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  • Plagued by Parasites: Truth or Delusional? Part VI   by  vch     6 y     1,222       3 Messages Shown       Blog: Dying from Parasitic Dissemination
    The most important reason that I write this paper, is not for my livelihood but for that of my precious children and husband whom were directly exposed to a parasitic infectious disease and are at high risk. Dr. Paul states that "If the patient has a parasitic infection the likelihood of transmitting any parasites to her children or other family members is extremely low. None of these parasites are directly transmitted by physical contact or through sharing utensils and drinking water." That is false. "Patients with hyperinfection or dissemination are infectious, so contact isolation is recommended to prevent nosocomial transmission." (www.hindawi.com/journals/crimes/2013/860976). "The most consistent association with hyperinfection is corticosteroids." I was on plenty of steroids for undiagnosed Inflammatory Bowel Disease. I have asked nearly every person whom knows about parasites where can I go to prove that I have hyperinfection. The answer is the same across the board, "There is nowhere to go, doctors do not know about this until it is too late. There are no reliable tests or doctors would be using them." I would love an ELISA test for strongyloides, hookworm, trichinella spiralis (pork worm- tested positive for already), tricuria (tested positive already), toxocara, ascaris, and tapeworm. Quest Diagnostics does not offer that, and they would not draw my blood to send it to specialty labs. Even then, accuracy is still an issue, "ELISA tests and agar gel diffusion are more than 90% sensitive, but these tests become negative within a year of initial infection." (http://www.aafp.org/ago/2004/0301/p1161.html). There is not one test for dissemination and hyperinfection or I would be the first person in line for it, to prove that this is no delusion.

    On October 31, 2014, we were in the car and my son asked for water (he saw me drinking from my thermos). I did not think (but should have!) before I handed him my thermos. We had forgotten to bring his sippy cup. The very next day, my daughter had shared a whistle with her brother. Upon acquiring strongyloidiasis there are respiratory symptoms. "The passage of larvae through the lungs manifests 6 to 9 days after infection with coughing and tracheal irritation. The intestinal symptoms- constipation or diarrhea begins 18 days after exposure." (http://books.google.com/books?idoKSEhVMVrJ4C&pg=PA287&lpg=PA287&dq=steroids+and+parasitic+infection&source=bl&ots=Wj3-CzVxHz&sig). My daughter was so constipated two weeks after exposure, it was like she was giving birth to a baby. E even took a picture as it was too large to flush. My son had loose stools in the bathtub one night. I knew it immediately once they were infected and it has been falling on deaf ears and unreliable tests. The tracheal irritation and coughing has happened with both of my children. My son was even taken to the ER a few days post drinking after me. The ER MDS said that he had a raw throat, probably viral. Little did the MD realize that I have an infectious parasitic infection that was transferred to him and causes tracheal irritation (that would appear viral). The kids kept begging for nasty Ricola cough drops because their throats were so raw and irritated.

    "Testing is difficult as they are of limited value in detecting cases. In the West, the sensitive tests are not available, which include Harada-Mori filter paper technique or culture in agar plates." Why does this bother me? Because the tests are notoriously unreliable and these are my children's and husband's lives on the line. And worse, "patients with hyperinfection or dissemination are infectious, so contact isolation is recommended to prevent nosocomial transmission." I should have been put down like a diseased dog.

    "All patients at risk, my children and husband, should be treated. Swollen bellies and distended abdomens in children from strongyloidiasis is invariably fatal. For uncomplicated cases (mine/family is complicated), medication should be given two weeks daily, followed by lifelong monthly or weekly single doses to stay safe because there are dormant cysts. Ivermectin is the drug of choice. Repeat dosing is necessary to eradicate infection. Sixteen milligram doses are needed, not twelve milligrams. Optimal duration of treatment is not clear; continue treatment even if symptoms resolve." (http://www.wikipedia.strongyloidiasis.com). Elevated IGE levels indicate parasitic dissemination.

