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Rala51829 Views: 559
Published: 4 years ago

Iím back after being away for 8 years!

I first joined curezone in 2009 aged 20, now Iíve recently celebrated my 28th -- and guess what, I still have EC! This horrible disease has plagued my life since I was aged 12 and has never gone away since. Unfortunately Iíve had this condition for almost 16yrs and YES I have suffered from severe Depression and it has affected my social life (it could even be argued whether I have one) a lot.

Iíve been managing my EC with scissors and Vaseline. The large crusts or keritinization that forms, I just simply carefully remove with scissors. I remember telling a doctor this once and she gaspedÖ telling me thatís dangerous Ė well duh! But thankfully I have rarely cut myself cus Iíve been doing it for so long. I usually carry my scissors and a mirror with me nearly everywhere I go.

Iíve been going doctors ever since I was a child to cure this EC and all these so called professionals have been useless. Thank GOD I live in the UK and we have the NHS. Imagine having to pay to see these medical professionals and pay them to try things that only make things worse Ė yikes!

Recently I was having dinner with my father and he said, that the problem with me is -- cus Iíve had this condition for so long Ė Iíve become accustomed to it. I no longer actively try and find a cure. He had a valid point and the penny dropped. It was at that point I re-joined curezone and Iím going to try and find a cure for my EC.

With that being said, I wanted to hear other peopleís opinion on the fact we constantly use our mouths for eating and speaking day to day. Iíve noticed that my peeling cycle is slower when I talk less or eat more slowly/carefully. Maybe small day to day activities cause mild trauma. Where normal lips can withstand laughing lots/eating which involves lots of mouth movements and constantly speaking. Maybe EC suffers because they donít have that protective barrier, the lips are more prone to peel.

What are your thoughts?

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