3 1/3 years post, 32 weeks pregnant 
Melanderso
9 years ago
5,340
RRR Educational
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My Mirena was surgically removed from my bowel area in Oct. 2009. I’d had it almost 3 years. I got pregnant on the first try last June 2012, but this has been a very rough pregnancy. I’m not sure if it’s the scar tissue from the Mirena perforating, nerve damage, or what, but I have had daily stabbing pain since about 22 weeks.
Also, she has been transverse this whole time, and I worry that abnormalities of the uterus are somehow making it harder for her to turn. I have also had an unheard of amount of Braxton Hicks Contractions (sometimes 50-60+ in one day) due to “irritable uterus.” (Ha)
When I got pregnant, I was probably about 60% better from the Mirena mess. I am absolutely sure Mirena caused my horrible fatigue, rage/ detached feeling (which was so bad my husband of 16 years brought up divorce), migraines, back pain, and pain /numbness in my leg. I also had very low vitamin D and progesterone levels. It was 90 year old woman syndrome.
The symptoms that came up about a year or more AFTER removal were eye pain, one eye dilated more than the other, rashes on my face, majorly diminished lung capacity (I have the lungs of a 70 year old and never smoked), nausea, spitting up blood and metallic tasting “stuff.” And more body pain and fatigue!
I truly believe these later symptoms were a reaction to my biohazard of a work environment, BUT I NEVER had a reaction to that moldy building until AFTER Mirena. The Mirena brochure itself admits that Mirena MESSES UP your immune system. I am absolutely sure Mirena tanked my immune system and that environmental factors (lots of black mold and dust) at work made me even sicker. I never had a chance to heal.
I only got out of that building one week before pregnancy, so I won’t know for a long time whether my immune system has healed from the Mirena or not. During this pregnancy, I never got any energy back after that first trimester like I did with my son.
So, I pray that in a year (when I can hopefully sleep again!) I will discover that I am finally over the Mirena nightmare: 2006-2013. And thank God for this forum and the ladies here! I hope all of us find permanent relief!
More
- Re: 3 1/3 years post, 32 weeks pregn... nile
9 years ago
4,498
MoreThis is a reply to # 2,027,189Best of luck with your upcoming delivery!! I hope once you recover, you find that having a baby fixed your Mirena issues. I am 4.5 yrs post mirena, and 2.5 years after having my post-mirena baby, approximately. The past few months have been as close to normal as I've been in the past 5 years, and I'm hopeful that will continue for me. So after feeling terrible for SOOO long, it is still possible to improve :)
Good luck and congratulations!!!
-nile- Re: 3 1/3 years post, 32 weeks pregn... happyfamily6
9 years ago
4,592
MoreThis is a reply to # 2,027,229Nile and Melanderso, thanks for the update. I wish the best for you ladies in your continued recovery! I always look forward to your posts. I'm hoping Cynthleal will recover soon too since having her post-Mirena baby. It's amazing how long it can take us to recover. I was 3 years post last November. Still plugging along.
Take care!
Diana
- Re: 3 1/3 years post, 32 weeks pregn... happyfamily6
9 years ago
4,592
- Re: 3 1/3 years post, 32 weeks pregn... nomirena
9 years ago
4,381
This is a reply to # 2,027,189Congrats on the baby ! I hope you are able to find some relief with the birth.
- Re: 3 1/3 years post, 32 weeks pregn... Melanderso
9 years ago
4,265
This is a reply to # 2,027,411Thanks everybody! Nile, that's great news. I am so sorry (and horrified really) that us "old timers" are taking so long. I have to laugh, though, because I've gone from one fatigue causing event to another: have baby,Mirena, black mold, get pregnant, have baby--next will be menopause and I'll never be energetic again! I'm soooooo glad I had fun in my 20's! : )
- Re: 3 1/3 years post, 32 weeks pregn... happyfamily6
9 years ago
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- Re: 3 1/3 years post, 32 weeks pregn... happyfamily6
9 years ago
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- Re: 3 1/3 years post, 32 weeks pregn... Melanderso
9 years ago
4,265
- Re: 3 1/3 years post, 32 weeks pregn... cynthleal
9 years ago
4,444
This is a reply to # 2,027,189Hi Melanserso and congrats on your pregnancy. I hope your story turns out better than mine. When I was pregnant my symptoms didn't cease neither after the baby was born. Now she is 15 months and I'm still struggling every day with symptoms, I do get some okay days but for the most part it's always something. I try to eat as healthier as possible, i've been taking supplements all this time, and my body just hasn't returned to normal. WHen i found out i was pregnant i was scared of the outcome and thank God everything turned out fine, but my hormones, or what ever is wrong with me, is still the same. I'm really losing hope now. It's been over three years and things dont seen to be improving too much. I'm starting to believe that the damage in my body is permanent and that I wont live too much. I'm happy for all the ones that are doing much better, I wish i was one of them too but for whatever reason I'm not and this is very discouraging for me.
I really wish you the best in your delivery, and dont worry too much about the braxton hicks contractions; I had those too since I was 5 months pregnant. I was also worried about the baby having some type of problem but God is big and he blessed us with a happy and beautiful baby.
Sorry if my post is not so encouraging, I was thinking of not posting because I feel negative with my story but I really really hope that your turns out much better than mine.- Re: 3 1/3 years post, 32 weeks pregn... happyfamily6
9 years ago
4,287
This is a reply to # 2,028,916I think it's okay and important that you keep posting, Cynthia, even if you're still struggling. We care about you, and you're not the only one with a long recovery. Just do the best you can. It's so hard to be patient.
It's been a long winter. Here's to hoping for better days in the spring for all of us!!
Love,
Diana- Re: 3 1/3 years post, 32 weeks pregn... Melanderso
9 years ago
4,350
This is a reply to # 2,029,211I guess there's no way to tell how it will be in 6-8 months (for any of us). Like I said, this pregnancy is VERY rough compared to my pre- Mirena pregnancy. BUT,I've had two ultrasounds at the high risk and they don't see anything wrong. . .
Lack of energy was always my biggest Mirena and post Mirena complaint, and there's sure not going to be any energy for me the rest of the year! So there won't be any way to tell if I am making progress or not. The waiting game goes on. . .
Cynthia, please don't feel bad about writing. This has always been a safe place to vent our feelings. I still tell every nurse and Dr. I see about how horrific the Mirena is, and I still think Bayer will eventually get rid of it. I can tell you this: MY HUSBAND IS GETTING A LITTLE PROCEDURE VERY SOON. I am done with birth control.
- Re: 3 1/3 years post, 32 weeks pregn... cynthleal
9 years ago
4,374
This is a reply to # 2,029,565Thank you Melanderso and Diana for your support. It really means a lot to me, specially now that I'm having some awful days.
Thank you so much
Cynthia
- Re: 3 1/3 years post, 32 weeks pregn... cynthleal
9 years ago
4,374
- Re: 3 1/3 years post, 32 weeks pregn... Melanderso
9 years ago
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- Re: 3 1/3 years post, 32 weeks pregn... happyfamily6
9 years ago
4,287
- Advice on mirena taken out Hotcakes
9 years ago
4,408
This is a reply to # 2,027,189Hi I am thinking about getting the mirena out after 2 and a half years and trying for another baby. I was wondering if anyone has any advice on what to expect as up to now I've had no bad side affects that I am aware of??
- Re: 3 1/3 years post, 32 weeks pregn... nile
9 years ago
4,498
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