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Birthday Bash
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  • Tired of Being Bedridden   by  vch     6 y     1,380       6 Messages Shown       Blog: Dying from Parasitic Dissemination
    I am tired. Tired of being called crazy by family who does not believe in hyperinfection (husband and in laws). Tired of being so weak that I cannot get changed out of pajamas; I used to run 4 miles, 4 times a week....this is not normal. Tired of medical community who let me get worse ill on steroids and ineffective Humaworm. Tired of people I have never met believing me (because they have gone through this!) over my own family. Tired of being threatened by my husband to not call pediatrician nor infectious disease when I darn well know this is contagious. Tired of wondering how and why this happened to me (now my children).

    I want health or I want to pass on. I can only handle so much of this suffering and weakness. My kidneys are not functioning well. I urinate maybe once in twenty-four hours. I really want to die of this (hyperinfection) already so my husband will believe and get our kids treated ASAP. I want him to see it was the hyperinfection making me ill. I won't harm myself, the F-ing parasites out of my gut do that (literally). Enough of this being told I am crazy crap. It is for the birds!

    I had multiple fecal transplants, had a dampened immune system by steroids and antibiotics, hyperinfection from Humaworm, just research Humaworm and scattering! This bizarre, unusual scattering happens. I have never felt more slapped in the face than when my FIL told me, "how about Delusional Parasitosis?" Wait until he dies, God will show him this was not delusional at all. I respected him so much until that slap across the face. It's like having cancer and someone telling you it is delusional. A bunch of BS.

    There are numerous other people on here who have personal accounts of steroids or Humaworm and hyperinfections. They need to take it seriously. If my husband loves our kids and if the grandparents give a damn, they need to take it seriously. They are being negligent to claim I am making this up. Why the heck would I make up illness? I never have in my life before, so why now?!!!! Ridiculous.

    There is too little attention given to this very real disease. Go ahead, dismiss me, and my kids (whom are all I care about) will suffer. They would say the same if it were their body going through this. Period. In laws and husband could stand to be educated rather than say, "work on yourself...come out of the woods." I am not in the woods!!!!!!!! You are and you are being fools to dismiss the very girl you once loved.

    Countless people have been through this. I guess we all went mad together. Or wait, were we all on steroids or ineffective antiparasitics, or had dampened immunity!!! Me, Mullberry Trees, DPK, sanjean, willtheory, steps, wheretheresawill, Geritol, smuse, Rabbitears, ToHealth, MazPorter1, Tatertot, photon, Nurs037, rosycrayon, godmadeusperfect, Dariushsweden, Paws16, pmj, Tina1, Steezy, Monique1, OpenEyes (better), Stillbattling (better), 193309, Victim2, China49, Jimminicris, Herne, peggyaus (better) Cimber38 (better), Lahrok, forbetterorworse, Deesmiles, PocketLady, ICU (is better),VJV, Soly047, Empowerment, hsongi90, Xelaeteks, Reborn, SHARKMAN (who is better), taroki , thevoyce, LOLimsowormy, penelope22 (healed), zippedo, agt1.....My heart goes out to all of these people because it is total BS what we have been through. I imagine we all gathered here because we are crazy!.....WRONG. We are infected and trying to get well, and there is a large medical community who is not taught Sh!t about sh!t when it comes to parasites. They affect millions in the USA, alone, annually according to the CDC. So why is nothing being done about it?!!!! Why are we being told we are crazy when we have very real illnesses?!!!!! If you have a virus or bacteria you are not called crazy, but parasitic infection you must be crazy.....absolutely corrupt and wrong! Do a little research on steroids and parasites, husband and in laws. I suspect those whom are better treated immediately, unlike my year of not knowing what to do. Also, not everyone was on steroids like me for misdiagnosed, wrongly diagnosed Crohn's disease for many years. Thank you, Dr. Sarah Glover and Dr. Erika Bradshaw. Thanks a lot for this infection that has spread through my family (and could have been nipped in the butt with antiparasitic drugs years before the dissemination). Thanks for making me look and sound crazy. How horrible.
    Reply   FCK   TinyMCE  
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    • Re: Tired of Being Bedridden   by  Bythc     6 y     1,124
      Sorry for your pain and suffering. I know how you feel on all counts. Steroids and antibiotic been down that road. I was decomposing alive, all the while being told I was crazy. Was scared to death I would infect my grandchildren. Can't blame them though, who would ever even want to believe this possible. I've just about beat this disease, so just maybe I can help. Try not to be mad at anyone except the morgellons, the stress of it is bad for your immune system. That the key, build your immune system. The steroids and antibiotics really put a hurtin on it. Imagine your immune system an army,now cheer it on. Enough of healing with the mind, it does help though.

      The kidneys, drink more water, there is dehydration involed in this. Get some uva ursi, a sap , and start taking it. Drink cranberry juice, not ocean spray , pure no sugar added, dilute it. Eat watermelon , lots of , do a modified watermelon cleanse. Celery is good for the kidneys as well as celery seed tea. Epsom salts baths, and or salt bath be sure and drink lots of water. Vitamin C might help.

      God bless
      Bythc
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      • Re: Tired of Being Bedridden   by  vch     6 y     851
        Hey Blythc,

        I don't have Morgellons. I wish I did. Not that Morgellons is fun, but I don't think it is contagious nor deadly. I have no fibers, no lesions, no weird things coming out of my skin.

        I had worms when I was pregnant and didn't know it. I was treated as though I had Crohn's and I don't. The combination on a severely permeable gut and ineffective parasitic herbs caused a hyperinfection/dissemination. It is too unreal for anyone to believe....except people on here who understand and have gone through it. I believe I have strongyloidiasis and ascariasis and tapeworm. I know that is infectious, and my darling children were exposed. Life will NEVER be the same.

        The medical community needs to wake up and realize this is a serious matter and treat people, sooner rather than later. When it is too advanced as in my case, medicines are ineffective.

        God bless you! I am glad your grandchildren are fine and that you can beat Morgellons. :). I wish I could beat a disseminated hyperinfection of helminthes. I wish that my husband would believe me, and I wish he and the kids were NEVER exposed.
        Reply   FCK   TinyMCE  
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      • Re: Tired of Being Bedridden   by  #5043     6 y     787     0 of 1 (0%)
        What a bizarre reply.

        First of all, there is no such thing as Morgellons. It was invented by a woman with Munchausens by proxy. You may have parasites, but that is a completely different thing from the made up disease called morgellons.

        Secondly, note that the original poster said she is BEDRIDDEN. So your advice to 'get this', 'do that', and especially take baths(!) is just ridiculous. She's bedridden. That means she can't get out of bed.

        sigh...
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    • Re: Tired of Being Bedridden   by  #168677     6 y     837
      I am sorry for your pain BUT YOU DON'T LISTEN (read)

      I clearly told you NOT to take herbs before you ever took the humaworm. I told you it would cause a hyper-infection. You aren't and weren't looking for help. You wanted attention. You got it. The narcissists spotted you before you hit send and sold you a line of Bull.

      STOP behaving like a victim and do some research and figure things out for yourself. Your posts are like pumping blood into a shark tank. The Nars are just laughing because you are playing the victim.
      THEY (Narcissists) are the worst parasites on the planet.

      I am sorry for being so "matter of fact" but you just aren't paying attention.

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