I’ve been on this site for about 7 years, and I can’t remember ever hearing about breast atrophy, so that’s a new one. Perhaps that’s the way your body reacts to the fake hormones, who knows. The rest of it is totally consistent with Mirena though. I’ve heard many that run into problems with their second mirena too. You’ll find that the longer you leave it in, the worse your symptoms will become, and longer it can take to recover, so if it were me, I’d get it removed ASAP. Good luck! -nile   [End]
[retrieve this message]

---

Yes, that is almost surely from Mirena. You were smart to have it taken out! You might need to give it some time to get over the vertigo, but everyone is different. I hope you are one of the lucky ones who bounces back quickly! -nile   [End]
[retrieve this message]

---

Glad to hear that! It’s great to hear that you are doing well! How have you been feeling?   [End]
[retrieve this message]

---

You might want to get checked out. It could be that the Mirena migrated out of your uterus and is causing problems. Are you able to feel your strings?   [End]
[retrieve this message]

---

So glad you found the cause, and are now on your way to recovery! Sometimes it can be one step forward, two steps back, but time will heal this. Many of us are vitD deficient, by the way. It has to be caused by the Mirena. I take 6000 iu per day, and it helps. I am finally in the normal range with my labs. You may want to consider that, and other supplements that others have found helpful. Good luck and be sure to post about your recovery! -nile   [End]
[retrieve this message]

---

This is great information, thank you for posting!   [End]
[retrieve this message]

---

YES!! It’s the Mirena! I had this too. My BP would shoot up out of nowhere, and my heart would start racing. Freaked me out. I had to go on BP meds for a year or so after removal (I’m fine now). Get that thing out before it does some serious damage! Good luck, I hope you’ll post back with your progress. -nile   [End]
[retrieve this message]

---

You should try to have it found. It can move around and cause internal damage. You would have noticed it falling out! Stick to your guns, even if they try to make you feel stupid. It’s happened to a lot of woment. Good luck!   [End]
[retrieve this message]

---

I had the anxiety and panic attacks as well. I went on Zoloft for a while, until I improved enough that I didn’t need it anymore. It does have side-effects, but the benefits to me outweighed it. Be assured that this is a side effect of Mirena that many of us experience. It will improve over time. If you need to go on anti-anxiety meds for a short time to get by until you no longer need them, then by all means do it. Also, do make sure they check your Vitamin D levels. Many of us have been low, myself included. Be sure to avoid caffeine and alcohol, and get as much rest as you can s ...
[retrieve this message]

---

You are right, it is the Mirena, and you are smart to get it removed. It may take some time for your body to even out after removal, but you will get better! Good luck! -nile   [End]
[retrieve this message]

---

Just hit my 6 year post removal anniversary, and wanted to give an update on how I’m doing. I’m one of those who took a LONG time to heal. Longer than most. This last year has seen even more improvements for me. I’d say I’m at about 98% now. Most days I don’t even think about my side effects or Mirena anymore. I’m still doing the same things I mentioned in my 5 yr update http://curezone.com/forums/fm.asp?i=2061145#i except I switched to natural dessicated thyroid instead of synthetic, take a B12 complex and a Magnezium-Zinc-Calcium supplement at bedtime, which I find helps me ...
[retrieve this message]

---

Your story is very much like many of us. Yes, it’s the Mirena causing your issues. I got pregnant (surprise!) about 1.5 years after I had mine out (had heart palps, anxiety, panic attacks, brain fog, etc, etc.) and that pregnancy was tougher than my two previous. I had much worse morning sickness, low energy, and many odd mirena sysmptoms. I had to give my body as much rest as it needed. I spent so much time on the couch! I had the same tests as you, all came back normal. Not to worry you, but just inform you - I ended up having my blood pressure shoot up AFTER delivering my baby, w ...
[retrieve this message]

