Hi, the London Clinic got back to me about the fractionated porphyrin urine test....though they just called it the porphyrin urine test (without the fractionated...I think that's irrelevant anyway). They do it, but only one test, rather than 24 hrs as described in Andy's post. I don't know how relevant that is. It's £63. I couldn't ask anymore questions as they left the reply on my answermachine while I was out. You could try and ring them to find out more info (0207 616 7755).
Andy hasn't replied to my query about it yet.
How are you feeling today?
Anne