One year on....
It is now one year on from my ordeal - time to celebrate being cured with a bubbly glass of champagne!
Date: 1/15/2013 4:30:34 PM ( 8 y ) ... viewed 1747 times
This is the text of a reply I sent to someone experiencing this awful condition, from my perspective, one year on from being cured....
Thank you for your message, and I am so sorry you are currently experiencing the horrors I went through. Apart from feeling awful most of the time, what is almost worse is that people think you are being dramatic and whining about a bit of a dodgy tummy. They don't understand that it sucks the life out of you...the pain, the exhaustion, the night sweats.
The only way I got through was to try to do something every day, towards hope for a cure. If I felt I was doing something toward that end, then I felt there was still hope. Once I found the CDD, I finally knew someone understood and could help. Yes I stepped through all of their treatment protocols, and failed each time.
I remember sitting opposite Prof. Borody and thinking that finally I might be cured, that he had done the research, and knew what to do with multi-drug resistant cases. Infectious disease specialists, GPs etc. cannot keep up with all of the conditions they need to treat and bugs can become resistant to the medicines they prescribe, so it can become a self perpetuating cycle.
After the last-line salvage treatment at the CDD, I did not really feel any better initially. However over the following few months I realised I was no longer in pain. I kept re-testing to make sure the parasites had not come back. Actually it is now just a year since the parasites were eradicated - come to think of it! I will have a bottle of champagne tonight with my husband to celebrate! There is hope.
To answer your questions...In my case either because of all the drugs I was on, or because the parasites altered the bowel environment, I now have food intolerances where previously I had none. It is not the end of the world, but I do have to watch what I eat. I have fructose intolerance. It may improve with time, I don't know. If I eat a lot of the wrong thing I still get diarrhea or night belching or gut cramps, but these symptoms are improving.
I did find the condition messed with my head, because I could not feel better, it occupied my thoughts constantly. You see, for the longest time I was worried the parasites would come back, as they had done so often after each treatment. Finally I feel I can leave it behind now. I am very careful with what I put in my mouth, though I really still have no idea how I got sick in the first place.
Did I lose weight? Yes I certainly did - I looked like a coat-hanger in January last year. It has taken a year to gain weight again. I am still slightly underweight but am happy with my current weight. I have been able to start running again, which has been nice. With the parasites it took all my energy just to get through the day.
Regarding the full moon - that's probably a fallacy - how would parasites know about the moon or the tides? I just think after a round of antibiotics, they take quite a hit, most die, you start to feel a bit better, but the parasites left are the more resistant ones, and these breed into a stronger generation, resistant to that particular drug combination.
I hope that all helps in some way. Kind regards, Dsquat.
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