Suffering from Folliculitis Decalvans, please help

I am a 21 year old college student living on the East Coast. I have suffered from Folliculitis Decalvans for about 5 years now and have tried almost every combination of Antibiotics , corticosteroids, shampoos, foams, gels, and natural remedies and have had multiple cultures and biopsies. The worst part is knowing my body is doing this to myself and that there may be an obscure treatment that may resolve everything that I just haven't found. I go through several pillow cases a week due to the blood, and constantly check mirrors to make sure my pustular bald spots are not completely visible. I cringe every time I see the clumps of hair fall out in the shower, and when I'm out I assume people are laughing at me and my scalp. It is attacking my confidence and driving me into Depression at an age where I should be getting ready to graduate and begin my career. I am studying abroad in 3 weeks in the Netherlands, and while I should be beyond excited, I just keep worrying I may have a terrible outbreak and be far from family for support. Any help at all would be greatly appreciated, I'm at the point where I've lost my drive for self improvement and my desire to even leave the house. Please, is there anything you could suggest that might stop the scarring and hair loss? I am currently on Septra (Bactrim) DS once a day and Clobex shampoo a couple times a week, along with 6% salicylic acid shampoo, but the pustules are gradually coming back faster. In the past, Rifampin 300mg and Clindamycin 300mg have worked well but also eventually lost effectiveness.

Thank you for any help you can give. Tweet