Re: delusional parasitosis demodex morgellons intestinal parasites worms flukes failure of the medical community and standing up for our right to have treatment
It is possible it was in your mind - congratulations for your successful treatment and recovey if so.
It is also possible this is a total BS post - no user name or followup??!
IF its a post by someone in the medical profession, SHAME on you!
Based on my experience, and that of thousands of other people who were told by their doctors that there is nothing physical wrong with you, but you only THINK you have parasites
("delusional parasitosis"), and on their own (often with the help of others on forums here and elsewhere), discovered they indeed DID have parasites, I hope those sufferers looking for a solution to their real and not imagined parasites, have faith that there ARE solutions and remedies out there, even if their doctor(s) don't acknowdge it, miss the diagnosis, act dismissive, and/or are condescending to them.
My own experience has led me to discover that I was absolutely correct in identifying I had a parasite
problem (how could I ignore what I and others close to me SAW EVERY DAY in pustule breakouts, channels, crusting, scarring, etc?!), but incorrectly focused on the symptoms (skin parasites) and assuming it was a mite infestation (or ONLY a mite infestation), when it was actually internally based, with ground zero being my GI tract.
But hey, we go to doctors and RELY upon their professional advise with the confidence they have the skill and aptitude to figure out what we have and how to cure it. It's not somethimg wr SHOULD have resolve ourselves.
Doctors and allied health treament givers, GIVE SOME CREDIBILITY TO PATIENTS FOR KNOWING THEIR BODIES AND WHEN SOMETHING IS "NOT RIGHT"! Ask questions, and listen and respect patients thoughts. Get your butt into some research time outside the box when necessary, and out time into finding effective treatments. Use CUREZONE as "ancillary" or "incidental" research - your smart enough to graduate from medical school, you arr most definitely smart enough to find solutions to the problems posted throughout the CUREZONE.
Don't blame us if we go out and seek a cure eksewhere if you dismiss us! IF you were in our shoes, you would do exactly the same thing - 100% certainty on that!
In my case, the best professional support I got was from a good scientific microscope. A HIGHLY recommended purchase before you throw away cash on endless "possible" treatments.
The best (actually ONLY) treatment ideas I got was from forums like CureZone (NIH posts some good studies too).
Once I started trusting what I "saw" (using the microscope), trusting myself (never been a problem), and went looking inside (missed that one for two years), the difference in treatment and recovery has been amazing.
Read my posts for more.
Still in the middle of treatment, but NO skin issues for over 30 days - that is a record for me.
Physical and emotional state great (we all know how stressful and life changing these issues are - for physicians who don't, may the worse parasite
infect your bowels (and get cured and start educating your peers - you could clean up in growing your practice!).
And for those with skin based morgellons demodex scabies and worm issues, please pay attention to your intestinal health and start looking there (flush or get intestinal parasite
meds and see if you can flush out parasites). Chances are THAT is where issues started or got cranked up, and that is where you need to focus your treatment.
I believe that more than 50% of those who think their issue(s) is mites or morgellons, are actually infected by one or more intestinal parasite.
Easy to find out - flush them out with either "natural" means (countless advisories here on that) or using meds (ie. albendenzole/valbazen, praziquantel, fenbendezole, oxenbendazole, ivermectin, and more) available by resourceful folks without prescription and at vast cost savings over prescribed versions.
Chances are, your GI tract is the core of your problems (please pay special attention to this morgellons sufferers).
I know I have a substabtial road ahead / this is no one day or three day treatment to cure process, despite what a doctor or nurse says.
They are ignorant about parasites
and think all patients who come in thinking they have parasites
are in some form delusional.
Most sufferers are at their wits end when they arrive at doctors office and or have been told over and over again its in their head. They are embrassed to admit they have parasites, afraid they may infect others and be ostracized like a leprosy sufferer.
By the time a doctor sees one if these stressed out and desperate patients, it is no wonder the delusional parasitosis diagnosis is applied.
So fellow sufferers, have faith - there is almost always a reason and REAL medical cause for your issues. Just because a doctor doesn't know or isn't exposed to the issue, doesn't mean it does not exist. Overseas in "developing" countries, delusional diagnosis doesn't get thrown around.
The USA medical community needs to pay attention and THINK about the noteably large number of supposed delusional paratosis diagnosis - is everyone posting on this site delusional? Are there ANY on here delusional? (Probably but likely to be < 1%).
Im a prominently known person and when I'm done with ridding or managing my issue, I'm going out publically and using my influence to help take this out of the shadows.
Hope others do as well. Fear of what others might think is NOT in play in my book.