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Thousands have taken biopsy
by White Shark 10 y
Thousands have taken biopsy.
Not very many of those who have taken biopsy have ever come back to report being cured by the same doctor who took biopsy or by any other doctor using biopsy data to establish diagnosis.
Even worse. Some consider the scar left after biopsy worse than EC.
Read:
1,184 hits
Forum: Peeling Lips
www.curezone.org/forums/fm.asp?i=2232004
Re: Biopsy of salivary gland planned in 2 weeks
RN WARNING by lampwick 16 y
I had a biopsy done over 3 years ago and I still have a huge scar that’s way worse than peeling lips ever were. It’s a hard, discolored, partially numb lump of scar tissue and I can still see the cut lines. And the biopsy didnt even reveal the reasons for my lip problems. After that I looked over the peeling lips forums for biopsy results and no one has ever discovered the cause of their peeling lips from a biopsy. A biopsy will only make things worse.
3,505 hits
Forum: Peeling Lips
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Re: look!!
by jsl123 13 y
and she not willing to put up her biopsy results whihc i find strange. i mean if i had results like that in my biopsy i would be glad to show it to everybody.
its unforunate but it still might actually be.
the docs said aldera could of manipulated my biopsy results. so im still abit unsure although the docs said i defs dont have it. but i dont know if they really checked for it or not. some doctors are very hard to talk to and dont listen alot.
so it would be good for some people to get some new fresh biopsy’s with their crusts on and get this time get it checked more in depth. im ...
1,324 hits
Forum: Peeling Lips
www.curezone.org/forums/fm.asp?i=1988726
It is your lips, your call !
by White Shark 8 y
You can find several biopsy stories on this page:
https://www.curezone.org/forums/s2.asp?f=403&c=19&ob=v
So far, in the 10 + years of this forum, nobody, not a single person has ever come back after biopsy and reported:
”I am so happy I took that biopsy! It has helped me cure my lips.”
I may be mistaken, so if I am, and if you actually know of such a story, please share the link with us !!!
In the same time, dozens, if not hundreds have come back and regretted biopsy, many reported about having one more ugly scar on their lips!
Here is one example:
...
917 hits
Forum: Peeling Lips
www.curezone.org/forums/fm.asp?i=2395232
Re: Biopsy results
by Nousername 8 y
Here are the important parts of my biopsy results. I translated it to the best of knowledge.
Skin biopsy 0,2cm
Microscopic description:
Lip biopsy shows visible uneven hyperplasia of epidermis, subepithelial layer mucinosis, very slight perivascular and interstitial lymphocyte infiltratation.
Clinical Diagnosis:
Lower lip cheilitis, urtcitaria, lip mucinosis
Final pathological diagnosis:
Changes seen in the biopsy are compatible with lip mucinosis diagnosis
1,892 hits
Forum: Peeling Lips
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Re: Biopsy of peeling lips result yeast infection.
by dm0923 19 y
Hey everybody. It seems that of the people who’ve had biopsy’s, some have had yeast infections and some haven’t (I would assume that labs would always test for this, but not absolutely positive). I’m not sure what this means, but please keep us updated with how the diflucan works. Also, it was reported that for the biopsy’s that didn’t mention a yeast infection, only a nondescript inflammation was noted (they were described in previous threads on this board.
33,992 hits
Forum: Peeling Lips
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Re: I am praying..
by sirpreis 13 y
I think you do need a biopsy or at least something like a biopsy to test for HPV, as it pretty much doesn’t spread into the blood stream but stays in the affected area of the skin (at least that’s what I’ve read and was told; it might be true for some kinds of the virus (there are like 150... ”high-risk”, ”low-risk”...).
And yea, like doc10 said, just because people had a biopsy done, that doesn’t mean that they were tested for HPV. My biopsy was definitely not tested for HPV (the results said something similar to ”the area could look like a virus infection”. So after my biopsy, they wa ...
1,348 hits
Forum: Peeling Lips
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biopsy's done!!
by jsl123 13 y
View Entire Thread 3
i have had my biopsy’s and there getting cultured in the lab as we speak. theve taken a massive deep biopsys. now they have said hopefully they will find something but because the aldera treatment has changed the lips it could be complicated.
also it could take upto 8 weeks for the biopsy to be examined fully.
so can somebody please go and get a biopsy done and ask the doctor to get everything checked and cultured not just the usual basic check. if it is localized infection the answer is going to be found in the biopsy. so please go get it re done and make sure its checked for everyt ...
