I know this is an old post...
But I couldnt help it.
I am 28... I have had mirena lodged in my cervix since 2014... And I already had PCOS. Like these ladies above, I was researching PCOS and IUDs (or mirena) and found this. My PCOS has gotten especially worse since my doc suggested this shit birth control to me. And I really like her.... So it sucks. She has been the only doctor to help me and get it all right with me...she even found a chiari malformation (in my brain) which lead to brain surgery and saved my life. She's a damn good dr.... I wonder how she missed this?! She knows about PCOS... Maybe the fact that mirena, on top of being a legitimate torture device alone without the PCOS addition or magnification, causes it to get worse... And may actually cause this horrible syndrome...just slipped passed her brilliant brain? I use mirena because I have endometriosis and adenomyosis and it helps with all that slightly. It's all pretty severe... And I just happen to have PCOS also. Now I know why everything has been hell since it was put in! It a) makes since now... To a certain extent. Now to bring it up to my new Dr (I moved away from the be brilliant one... Back home so I could have brain surgery in the best medical center in the world) Hopefully my new Dr can handle all this. She already wants to put me through another round of depo lupron.... And I just can't do that again. No way. It was hell. Well not as bad as all the pain. I just couldn't sleep at all for a week.
Thanks for the OP. I needed that! And thanks also for all the replys!! It really helps to see that others are going through the same and I'm not just a crazy person LOL!
Have a good one
And good luck everyone!