Life is rough for you... hang in there! I've suffered for a long time, in the last couple of years things have been steadily getting better and I am much more hopeful.
This caught my attention in your post:
Facial twitching and contorting non-stop when bad and really out of breath, Sugar tends to stop it but only short term as Sugar flares my gut.
I have the uncontrollable movements too. Like making random faces and also movements of the body. I have neck stiffness and that dies down when I eat sugar. Here I posted a thread 6 monhts months back: http://curezone.com/forums/fm.asp?i=1843853#i
I have a feeling this has to do with parasites/ candida. Copper detox helped me get enough energy to work again. Maybe you want to look into that?