792 hits
Forum: Peeling Lips
www.curezone.org/forums/fm.asp?i=1985544
Re: Ec sufferer
by oaktree1983 9 y
It depends on what type of biopsy they do. If they do a punch biopsy, it heals very quickly and doesn’t leave a scar. If they go deeper and actually cut with a scapel, then it might leave a slight scar. I’ve had both and have no scar with the punch biopsy, but the deeper biopsy I did a long time ago still has slight scarring.
It’s going to be hard for a dermatologist to really treat your condition unless they are able to do a biopsy. Good luck!
821 hits
Forum: Peeling Lips
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Should i let my dermatologist take a biopsy of my lip?
by willTho123 8 y
View Entire Thread 5
I know from everyone esles perspective it would be great because they get info without having the biopsy but if you was in that position what would you say. Have people had biopsies done before on the lip with ec? My only worry is the scar, i had a biopsy done on my arm and she took out a reasonably sized chunk and if that was done on my lip, it would look even more messed up. Any advice is appriciated :)
825 hits
Forum: Peeling Lips
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Re: Zyclara
by Vunk 13 y
By the way JSL, did they do the biopsy in your triangular part or in another place of EC area?
My light biopsy analysis just showed parakeratosis, but I think it’s important to know if the problem is just superficial or more deep. I guess our biopsies would have had shown if we were affected in depth.
I realize I don’t have Zyclara in my country, the only product with Imiquimod is Aldara, but more highly concentrated than Zyclara.
2,174 hits
Forum: Peeling Lips
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Re: unfortunately guys i give up!
by sirpreis 13 y
Yea, using Aldara before getting the biopsy done might have been a factor. That’s why I said I would rather do the biopsy and test for HPV before getting a(nother) biopsy done.
Maybe the Aldara treatment was kind of successful, activating your immune system which in turn was then able to fight the virus itself. Maybe that’s why they didn’t find it. Or, there might have never been a virus involved.
2,394 hits
Forum: Peeling Lips
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Re: Biopsies
by kartiks. 17 y
Biopsy is a waste of time & money and most importantly ”hope”. Doctors who advocate biopsy either don’t know how to cure ec or they simply want to make a deep hole in your pocket. When Doctors fail to find the cause for ec and prescribe %¤#&!§-steroid ointments or worse ”a biopsy” instead proves the point that they know absolutely nothing about ec....I have completely lost faith in Modern medical science and would never recommend it to any body. am currently under ayurveda and keeping my fingers crossed...
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Forum: Peeling Lips
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Re: biopsy
RN WARNING by lampwick 19 y
I had my lip biopsy a year and a half ago. My lips still peel but not as much. My biggest problem is the scar from the biopsy. Theres a hard lump of scar tissue and the area is all red and purple and wrinkled and slightly numb. I hate my derm cause I only agreed to the biopsy cause she said it would heal in a couple weeks at the most and not leave a scar. When I went back a couple months later to complain about the scar she said either deal with it or go see a therapist. If anyone reads this dont ever get a lip biopsy.
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Forum: Peeling Lips
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surgery
by cureforcurezone 20 y
View Entire Thread 6
hey everyone ive been seeing a doctor at one of my cities best hospitals and aug 22 they are doing a biopsy of the lip so they can find out the real problem. she thinks its a fungus deep down within the lip the is causing it and i guess well soon find out. im also seeing a plastic surgeon the day after to find out options so ill update here but the good news is that when she does the biopsy im sure most of you will have the same problem and this can help us treat it with appropriate creams rather then guessing like always. ALSO. She is going to cut out a part for the biopsy where it is ...
2,076 hits
Forum: Peeling Lips
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Re: Does anyone know effects of cutting affected areas away.
RN WARNING by Sonrise 15 y
I can only share my experience. I had 2 ”punch biopsies” when I first contracted EC almost 4 years ago. The Dermatologist sent them away for analysis and whatever he was looking for i.e. cancer, was not found.....nor was a diagnosis. I was left with 2 white spots where the biopsies were done and my skin peels in the biopsy area just as the rest of my lips do. I will say the area was greatly traumatized at the time of the biopsies but my scabs were so thick and painful then. Now the area looks more like the rest of my lips.
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Forum: Peeling Lips
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Re: Lips getting worse
R Warning by ahr 15 y
It will but I have found with these rare conditions that the person doing the biopsy does not properly diagnose it.
