http://www.undertheeightball.com/   [End]
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Took the words right out of my mouth re: Lyme! Yes!!!!! For anyone interested, you may want to read the book ”Lab 257” Cheers   [End]
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I think this would be a grea forum to discuss the different kinds of mind control being used today, from stuff as simple as advertising techniques, to the more insidious government sponserd forms, as well as new technologies being developed. D, I’d be happy to help set it up with forum description and whatnot.   Alison   [End]
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From Lymenet: http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=075137 We have just heard that we are on Oprah’s radar.... that is a big deal. But so far, there has not been an impressive enough response to Dr. Oz’s show. We need much more. Get your friends, family, co-workers, doctors, nurses, anyone and everyone you know to write Dr. Oz. There are Lyme groups around the world -- everyone needs to be passing this info along and getting everyone to email in. Can everyone post it everywhere.... at their doctors offices, email friends and people who know what you ...
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Dr. Oz did an hourlong show on Lyme on XM/Sirius radio today. Dr. Oz is a frequent guest on the Oprah show and a well respected cardiac surgeon. He interviewed the producer of the Lyme Documentary ”Under Our Skin”, Andy Abrahams, and also medical reporter and Lyme sufferer Kathy Fowler. Dr Oz says he wants to hear from people who have Lyme and what they went through to get treated and what has been working for them. I think the more responses he gets, the better! Here is a link to e-mail Dr. Oz your story: https://www.oprah.com/plugform.jsp?plugId=495 Here is a link to ...
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Hi, The Lyme spirochete (the spiral shaped bacteria known as borrellia burgdorferi) has an L form that is visible under darkfield microscopy. A.   [End]
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Re: RG Has 9,000 e-mails backed up, please be patient n/m   [End]
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Hi RG and all, Sorry for the lovely post title but that is exactly what is happening to me. A few times a day I will suddenly start not coughing but instead heaving and up comes (from my stomach no less) thick mucous. Any idea which parasite may be causing this? Many thanks, Alison P.S. It’s not the ”roundworm cough”. I have this also where I couch up stuff from my lungs but this is coming up from my stomach.   [End]
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http://www.personalconsult.com/articles/aggressivelymetxfailure.html Why Aggressive Lyme Treatment Can Fail: Focusing on the Bee and Ignoring the Stinger By Dr. James Schaller I have never been comfortable with failed care. You know what I mean. You do an intake, get some lab testing done, you are given a diagnosis such as Lyme disease, and then you take full and aggressive antibiotics for complete trials. Yet they do not hit the home run you hoped for, and in fact at times you actually feel worse. At best, you improve partially and then hit a wall. Some even take IV antibioti ...
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Hi Fledgling, I knew your name looked familiar from the Humaworm forum! I’ve really enjoyed reading your posts. :) I’m on my second round right now -- great stuff. I was pretty blown away by the whole Leptin thing too - it answered a lot of questions, particularly about the weight gain/inflammation. When I got sick with Lyme, my weight ballooned up 60 pounds in just a few months and in retrospect I think that had a lot to do with Leptin resistance. I wish I had a great success story for you. I’ve had a hard time sticking to the Leptin diet, to be honest. When I was on it tho ...
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Hi there, One of the Best books I’ve read that goes into how Leptin works and how to overcome it is called Mastering Leptin by Byron J. Richards. It’s a little heavy on the science but also written very clearly with steps to balance Leptin. For those with Lyme, I specifically recommend reading the chapter on ”Fibromyalgia”, since they don’t discuss Lyme (and as we know the Fibro diagnosis is often given to people with Lyme and co-infections). If you just substitute ”Lyme” with Fibromyalgia” when you read it, it’s actually quite helpful. I just started taking one of the supplemen ...
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Hi Julie, I sent you an e-mail also...here is a link to a previous post I did about testing for Lyme. http://curezone.com/forums/fm.asp?i=858210#i Alison   [End]
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Hi, ALS is often misdiagnosed. Or rather, the root cause if it can be a pathogen or pathogens. The reson I know this is because my doctor’s sister had what they thought was ALS but was really Lyme and co-infections. Also, some symtoms you describe to me sound like BArtonella, another common and painful co-infection that is closely associated with Lyme. I encourage you to seek answers. I know of many people who were diagnosed with ALS only to find out they were infected with lyme and with long term treatment got better. Lyme can mimic als, MS, fibromyalgia, lupus, and a host of ...
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Hi Speedy, That is awesome that you were able to see the spirochetes under darkfield. Good confirmation! My original Western Blot Lyme test came up completely negative too, but then when I had another one done through Igenex it showed up very positive, even by CDC standards. I hear over and over again of this happening, which is why so many people go undiagnosed. Have you had a Western Blot done? Cheers, Alison   [End]
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Hi, First of all, thank you so much for your wonderful cleanse. I’ve done one round of humaworm but definitely need the extra strength for my next one and am very excited to do it. I am taking Artemisia for babesia, but since this is one of the ingredients in the humaworm cleanse, I was wondering if there will be too much resistance built up by the parasites for the cleanse to work when I do it. Thanks for all your wonderful support on this forum, Alison   [End]
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http://lymeblog.com/modules.php?name=News&file=article&sid=1156   [End]
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Hi Joe, There are so many treatment options out there, it’s hard to list them all. You may want to go to http://www.lymenet.org to the medical questions section and do a search on MS. You will find a lot of people with MS there sharing their Lyme experiences. My friend is at a bit of a crossroads, but I think he’s going to start long-term antibiotics because they do help a lot of people, myself included, if done right. We just found out last week that he tested positive, using the Igenex western blot, so all this is still really new for him. One of the main problems with M ...
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I’ve got Lyme and Bartonella, one of the common co-infections, and have just recently started using iodine, so I’m excited to see what happens. I’m also doing the Beck protocol. So far I’ve had some good results with the iodine, but you guys weren’t kidding when you talked about the halogen detox. Thank goodness that salt and C are really helping with that. I have tremendous respect for Dr Klinghardt, I think his KMT device is very similar to the Beck pulser and it has seemed to help people a lot in some cases. I also use one of his other products, Rechts-Regulat, which I find to be ...
