An update... just over 2 weeks ago my blood test came back from a lab in Thailand as positive for gnathostomiasis!!! Explains why Albendazole and Ivermectin seemed to be (slowly) working for me!
(also my guesses of schisto and filariasis were very close for this as these are #1 differential diagnoses, but knew at the back of my mind that something wasn't right there as my blood tests for those (as well as strongyloidiasis and numerous other things) were negative and Praziquantel just didn't seem to be doing anything for me, and was still getting the sporadic symptoms after lots of DEC).
Anyway now am on Albendazole officially prescribed on NHS for 3 weeks solid (have already taken a lot more than that myself and improved, but never had taken it for such a long span at once before). Will do a full detailed post on it when better, as not many people mention gnathostomiasis here, and also not many will recommend Albendazole for as long as 3 week continuous blasts). Heck, my infectious diseases doctor had never seen it before and before now I know she was thinking I was a nutcase, so finally glad to now be taken 100% seriously and being monitored properly while on these drugs!
Anyway, lesson for you: there is HOPE after all so if you know your own mind and body keep fighting and make sure you get all the tests you possibly can done by someone who knows what they are talking about (most doctors don't and I must have had more than 20 blood tests before they got to the right one, and that was only after my ID doctor discussed my case over phone with a parasitologist at the Hospital for Tropical Diseases in London/Liverpool!)
Second lesson is to all those people here demanding to know what exact parasite you have: please realise the the answer is that most people on this forum don't actually know at all (that is why they are here in the first place!) , and are often recklessly saying they have parasite X (usually I hear people here saying "ascaris" even when their symptoms don't match at all) , but since there are quite a few different parasites with similar symptoms most people really can't say such things for sure until they have scientific confirmation, and that is something that is extremely difficult to get done properly by overwhelmingly ignorant doctors, especially those working in primary care.