For example my biopsy said actinic cheilitis(which means caused by the sun).
It was not that and I even took 5-FU cream to to prove it.
So a lot time these biopsies are wrongly diagnosed and depends on skill level of person doing biopsy.
Also note if your lip is nodular (when you run tongue along the bottom you feel a bump(s)) this could indicate OFG.
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Forum: Peeling Lips
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Re: some thoughts on our condition
by MrMessy 14 y
FunStuff,
I have re-read your post and there things in it that I have difficulty with. You write ’biopsies do not cover all types of bacteria/fungi’ but biopsy would not be a usual method of diagnosing an infective condition or indentifying a bacteria or fungus. That would be by culture and I agree that culture might not grow everything. Now you can often see fungi in biopsies if you look carefully for them but fungi are common in the mouth but they are not necessarily of any significance. They can also colonise tissue which is already diseased so the presence of fungi might be a second ...
2,309 hits
Forum: Peeling Lips
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Re: Picture of my Lips
by Healing2021 13 y
Heavenlyhealing get a lip biopsy and culture to find if you you have an infection of any kind. I got a deep tissue lip biopsy (which is necessary). I think it was called a punch biopsy,like they punch a little hole in you lip (like a core sample). Anyways they just took half of that biopsy and cultured it which Im pretty sure is how they find a fungal infection.
And JamesHarden, this is the first time since I have started the ”leave it alone method” that my lips have looked this good. Believe me they looked disgusting, Im sure as disgusting as your looked/look. So as you can imagine Im ...
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Forum: Peeling Lips
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Re: lip biopsy
by Healing2021 13 y
Im happy to hear you healed from the biopsy. I just had a biopsy, culture, and blood test done today, and I was really worried that the biopsy would cure. Why would a biopsy wound heal but this ”trauma” wont heal? I think that may reveal something about EC. But I agree, I think people need to start getting things done instead of sitting around being angry that they arent healing. If you want to heal then start trying to figure out whats causing this. Its great that your going in for testing, be sure to keep us posted if you can and if not just come back when your done and share everything. ...
2,995 hits
Forum: Peeling Lips
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Re: Well it looks like I'm getting Angular Chel as well.....
by Healing2021 12 y
You should just get a biopsy and see an internist.
I know you are early on in this process so you have an excuse, but people on this site constantly go back and forth on how they think it is an infection or not. When they could just go get a biopsy and see an internist to find out. Its like people WANT to just keep guessing about what this is, and expect the solution to slap them in the face. Its ridiculous.
A biopsy does not hurt and will not scar if you get someone decent to do it. And of everyone I have read about getting a biopsy, all of them have healed fairly quickly.
But ...
1,875 hits
Forum: Angular Cheilitis
Peeling Lips
www.curezone.org/forums/fm.asp?i=2022480
Re: Biopsy results - yeast and bacteria
by Ibinns 13 y
For those questioning the results of a deep biopsy, I’m going back to my doctor in just a few short hours. Waiting for today felt like a damn year. However, my appointment with my doctor has finally come and I can’t even sleep as I am aching to find out what he is going to tell me. I hope it is some type of good news. I’ve had EC for over 18 years now and having it cured would be my Christmas present of the century!
By the way, the biopsy done on me was 75% deeper than what a normal biopsy is done at, hence the potent numbing agent & stitches I needed. The doctor also told me that the b ...
3,132 hits
Forum: Peeling Lips
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I got EC after I got a biopsy
RRR Warning by anthic 12 y
I did a laser resurfacing, but that was about 2 years ago.
I got EC after I got a biopsy on my lower lip 4 months ago. The result of the biopsy was negative, and unnecessary. I’ve seen 7 doctors since I started with this problem, and they told me it was uncecessary. Before the biopsy I was fine, I just had a freckle on my lower lip. It was something preventive. I still regret of that decision.
Now all my life has changed. I did the biopsy to prevent a possible cancer, and now I’m living a hell.
A sad and cruel paradox of life.
2,204 hits
Forum: Peeling Lips
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Re: unfortunately guys i give up!
by jsl123 13 y
sirpes the problem is the docs said maybe my biopsy results would be different if i didnt recently put aldera on as aldera actually can manipulate the cells for weeks.
so im going to get another biopsy in a few months if i decide to get another one whihc i highly doubt. im so tired of ec both physically and mentally. its drained and ruined my life!!!!!!!!.
i use to literally bouce out of bed these days with ec i cringe at the thought of getting out of bed. its very sad!!!!!!!!!
so i still believe if there is going to be a solid answer it will come out of a biopsy result like lilo. ...
