Singh! 
Healing2021
8 years ago
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Could you please explain the healin process your lips went through?
Did the buildup/peeling become smaller/thinner over time, or did it just kind of stop?
I assume it just stopped, because you said you started this 30 days ago and your lips haven't peeled in nearly 20 days?
And like Vunk asked, can you clarify whether you just have no build up/crust just because the ointment causes it to slough off, or whether your lips are completely back to normal?
Thanks.- Re: Singh! jsl123
8 years ago
2,073
MoreThis is a reply to # 1,998,136this is great news! and here comes mr negative lol he is still doing treatment of the creams so how do we know if his ec has completely gone away or if he is just hiding ec sysmptoms with the creams?
if i post pictures of my lips while on all my treatment creams and ointments that would mean iv been cured about 50 times.
but anyways i guess we will have to wait once singh stops useing the tacro ointment.
please keep us posted and congrats on your progress!- Gradual decline in use of tacrolimus singh94
8 years ago
2,051
Google AdvertisementThis is a reply to # 1,998,320Thanks JSL.
I am slowly & slowly reducing the frequency of applying tacrolimus 0.1% w/w ointment. For the earlier part of my treatment i used to apply it only once in 2days. Now,i am applying it only twice in a week.
But even i am a bit skeptical. I am also waiting as to how things turn up in the next few days.
Good Day!
- Gradual decline in use of tacrolimus singh94
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- The Healing process my lips went thr... singh94
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Once the existing crusts fell off, the buildup/peeling magically just stopped. Read my pdf file carefully as to how i began my treatment.
So after the peeling stopped the redness persisted. For the earlier part of my treatment, i used to sleep after applying ictyane. Once the lips became stronger i.e. less sensitive to touch, i started to apply aloe lips before going to bed & i do it even today. The skin underneath first time was irritated and red. Now, everyday the redness is getting lesser & lesser.As of today the redness part is almost nil.
Yes the treatment was started almost a month ago & for the last 20 days they haven't peeled. To make things clearer visit this gallery (25 sept-9 october):
https://picasaweb.google.com/107287417677541799022/25Sept20129October
As i have told earlier my treatment with (ictyane H.D. & tacrolimus ointment 0.1% w/w & aloelips & a multivitamin a day) started on 24th sept. I also want to emphasize that ICTYANE HD was also an important part of my treatment plan. And i still apply ictyane 2-3 times a day.
As of now, I dont say that they are completely back to normal. I still cant directly drink from a glass because the skin is still a bit sensitive to touch. Or if i speak continuously for a long time, then also i feel discomfort in the lips.Google Advertisement
- Re: The Healing process my lips went... jsl123
8 years ago
1,893
Google AdvertisementThis is a reply to # 1,998,399yeah i understand well thanks heaps for letting us know! i guess we really wont know till you stop treatment fully but remember you might have to be like step by step and just continualy keep the lips moisturized with a lip balm or something. i dont see anything wrong with this.
i can clearly see the state of your lips colour change from extremely red to more pink and pink as the pics go on whihc is a great sign.
please keep us upto date on your progress best of luck!- Re: The Healing process my lips went... jsl123
8 years ago
1,987
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This is a reply to # 1,998,431also have you asked your doc about useing tacro ointment twice a week for a long period of time even just to manage ec? i also have troubles drinking out of a glass. my lips aernt sensitive but the skin that grows isnt strong enough to hold and becomes a little bit white and sometimes just comes off when i drink a glass of water its so annoying!
do you still get the white line underneath your top lip? when you wake up or have a shower? this line is actually skin. its cant mend to the lips for somereason and kind of rolls and becomes the white line its very frustrating!Advertisement
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8 years ago
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Google AdvertisementThis is a reply to # 1,998,434No i haven't asked him about using tacrolimus for a long period of time. Its upto him to decide that what should i use on my lips.
No i dont get that white line anymore underneath my top lip (or in other words i still do get some SMALL white pieces of accumulated skin or whatever but i guess it could also be the remains of the ICTYANE cream which i apply 2-3 times in a day. But this white line situation is definitely MUCH MUCH better than before. Almost negligible compared to the previous situation.)
And yes my lips don't turn white now when in contact with water.
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That's exactly what happened to me in the first time(I had EC for 6 or 7 weeks I was using Bepanthol in these weeks and nothing had happened...
One day I started with some betametason just for 4 days, and only 1 per day, after that I changed my diet, travelled to be free from stress. Brushed my teeths immediatly after eat like 6 times a day... And like a boooom! I got for some way completely out off peeling, but I also had the white line stuff when I woke up. And the white tonghe was better
I was so excited about my treatment, my lips were better than ever and they were less red, just pink and uniform...I was using only Bepanthol
Somehow, I don't know if the vitamin I took caused it...from nothing they just got 2x sized an inflamed and with wounds all over... The worst problem is in that days my whole mouth was strangle so I pressed my tongue against my oral mucosa and that created a wound... It was 1 month ago and I can't get rid of this
I stopped the Bepantol and I was using nothing on them, they healed, I could smile, everything, but slowly they got back to the peeling, I started the bepantol again and the peeling went away(maybe it was because the vitamin went away, I don't know)
Today I visited my dermatologist and he said: "that's the desiese, it attacked inside your mouth too" and I really don't know what to do
It's under control today, almost no peeling in my lips but, this shit inside my mouth is driven me crazy...
I'm trying do get a candida diet but yesterday I was in a bad headache so I ate some Sugar stuff and it went away. I sleeped just 3 hours... But something tells me that I'm in the right way! I will fight to take my peace back! I really know that this can be beaten!