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Hi MS searcher, Just last week a friend of mine with MS tested positive for Lyme disease and I know many others who have as well. The lesions that show upon the brain for Lyme and MS are identical. Here is a post I did about tests for Lyme, the right ones and the wrong ones. http://curezone.com/forums/fm.asp?i=858210#i Garth Nicholson over at immed.org has done a ton of research about the military and pathogens as well. Take care, Alison   [End]
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http://curezone.com/forums/fm.asp?i=858210#i :) Alison   [End]
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I had been taking CS for just about  a month, between 2-6 ouces daily of about 30 ppm.  One day I noticed that whenever I touched anything metal, I would taste metal in my mouth.  The next day, the metal taste was there the whole time, and this continued for several days.  I figured it was a pretty big heavy metal release and started taking bentonite and charcoal and a few other things to help soak up all the metal. I am trying to figure out why the CS would have caused the detox - could it be that in killing candida, the candida released the heavy metals it had b ...
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Thanks to all of your great advice,w hich I followed, my latest batch did not turn yellow.  Thank you!   Alison   [End]
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Thank you all very much!  Your responses help a lot.  Trapper, my gut tells me you are right and it gives me a good foundation to start from.  Many thanks! Hi Southern Belle!  I’m around again. It’s good to be back.  :) Alison   [End]
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Hi, I’ve seen a few mentions of colloidal silver and iodine and I was just wondering what might be a good protocol for taking them together? I am taking the silver for Lyme disease and it’s really helping.  I have to go slow with it because otherwise the herxing is too intense, as well as heavy metal release.  I need to keep taking it but I want to do iodine too. I started taking iodine, 1 drop twice a day and then worked up to 2 drops, but the herx was really bad.  I’m not a baby or anything, believe me, but I am already in excruciating, never-ending pain from the ...
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Hi Julie, Wow, your chiropractor sounds wonderful!!!  What a great resource to have.  Does iodine cross the blood brain barrier?  I wonder if that might be causing some of the head stuff like feelings of depression. And I was reading that iodine chelates heavy metals, which is great for getting rid of them - I know I have lots of heavy metal toxicity from taking colloidal silver - I had a weeklong heavy metal detox where I was tasting metal in a big way. Good luck to you too on your journey of health! Alison   [End]
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Hi Julieuma, I was diagnosed with fibromyalgia back in 2004.  I eventually ended up finding out that I had late stage Lyme disease.  Since then, I’ve met so many people who had fibromyalgia who have tested positive for Lyme.  I believe that fibromyalgia in most cases is actually an infectious disease or diseases, if you include the coinfections. That said, I’ve also started taking iodine because I really think it will help with the Lyme.  So far in just a couple of weeks taking iodine has brought my body temperature up from 96 to 98. I wonder if your taking the ...
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Kelly, I am a big believer in following your gut and your heart and paying attention to dreams and signs.  In fact, my intuition is the tool I am relying on the most these days.  So if your soul says fast, I say fast! I lost a lot of weight doing the MC also. Unfortunately it did not save me from gaining as I mentioned the 60 pounds in 4 months.  And you’re right, that type of weight gain is totally Lyme. Also, I am one who has battled insane food cravings.  All the bad stuff you mention.  I was addicted.  There was an incident involving about 40,000 ...
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I got it from iodinesource.com.  It was only a week of doing between 1-2 drops a day before my temp went up.  I also had that amazing lovely floating feeling for the first few days that I read people talking about here.  I was also painting. I started herxing (headache, boy were you guys right on that one, and insomnia).  I backed off and also started getting some salt into me.  I backed off a lot as my body is not in a place yet where it is a good idea to push through due to other health problems. At the moment I am painting, taking a drop here and the ...
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Hi All, First want to say what an excellent forum this is - the amount of wisdom from so many knowledgeable people is awesome!  I’ve been poring over the posts over the past couple of weeks, just drinking everything in. I started taking detoxified iodine a couple of weeks ago.  I’m very sick so I’m going slow.  But one thing that happened right off the bat -- my temperature, which has consistently been 96 degres, has now normalized to 98.4-98.8.  I keep taking my temp every day and it continues to be normal.  Wow!  So soon!  Amazing. I fe ...
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Hi Kelly, I’ve been meaning to write a post about this for awhile, actually.  Currently I am not on antibiotics and I am doing the Beck protocol , which is a 4 part thing and involves blood electrification , magnetic pulsing , colloidal silver and ozonated water .  I’ve had tremendous success with it so far, although since I’ve had Lyme so long, it is going slowwwwwwly but it is going nonetheless. I started out wanting to attack the Lyme with everything I had, especially with all my CZ knowledge.  Previous to my symptoms becoming bad, I had done a ton of cl ...
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Hi finnalyfaith, You are absolutley right! This is one of the reasons it is *so* hard to get properly diagnosed with Lyme. The doctor runs a test and says "Oh look, completely negative". Here’s why: The basic tests that most doctors run first is called an ELISA . This test is grossly, madeningly inaccurate. I believe its accuracy for showing positive is about 40 percent. That means it is 60 percent inaccurate. NOT great odds there.  And the longer you have had Lyme, the less likely that you will test positive in any way on this test. But it gets ...
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Hi, For me, I did the master cleanse and it did not help or cure the Lyme, although I had moments of feeling better. I also did a completely raw diet for many months and all sorts of supplements. This also didn’t work for me. That’s not to say it won’t work for you or other people. I thing with Lyme especially, people are different, with different co-infections and viral loads and parasites, etc and can handle different things at different times in the recovery process. Now that I am feeling somewhat better through other treatment, I may revisit fasting, et al. But there was a ...