2,336 hits
Forum: Peeling Lips
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Re: kinds of diagnosis
by Healing2021 13 y
I never said its not likely that we dont have the same thing, Im just mentioning that we are nowhere near knowing that we all 100% have the same thing.
And you keep saying that we all have the same symptoms, but that doesnt even begin to prove that we have the same thing.
Sure I THINK we all have the same thing, but we havent proved it, even your doctors said. And if your biopsies dont come back with wart, then you will know we dont all necessarily have the same thing (hope we do tho).
So JSL, we keep discussing whether its possible that our biopsies werent tested for viruses. Wh ...
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Forum: Peeling Lips
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vunk and your biopsy
by jsl123 13 y
vunk have your results come through yet? also most of us have gotton the biopsy from our bottom lip im wondering if we should get the top triangular part cut out and examined. also my speacialist said i shoudl get biopsy’s on both lips once with the crusts off and then once with the crusts on i was horrified knowing that im going to have to get 4 biopsy’s in fact the were going to take a biopsy on the inside of my check and inside of my throat and also up my noise quite bizzare but thats there plans to examine my mucosis skin or what er the f*** its called.
anyways vunk have you recie ...
287 hits
Forum: Peeling Lips
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Re: lip biopsy
by jsl123 13 y
you guys should defs have a lip biopsy done. i get admitted into hospital this week and the first thing there doing is taking biopsy’s of my lips two infact one on the top one on the bottom also inside my cheeks and also one biopsy inside my noise. your lips will heal from a biopsy no worries. iv already had 2 done on my lips. they just want to take a deeper biopsy and to also get the biospy’s better examined. were trying to figure out what the heck is causing the crusting. also doing the leave it alone method for 1 or 2 months isnt going to cut it i would give it a minimum of 6 months and ...
3,071 hits
Forum: Peeling Lips
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Re: Quick heads up on my biopsy
by jsl123 13 y
hey sirpies
thats great news! i didnt know that they can make a diagnosis from a biopsy for exzma and certain skin conditions??? i first thought way back my ec was a type of exzma but all the docs told me it couldnt be becasue its on the lips! i hope they were wrong! i posted about exzma today asking if anyone has tried exzma creams! so what are your thoughts on it? and is she going to treat you with creams or oral medication or both??? if it is exzma condition that would explain why it settles down after a while doing the leave it alone method and clears up as exzma condition can leave ...
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Forum: Peeling Lips
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Re: my biopsy and doctor:it is granulomatous chilites
by meandyou 15 y
yeah i could have told you that biopsy been there tried that same report a bit of inflamation thats all. yeap there really is no cure i mean come on 10 years others 15 give up already its over good luck with the meds but its over done it all biopsy, injections, chemical peels,laser, antibiotics, antifungals, antinflammatory meds,. over the counter meds, vitamins, diets, everything trust me everyting. there is no cure end of discussion
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Forum: Peeling Lips
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Re: update
by jsl123 13 y
let your lips go wild and crusty and gross and go in and get a good size biopsy done and get it anylyzed and cultured for everything and anything.
i had a colonoscopy and endoscpy and everything is all good infact he said my system was great! also another lady had colonscopy and she was all good aswell. i would definately get biopsy, swabs and blood tests done properly and anaylzed fully. then maybe consider colonoscopy
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Forum: Peeling Lips
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Re: sirpreis...pemphigus or impetigo?
by sirpreis 12 y
They’ll have to do a biopsy which I have refused so far. The symptoms are not really like Pemphigus, so I really don’t think that it’s that. But I might do a biopsy sometime in the future. I just don’t want to do it in the middle of another ”treatment” (”moist healing”). I’ll let you know, but it might be a while.
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Forum: Peeling Lips
Pemphigus Vulgaris
www.curezone.org/forums/fm.asp?i=2136720
Re: Bepanthene PLUS?
by Nousername 12 y
Didn’t really get a biopsy done, since there’s little point if the doctor doesn’t know the diagnosis or treatment.
Of course I’m not really saying that I am 100% sure that I have it, but some of the symptoms almost fit perfectly and when the swell ups flare up they look almost exactly like in some of the pictures.