I think it has a strong emotional cause, somehow, the depths of our subconscious created or let this in, showing a fear to face the world, a fear of being happy. Its from the inside, out of our control... The only example I can say is the fear of pee, if any of you had that when was a kid or have saw in movies, you need to pee but you just can't, only if the place is very calm, or your home.
It seems stupid but I believe in that emocional cause.
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8 years ago
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This is a reply to # 1,999,177Hi Andrex! I think if you have the white tongue it is more likely candida. We thought it was candida with my son becuase he took Antibiotics which can cause candida - but he didnt have a white tongue. He did the no sugar/dairly/glute for months with no change. Eventually we decided it was probably not candida because he doesnt have any other symptoms other than the lip peeling. But if your tongue is coated white I think that is a candida symptom and you should look into that definitely!- Re: Tacrolimus ointment 0.1% w/w&whi... heavenlyhealing
8 years ago
1,868
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This is a reply to # 1,999,230i dont think tongue whitening is always due to candida.white ness due to candida is very thick and have pain on removing.!!!!- White tongue singh94
8 years ago
1,878
This is a reply to # 1,999,488The whiteness on my tongue is sort of a thin layer. Everyday i rub my tongue once with a tongue cleaner & it doesn't pain.
- Re: White tongue andrexr3
8 years ago
2,227
Google AdvertisementThis is a reply to # 1,999,578I found out with the help os friend lipshitz that I might have candida!
Take a look at my other message in this same topic!
I really think a white tongue is a really a big candida possibility!
I don't have any pain cleaning my tongue too! My mouth is pretty normal, I think it's because I have good a hygiene, but remember, the people don't use to brush the tongue and it's aways red, white tongue it's aways a problem from the inside, it's like cleaning the door but the entire house is dirt!
That's when licking become the cause, licking is a way to spread the candida that's inside the mouth to the lips
If you have any other healthy problems is better take a good look about this possibility
Thanks!
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- Re: White tongue andrexr3
8 years ago
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- White tongue singh94
8 years ago
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8 years ago
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Google AdvertisementThis is a reply to # 1,999,230Yes ECParent!
A few days ago I did the spit test and nothing happened, I started to take B vitamins
The friend lipshitz is helping me a lot!!! I'm really happy with that! sent me a message, looks like he knew my life...
Yesterday at night I ate some lactobacillus(thinking it might help) and some sugar, Bad Idea! Today I woke up and my mouth was different, I fell like I got some difficult to swallow too, I made the spit test and... Yes, new problem, that's explain all my diseases, this shit grows like cotton in the botton of the cup really fast
I found that:
"The short answer is that the supplements feed the yeast and the lactobacillus helps the yeast grow. The supplements help the yeast be more active, making the overall patient’s condition worse"
I think I have had this all along! And it's bothering me for at least the last 6 years!
Holy Sh*t!
I saw some comments of guys that believe they have EC after taking loads of supplements!
So... This is for everyone who have a white tonge, and other heathy problems like urge to urinate several times a day, or anything, other skin or any healthy problems... the possibility of you have this is really big, take care of that and be 100% sure you don't have this!
To do the spit test get a cup empty, and spit most saliva you can from off all areas of your mouth(only the mouth, not the nose) and especially the tongue, this might be the saliva that is in your mouth when you wake up! Fill the cup just to the half with water and wait about 20 mintes
Thanks for everyone!
A New Life Begins!
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This is a reply to # 1,999,177Advertisement
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Don't feed the Candida sugar, bread, cachaça, etc.! They must starve to reduce their colonization of your body. It's impossible to fully get rid of them, and they can always come back, especially if you have low amounts of bacterial flora.
In Brasil it's very hard to find yogurt that contains these flora (probiotics) but doesn't have Sugar or other artificial adoçantes (maybe try looking in São Paulo or Curitiba), so good luck! The only adoçantes (sweeteners) that won't feed Candida are stevia and xylitol, which are from plants.
And no, you're not stupid for thinking emotions have something to do with this. Anxiety and obsessiveness were two big factors for me, and my condition has worsened during times of severe acute anxiety and depression.
Peace,
C.S.- Re: Tacrolimus ointment 0.1% w/w&whi... andrexr3
8 years ago
1,952
This is a reply to # 1,999,375I really want to thank you for your help!
In fact I did the spit test and in 15 minutes nothing happened, in another day I did it and shaked the cup, after one hour it look like I can have it...
I was trying to do a Candida diet but I think it's a mistake, there are 2 versions of what can be the best treatment
I will go sleep now and tomorrow I will continue my life like it was before, I always got it under control
I will do more exercises and be out off stress
Thank you so much!
- Re: Tacrolimus ointment 0.1% w/w&whi... heavenlyhealing
8 years ago
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This is a reply to # 1,999,489hey andrexr3
i think you are very new to forum and recently got ec .split test is not at all reliable and better you see a doctor.and all normal people have white tongue if they dont use tongue cleaner for a week or more .and i think yogurt is actually good against candida if we took lactose less.i think we all messing with anxiety and stress letting the micro freaks to grow up in our body....
- White tongue singh94
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8 years ago
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By the grace of God its been a month now & i still dont get anymore peeling or crusting but i am still on the treatment plan as mentioned in the pdf document (https://docs.google.com/file/d/0B08O2fsHloBzazNQbDJaaGI1S0E/edit)
- Re: Singh! jsl123
8 years ago
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