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Hi, I’m not a medical doctor but I do have Lyme. Because it took so long to diagnose, I am now severely disabled, in constant pain and fatigue, and can’t work. I read your post. If it was me in that situation (and it was at one point), I would run, not walk, to my doctor and get myself a scrip for doxycycline just as gast as I could. Your symptoms appear to me to be Lyme *completely*, no doubt in my mind. So many doctors have NO idea what Lyme is. It can mimic over 300 diseases and can present differently from person to person. There is no one way for it to show up. Your docto ...
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Thank you all -- Looks like I’ll be stirring more and making my batches at lower PPM from now on. Cheers, Alison   [End]
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Hi All, I made a batch of CS the other day. It looked really good, very clear, not a hint of yellow. I then put it into some brown glass bottles. These bottles had held something else previously but I had washed and boiled them for a long time, thinking that would sterilize them. I went to use some CS last night and the water had turned bright yellow, almost highlighter yellow. What could this be? The water started out perfectly clear and then something happened in the bottle. Neither of my bottles were exposed to sunlight, so I am guessing there is some sort of contaminati ...
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They were pretty spectacular that day. Looked like they were covering the entire Bay Area and beyond. Heavy also where I am in the central valley. Actually, they are spraying nearly every day here, although on the day you mentioned I noticed more than usual and also more X’s.   [End]
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It looks like some of the posts may have gotten lost when the site went down last week. Here is the post describing in more detail whathappened. http://curezone.com/forums/fm.asp?i=838973#i A.   [End]
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Hi Fledgling, Thank you so much for the nice message. And thank you to Lapis for alerting me to it. I’m around still, just not as much as usual. Yes, I have definitely tried to take that theory and apply it to other things. First, to address the smoking. I found out an interesting thing about smoking, that it actually helps to kill candida, that nasty little yeasty beast that wreaks so much havoc on our internal systems. I think that smoking (did it for years myself) has some physiological short term benefits, such as with the candida. Then of course there’s the addiction aspec ...
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http://www.nbc4.tv/news/9155725/detail.html   [End]
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The most common one that I know of is Bell’s Palsy, where half of a person’s face becomes paralyzed, which is absolutley a Lyme syptom. I have also read posts from people with Lyme who expereince problems only on one side of the body. Since Lyme wreaks havoc neurologically, it sort of makes sense. Cheers, Alison   [End]
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Hi there, To get tested from Bowen: you need to call them and have them send your doctor a 7 page fax that includes the forms that you need to fill out as well as what he or she needs to sign as well as instructions and requirements for your blood draw. Or your doctor can call them, but I believe they will only send the fax to your doctor. Then get your blood drawn. I think they call it a ”kit draw”. If I remember correctly, you can order a kit from Bowen or just go to a lab that does kit draws (if you order a kit from Bowen you still need a doctor’s order/signature on the lab req ...
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Hi, Bowen is great for getting tested because they actually use darkfield microscopy to make a visual identification of the spirochetes themselves. Igenex is also great for determining in more detail certain aspects about the disease, i.e. recent/older infection. The different bands on the Western Blot (that’s the best one for Lyme) can give insight, and unlike other labs, Igenex seems to handle their samples right. Also, if you test CDC positive through a Western Blot, your doctor by law has to report your case of Lyme. For me, I first got the Bowen, just to know if what I susp ...
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Hi D., I think this would be a good idea since many (millions of) women are looking for an alternative to prescription hormones (i.e. pregnant mare urine ”Premarin”). If you create this I can take care of the forum description and all that. Thanks, Alison   [End]
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WEDNESDAY, Jan. 25 (HealthDay News) -- In a finding that could alter pain treatment, British scientists have found that undamaged nerve fibers, not injured ones, cause ongoing spontaneous pain. The unexpected finding that may help in the development of new treatments for back problems and other conditions that involve chronic pain. Previous research into chronic pain focused on nerve fibers damaged due to injury or illness, and largely overlooked intact nerve fibers. ”The cause of this ongoing pain and why it arises spontaneously was not understood before,” Sally Lawson, of the U ...
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Hi Kitty, You beat me to posting this url! I couldn’t agree more. This is such an amazing website and approach. Cheers, Alison   [End]
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Hello, Here are links to a bunch of articles about Leptin. Articles are short, easy to read, and very informative. Mysterious Hormone’s Role in Successful Weight Loss http://www.mercola.com/2004/apr/24/hormones_weight.htm What You Don’t Know About Leptin Can Make You Fat http://www.mercola.com/2004/dec/1/leptin1.htm Leptin May Control ”Sweet Tooth” http://www.mercola.com/2000/oct/1/leptin_sugar.htm Leptin: How Diabetes and Obesity Are Linked http://www.mercola.com/2005/apr/2/leptin_diabetes.htm Protein Possible Key to Obesity Hormone’s Effect on Brain http://ww ...
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Hello, :) I found this in my archives - totally forgot I had it since after a month or so I can only stand 3 drops of the stuff without herxing! Plus I’m really great at ignoring the Proper Instructions of things as a general rule. but here it is! :) Alison http://www.samento.com.ec/sciencelib/4lyme/Lymeprotocolkinesiology3...   [End]
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What I find interesting is that people test *normal* for thyroid hormone but still have low body temp and other problems related to low thyroid...this now starts to mnake more sense to me why coconut oil works so well with raising body temp - it is a good fat that helps against leptin resistance possibly? . . . ”Interestingly, leptin also controls thyroid hormone. Thus, leptin problems enforce low-thyroid symptoms by turning off the activation of thyroid hormone at the cellular level. The thyroid gland may still make thyroid hormone, making lab tests appear normal. However, a person ...
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Hello, I also posted this in the Lyme Disease forum, but it deals directly with Leptin resistance, which I find fascinating. Could it be that hormone signalling is at the root of our weight regulation problems? And who knew that fat tissue was so closely related to the immune system! And that fat basically acts as part of the endocrine system because it produces hormones (like leptin!) For anyone who has, say, an inflammatory disease (Lyme), and who has, say, Leptin resistance (i.e. gained a ton of weight)... ...Like me (not that I’m bitter or anything)! While on my mission to ...
