Hey, I understand your problems.
I actually used topical tacrolimus for almost 5 months. It stopped the peeling but didnt stop the dryness, stretchiness and general discoloration that existed on my lips.
I have been living with EC for two years now. I am in the US. I was in grad school and very stressed out so I never really had to opportunity to really look into it.
However, now that I graduated and have started a job I have more time in my hands and have been reading curezone actively. I have an excel sheet with all my findings etc.
I have used a fusidic acid steroid cream, clotrimazole, taken antibiotics, applied lanolin and tons of other moisturizers for over the past two years and nothing has helped so far.
I will soon be trying out the liver/colon/kidney cleanse and I hope that would be my solution- if it is the real problem.
I have also started taking several supplements- including 400mg niacin, b complexes, Q10, vitamin E, EPO, fish oil, vitamin a etc. Its been a week or so since I started on this regime.
I just this week cut out grains/gluten and dairy from my diet. Hope to see some progress soon!
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