I’m planning on getting a biopsy done not too far ahead, but only after some stuff works out in life and, well, probably abroad as well.
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Forum: Peeling Lips
Fordyce Spots
Skin & Face Cures
www.curezone.org/forums/fm.asp?i=2077787
Re: lamprene
by cureforcurezone 20 y
sorry, the other guy i meant used it, not you. also mine did improve ove 2 years also by just leaving them alone then they went right back to how they were initially after using a few diferent drugs or creams on the lip. I am currently trying a few things so remember to check up later once i post my update for the biopsy and skin resurfacing. By the way, all signs point to a fungus infection as far as i can see. The biopsy will tell.
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Forum: Peeling Lips
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please respnd...im so upset
by #66717 19 y
View Entire Thread 8
i have a blob on my lip from a cut slit biopsy..the blob is next to the cut (nothing to do with it exactly)..it was big and numb at first,,then it started to go down...its still noticable though and is still kinda numb ish... i know its the local anesthesia ..i know its still in there maybe i need to do some exercise to burn it off(adrenaline and all). please tell me your experiences with a slit cut biopsy. :(
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Forum: Peeling Lips
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Re: cureforcurezone
by cureforcurezone 19 y
yeah there mine unfortunately, i look at them and think whoa, i just showed a friend the website and they said that its hard to believe a thing like this even exists, it made me think that I wouldnt believe it if it didnt happen to me. Anyways, my biopsy was on the left side, yes it is less lip there cause of the biopsy. it is normal to be like that on the other side, thats what it is supposed to look like.
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Forum: Peeling Lips
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Re: sirpies!
by jsl123 13 y
hmmmmmm sirpies im sorry but all my speacilist i saw said these two things are easily diagnosed.
except my biopsy might of been different if i wasnt on aldera the week prior. my lips only recovered for 2 days and then i got my massive biopsy! so who knows even the doctors said it could of been different although now i have had 4 biopsy’s so i would pressume all the pathologist that analyzed it would of noticed something. i mean they are speacilsit that have studied for 5-10 years and have decades of experience. unless like i say they have cultured and checked for something like exampl ...
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Forum: Peeling Lips
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Re: 64643 and muhammed...
R Failed Remedy by Rising_Sun_0301 17 y
Well, years ago when they did it, they did a wedge cut biopsy on the outside lower lip which wasn’t the best choice in hindsight in terms of aesthetics. The biopsy healed but it sucked having that a gash on the lip. The scar eventually healed but there was still peeling over the scar. I would recommend they do a punch biopsy on you from the inner part of the lip from inside of the mouth that penetrated deep enough. That would be the best choice I think cosmetically.
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Forum: Peeling Lips
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Re: salicyclic acid mixed with vaseline
by #96194 17 y
chris_ juno, I appreciate for your feedback and research, but the statement ” Salicylic acid possesses a keratolytic action that erodes the hyperkeratotic lesions. However, lips are not hyperkeratotic skin” is not right. probably the person who wrote(phd) about this doesnt know much about the lips, because I gave a biopsy twice in different labs in different times and the result was that they found HYPERKERATOSIS in the biopsy, so lips can be hyperkeratotic skin, in my point of view he didnt have a chance to see a condition like ours, the meaning of hyperkeratosis is...thick and hardened s ...
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Forum: Peeling Lips
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to lip biters
by #66717 19 y
View Entire Thread 7
the best way to heal ur lips is to use bactroban...iv tried the scab thing ,,it does work but it takes an awful long time and it sometimes slips off requiring u to start all over again. i have just had a lip biopsy and my lips have gone completely weird, i have local anesthesia injected into my lip and i think it has had an effect on the way the skin forms on top of the raw areas...please let me know if this has happened to u.
anyway i did the bactroban thing before the biopsy and it healed almost all of my top lip and some of my bottom, way faster than that scabbing thing did... basica ...
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Forum: Peeling Lips
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Re: biopsy
by #66717 19 y
where is this bump? on ur pics u have a pic hightlighted with green (lip biopsy scar) on the left..but then later on theres a pic with redness on the right from biopsy... did u have biopsies in different places? also in the other pics i can see a bump at the bottom of the cut,,is that what u mean?... i dont have a hard lump , just a blob....(do u have a hard lump inside the blob?).its gone down ..oral surgeon said it is cos saliva gland is slightly blocked from biop,,but will unblock as it heals properly and the blob will go away.
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Forum: Peeling Lips
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