Hi Sheldon. Just wanted to give you an update on my son's condition. We started the enemas and diet on Sunday. My son had a mild flare-up on Monday. I can't pinpoint what caused the flare-up, but I suspect that it was because my son was coming off of the prednisone. It was really strange, my son started with (mildly) bloody stools and pain in his legs Monday morning, but he spiked a fever of over 105 early Tuesday morning, and I took him to the ER at Children's Hospital. They took all of the necessary bloodwork, and sent him home with instructions to start back on 20mg of prednisone. When I spoke with his GI doc on Tuesday, she told me to increase the asacol to 3,200mg daily and wean him off of the prednisone right away. Her instructions for weaning is to cut the dosage in half every 5 days until he gets to 5mg; then to take 5mg for 5 days and then every other day for six days.
At any rate, I decided to stop the diet and enemas on Tuesday (because it's difficult to get my son to eat anything when he's having a flare-up) and will resume them again this weekend.
Though my son was only on the diet for two days, I am having difficulty getting him to eat the things he needs to eat to follow the diet. He's one of those kids that would rather not eat than eat something he doesn't want. If you (or anybody else reading this posting) have any suggestions for recipes or food combinations that would be more appealing to a 9 year old child, I will be forever grateful. I tried giving him plain organic yogurt, but he won't eat it. Can he eat yogurt blended with fruit if there are no chunks? He loves those gogurt things that come in the tubes. They're great because you can freeze them and the kids can eat them like an ice pop. I have no problem getting him to eat meat or potatoes, but the veggies don't seem to appeal to him. He likes most vegetables, but not mixed together. What is the minimum number of veggies he should have at a meal? Also, I tried mixing the cooked barley with the veggies, but it gets pretty soggy and makes them even less appealing. How do you usually eat the barley? My son doesn't like brown rice plain. Can you offer any suggestions for cooking it in a way that would make it more tasty? What about desserts? Since my son's not permitted to eat fruit on the diet, I don't have anything to offer to satisfy his Sugar cravings. I tried giving him homemade tapioca pudding and even rice pudding (made with brown rice), but he wouldn't eat it. I'm at a loss here because my son was only on the diet for two days, and I already encountered problems getting him to eat the things he needs to eat to follow the diet. Again, any advice or suggestions you can offer will be greatly appreciated.