---

I know a lot of us have been tested for MS (myself included) because of the similarities, and at least one had brain lesions, but I can’t remember anyone on this board who actually got diagnosed with MS. All the symptoms you describe are Mirena symptoms - you need to get it removed ASAP! And recovery may take a while. You definitely want to get tested for MS however, to hopefully rule it out. Many have had low Vitamin D levels and Thyroid, and many get their hormone levels tested as well. Good luck, and hope you’ll post back with your progress! -nile   [End]
[retrieve this message]

---

So glad you found the information you need! Yes, it could take a while to recover, and it seems the longer people have it in, the longer it sometimes takes, but that’s not always the case. I hope you recover quickly, but don’t be surprised about the ”crashes” that most of us have at various points after removal. Good luck, and keep us posted on your recovery! -nile   [End]
[retrieve this message]

---

Hang in there, it does get better as time goes on. Yes, it’s most likely all mirena caused. Some of us just take a lot longer to recover. I’ll be 6 years post in May, and I feel pretty good almost all of the time now, but it took me to the 4 1/2 - 5 year mark. As time goes on, you’ll notice fewer and fewer panic attacks. One day you won’t be able to remember when the last time you had one was :) Some things that I do to keep mirena panic attacks at bay are to eliminate all caffeine, limit alcohol, keep my vitamin D levels up, keep my thyroid levels from being hypo, rest when I need it, ...
[retrieve this message]

---

Glad to hear you’ve had great improvement! I’m 5 1/2 years post, and it’s been a hard long road for me, but I’m feeling pretty good most of the time now. I do still get occasional symptoms, including that darn eye twitch, and a twitch in my esophagus (tripped me out at first, so close to my heart!) Drinking when I’m feeling the ”Mirena yuckies” is a bad idea, and makes me feel so much worse, so I avoid it when I’m not feeling great. I still avoid caffeine. So, to answer your question, yes, it’s not unusual for you to still have these issues, and they will continue to improve. Some of ...
[retrieve this message]

---

Thank you for posting! I’m sure this will help the many others who have skin issues caused by Mirena. If you wouldn’t mind, I know it’d be helpful to post any remedies that you have good luck with? Best wishes, and please post back with updates! -nile   [End]
[retrieve this message]

---

Hi, this is a pretty old thread, but now that it’s been over a year, I still get this once in a while. It seems to come and go. It doesn’t worry me so much any more, so the panic that goes with it has gone away mosty. Still get a little adrenaline surge with it sometimes though. I still am not quite sure what it is. Interesting that you have the history of stomach problems with it. Did you also have issues with Mirena?   [End]
[retrieve this message]

---

I know some women take quite a long time to get better from Mirena, but I have seen several women with Paraguard that have the same symptoms as Mirena. So you may be having continued problems because of the Paraguard. So that may be something you can look into. Good luck! -nile   [End]
[retrieve this message]

---

I currently experience a dull aching feeling in my thyroid off and on over the last year or so. It happens to be in the same place I have a lump there (had it ultrasound and biopsied, and it’s not cancer). I don’t know what the feeling is caused by, but do mention it to your doctor, if they haven’t already tested your thyroid levels, you’ll want to. After a few years post removal when I was still feeling awful, my TSH was slightly high (hypo thyroid), so I went on a small dose of Synthroid, and it has made all the difference for me, along with the vit D I am taking. I remember some ...
[retrieve this message]

---

These are all Mirena symptoms. Many are similar to the hard-to-describe neurological symptoms I had as well. You should start to see relief after removal, although some recover faster than others. (I am 5.5 years post removal, and am one of the longest here still active. I get noticeably better each year, and don’t even think about it too much anymore). I would expect it to take a little longer than many, given how long you had it in. But you could be one of the lucky ones (I was not so lucky). My advice would be to keep getting your thyroid and vitamin D levels checked over time. Ma ...
[retrieve this message]

---

Can you share what supplements you are taking? I’m so glad to hear you are doing better!   [End]
[retrieve this message]

---

Yes, definitely! I had the heart palpitations too, and before long it turned into full blown panic attacks, with racing heart, short breath, etc. Please get it out before you get to that point. It only will get worse!   [End]
[retrieve this message]

