I perfectly understand what you are going through. I have experienced the same. It is quite often a weakened adrenal situation. Mine, I believe, was brought on by candida, for the most part, since it produces toxins on the inside, like many infections will do.
What is your Antibiotic history?
Since I am yeast free now, I just attempt to do what you are doing. Your family doesn't understand that it is a matter of life and death to you. When your glands shut down, so does your whole body.