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For anyone who has, say, an inflammatory disease (Lyme), and who has, say, Leptin resistance (i.e. gained a ton of weight)... ...Like me (not that I’m bitter or anything)! While on my mission to hunt down whoever invented this lousy disease and caused one of the symptoms to be MASSIVE WEIGHT GAIN (you know who you are), I have been searching for the link or links between Lyme and weight gain. My research led me straight to hormones and I found this amazing article on leptin that I think provides some great leads as to why this happens and how to change it. Here is the link and I’ve ...
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I don’t know whether to call it ”Leptin” or ”Leptin Resistance” . . . anyway it might be a good idea to have a forum on this. Ali   [End]
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ATTACKING FROM ALL SIDES Posted By: Daystar Date: Wednesday, 21 December 2005, 9:12 a.m. I have posted here many times before about the Lyme Disease Controversy/Conspiracy. Proper research into this disease...it’s testing, diagnosis and treatment, is being blocked. Doctors who treat this chronic illness are being investigated and their licenses are being taken away. There are thousands upon thousands of people who are being misdiagnosed with all sorts of so called autoimmune diseases which supposedly have no known definitive tests, causes or cures. Lyme Disease does not stand alone ...
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Hi Lamb, Sounds like you are getting the runaround with your lab results. What test specifically were you given? At what lab was the test performed? It is true that especially people who are immune compromised that other illnesses/infections can be activated (mononucleosis is an example, for one). It’s also true that many people have the lyme spirochete and are completely asymptomatic. Both of the tests I took didn’t have an ”unrelated spirochete” section. The first test I took they actually used darkfield microscopy to photograph the spirochetes in my blood, and used a diluti ...
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Awwwwwwwwww.....thanks! I just know what it’s like, is all. :) A.   [End]
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I think I just took a squirt under the tongue every time I had a craving. But I also started off every morning with 1-2 droppersfull in a shot of water. If you want a really good brand (which is potent as to cfause you to only need drops rather than squirts), try Dr. Schulze’s Lobelia. Otherwise I know you can find it at places like Whole Foods. That is awesome your hubby recovered from the Lyme. I am sure my hubby has it too (also manifested as weird psychiatric stuff). Cheers, Alison   [End]
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Hi Lamb, Wow! Are these things that *you* think about on a regular basis? Do you have Lyme? Sometimes Lyme can give you strange psychiatric symptoms like psychosis, delusions, and paranoia such as the feelings you describe of thinking everyone is lying and out to gouge you. So if you have Lyme it may be that you are thinking these things and feeling this way as a symptom of Lyme. To answer your question, no, I have never felt like Lyme is a scam. I researched all the labs and tests I took quite extensively, and understand that they are valid and legitimate. The labs I used have ...
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Hi there, As a person who has recently gained 50 pounds, and who weighs 100 pounds more than She did in high school 15 years ago...I CAN RELATE. LOLOL I wish I could remember where I read this, but I found some research on sites that says that yes people tend to gain 5-10 punds right after quitting, but in the longer scheme of things they actually *lose* weight as thier body normalizes from all the toxicity of smoking. Often our bodies pack on fat to distribute the mount of toxins to a safe ratio. More fat = less concentrated toxins. As I stated in previous posts, I quit smok ...
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I think you are right on the money about Bowen going against the meridians...maybe sort of ”twanging” them like a guitar string so that they have a chance to re-align and resonate with the vibration of perfect health. And maybe twanging shakes off all the negative energy crud that builds up on the meridians and makes them resonate at a less than perfect vibration. This is fascinating. I also just wanted to respond again because I saw you were doing EFT also! I just did the polarity exercise this morning because I woke up in more pain than I have had in months. It helped immediately. ...
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Yes, I do believe that they add a ton of stuff to make the cigarettes more addictive. When I moved up to Canada I started smoking a Canadian brand that was all natural. I only smoked a few cigarettes a day, maybe 10 or so. My cravings were not bad. Then, I went back to the States and tried my old brand. Oh my gosh I couldn’t even smoke them anymore they were so foul and chemically tasting compared to the Canadian ones. It was literally unbearable to smoke them. And these were ones I’d smoked for over a decade. When I smoked the US brand I noticed that I smoked well over a pack a ...
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Once you quit smoking: After 20 min. -- Blood pressure and pulse return to normal 8 hrs -- Nicotine and carbon monoxide levels in blood reduce by half. Oxygen levels return to normal. 24 hrs -- Carbon monoxide will be eliminated from the body. Lungs start to clear out mucous and other smoking debris. 48 hrs -- There is no nicotine left in the body. Ability to taste and smell is greatly improved. 72 hrs -- Breathing becomes easier. Bronchial tubes begin to relax and energy levels increase. 2-12 weeks -- Circulation improves 3 - 9 months -- Coughs, wheezing and breathin ...
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Hey noclue, What makes you think I *wasn’t* a raving lunatic?!?!? LOLOLOL I was. Also my diagnosis of Lyme disease really kind put the final nail in the coffin for me. Also I am so disgusted with cigarette companies. Talk about Big Business corporate villains. I was just soooo ready to quit. Another thing I told myself was that I could do anything I wanted as long as I didn’t smoke. eat as much chocolate, stay up as late, etc. etc. That helped, and I did gain a few pounds but then after about a month and a half everything normalized. It is hard because my husband smokes. ...
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I was in a similar boat...they thought I had MS. Many people with Lyme have the brain lesions show up on an MRI. The exact same lesions! Get tested! One of the hugest bummers is that even if you get tested for Lyme, if you don’t take the right test, chances are about 60% that you will appear to test completely negative. Don’t even bother with the ELISA. And the only reliable lab that I know of to get a Western Blot done is Igenex. Sadly, most doctors use the bad tests that show nothing and even the CDC says should *only* be used for tracking and not diagnosis. Also, yes, get tes ...