---

Have you had your thyroid and vitamin D levels tested? They seem to be common problems for us former Mirena users (myself included).   [End]
[retrieve this message]

---

You won’t believe all the strange things Mirena causes! Some people have ended up with gluten intolerances or other allergies because of Mirena. Maybe keep track of what you are eating for a week or two and see if you notice a pattern? There are many who have a crash around nine months, so it’s not unusual. Try to stay positive and look forward to better days ahead :) -nile   [End]
[retrieve this message]

---

Wow, it sounds like your body is desperately wanting to be off the progesterone! So many of us had the panic attacks and fogginess caused by Mirena, so if you get that removed and go natural it should get better over time and go away. Some of us just can’t handle the fake hormones. Search ”Mirena and panick attacks”, or ”Mirena and anxiety” and you’ll be amazed how common it is. Good luck! -nile   [End]
[retrieve this message]

---

I’m so glad to hear she’s doing better! I also had the vitD deficiency, and am taking 4000 iu per day, and it has helped. Your daughter had it especially bad, so it’s great to hear that she’s recovering, and helps reinforce how awful Mirena is!!   [End]
[retrieve this message]

---

Removal is generally painless if it’s not imbedded. Easier than a pap smear, at least mine was. If it were me, I’d wait a few months to start trying for a baby, because of the fake hormones that have cause women so many terrible side effects. Hard to guess how you will feel after having it out, but most of us experience a crash from withdrawal of the fake hormones. Most women who can’t lose an ounce no matter what on Mirena are able to lose weight after removal easily. Good luck! nile   [End]
[retrieve this message]

---

I know a lot of women end up with thyroid issues after Mirena (myself included, I’m now slightly hypo, and have a benign lump on my thyroid). I also would get the sudden dizziness. (I’m 5 yrs post removal, so that’s gone away for me) And the moodiness, acne, back pain and weight issues are experienced by so many of us. So it sounds like Mirena is your issue, and you’d do well to get it out asap, and see if your thyroid straightens out any. Most of us have had doctors deny Mirena could be an issue, so be prepared for that and don’t take No for an answer! Good luck and please keep us p ...
[retrieve this message]

---

I had the panic attacks as well, it’s such a horrible, horrible feeling. I’m 5 years post-removal, so they have gone away quite a while ago, and it took me longer than most to get over them. I strongly recommend staying away from caffeine. I still can’t have it, even this far out. Get your vitamin D levels and thyroid checked, if you can. Avoid alcohol as well, and get lots and lots of sleep. Try to de-stress your life as much as possible. Then it’s just a matter of healing over time, which you will. You are doing all the right things by exercising and eating healthy. Many have do ...
[retrieve this message]

---

That’s fantastic that your derm is sticking up for you. Would you be able to get her to report an adverse reaction to the FDA for you? They believe doctors more than patients. Somehow the word needs to get out that Mirena is doing some VERY BAD things to women, and most doctors need to get their heads out of the sand. Thanks for posting, and I hope you’ll post back again with your progress! -nile   [End]
[retrieve this message]

---

So great to hear from you, and glad to hear you are doing well! Always great to hear of recovery for those who took longer to get better, and that it’s possible even after feeling bad for a long time. Thanks for the update, and look forward to next year’s! -nile   [End]
[retrieve this message]

---

Well, today is my 5 year anniversary of having my Mirena out. I was hoping I’d be 100% by now. I’m pretty close, maybe 90-95%. I feel symptoms from about the second day of my period to about a week after usually, or when there are viruses in the house, but I just get extra rest and it’s ok. For those of you who’ve been around a long time post-Mirena, and can’t remember what ”normal” feels like anymore, and are wondering if you’ll ever get better - NEVER GIVE UP!! I was feeling that way even 6 months ago, and now I’m doing SO much better! I feel normal most days, which is wonderfu ...
[retrieve this message]

