Hello Sheldon (and to all of the rest of you who are following all postings on the Vitamin E diet and cure.) Just wanted to give a quick update on how my son is doing on the diet.
Well, I totally gave up on trying to get my son to eat yogurt, and am now giving him a pro-biotic supplement in its place. I'm still giving him brown rice and white potatoes (either/or at a meal, not both), and plenty of veggies along with chicken and fish. He's gotten sick of eggs, so I haven't been able to get him to eat those for the last week or so. I've also found it impossible to get him to eat the cooked pearl barley. Any suggestions you could offer on interesting preparation/presentation of eggs or barley would be greatly appreciated. I've found out that refined Sugar is a no-no for my son. We've been using honey when a sweetener is necessary.
Our local Whole Foods store has been such a Godsend in following this diet. I find new foods made solely from brown rice every time I go. I do have a question for you regarding dairy products. My son is a gigantic milk lover. He drinks a gallon of milk every three days if I don't limit him. You did mention that the use of a small amount of milk was ok, so how much do you think I should allow my son to have daily? I used to buy chocolate soy milk for him as a treat, but since chocolate is not on the diet, I was wondering if you think having him try to drink the vanilla flavored soy milk would be ok. I've tried the regular soy milk, and he'll drink a bit, but not enough to get the daily calcium he needs. I have a couple of veggie questions for you as well. First of all, you said that the use of onion is fine in cooking the veg, but what about fresh garlic? I know that garlic has many benefits for our bodies, but I was wondering if an irritated colon would be nagatively affected by its use. Also, you mentioned that Delmonte corn is ok to use. I'm assuming that you mean the canned kind, but just want to make sure. If it is the canned type that you refer to, are there any other canned vegetables that would be ok to use (like green beans and peas)? I don't intend to use canned veg the all of the time, but it would make a huge difference in prep time when I don't have a large amount of time to commit to making dinner.
Well, all in all things are going pretty well. My son's stool form as of a week ago had gotten back to normal. Unfortunately, I allowed him a small amount of Sugar over Halloween, and his stool form has become loose again. He's still on prednisone, but has been tapering down again, and will finish this round on 11/13. My son is very anxious to try to add new foods to the diet, but I've decided that we will absolutely not be adding anything new until he has been off the Prednisone and feeling really good with good stool form for four weeks. I will post again once he is completely off of the Prednisone to let you know how he is managing without it (and the vitamin e treatment and diet as his only treatment). My son has an appointment on 11/14 with a new GI doc. I am curious (and a bit anxious) to see her reaction to the vitamin e treatment and diet. If I don't like what she has to say and/or her suggestion for a treatment/management plan, I have the name of a holistic Dr. that I am going to take my son to see.
God bless you Sheldon, and thanks for all of the wonderful information and support!