Are you able to smell the odor yourself or is it just from others stating you smell? I have to say at least your Drs. are taking you seriously, all the Drs. I have been to have said they never heard of such a thing, even an Endocrinologist said he never heard of it. Seems like a lot of people develop this around puberty, interesting. Good luck on your next visit, hopefully you are getting somewhere. I have heard from many that it is a lifestyle change (ie. no sugar, alcohol, fats, red meat, etc.), and all have anxiety, but mostly like you it started after this condition. I feel for you, and absolutely know your pain.
Just one more question, did you go to a large Drs. facility? I am planning on visiting a larger hospital and take all my data with me. I hope I can get some kind of answers.