---

So glad that you figured out Mirena was the issue - your symptoms are textbook with what we all have been experiencing. It makes me so mad that the doctors continue to deny that Mirena can cause these things! Just think how many women with these problems ask their doctors, then just trust what the doc says without doing further research. Hope you are able to miss the crash - keep us posted on your progress :) -nile   [End]
[retrieve this message]

---

SB1108, I find Dr Myhill article interesting - especially the part where they talk about symptoms while detoxing. I can identify with most of these symptoms (although I’ve been feeling better lately, but I still have blah days). Often I would feel like I had the flu, without the sore throat and fever. Maybe the symptoms I’ve been feeling are from my body detoxing itself! Although I wonder how long a body needs to detox Mirena. It’s been a long time for me. The following reported symptoms, also gathered from various PWCs trying this simplified treatment approach, are those that ...
[retrieve this message]

---

Oh no, I’m so sorry to hear you are having such a rough time! Damn Mirena has ruined so many lives. Sounds like you aren’t getting the support you need either. I totally understand how you could have PTSD, having read in the past about what you’ve been put thru by your doctor. And I’m sorry to hear about your child and not being able to conceive. Is there a doctor you’ve found that you can trust to have your/your partner’s fertility checked? Have you been prescribed meds for the PTSD? How are you feeling otherwise with the post-mirena symptoms? I hope things start looking up for ...
[retrieve this message]

---

Hi, so sorry to hear about your ordeal! Glad you listened to your body though. Often times the longer it’s in, the longer the side effects last. If you’d like some more feedback, I’d suggest posting a new thread since this one is 6 years old and deeply buried. Best wishes, -nile   [End]
[retrieve this message]

---

Low Vit D levels seem to be a common theme for us. I had low levels, and am taking 2000 in the morning and 2000 in the evening. I have almost gotten my levels to optimal. Will probably have it checked again in a few months. I just ran across this article the other day, which is concerning, that the levels on the bottle aren’t always accurate. Maybe you could try switching brands for a few months and see if it helps? http://www.usatoday.com/story/news/nation/2013/02/11/vitamin-d-supplement-labeling/1909603/   [End]
[retrieve this message]

---

Hi, you may want to private message her, since the thread is 32 months old. But even though the doctors will say Mirena is not the issue, she should INSIST on getting it removed. So many women have had issues with it, it would make sense to remove that variable that is most likely the cause. I’m sure by now you’ve looked around enough to realize all the issues women have been having with it. Best wishes for your wife, and she’s fortunate to have such a caring husband! Please post back on her progress if possible. -nile   [End]
[retrieve this message]

---

If I may make a suggestion, you might think about getting your vitamin D and thyroid levels rechecked. Adjusting those two things made all the difference in the world for me. I was feeling just what you described, and my throid was only slightly hypo, and vitD levels were below normal, but taking a small dose of synthroid, and getting my vitD levels into the middle of the normal range have helped me so much. I’ve read that vitD is actually a hormone. I am taking 2000 iu before bed and 2000 in the morning, and that seems to be about right for me. So many women have had these same issue ...
[retrieve this message]

---

Hi, I’m glad to hear that you have seen improvement. I know how you feel. I’ll be 5 years post mirena in May. I have had about 3 good months in a row now though, so I’m becoming hopeful that the worst is behind me. Maybe like me, your body just takes a little longer, for whatever reason. I don’t see anybody regularly posting after 5 years. I know it’s hard to feel so crappy for so long, but trust that you’ll get there! Can you reply what your remaining symptoms are? And what tests you’ve had done?   [End]
[retrieve this message]

---

Hi Jlittlestorm, I happened to notice your post, but since it is an older one, you might get more responses making a new post. I’m sure you’ve searched around and noticed that MANY women have the same issue you did with Mirena. I am thankful that this was a side effect I didn’t have (had many others). I just saw a post by someone on BAN Mirena IUD on FB that stated the following: ”I am not posting this to sell anything. I don’t gain in any way just thought it might help others in my situation. Lost tons of hair when I had the Mirena and was going sick with worry over it. Tried e ...
[retrieve this message]

