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don't know where to go for help
mitogal45 Views: 1,202
Published: 10 years ago

don't know where to go for help

In 2007 I became a metabolic train wreck. I just turned 26 years old and in 4 1/2 years I have gone from normal, healthy, active to needing a walker and power wheelchair and on permanent disability.

I was dx with mitochondrial disease with significant neurological pathology. Part of this includes GI dysmotility and my rheumatologist (mito disease specialist) has said I have leaky gut. I have developed multiple dietary intolerances and am currently up to a dozen restrictions. He wanted to give me NSAIDs to get the inflammation down. Something told me that was a bad plan. I put myself on a 4 day allergy Rotation Diet last week and am looking into supplements, enzymes, etc. I am at my wits in. My quality of life is zilch. I cannot function like this and I don't know how much longer I can go on like this.

Recently, I became intolerant to my vitamin B2 supplement. My GI issues are getting worse - not better.

I started seeing an acupuncturist about 2 weeks ago. She comes highly recommended and I like her a lot. I am finding it helpful for the chronic anxiety/panic attacks.

I recently came across a functional medicine dr who claims to specialize in leaky gut. She's quite expensive (no insurance covers her and I live on disability). I also was referred to a woman who does "alternative allergy treatment" through "muscle testing".

I am so overwhelmed and SO confused. I don't know what to do. Everything I put in my mouth, I react to in some way. Either heaviness in my head, palpitations, headaches, overwhelming fatigue. There's clearly something wrong. I don't know how to fix it myself. I'm spending hours reading about candida and leaky gut and parasites and all kinds of junk and I am just at a loss. I just want to curl up and cry. I want my life back. I want to not have the genetic disorders I've been diagnosed with. I want it to be just my GI tract is out of whack.

Whom should I see? How can I fix this? :-(

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