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Re: New Symptoms
hailey56 Views: 1,648
Published: 8 years ago
This is a reply to # 1,876,892

Re: New Symptoms

Thanks for the message. Bless your heart, I am so sorry. I hate to hear that you are also having this happen to you. Even though it is good to know we are not alone, I would never want another person to have to deal with this, becuase I know how horrific it is. It's so hard to explain to Dr's what's going on and just how severe it is - when Kate has an 'episode/flare up' it starts with burning in her legs/feet and then tends to spread upwards, and her chest becomes flushed and she gets dizzy/blurred vision, chest pains, numbess/burning/tingling legs/hands etc. She said she feels like she's possessed or something because even though she can see her body isn't moving, it feels like on the inside she is being twisted/stretched/broken/stabbed and set on fire all at the same time and from the inside/out. She has been using Fentanyl patches prescribed by her Dr to help with the pain, but when it flares up like it did today it doesn't even help. She has to take Dilaudid sometimes when it's very bad, and that atleast knocks her out for the most part. It hurts me so much to listen to her scream in agony for hours upon end, I hate Mirena and hope more women will research it before getting it. I wish I could go back in time. Thank you for your prayers, today was not a good day at all. Hang in there and thanks again for your kind words. - heather

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