Blog: Birthday Bash
by #195831

So Scared

Sleeping 26hrs, intestines not digesting, hardly urinating, help me/help my kids and husband somebody...

Date:   4/29/2015 5:39:17 AM   ( 6 y ) ... viewed 656 times

I slept 26 hours the night before last night. I don't wake to urinate nor to even eat or drink anymore. I am so scared to die, but what am I to do when the parasites are not in my bowels but in my organs?! Taking Humaworm was a huge mistake. A mistake that is costing me and my children our lives. I have never slept 26 hours in all my life, I don't think. I will share links at the end of why this is infectious. I have begged the pediatrician to listen but she does not. Nobody believes parasites are infectious, at least not in the USA. Please note: "Strongyloidiasis Risk Factors: immunosuppressive therapy (particularly steroids)....Discussion: strongyloidiasis is present in tropical and subtropical climates. It is endemic in Africa, West Indes, South America, Southeast Asia, Bangledesh, Pakistan, and the SOUTHEASTERN UNITED STATES, Eastern Europe in countries like Romania."

http://www.hindawi.com/journals/crihem/2013/860976/

I am thinking about going to the doctor's office or walk-in clinic to get my liver and kidneys tested. Update: current doc treating hyper-infection wrote script for liver/kidneys testing. I used to be pale, now I look yellow (IMO). This is terrifying, and nobody to talk to when I am so scared...like now. Every time I try to eat, I get loose stools (they are reddish clay colored). I have horrible nausea and my body odor smells so acidic. My family is going to catastrophically freak out when they realize (too little, too late) that this was 100% sane, reality, and NOT a mental health crisis. Sigh, what an awful stigma for all who truly are ill from steroids, herbs, worms. Why on earth would I waste such time learning all about this disease? Out of necessity to try and survive, that is why.

My mom isn't happy with me. I was supposed to cancel an appointment for today but I slept all through yesterday without waking until it was too late. She mopped the floor up after me because the day prior I had spilt gingerale. I wish I had mopped it. I just feel like I have been run over by a train. She does somewhat believe me now. She will not eat nor drink after me, she used to do so. She is more readily believing it as a doctor is trying to treat it. The doctor said that he does not think it is a delusion. I'm really scared. I wish none of this happened, I wish this was all a nightmare. I wish I had been treated more for parasites immediately following the scattering a year ago.

I wish my kids had not been subjected to me and my germs, nor my spouse. Tomorrow is our ten year anniversary. It should be a happy day and I am so sad.

E is a wonderful man. He never deserved any of this hell. He loved me so much. He loves our children so much. If only he would really take me serious about this being contagious. I saw our lives intertwined together when we married. I remember the pastor wishing in his toast to us that we would grow into old age together and feed one another when we're elderly. I hurt so much, thinking we won't have that opportunity.

Contagious factors:

http://www.cdc.gov/parasites/strongyloides/health_professionals

CDC Precautions: patients hospitalized with strongyloidiasis are infectious and should be put on contact precautions.

Wikipedia: Diagnosis: Finding strongyloides in the stool is negative in up to 70% of the tests. Larva may be detected in SPUTUM from patients with disseminated strongyloidiasis.

http://www.merckmanuals.com/professional/infectious-diseases/nematodes-roundworms/strongyloidiasis

Diagnosis: In hyperinfection syndrome filariform larvae may be found in stool, duodenal contents, SPUTUM, and bronchial washings, and uncommonly in CSF, urine, or pleural or ascitic fluid.

http://www.ncbi.nlm.nih.gov/pubmed/2

Abstract: SPUTUM gram stain was diagnostic for pulmonary strongyloidiasis in four patients from TN with chronic obstructive lung disease treated with steroids. Sputum gram stain may be a useful procedure to screen for pulmonary strongyloidiasis in steroid treated patients.

http://www.hindawi.com/journals/crihem/3013^860976/

Patients with S. stercoralis hyperinfection or dissemination are infectious, so contact isolation is recommended to prevent nosocomial transmission.

(I was on and off steroids for three years, misdiagnosed with Crohn's disease. I had five different donor fecal transplants. I am hosting a lot of parasites and have no cure as they are disseminated. My children and husband are at high risk, and I feel so terrible about that.)

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