    The mantra of most doctors is that all parasite infections occur in 3rd world countries, or poor, dirty, uneducated, lower class folks!#??? These doctors usually prescribe anti-psychotic drugs as a cure, which of course is a big dose of "BS". Symptoms of body-wide crawling is very disturbing, and being that I experience that and I'm mentally sane, I have a hyperinfection and treatment for my children is imperative. "A medication can help treat infestation, but it doesn't help when the hyperinfection reaches an advanced stage." DO NOT let this happen to my children (and husband). The ivermectin protocol I am on has not helped because my infection was let go for a year following the ineffective Humaworm and then steroids. Please, it has been seven months since my kids were exposed, please don't let their infections become anymore advanced. This is so rare that doctors presume I am making this up because there are not accurate tests; I am not, I will do anything to prove it. Anything. I will travel anywhere to prove it. Please treat my innocent, infected children. The CDC: Precautions patients hospitalized with strongyloidiasis are infectious and should be put on contact precautions. (www.cdc.gov/parasites/strongyloides/health_professionals/). Furthermore, "finding strongyloidiasis in the stool is negative in up to 70% of tests. Larvae may be detected in sputum from patients with disseminated strongyloidiasis." (www.wikipedia/strongyloides.com). This means that what Dr. Paul was saying about transmission through saliva is false. According to Merck Manuals, "In hyperinfection syndrome, filariform larvae may be found in stool, duodenal contents, sputum, and bronchial washings, and uncommonly in CSF, urine, or pleural ascitic fluid." (www.merckmanuals.com/professional/infectious diseases/nematodes-roundworms/strongyloidiasis). Another source that does describe transmission through saliva: "Sputum gram stain was diagnostic for pulmonary strongyloidiasis, in four patients from Tennessee treated with steroids. Sputum gram stain may be a useful procedure to screen for pulmonary strongyloidiasis." (http://www.ncbi.nlm.nih.gov/punned/2).
    Reply   FCK   TinyMCE  
    This is NOT me. This is just randomly assigned avatar, until I upload my own photo. Click here to see my profile.
    vch
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    • Re: Plagued by Parasites: Truth or Delusional? Part VI   by  maybelle180     6 y     821
      ok, you're right. I have read your report and I'm a scientist (PhD, University of CA, 1996) I hope that the validation gives you an ability to work through your ordeal. Most sufferers do not have even that.
      Skip the tests. you will find nothing and it will be a blot on your med record. All morgies are self diagnosed.
      Onward to finding therapy. No, ivermectin is ridic. Look in the morgellons forum, and on my website -- morgreport.com--I am selling nothing, merely giving info. god bless.
      Reply   FCK   TinyMCE  
      This is NOT me. This is just randomly assigned avatar, until I upload my own photo. Click here to see my profile.
      maybelle180
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      • Re: Plagued by Parasites: Truth or Delusional? Part VI   by  vch     6 y     790
        Hi Maybelle180 :)

        Thank you for reading my research. I have had to research out of necessity to try to stay alive. I don't know how I gave the impression that I have Morgellon's Disease. I suppose the crawling movements could be mistaken as the same. I have a disseminated case of helminthes: ascaris, tapes, flukes, strongyloidiasis, trichinella. An ugly mixed co infection that has no cure, unlike Morgellons. Morgellons sufferers are fortunate to have a cure with fenbendazole, ie. I have no lesions, no fibers, nothing exiting skin. My former functional integrative physician knew that if I had those other symptoms than we could rule in Morgellons, but since I do not, I simply have a deadly hyperinfection. Unfortunately, this was passed on to my kids (and husband). My husband has strong immunity, so he may be unscathed. My children need desperate help, however.

        If you have and insight on curing disseminated ascaris, tapeworm disease, strongyloidiasis, please let me know....or better question: how to get treatment for my innocent, suffering babes?

        Thanks! Appreciate your expertise!
        Reply   FCK   TinyMCE  
        This is NOT me. This is just randomly assigned avatar, until I upload my own photo. Click here to see my profile.
        vch
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