation detected? No other issues other than EC? Yes it is demoralising for me but I just fear whether you’ve had proper diagnostics with correct feedback. There is a lot to get wrong and you know that as well as I do. I have about as much interest in stringent diet plans as you do, believe me when I say that. I’ve tried a few myself and it’s compounded my probl ...
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i haven’t looked into if its under european approval. on know dupilumab has just been approved for investigation by the european medical association which is good news hopefully it will be accepted shortly after the fda approves it. I’m sorry but i don’t know much about.. maybe consult your dermatologist or speak to a local pharmacy and see if they know anything about its availability. I’m sure you could do more research on the internet and find out information regarding it in europe.   [End]
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mate thats because i realised for me and like many people theres no connection.. i tried taking out gluten for 1 year i tried taking out dairy i tried taking out grains i tried doing them in combinations i tried candida diet i tried aip diet i tried vegan diet... iv done alot mate if you think ec is related to the gut due to leaky gut because you think you got an overgrowth infection or digestion problem its not rocket science do the aip diet. invest in the paleo mom book she goes into gut related conditions and how to heal the gut in the most detail professional way i have researched. ill ...
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That’s an interesting article indeed. It could really help to fight the EC. We don’t have a date of the availability of the product in Europe though.   [End]
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Why don’t you post examples of what you mean by ’’dribble and old theories’’ ? I have to look at myself because I don’t think it’s new or positive? ... I am looking at myself and everything so far suggests that EC is at least in some way related to the gut. I’m curious to know why that is or isn’t the case for you? ’’Most are dribble and equate to nothing’’ .. Give examples of what you mean ? You say I’m about alternative ’’stuff’’ and ’’doing diets and this and that’’ ??.. I’ve eliminated gluten. That is the only lasting change I have made so far to my diet and my lip p ...
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tergot get real mate. unfortunately 90% of the posts on this forum are dribble and old theories that have been done years and years ago which fail. if your seriously trying to suggest this isn’t something new and positive you have to look at yourself and ask yourself why? this forum has been going for over a decade with barely any new treatments finally we have something to look forward to and this is your response? don’t get me wrong there is some stuff that is posted which is good but the reality is most of the posts are dribble and equate to nothing. i know your all about the alternativ ...
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I think you are the one posting negative crap to be quite honest and I take offence to that. I and many people are trying to get to the route cause of our EC, you clearly have given up and you cannot explain why you have EC but you claim you have the answer for everyone. You try it, it’s your idea.   [End]
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i will ask and talk to my doctor about it next month   [End]
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i don’t live in the u.s.a I’m waiting for dupilumab to be approved in march then flying over to try both these treatments. can’t wait! if any of the members on the forum are from u.s.a can you please let us know if your going to try this! i reckon this is huge! and would encourage you to go talk to your doctor about getting a prescription most people see clearing or close to clearing after a few weeks of application!   [End]
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your right its better news then alot of crap in here hopefully it could help are you planing on getting it? and if so let us know how it goes   [End]
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do your research man. its not like all the other creams. its a new approach nothing like a standard steroid cream. its a new class of medication nothing like the old. its been years in fact almost a decade since anything for new treatments for inflammatory dermatitis conditions. theres been enough negative crap on here for years and all the bullshit. finally something thats new and its a targeted therapy which is promising.   [End]
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i dont know why your so excited about another cream theres tons out there that help maintain but dont heal ec it sounds like another protopic give it a try might help but dont be to excited it will heal you its just another one of these creams   [End]
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Eucrisa works differently than other topical treatments on the market. It is not a steroid or a topical calcineurin inhibitor. When applied to the skin, Eucrisa is thought to work on an enzyme called phosphodiesterase 4, or PDE4. PDE4 is produced by cells in our immune system and helps the body regulate inflammation. In clinical trials, Eucrisa was shown to reduce symptoms of AD such as itching, redness, lichenification (thickened skin), weepy rash, and raw, scratched lesions. Overall, participants in the clinical trial achieved clear or almost clear skin after 28 days of use.   [End]
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https://nationaleczema.org/fda-approves-new-topical-treatment-for-mild-to-moderate-atopic-dermatitis/   [End]
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http://www.pfizer.com/news/press-release/press-release-detail/pfizer_receives_fda_approval_for_eucrisa_crisaborole_a_novel_non_steroidal_topical_ointment_for_mild_to_moderate_atopic_dermatitis_eczema FINGERS CROSSED THIS GIVES GOOD RESULTS! IF YOUR IN THE U.S.A GO SEE A DERMATOLOGIST AND GET A PRESCRIPTION! THIS IS VERY PROMISING! PLEASE IF YOU DO GET THE OINTMENT PLEASE PROVIDE US UPDATES AND LET US KNOW IF IT WORKS!!! REALLY EXCITING THERES NEW TREATMENTS FOR DERMATITIS!   [End]
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The steroid I’m using is called Timodine   [End]
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”What else should I test for? Maybe I have a food intolerance?” The question is not ”Do I have a food intolerance?” The real question you should ask is: ”What foods do I have problems tolerating?” Why? Cause if you do have a chronic condition in the eczema, asthma, allergies, etc spectrum (including but not limiting to atopic dermatitis, EC, oral allergy syndrome, seborrheic dermatitis, other environmental and food allergies, asthma, etc), the question is not ”Do I have food intolerance?”, cause you for sure have problems tolerating some foods, the real question is” what is t ...
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If you have fordyce spots, they produce sebum.   [End]
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healed313 iv been saying ec is a form of eczema for a while now what form i don’t know but i would most likely think its an allergic dermatitis or possibly a sebrohic dermatitis though the lips don’t produce sebum so i would be more inclined to think its a allergic/atopic dermatitis. it would be interesting to see how many people with ec have a history of asthma in their life or if there family members suffer asthma as it seems these two diseases have close similarities   [End]
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