Im just saying if your doctors dont explain their opinions like this, then you are seeing the wrong people haha. To me this just sounds like another doctor giving another opinion.
No offense to this doctor but Im just kind of over listening to what doctors "think" this is and how we "might" be able to treat it. This doctor clearly states in the beginning that he/she has no clue what this is.
I would much rather take the advice of the few doctors we have heard of recently who have treated this successfully.