---

Best of luck with your upcoming delivery!! I hope once you recover, you find that having a baby fixed your Mirena issues. I am 4.5 yrs post mirena, and 2.5 years after having my post-mirena baby, approximately. The past few months have been as close to normal as I’ve been in the past 5 years, and I’m hopeful that will continue for me. So after feeling terrible for SOOO long, it is still possible to improve :) Good luck and congratulations!!! -nile   [End]
[retrieve this message]

---

Removal is really painless. Insertion was terrible, but it’s quick and painless for them to pull it out in most cases. Exception would be if it got embedded in the uterine wall, or if it poked thru and is floating in your body somewhere. But since you haven’t mentioned pain or bleeding, I wouldn’t think that would be the case. If I remember right (it’s been 4.5 yrs since removal for me), it hurt less than a pap smear. You didn’t mention any side effects like anxiety or joint pain, so you might be lucky and not have the crashes that many of us here have. If money is an issue, many wom ...
[retrieve this message]

---

Glad you found us, and realized the Mirena is the issue. Getting it out is the first step towards healing. I’m sure you’ve looked around on here and read that it can take time to get back to normal, and you may have ups and downs. Also I’m sure you’ve read how many of our doctors have discounted our symptoms and been unwilling to remove it. Be firm and don’t take no for an answer, if it happens to you. Hopefully you will be one of the lucky ones and be back to normal right away. Good luck, and keep us posted! -nile   [End]
[retrieve this message]

---

So sorry to hear about your pain and suffering! If it were me, I would be worried about perforation with all that digging/pushing around she did. Mind you, I’m not a doctor, but it sounds like she was being pretty vigorous. Your first priority is to get this piece of crap out of you. Your symptoms definitely are from the Mirena. If the bleeding and discomfort don’t improve very soon, if it were me, I’d try to get an appt with a different (better) OB/Gyn if at all possible. Maybe speak to the scheduling staff and explain the situation, that you’re worried it’s perforated your uterus, ...
[retrieve this message]

---

I am so sorry for all that you have been through these past years!! This really points out what we on here really believe, that when side effects with the Mirena start showing up, they only get worse and worse with time. These darn doctors are so unwilling to admit that Mirena could be the issue, and I’m sure Bayer is hiding it and not giving them that information in the first place. It’s ridiculous! I hope you find quick relief with removal, which is the first step. Many have had good luck with detoxes. Some of us have had a longer time recovering than others, but I hope with all yo ...
[retrieve this message]

---

Elizabeth, your symptoms sound so similar to mine. Did you find that removing dairy and gluten helped your Mirena symptoms while it was still in? Funny, I had my gallbladder removed maybe a year before I had Mirena inserted. Wonder if gallbladder function, or the lack thereof, have any bearing on whether some will have these symptoms...   [End]
[retrieve this message]

---

Got a call from the Endo’s office - NEGATIVE!!!!! :) :) So very relieved! Thank you all for your prayers!! It was the hardest week ever, but so thankful for the happy ending. Hugs! -nile   [End]
[retrieve this message]

---

Saw the endocrinologist yesterday, and he said it probably is NOT cancer! (my primary shouldn’t have said it most likely was). SO much more hopeful now! They did the ultrasound guided biopsy and drew blood to recheck for hashimoto’s (which is an autoimmune disease where the body attacks the thyroid, my mom has it so there’s family history). Boy this last week has been such a rollercoaster. I was completely convinced I wasn’t going to make it. I was such a wreck. I should hear within the next week one way or the other, but I am feeling so much better about everything. I am so thankf ...
[retrieve this message]

---

I can’t believe they want to do this to teenagers! Just, wow. Wouldn’t recommend it to my worst enemy! http://www.cbsnews.com/8301-504763_162-57517776-10391704/medical-group-says-teens-should-use-iuds-implants-as-first-contraceptive-method/   [End]
[retrieve this message]

