Everyone just gives me a blank stare when i try to explain what i have. They don't have any idea what i mean when i say my lips peel, they just think that my lips get chapped because thats what everyone else gets. They can't comprehend it and i don't blame them because i didn't know wtf was going on either. I really have only told two people in my family. Whenever i know i'm going to be around family i peel my lips the night/morning before so they can't tell. I don't want to scare you but i heard that surgery hasn't worked and that the condition is too stubborn to be removed surgically.I think Cureforcurezone has tried. I have thought of having surgery before but i'm 24 so i still have a long time before i say f**k it i'm just gonna cut it out. I hope that if you do get surgery you remove all the area that is affected and that you will have normal lips even if your lips would look like Glen Close'. I wish you the best of luck.