Re: any suggestions?

I just finished watching your video and reading your website and it's really inspirational. I've been to numerous doctors too and none could help me, it's a rare condition. Since we have a rare condition we sort of have to be our own doctors which isn't really fair and many members of society are ignorant to it so we need to spread the awareness. It's great that you're reaching out to others in your community and even to the bo support forum to try and help them. I wish you all the best, I hope you're finding some relief from peeling lips. Tweet