---

Thanks Diana, you are so sweet :) I will keep you posted. Challenge #1 is just getting an appt with the endo, he’s booked out to November, and I am not waiting that long!   [End]
[retrieve this message]

---

Well, finally got around to having that ultrasound on my thyroid, and you know it’s not good when the tech won’t say anything, and the doctor calls you back right away. I WAS RIGHT!! There IS a lump on my thyroid. My condescending jackhole doctors kept missing it, even though I could feel the bump and my TSH levels kept climbing. I guess it’s not a cyst, it’s solid with lots of blood vessels. So they can’t do a needle biopsy, and he’s sending me to an endocrinologist. He couldn’t/didn’t want to say what it meant that there were lots of blood vessels around it. Anyone know? My only ...
[retrieve this message]

---

Many of us have had vision issues with mirena. For me, at first I had really spacey, foggy vision - like a bad TV or something, that sometimes would get dark even when the lighting wouldn’t change, sometimes things would look surreal, just some really weird things. I’ve had mine out for 4.5 years now, and I still have issues. It’s hard to describe but it feels like things are moving when I’m still. I also get the pressure behind my eyes too. I had my vision checked a few months ago and it’s 20-20, but... One person to look up is ProudMomma. I know she lost much of the vision in one ...
[retrieve this message]

---

So sorry to hear you’re not feeling better at this point. 3 years seems like such a long time. I was feeling the same way at 3 years, heck even a couple months ago (I’m 4 1/2 yrs). Have you weaned yet? I was FB’ing with Karita and she pointed out that breastfeeding suppresses both estrogen and progesterone. And I ran across an article that bfeeding is actually harder on your body than pregnancy! I’ve been cutting back on it with my little one, hoping to wean slowly. I’m worried about any sudden changes to my body. I added an extra vitamin D and fish oil, and have been more consiste ...
[retrieve this message]

---

Dude, appreciate what you’re trying to do, but all of us here already found out the hard way about IUD’s and artificial birth control, so instead of adding insult to injury, can you find a site where everyone is saying how much they love their IUDs and post there? Thanks   [End]
[retrieve this message]

---

Sorry to hear that’s still bugging you. I mentioned it to my dr a couple weeks ago, and he seemed to think it was normal. Then again, he thought all my symptoms were normal, which we all know is a crock. Back when I first got Mirena out and was at my worst, I had to use my kid’s inhaler (Xopenex) a couple times and that seemed to help. It hasn’t been bad enough for me to do that lately, just an annoyance, but is that anything you’d be able to try? Let us know how the xray goes, curious to hear if they find anything... -nile   [End]
[retrieve this message]

---

Most ladies are better within a few months to a year. A smaller number of us take longer and have lingering symptoms. I bounce up and down between 80-95% better, I’d say. Hope you are one of the lucky ones!   [End]
[retrieve this message]

---

What were some of the symptoms you’ve had along the way after the anxiety went away? I’ve had some pretty weird/random symptoms along the way too, and would love to compare notes. Here are some of mine that are going on now: -discomfort in my thyroid area, and my thyroid going hypo more and more. -mild vertigo spells/feeling of disorientation/vision going blurry -surreal feeling that comes for a few seconds then goes away, like I’m in someone else’s body. Happens maybe once a day -muscle spasms, especially disturbing when it’s in my esophagus and it goes on for months at a ...
[retrieve this message]

---

Hi MrsNelson! I haven’t seen you on here in a long time, and have been wondering how you’ve been doing? I’m still here (unfortunately). We had our removals about the same time, and had similar symptoms if I remember. Would love to hear how your recovery has been! -nile   [End]
[retrieve this message]

---

Hi Karita! So glad to hear from you, but sorry it’s because you are not feeling well. I’m interested in your story, since I am still bf’ing my 2yo, and worried about stopping, if it’ll mess my hormones up. I had my Mirena out a little over 4 years ago, and got pregnant 1.5 years after. I am still having symptoms, many similar to yours. It helps affirm that it’s still the mirena, after all these years. I have an appt with a new Dr. next Friday. I hate having to explain this whole thing to new Dr’s. My main symptom I’m being seen for this time is discomfort in my thyroid. It’s been ...
[retrieve this message]