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Lobelia really helped my cravings. A LOT. I got it in tincture form. Also there is a homeopathic quit smoking one but I have not tried that one. I just quit 2 months ago (2 months and one day but who’s counting lol). I went cold turkey and spent a good deal of the time chewing sugar free gum and knitting a very long scarf to keep my hands busy. I also hear that EFT can help (Emotional Freedom Technique) a great deal. Good luck! Alison   [End]
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Hey Lisa, I know what you mean - I was pretty floored by the co-incidence. She even lives in the same city as the practitioner whereas I have to drive for 45 minutes to get to him. I guess this is just the universe’s way of getting her sent to the right place. I mean what are the odds of that same screen name? With my lyme, I have tried so many things to feel better. And so, as I try things, I see how they rate as far as if they help me feel better. Bowen is the only thing that has actually made me feel better, and significantly better. Not only that, but I can tell that the w ...
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Hi Lisa, I just read about your bowen expereince. I just had my first few sessions with Bowen as well, with an amazing practitioner in Berkeley. After the first one, I had a huge die-off healing crisis. After the second one I felt like I was floating and my pain was almost all gone. Several times I haev felt the energy just whooshing up my body. Another sort of funny story...there is someone on Lymenet who goes by Lisag and she e-mailed me and Ithought she was *you* so I started talking about Bowen. Well I found out she wasn’t you but she ended up going to my Bowen guy and also ...
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Candida is usually secondary to other things, such as heavy metal poisoning. Has he done the ”xenobiotics” panel on you? That might help. Candida is a red flag for other imbalances too...colon, gut, digestion, etc. That said, it seems that the most dramatic results on the SCIO are realized when doing *emotional* clearing and using those panels. So he may want to give those a go. There are hundreds of emotional clearing things he can do on the SCIO. Also the NLP panel may help. And also the spinal. but again, it was something that seemed obvious to me but was pointed out to me ...
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Hello, I can’t wait to read your blog! It is fine that you posted it here, in fact it’s great - so many Lymies feel so alone a lot, what with the lack of understanding from doctors, etc. so sharing your expereince I’m sure will really help. My absolute favorite Lyme Blog is this one below. Very funny and makes me laugh. http://twistoflyme.blogspot.com Cheers, Alison   [End]
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LOLOLOL That is SO GROSS Lapis. But made me laugh hysterically. EAUGH!!!!! Bleah! Bleah! Bleah!   [End]
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Me again, hee hee! That’s what I use the foot pads for. They are great for drawing out the metals. Also the Schulze intestinal cleanse is great for removing heavy metals because a lot of them sit in the colon. :0 A.   [End]
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Hi Again healing, I found my lyme-literate practitioner by going to http://www.lymenet.org and going to the discussion forums posting under the ”Seeking Medical Doctor” tab. These names are not posted online because many of the doctors have been persecuted for treating lyme. In fact I know of someone personally who was just brought before a medical hearing board and punished for treating lyme. So they are careful wiht the names, but someone should e-mail you. The liquid oxygen -- that is actually sort of a supplement. Let’s see....(getting the bottle)...it’s called Dynamo double ...
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Cardiologist Criticizes Merck Behavior By THERESA AGOVINO, AP Business Writer Sat Dec 3, 6:12 PM ET HOUSTON - A prominent cardiologist testifying against Merck & Co. accused the drugmaker Saturday of engaging in scientific misconduct, suppressing clinical evidence and stifling medical discourse as it promoted the painkiller Vioxx. Dr. Eric Topol, chairman of the cardiovascular medicine department of the Cleveland Clinic, called certain aspects of Merck’s behavior ”repulsive” and ”appalling” during his three-hour videotaped deposition. Topol said Vioxx can cause heart attack ...
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Hi healing, Thanks for your message and reminding me that I’ve been meaning to post an update here. I think I have quite a bit to report. OK, so I got myself an LLNP (Lyme-Literate Nurse Practitioner) who works in the office of one of the leading Lyme doctors in the nation. I adore her. She re-tested me for Lyme using the Western Blot through Igenex (don’t get your WB done anywhere else). I was not only positive, but CDC positive (they have stricter criteria), showing bands 30,39,41,58,and 66 in IGM, meaning an ongoing infection. IGG was 41 and 58 (for those of you who interpret w ...
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Thanks for the HBOT info Renay. I have e-mailed you with info about doctors in the Bay Area. Alison   [End]
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I spent a couple of years and several doctors, all who told me that I had fibromyalgia. The trouble with fibromyalgia is that no one seems to know what it is, what causes it, or how to treat it (at least in Western Medecine). ”Fibromyalgia” is an exclusionary diagnosis, meaning they label you with it when they don’t know what’s really wrong. My life was SAVED when I read a post on Curezone from someone who was diagnosed with fibromyalgia and finally after years of pain found out that she had Lyme. This post saved my life, because a couple of weeks ago I was tested and came up absolu ...
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Rosemary, Your story is amazing and like so many other people I know. I definitely have the salt/C protocol in mind as an option if the other stuff I’m doing fails or if the antibiotics don’t work. Alison   [End]
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Hi, I had no doctor who suggested the Bowen test - none of the doctors I went to even knew about it. I had to go into a doctor and ask him if he would order the test. Thankfully, he did. I’ve outlined my course of treatment above but am also seeing a Lyme specialist this month so I may be adding some anitbiotics. Cheers, Alison   [End]
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I had one session in a FAR infrared sauna. It was amazing. My naturopath also put me on a chi machine at the same time so I’m not entirely sure what did what, but while I was in the sauna, it felt wonderful and I felt my body just relaxing like it never had before. The following two nights I had the best sleep I have had in years. Unfortunately, after that I went back to sleeping badly but I also think it may have caused some herxing for the following week. I definitely plan on doing more sessions with the sauna. A.   [End]
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Hi D, I was just perusing more Bowen research and in a couple of places I read that it mentioned that a titration as high as yours could mean that the spirochetes are more active in your bloodstream and not as active in your tissues, which could be considered a good thing. It could also mean that if you nail this thing you won’t have as many of the little buggers in cyst form to deal with. Just a thought. Hope you are doing well, Alison   [End]
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Ami, At one point I had gotten about a 5 pound bag of the purest, most wonderful Pau D/Arco that I decocted myself three times a day and took faithfully for a month. I have also taken the capsules as the wonderful Andreas recomends. Unfortunately, I noticed absolutely zero improvement. I mean nothing. Nada. Zilch. I don’t know why, I just know that it didn’t work. I was disappointed to say the least. I’m sure Pau d’arco is great, but it wasn’t working for me, as much as I desperately wanted it to. Because of things like this happening, this is why I am considering taking a ...
