I had my gallbladder out in 1996 and a year later all my current health issues started. Currently I am having liver discomfort, stomach bloating and gassy, reflux, intolerance to most foods (eating gluten, sugar, dairy and grain free. I have lost 50 lbs. in three months, horrible digestive issues, 24/7 anxiety, severe adrenal fatigue, muscle and joint pain, leg spasms every night, etc.
When this started I met with a gastroenterologist who originally wanted to do a CT scan of my abdomen but could not get approval from my insurance company, so I asked to have an ultrasound. Nearly 6 weeks went by after the ultrasound and despite several unreturned calls to my doctor about the results of my test, I finally got my results - not because my doctor bothered to send them to me, but because I actually had to request the results from the hospital directly. I am glad I did and pissed at him for not even letting me know. For the record, my ALT, AST and bilirubin are normal, but I had a positive AFP test early last year. He blew off the AFP test, which was done by another doctor, saying that they never use those tests anymore, but judging by the ultrasound report, I am a bit concerned. I had my hormone doctor rerun the AFP a month ago, from a different lab and it still came back positive. I called his office today to enquire why they never let me knowmthe results, and what further steps we need to take. She called me back after talking to the doctor and he said my results were normal. Seriously?! Growths on organs are not normal. Could someone please look at the resultd and see if what I am interpreting is correct? Even the radiologist indicated further testing should be done. I looked up both the liver and kidney findings and they can be serious. Thoughts? Thanks.
The liver demonstrates a mildly heterogeneous attenuating echo texture, related likely to mild fatty change, spanning 16.5 cm in long-axis dimension. Incidental 7x6 mm hyperechoic left renal lesion within the cortex of the mid left kidney, possibly representing an angiomyolipoma.
Please let me know if there is a better forum to post this to us pressing question. None of the liver forums seem to be the "right" one.
After experiencing extreme itchiness, rash all over his skin, and jaundice and anxieties, a liver biopsy was done on my husband. The results indicated severe cholestasis, moderate ductopenia, and loss of small bile ducts in up to 50 % of sampled portal tracts with active injury in the remaining ones. He won't be seeing the liver specialist till early January.
After the biopsy the hospital discharged him with drugs before they even knew the results of the biopsy. After 4 days he quit them all except one, because he was worried about the side effect. One of them, Ursodiol, seems to be the medication of choice for his issues, however it caused swelling of his feet and ankles, and supposedly toxic to the liver. The other two, Rofact / Refampin and Apo- Hydroxine are also bad for the liver. We were absolutely shocked when we read up on these meds! The only prescription med. he still keeps taking is Olestyr / cholestyramine as it is supposedly binding the excess bilirubin ( his levels were extremely high).
Since he stopped these prescription drugs about a week ago, he started taking Milk Thistle, Black Radish Juice, Dandelion Juice, carrot juice, beet juice, and drinks lemon water throughout the day. He also started taking phospatydilcholine.
His itchiness is now somewhat improved, the rash has almost disappeared, and he sleeps better, but is still jaundiced. We don't know if the improvements are because of the Olestyr he is taking, or because the other natural products are helping his liver heal. Is any one here familiar with these particular problems ? We would greatly appreciate some input / suggestions.
Once these bile ducts have vanished, can the liver re-grow other bile ducts? Or will others vanish as well leading to a liver transplant or death?
Any dietary suggestions? What else can he do? We are very worried. The DR. will not approve of him quitting the meds, but ultimately he may need the Dr.
I would recommend adding Apple Cider Vinegar to his lemon drinks. ACV provides a different acid (acetic) in addition to the lemon acid (citric). This will be a more potent concoction to cleanse the liver and promote biliary flow.
Hi ,thanks for answering. I am not clear though if it is good to promote bile flow with his condition where the bile ducts are vanished or vanishing ???
What is the increased bile going to flow through if there are only half as many ducts?
Again, I appreciate your answer,just need to understand the logistics.
I have had bouts of liver problems/ pancreatitis/ severe abdominal pain. liver alt/ ast go into 600's coupled at times with high fever's and nausea. Once pancreas enzymes were in the 1000's.
After multiple hospital stays and no diagnosis I was finally diagnosed with Sphincter of Oddi dysfunction. And told to get an ERCP.
I did have lyme disease and was treated for that, and since treatment my bouts of pain etc have decreased.
But since my liver was not in line with lyme disease I researched and concluded liver flukes or worms, blocking my liver/pancreatic ducts, thus causing sever pain etc. I wasnt convinced I had SOD dysfunction.
My point: I have taken praziquantel twice, both the recommended dosage posted frequently on curezone. Last week for the first time in about 6 months, I landed in the ER again with another attack and liver enzymes in the 100's, like I expected they want me to do an ERCP. But they are not sure if I really have SOD.
Im wondering if its harmful to take Praziquantel again. Or at this point, if it even makes sense. The last round I did was OCt 2014. Since the first round in March 2014, my pain attacks greatly decreased. But I dont know if this is coincidence bc that was around the time my Lyme disease got much better.