---

I need to ”friend” one person in order to start a group, I guess. Anyone want to private message me their name, and I can friend you and start the group? I’ll call it ”Former Mirena users with long-term side-effects”   [End]
[retrieve this message]

---

If you’re worried about a blood clot, I would say to see your doctor right away. Especially the way you describe the icy hot sensation. That seems different that what I typically hear on this forum. Get it checked out if at all possible, and if nothing else, it will help relieve your mind if it turns out to be nothing. Take care, and post back on your progress. -nile   [End]
[retrieve this message]

---

Oh, Ok :) How about 1 year?   [End]
[retrieve this message]

---

18 months post and over sound ok? Seems like most are either better or they’re not at that point. Any of you ladies more savvy with Facebook than me (which is to say, I’m terrible at it!) and have time to start it?   [End]
[retrieve this message]

---

Sounds like the makings for a casserole/hot dish :) It’s great to hear ladies getting back to 100% after a couple months, over and over and over, but it wears on me and I wonder why I’m not back to normal like everybody else. Maybe us long-timers have something else in common medically, who knows... I do like the curezone format though also, for the ability to search back in time. Just a thought.   [End]
[retrieve this message]

---

Hmm, do you have a list of foods you CAN eat? It sounds pretty harsh, but could you try only eating foods you aren’t allergic to for a week or two, and see if you notice improvement in your symptoms? Steak every night :) I had to eat just rice and chicken for a few weeks when my baby was born to try to figure out what in my breastmilk was causing her constant diareah. It wasn’t fun, but I used rice milk, rice crispies, etc to make the best of it.... Keep us posted - always love hearing from the other long-timers like me :)   [End]
[retrieve this message]

---

That seems quite reasonable. I convinced my doc to test my total IGE, which tells if my body is reacting to ”something”. And that was high. 250 or so I think. Not as high as my daughter, who is allergic to milk, egg, cats, dogs among other things, her total IGE is about 2000. I haven’t gotten around to exploring what my body might be reacting to yet though. Was it your doctor who was able to order the IGG test for you? What kind of things were you most allergic to? Do you have any luck taking antihistamines like Benadryl?   [End]
[retrieve this message]

---

Please, please, pretty please post back your results! :) Have you felt any better with the chelating and balancing? What is your method for balancing? Is it through you diet? I’ve tried so many different things - given up alcohol, caffeine, diet pop (which I loved) and most artificial sweeteners, any food/product containing silicone, tried gluten free for a short time. The caffeine and alcohol have been the only things I’ve given up where I’ve noticed improvement. But if there’s some other diet out there that can help, I’d give it a go. Hope to hear back, and thanks for posting h ...
[retrieve this message]

---

I spent a good few hours last night reading thru all the stories, and OMG, they are the same as ours!! It gives me hope that maybe it’s not the silicone after all (boy, I’d love to go back to my silicone-containing beauty products). Seems most women got back to normal fairly quickly after removing their copper IUD. A few on there took more time, like me and some others here. (I’ve had mine out over 4 years ago). I think I’ll see if my Dr will let me test my copper and zinc levels next time I go in. I’m due in a couple months to get my TSH levels checked again. The site by Dr. Wi ...
[retrieve this message]

---

I totally hear you about symptoms bringing on the anxiety. I personally haven’t had that experience with my legs, except when I was on the blood pressure med Procardia for preeclampsia after delivering my post-mirena baby. My feet turned red and hot, and the top of my scalp was numb. Wierdest feeling, and it freaked me out. I like Curezone better myself since you can search back and find good info, whereas you can’t with FB. Good luck! -nile   [End]
[retrieve this message]