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Ami, Thank you! I needed the reminder! I hadn’t been thinking about the weight loss as detoxing, but of course you’re right and it is! Wahoo! And yes - it’s good to know my enemy. This is a fascinating disease in all that it can do to evade the immune system. Ali   [End]
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Hey there, Dang, people like that make me really frustrated when they try to make money off of sick people like that. He could have just *said* the two ingredients and still charged for his report if anyone was interested. Ok, I figured it out, the two ingredients he talks about are salt and vitamin C. (Linus Pauling was the only person to ever have won 2 nobel prizes). Also, salt is what people in the 1970s were suggesting people avoid taking. Lyme is such a bummer...I hope you can get some relief. Cheers, Alison   [End]
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Thank you guys! I am definitely considering all of the things you mentioned. Lisa, about the pendulum stuff...I use a sort of similar method to test to see if what I’m taking is right for my body. I don’t have to take anything, I just hold it in my hands and my body will tell me yes or no. Some people do this and close their eyes and if they lean towards the item it is a yes, and if they lean away from the item it is a no. Bowen....yes! I found a practitioner in my area so I am definitely going to be settting up an appointment or three with him. I’m very happy to have this in my ...
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Please forgive me if this is at all incoherent, my symptoms are very bad right now but I’ve put off typing this up for too long. Lesson number one for me was that with Lyme, any protocol takes time to work and not to give up after a week if I don’t notive any changes. Often in takes up to 3 months or more to notice any positive benefits. But judging from the herxheimer reactions I’m already having (and I might add completely without antibiotics), I think this stuff is working. My approach is three pronged: 1. Kill the little buggers 2. Cleanse and make sure detox channels are op ...
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My Bowen dilution rate was 1:64. For those of you not familiar with the test, they take your blood sample and separate it until they can no longer detect the pathogen visually. So the scale looks like this: (low)1:2...1:4....1:8....1:16....1:32....1:64....1:128(high) Anything over 1:8, I believe, shows an active Lyme infection. I also tested negative through Bowen for Babesia and Elichiosis, two common co-infections. I will soon be tested for Bartonella and Mycoplasma, which are also common co-infections with Lyme. There is also a test panel called the CD57 or the Stricker p ...
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I agree with everything Lisa said. I was also given a standard western blot test through a company other than Igenex. I showed up completely negative on all bands. My Bowen titer showed a different story - it was also 1:64. This is the second highest dilution rate for Lyme you can have. Remember too, Lyme is a clinical diagnosis, and the standard testing was meant only for tracking purposes for the CDC. Getting tested through Igenex or Bowen will paint a clearer picture. Cheers, Alison   [End]
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Here ya go: http://flash.lymenet.org/ubb/ultimatebb.php?ubb=forum;f=2 :) A.   [End]
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I’m posting this for anyone who is immune compromised and wants to liver flush. Because I am currently very sick with Lyme disease, I found that there were some things that didn’t work with the standard flush and I made some changes that seemed to make all the difference. 1. What *didn’t* work for me was having food of any sort on the day of the flush, even if I stopped eating before 2 pm. I think the reason for this is that being immune compromised means the body does not produce as much bile as it normally does and therefore not enough to push the stones through. When I did this I ...
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I’ve had just about every symptom you mentioned....the tingling, twitching the pain, etc. and they are all symptoms of Lyme disease. And I wonder if your husband might have it too. I’m pretty sure my husband has it. Just remember that it can mimic other disease or be a major factor. I know, doctors, UGH. But I did need one to order the Bowen test for me so I went to one to get that done. One thing that’s really helped me (and _BOB if you’ve ever read his story), is I bought the book ”From Fatigued to Fantastic” and everywhere it said ”chronic fatigue/fibromyalgia”, I just replaced ...
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lololol ”bowel”! It took me a second to realize you meant Bowen. I needed a good laugh! :) I didn’t know that - that is very helpful. Also, I don’t know if you’ve heard of ”LLMD’S”, or Lyme-Literate Medical Doctors. There aren’t that many of them, but are the best to go to for Lyme-related issues. I don’t know much about where to find them, but I found mine by going to http://www.lymenet.org and posting under ”Seeking a Doctor”. A.   [End]
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Hi and thanks! I actually have in a box somewhere a Sota Silver Pulser zapper thingie. I have not done any electric/zapping stuff for two main reasons because of the lyme: 1. The lyme pathogen is pleomorphic and exists not only in the blood, but burrows into the tissues. It has three seperate forms. I am not entirely convinced that electrification will eradicate it because of this. 2. Also, zapping has to be done VERY carefully. If you don’t zap for long enough, you only end up killing the *weakest* forms of the pathogens, thereby giving the stronger versions more freedom to t ...
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Hi Seashell, I’m definitely looking into that protocol. I have set up a battle plan which first involves building up my body and dealing with the candida issue, but I definitely have my eye on the Salt/C. Thanks, Alison   [End]
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Lisa, thanks - that is good to know. The idea of SS seemed fairly daunting to me, but now I’m encouraged. Thank you! Alison   [End]
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The Bowen test has to be ordered by a medical doctor. Any doctor *can* order it, it’s just finding one who *will*. I had this problem with an infectious disease doctor who told me there was no way I could have Lyme and didn’t want to order the test. I should send him my results lolol. But once you find a doctor who is willing to order the test, give her or him the phone number for Bowen, 727-937-9077. The doctor’s office must call Bowen and request the lab protocol information. Bowen will then fax your doctor a 13 page document that contains the protocol, payment information, and ...
