I was diagnosed with Lichens Sclerosis about 6 years ago, but believe I have had it since childhood.
I suffered terribly from the symptoms for 4 years before I started treatment as per a yahoogroup called lichenSclerosis@yahoogroups.com. This support group is wonderful and the moderator has researched extensively "treatments" for this condition, since it cannot be cured at this time.
I went from having lacerations up to two inches
long on my genitals and loosing a lot of the female architecture down there to having no more lacerations or papercut like lesions and regaining some of what was absorbed/adhered in my architecture back.
Please visit this group (they do send out many emails a day so when you sign-up make sure you do not check for individual emails otherwise your email will be full. I get mine in a file containing about 20 emails at a time and about 4 times a day.
I really do hope that this helps someone. My husband almost left me because I couldn't have sex anymore, but now we are very active again!