---

Just a thought, since so many of us think it’s the silicone in Mirena that is causing issues, have you considered using silicone-free shampoos and conditioners? I know it’s hard to find good products without silicone (aka dimethicone), but might be worth a try? I’ve been using silicone/sulfate free shampoos and conditioners for the past couple months, and my scalp doesn’t itch like it used to. I’m using Loreal EverSleek right now. Takes some getting used to, but I like it. I was bummed that the Moroccan oil I was using was mostly silicone and had to quit using it. Here’s an artic ...
[retrieve this message]

---

Your lingering symptoms sound sooo similar to mine, minus the restless legs and the thin hair (mine got coarse and thick). I have a bit more lingering anxiety that comes and goes yet, and random pain in random places (this week, the veins in my neck hurt. Odd). Thanks for posting your labs. Sound similar to mine with the vitD. Been supplementing and trying to get more sun, but still in the low normal range. I also find that exercise helps, as hard as it is for me to get the ambition up. My TSH has been edging up, and I’m on a low dose of synthroid for it. Best, -nile   [End]
[retrieve this message]

---

Hi EskaArabian, so glad to hear you’re doing well! I am also still bfeeding my ”baby” (she’s 2), and I’m scared to quit. Can’t wait to hear how that goes for you. I still have symptoms every day, and some days are worse than others. I wish I knew why most people bounce back, and I have not after over 4 years. It’s really starting to wear on me :(   [End]
[retrieve this message]

---

If it helps any, I conceived (while trying to avoid it) a little over a year post-removal. I had mine removed after a year and a half because of terrible side-effects. My little one is 2 now, and happy and healthy. Differences between my post-mirena pregnancy, and the 2 prior ones was that I had worse morning sickness (up til delivery), and I had pre-eclampsia after delivery. So keep an eye on your blood pressure during/after your pregnancy when you conceive. Good luck!   [End]
[retrieve this message]

---

Wanted to chime in about the muscle twitches. Mine have started doing that again for the past week. My inner forearm twitched for a couple days so much that it made my pinky finger move with it. Right now I’ve got the twitching in my esophagus, in the middle of my chest, going on the past 2 days (freaks me out a bit, feels like a heart palpitation, but it’s not). It’s that time of the month, so it’s probably related to that, and I had stopped taking my magnesium supplement for a couple days. The one in my arm went away when I started back up. You might want to give it a try if you ar ...
[retrieve this message]

---

So sorry to hear of yet another Mirena victim :( So glad you have a great guy in your life to support you. If you have trouble getting someone to take it out, others have lied and said they’d like to try for another baby. That might work. Also, if you haven’t already and can afford it, consider asking to get your thyroid levels tested. Mirena has screwed up the thyroids of me and many other women on this board, and sometimes it doesn’t show up for a few years. Good to get a baseline. Best of luck, keep us posted on your progress! -nile   [End]
[retrieve this message]

---

I have been trying to avoid silicones in my food and on my body for the last few weeks. It’s really hard to avoid! But I have been feeling better. Ran across this article which affirms to me that I may be on to something. If these things can be absorbed thru the skin, I think it’s smart to avoid them in foods as well. If anyone’s interested, I can post more details about what I’ve been doing. Great article though: http://www.truthinaging.com/ingredient-spotlight/what-is-it-silicones-and-should-we-avoid-them   [End]
[retrieve this message]

---

I haven’t passed out myself (felt like things were starting to go dark many times but never did pass out). But I’ve been around this site for awhile -- I’ll be 4 years post-removal tomorrow in fact -- and I remember someone posting that they passed out while driving. I can’t remember who though. Also several ladies have had seizures with Mirena that ’mysteriously’ went away after removal. Please post back if they ever come up with a diagnosis for your cousin, and let us know how she improves after removal. Ditching Mirena is the best thing she could do for her health.   [End]
[retrieve this message]

---

I’m trying to go silicone free for a month to see if it helps at all. It’s been hard! I’ve had to find a new conditioner, foundation (not easy to find), deodorant, lip gloss, and hand hand lotion so far. I’m avoiding deep fried foods and baked goods that I didn’t bake myself with the organic Pam. If I have any success, I’ll post back.   [End]
[retrieve this message]

---