I am very sad to hear of your situation. How can anyone know what to say or how you must feel unless they are walking in your shoes. It sounds like you have good support with family and friends. This is so important to have.
To your advantage you are being referred to many healing avenues from the get go. I lost a friend to ALS in April this year. His trigger very well may have been from lipitor and/or dental work. It was shortly after that that he developed symptoms. We all tried to make sense of the whole thing and maybe there just is no sense to it. I do know that he had great support from his partner and I truly believe she is why he was able to function for so much longer than the doctors told him he would. At the time my friend was diagnosed we were not familiar with all the natural remedies available. We learned a lot through the whole thing though it would have been better if we all had been on that path then.
He worked with a chiro/kinesiologist which helped him a great deal. Another thing that was helpful to him was Naltrexone-LDN therapy. It is a pharma drug but at a very low dose, a compound pharmacist is needed to prepare it I believe. Most of the research has been with MS, however, it has been found to be effective with other autoimmune conditions as well. Here is the site that talks about it and research ongoing:
I feel that had he known about this sooner it possibly would have been even more effective, but it did help him a lot with his stamina and increased ability to move around. I actually learned about this on the ALS forum here on curezone. It is unfortunely not a very active forum. It references yahoo groups that perhaps you could check out.
May your will to be strong continue and as Invincible mentions, tap into the inner healer that you are.