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Published: 6 years ago

Please help this desperate mother

Feels like death. I have been to hell and back with this parasite nightmare. From 2007-2014 not one doctor could figure out parasites. I had chronic, I mean 8-10x daily, diarrhea. Then, CDSA kit said I had blastocystis hominis. So, a naive doctor put me on herbal parasite cleanse, I took Humaworm. That was the beginning of the end for me. I had parasites every time I used the toilet, numerous varieties. And not just the microscopic variety. I had been on 42 weeks of Antibiotics in 2011 pregnancy. Then, a mainstream GI at UF couldn't figure it out (but fundamentally does not believe in parasites). She put me on prednisone, hydrocortisone, Remicade, imuran, you name it, even a hole in my stomach for a PEG liquid feeding tube. I currently have no MD hip to parasites to help me nor my family.

I tested positive through an alt MD for toxoplasmosis, trichinella, slmonella. I know I DO have worms crawling through my body, as insane as that may sound. I have no support system. People/family don't believe I feel as wretched as I say and think it 'delusional'. It's not delusional at all. It's so hard to wake up everyday and feel this pain, bloating, stiffness, disseminated crawling. I feel my life has been ripped away at 36 yrs old. Worse off I am horrified that this hyperinfection contaminated my 3 yr old, 7 yr old, and husband. I am so unwell I am living at my mom's. She is not compassionate about this circumstance. I just pray to God that my kids can be strong and well. They are my life and my husband refuses to get them treated. He's in denial over the dangers of (disseminated) parasites. He just agrees with the doctors who don't believe they exist.
I am in crying pain for my babies every day of my life. I don't want them to suffer with this. I faxed the pediatrician, told my husband and MDs. I don't know what else I can do for my babies? Breaks my heart to pieces. When I try to contact the peds my husband says I have mental health issue. Yes, I am a flipping basketcase because my kids were exposed and nobody is trying to help them but me. What do I do? Who can I call? They don't deserve this infection. I hate myself for ever having this!!! My 7 yr old daughter said she felt crawling on her foot. She took her shoe off to try to kill it but only saw her skin. *Keep in mind I don't live with her right now, so she isn't 'learning' this from me. That sends me over the edge, yet my husband ignores it.

I am on fenbendazole right now but just feel like letting this eat me alive. I am so tired of suffering and need support. It's so hard to have no quality of life.

Thanks for reading

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