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Thank you Mr. Cooties! As I was laying in bed last night I thought about a big fan in the window. There is only one window in the room and I keep it open all day with the ceiling fan going but the air seems to just come IN rather than out. I will have to get a fan. Thank you!! Nicole   [End]
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Got my test results back from Bowen. My dilution rate is 1:64, which is their second highest rate in their scale. I have Lyme, and I have it bad. After almost three years, and somewhere between nine and eleven doctors who all misdiagnosed me, it was only because if this site and my own dogged research that I ever was able to figure this out. I was diagnosed with fibromyalgia three times, possible vasculitis, mono, mild traumatic brain injury from a car accident, depression (puh-LEEZE) and others I can’t remember right now. IF YOU HAVE BEEN DIAGNOSED WITH FIBROMYALGIA, CHRONIC ...
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I was diagnosed with fibromyalgia by 3 seperate doctors. I had to go through so many before I could even find a doctor that was willing to order the specific labs I asked for. After what I’ve read, I am almost willing to be cash money that you have Lyme. I have been researching Lyme disease for months! In fact it was here on CZ that I discovered that Lyme might be the root of all my probs. Here’s what advice I can give you: IF you are going to get tested for Lyme the ONLY 2 tests that are good are the Western Blot through Igenex. Do not send anywhere else but Igenex. Or, the Bowe ...
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(((((((((((((((((Hopinso!!!!))))))))))))))) So good to see you. And what an interesting coincidence. I seem to be going through my own strange new set of issues as well. It’s looking like I have Lyme disease, and possibly babesia and possibly mycoplasma infections as well. I should get my labs back tomorrow but I fit the clinical diagnosis to a T. The past 2 years my health, despite cleansing, etc. has gotten progressively worse. First, I was in a nasty car accident and developed starnge neuro symptoms and then I got mono and just never got better. The past few months I hav ...
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Hi Anne, The intense sugar cravings lead me to wonder if it might not be a candida issue. I had these so badly, and since I switched to a no sugar diet my cravings are totally gone. I’m also taking caprylic acid, oil of oregano, and some grapefruit seed extract. Just a thought. Candida is so pervasive, especially when it goes into its fungal form, but then again your diet is so good - although I am wondering about the fruit sugars. Alison   [End]
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Hi, I am one of those people who had the lovely expereince of seeing what it did to both my husband and my good friend. Husband’s withdrawal: complete psychotic break brought on while withdrawing from effexor after taking one sip of beer. I had to call the police. This happened three seperate times. It was HORRIBLE. At one point he wandered off in a city we had never been to and I couldn’t find him until he came to the next morning. Friend: I had to hold her head all night and feed her TEASPOONS of water with crushed Effexor in them (per doctor’s orders) so I could try to get ...
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Hey, no worries! I know, they come up with these scary sounding terms...I love ”porcelain gallbladder”, doesn’t that just make you feel like you’re scared to break it or like a bull in a china shop? good for you for discovering alternative means. I am actually doing a liver flush right now, maybe my 15th or so - lost count. They are amazing. Blessings, Alison   [End]
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Wow! That must have been very traumatic with all those stings. And your poor son! I have about a million things running around in my head right now...what concerns me is what you describe as continuing nausea, bloating, diarrea (I can never spell that either)....I am wondering if you have some sort of infection. Sometimes trauma can release some latent things too, but it’s too early to say maybe if that’s it or if it’s just a healing crisis. Well, see how the cleanse goes, read everything you can on this awesome website. And keep doing it - it takes time for all the junk to leave ...
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Hi, Don’t despair! It is absolutley perfectly and totally normal to feel like you want to hurl yourself off a bridge when doing these cleanses. It’s just hard when you don’t know that, and then it comes up and you feel awful and you think what a bummer that a cleanse makes you feel worse! What may be happening is that the cleanse is stirring up all sorts of gunk in your body. I firmly believe that depression is a disease of blockage and toxicity, so when stuff gets agitated, your system becomes temporarily overwhelmed with stirred up toxins and you feel worse. But it’s only tem ...
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I didn’t know you were supposed to avoid fibre the day of the flush either. Does anyone know the reason for this?   [End]
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Hi D, Yes yes and yes! I totally agree with you and have also had a lot of the symptoms you mentioned. In particular, I definitely agree that the symptoms ”morph” and change over time. The sinus issue may also be a yeast issue. I know that several people with Lyme have had this and it’s directly related to candida. And sex drive . . . lol what’s sex? I think I’ve forgotten. Here is a link to Dr. Burrascano’s treatment guidelines - this is an excellent document and was really helpful to me. http://www.lymegroups.org/EastBay/ Also, I’ll cut and paste here his checklist of ...
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Lisa, Thank you! I will ask my naturopath about these when I next see her. Although I don’t think she is very lyme-literate...so thanks also for the links. Also, I TOTALLY agree with you on the whole being patient thing. That is the one biggest mistake I made in trying to treat this naturally -- I would give up too quickly. Now I know it’s a marathon and not a race and to be patient. I have been doing the cleansing but one thing I’ve found is that at the moment my digestive system is so screwed up that it seems not to be able to produce enough bile to do the liver flush proper ...
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Hi, I had the same question when I started hearing about how many positives there are through Bowen. But there are two things that I think may cause this: One, people who have doggedly waded through so much research on their own and desperate for a diagnosis seem to be a large part of Bowen’s clientele. I figure the really sick and really determined people find them, and that this is why most of them test positive for Lyme. Secondly, I understand the concept of ”false positives” with other tests, but with this one I just am baffled as to how actual Lyme spirochetes could actually v ...
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D, That’s a great idea. Hopefully I can be one of the first to respond as I just went to the lab today and my blood should be in Florida by 10 am tomorrow with results the next day. I am going to be so all over my doctor’s office to fax me the results. Have you checked out lymenet.org? The forums there have a loooooot of info especially about co-infections, symptoms, Bowen dilution rates, etc. even weird symptoms that I have that other people have like dyslexia, air hunger, and eyelid twitching! And getting sick in Target/Wal-Mart stores. Your symptoms sound amazing. Many of t ...