Has anyone had similar experiences, or know how safe Praziquantel is for someone with bouts of hepatitis/pancreatitis. I really would love to treat this on my own before accepting the risk of ERCP and possible failure by western medicine. ps- of course doctors will not consider parasitic involvement. I also dont want parasites to become immune to prazi due to infrequent usage.
Hope this wasnt too scrambled. Any guidance is greatly appreciated.
Hi kwinter. I've got pancreatitis, too. I'm replying to your post, not because i have answers, but because i'm waiting here with you for replies. One thing that helped me was taking the herbs wormwood and cloves.
Iv'e had pancreatitis for about 5 months now. My pain has been a daily thing. It all started when i got a gallstone stuck in the pancreatic duct. Doctors didnt find it for 3 months... by then it had done its damamge. I dont believe there is just one thing to cure this so I take a multitude of things.
1.Grape seed extract for inflammation ~ courtesy of myhealthguy
2. Turmeric to keep bile flowing and inflammation
3. Digestive enzymes ~ I had real bad malnutrition because of it. I had bad shakes and low white blood cell count from malnutrition. This has helped both.
4. Bells stem cell avtivator - This supposedly helps heal the body. ~ Courtesy of Brian Herring
5. Lima Beans ~ yes lima beans is the thing that helped the most so far. I eat 2-4 spoonfuls sometimes before sometimes after a meal, or just when I have pain. Lima beans contain a trypsin inhibitor. Yes trypsin is what activates in your pancreas and causes the pain. Lima beans have a self defense mechanism that stops the bean from being digested so the seed can live through the digestive tract and come out as a viable seed.
So far I am slowly feeling better, I still have bad days and good days. I look forward to having more good than bad.
If you have anymore advice i am open to add more things to my cure process
Hi boda. I havent been good at answering here, mostly because i couldnt ever find my place again. Posts seem to go to never never land. Listen though. I got some relief. Im not cured but im better. TAKE CHANCA PIEDRA.Its a little green herb from Peru. I prefer the fine powder. But if you can only get the corse stuff with small sticks in it, then make a tea out of it. Re-use the leaves for a second time to get all the good out of it. I sometimes put a pinch of either cloves, cardemon, or peppermint in the chancapiedra tea, to give a little flavor. Cloves kills worm eggs too. Also, kill your parasites with wornwood and Black-Walnut hull tincture. Pancreatitis is horrible. It ruins our lives. I hope you get better as I have. Oh, and NOW super enzymes, one with large meals. I'll eat lima beans, like you said. Thanks. Vintage.
If you do have an ercp make sure you get a stint placed after this is important to decrease the chance of worse pancreatitis. Also I have read that ibuprofen and any other inflammation reducing thing you can think of will help after an ercp. Believe me you dont want worse pancreatitis. Also have they done a EUS endoscopic ultrasound? that was how they found my gallstone trapped in the pancreatic duct. (a regular ultrasound didnt find the stone) a gallstone trapped in the duct will cause pancreatitis, high liver and pancreatic enzymes.But yes so will SOD
Thanks for the tips everyone, I just saw these months later. I decided not to go with the ERCP, but am now experiencing some pain again. It is bizarre because it is always worst in January and February. Not really sure why... I did read parasites are cyclical w seasons so maybe it's somethjnt with that? I'm going to do another round of praziquantel and if I find no relief I will get an ercp probably... It's hard living with bouts of disabling pain.
Thanks again for all your tips I will give your other suggestions a try! I will also follow up :)
Fri 23 of dec. 2016
Hi kwinter. I am confused on this forum, so please excuse me if I've misunderstood. You have pancreatic pain? I did two Liver Flushes and got my life back. I wasn't diagnosed, but I couldn't eat any fat. Only fruit tasted good. It was so sad to eat soup with no grease, no flavor. Liver flush! I'd had pancreatic pain for two and a half years. Now I can eat cheese, avocados, beef... I hope you will do this for yourself. There are Liver Flush clinics with a doctor on staff. I don't know if they will admit someone with the actual pancreatitis diagnoses. I would like to find out.
When I had kidney pain I found it very helpful to cleanse them by drinking a quart of freshly squeezed lemon juice with some honey and fresh ginger slices along with an 1/8 tsp of cayenne. This mixture will cleanse the kidneys. Doing this cleanse for a week will get your kidneys working better. Also Dr Christopher's kindey formula will help detoxify and get the kidneys functioning on a higher level.
You should not abuse with Diflucan, because it is quite hard on the kidney, it has side effects and can dammage the kidney. you should limit the use of Diflucan, because it is nephrotoxic. you should use natural products to combat the beast.
I have found the best way to get rid of systemic candida is to detox heavy metals first and then candida dies off on its own. This has been my exerience.
Diflucan didnt work for me i was resistent. And it is harsh on the liver and i bleieve that candida will just come back when you come off it anyway as you havent addressed the reason why candida is there in the first place- heavy metals, especially copper toxicity.