this is not caused by some virus. those doctors have No idea what they're talking about! it's NOT caused by kissing, lip-licking/biting, or any of that ridiculousness!
i've been suffering from EC for 13 years now and have seen just as many doctors: at least 5 different dermatologists, 4 different allergists & immunologist, etc. i'm ridiculously healthy & health-conscious. i heal So Fast from colds, flu (i don't even really get sick), and my stomach can pretty much digest Anything, even rubber tires if i want to. when my skin heals, it's like i have Baby Skin. i look 10 years younger than my age. the only sign of wear & tear is my lips: splitting, cracking, bleeding, crusting, deep accordion lines like i'm 100 years old, sometimes weeping, and Always ALWAYS peeling. get it wet, it turns white, and it peels. ALWAYS.
so: ask those docs to figure That out!
from my blood tests: no hormone imbalance, no deficiency of any kind, no thyroid, liver or adrenal problems. none of that. BUT: i Did test positive for an autoimmune disorder. now i'm digging deeper into that. what i'd like to figure out is, if the rest of my body heals like a dream, why & how did it come to be that my LIPS alone are suffering from my supposed "autoimmune disorder"? why, why, why? and, what we ALL want to know is: how do we stop this madness?