One thing i would do when you visit the doctor is print off all these replies on the forum.
this will give the doctor the right information and relieves you from having to describe it yourself while your in the office.
most doctors are not equiped or experienced with matters such as this, and they will have a hard time believing your problem really exists.
i have had a similar problem for quite some time. I have been to a dozen doctors and even some specialists who dont actually " believe" there is anything wrong with me.( other than they think i am mental, ha ha) Of course we know better. They should know better as well.