Some days we just get down about it even if nothing bad happened. It just gets old after a while. Very old. When I try to explain this to people I say that it is worse than cancer because at least you LIVE when you are alive with cancer, but with this you have to turn off your life when you are living it. The longer I have this, the better I am able to deal with it. I'm turning out to be pretty positive strangely. One thing that gets me through the day is knowing that I am the strongest person I know (along with you guys). There is no way to explain that to someone who hasn't been through this, but I know in my heart of hearts that we are all the strongest people alive. Every day, that thought makes me happy. That when we get through this, we will have been through something that no one could even compare to because they wouldn't understand or even think to compare such a circumstance. I feel like a strong, amazing person because of this, it sucks that it had to happen, but that is truly how I feel. That is what I think of every person that has to deal with this too.
sometimes i think that if i never get better i would want to contact some other people who are dealing with this and live together to have some good company and work on it together. that gives me hope too. until then, i'm here for you to contact. i like talking on the phone because i enjoy the human contact of someone else who is dealing with this, it helps a lot. but i'm also here to email if you want to talk.