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Hi Daedalus, Was it the Bowen lab results themselves that told you that it wasn’t in your red/white blood cells or was it a doctor that told you? I find that statement confusing from what I know. Perhaps when they took a look at your blood they found Lyme in locations other than the actual cells mentioned. The Lyme spirochete can burrow through tissues and can be found in other places besides in the cells themsleves. Since they are pleomorphic, they can be in several places in your body at once and even if they’re not in your WBC’s or red blood cells, if they are in other locations ...
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That’s great! I really hope things go well. Another thing that is an old-time rememdy but works well and might help things along is good old *warm* prune juice in conjunction with whatever else is being done. Blessings, Alison   [End]
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I just got some a few days ago and I cannot believe how good it tastes. I am literally blown away. I had to go check and make sure it was ok on a candida diet because it was so sweet and yummy. Ali   [End]
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Yes, it is pretty awful. I usually make a big pot of vegetable soup and then put it in the blender and liquefy it and add the superfood. It seems to go better with veggies than with fruit. Otherwise, I just mix it up with water and do it as a shot with a juic chaser. Cheers, Alison   [End]
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Hi there, I have been in that position before. I think with me it was only 11 days or so, but it was bad. I think step number one is to get that impaction removed or it’s just going to be harder to get out. It’s like concrete, and probably very wide. This sounds terribly gross, but what worked for me was using my fingers to gently and slowly try to break up the impaction into smaller manageable bits. I’m not kidding about the concrete either - it gets that hard, which means that one enema or even two may not do the trick, it would be like sloshing water on a brick wall. Also, I ...
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www.lymenet.org This site is incredibly helpful with lots of really knowledgeable people on it. Check out the discussion boards. Great support and info about what lyme is, how you get it, how to test for it, how to treat, *co-infections*, treatment of co-infections, finding a Lyme Literate doctor (LLMD), and more. http://twistoflyme.blogspot.com/ For a brilliant, witty, hilarious walk through Lyme and all it entails...check out this blog. Blessings, Ali   [End]
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Yep! My killer is bleach. Talk about pavlovian! Another thing I was mulling over is an article posted somewhere here (maybe in Invisigyrl’s blog?) that makes a tantalizingly brief mention of people with what we have not getting your standard illnesses such as colds and flu. Has that been true for you? I was reading that and thinking hmm, it’s true I have not gotten a cold or the flu or runny nose or anything like that while I’ve had the mono and fibro. Which leads me to think that this is very interesting indeed. On many different levels. :) Ali   [End]
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LOL no, it isn’t the other Ally. (Who is doing well by the way and back in Australia). I’ve been having a hard time posting or even reading the CC board lately too...more of the same oversensitivity, it’s weird. I definitely get what you are saying about dragging our ”suitcase of physical” behind us. Another thing that really helps me, and this may sound weird, but for me the pain is the worst in the mornings. So, at the beginning I would wake up and moan around in pain etc etc. Then one morning I woke up, and (this is so weird) but somehow in my foggy state I decided that it w ...
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Hi Liora Liah, I just had to respond! (btw if you are the same LL as on the CC message board etc. etc. I hope you are enjoying your essence!) The ”honing”....makes a lot of sense for me. One thing that I noticed with my chemical sensitivities/fibromywhatever, is that I am oversensitive to *everything*! Interestingly, when I went to the doctor, she tested my reflexes and said that I exhibited ”hyper reflexes”, which I didn’t know was possible, but when they bonk you on the knee with the little mallet it means that you respond way too fast. The body is in a total state of super ale ...
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Great to know about those CD’s too! Very cool. Blessings, Ali   [End]
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Eileen, That’s great! I would do just as you said, the Schulze one first and then Hulda Blast - o - matic! Here is my reasoning . . . With the Schulze tinctues, the L/GB formula and the Detox, (and by the way you have to write and tell me your expereince after you taste them...yiiich! lol)...anyway, they do lots of good stuff like kill parasites. This will ultimately make the Hulda flush more effective than if you had done it first, I think. Also, I don’t know if you have ordered any of his Superfood, but if you have it and take that as well, I noticed last flush I did that it ...
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http://curezone.com/forums/m.asp?f=22&i=431 I thought I would post this here too since there are so many similarities between CFS/Fibromyalgia. Blessings, Ali   [End]
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Ok, so, I’ve been to two doctors and they both have diagnosed me with fibromyalgia. (It’s my opinion that fibro is most definitely an *infectious* disease, perhaps based on Lyme or other mycoplasmal infection, but hey what do I know). SO I have been trying to get well now for about a year and a half. I’ll save telling you all everything I’ve tried for another post, but I wanted to talk specifically about something. OK, so one of the things I have noticed about this disease is that the symptoms seem to get much worse right before and during my period. So it’s like PMS that makes yo ...
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I think there is a lot of merit to the hypoxia theory. One of the symptoms of my fibro has been a large amount of petichiae all over my body. Petichiae are small red dots caused by broken blood vessels. I was reading one of the many novels I read while spending my life on the couch with this disease lol, and actually in several of the books I have read they cite petichiae as showing up on a person who has been strangled or had their air supply cut off. Hmmmm..... Also, I read somewhere else that pain in the extremities in particular is caused by our actual blood cells becoming miss ...
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Hi, I am not sure but I seem to remember that a red tongue can indicate heart/circulation issues. Blessings, Ali   [End]
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Hi Tutiecat, I have done both cleanses. Both are excellent. One of the things I discovered though, is that the Hulda Clark method does not seem to work very well when I am sick. As Andreas says, when you are sick, you are not able to produce the amount of bile sufficient to do the cleanse. I still got some stones out but it was very taxing on my system and left me quite exhausted the next day and I didn’t get out nearly as many stones as I did when I was not sick. So in my experience, I find that the Dr. Schulze 5 day cleanse works much better when I am sick. It is much gentler, ...
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