Winter came and they turned on the heater in my building (steam heat) and O got sick again. Not so sick as last year and I can tolerate lots of smells that I couldn't last year, but incense, candles, teflon, cigarette smoke, lots of perfumes (where before any amount hurt) natural gas leaks hurt my lungs. I wrote my doctor to say that my lungs were worse and she dropped me as a patient.
I went to another doctor who wouldn't take me because her and her superior had never heard of MCS. I was supposed to be on a TV show, but they are using a fog machine and I have to leave parties or suffer the consequences. I couldn't breathe in my gum and couldn't get the yoga guy to stop burning incense at the oxygen-less YMCA. He got rather angry, as anyone with MCS knows... I love to work out, but cant in most places. I am a certified Zumba teacher, but cant breath in most exercise studios.
However, I am getting the last of my Amalgams out and am getting acupuncture at the free clinic. I cleaned out some burning foil and paper from my old enclosed radiator. I stopped teaching pottery which was connected to a furnace room with a leak. After that I will take my carpet out and exchange my gas stove for electric :( . I Got a bigger and better filter I am back to my detoxing,coffee enema, chlorella etc with a concentration on healing my lungs and hoping that my lungs aren't as damaged as they feel. I am going to see a lung specialist and will be happy if I don't have anything fatal. I would be so happy if it were neurotic and psychosomatic... I do therapy, will try to meditate or do breathing yoga...
It was so wonderful to be normal for so many months (except for incense and Teflon and serious air fresheners).. it was so nice to not find my environment full of hostile elements.
Not to spend all of my time and money not being sick.
I am not that sick, but am not able to go many places I want to go. I have read enough to be very afraid of getting to the point where you cant do anything or be anywhere and cant get out of bed... Its so frightening, and doesn't help that no one understands.
I have read every story I can about people who get well and they do. I just read about one guy who got fully WELL the same DAY he had his Amalgams out. He had electrical issues from different metals in his mouth.
I will write back when I am healed again. I need to go into that fog machine! I am an artist and it was a big opportunity for me.