My cortisol is really low. And it was so low once that I had a near death experience. That was during a time when I was not right with God, I was doubting a lot and in and out of my faith. My near death experience was not pleasant and I'm thankful for it though, because it woke me up. Anyhow, I know how you feel. I am so ill and I can barely walk through my house. I can drive just as long as I feel up to it at the moment and there is no major traffic. I limit everything I do, and have to leave cleaning up to my son and husband.
What is really hard is being so ill and most doctor's do not believe we even have an illness so you tell people what is wrong with you but almost feel like a liar saying it because it hasn't been medically recognized by most of the medical profession. I just believe so strongly though that if I just have enough faith I will be healed and I will not let go of that.