Just want to reach out to you as a fellow sufferer of this horrible stuff... I dont think there are alot of people cured but as fungiworld has said, people have been silenced and lots feel so hopeless. I have had this for aprox 3 years and during that time have learned alot about who to consult, what to say, what not to say, but have yet to find any thing that is significantly improving the situation. I listened to the ILADs conference on Lyme and related diseases which was livestreamed this weekend and although was not at all Morgellons focused, did give me insight on mycoplasms,biofilms, immunosuppression and labs that test for such conditions.. I have been helped by the info found on Healinggrapevine and have limited all chemicals, gmo foods, additives, no longer ingest Splenda and have switched
to no fragrance,dyes etc on all laundry products. I use Borax in laundry and also use colloidal silver spray on lesions and follow up with triple antibiotic with topical pain relief. I use sea salt scrubs and soaks and have started going to an infrared sauna for 30 minutes 3x week. I have also notices an increase of activity when I eat a higher fat meal so have cut back on any fatty foods.. I dont know how this would be if I didnt do any of this stuff but think I am somewhat limiting the raging lesions from coming on... I have horrible fatigue and feel sick. The lesions are on my buttocks...a real pain in the ass for sure, also erupt on my face and I actually do skin care for a living so that is quite a problem. I dont know what else to do and fear being labled as delusional so refuse to do anymore mainstream. Am making an appointment with one of the Lyme literate docs that participated in the ILADS conference who calls this multiple chemical sensitivity, an enviornmental illness... hope she can point me to some help. And I also have no idea why the avatar here is a confederate soldier....i am actually a 50 year old yankee woman!LOL!