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I've been suffering with accutane side effects for 24 years and have finally come across what I think might be a possible cure. I was always trying to detoxify the drug assuming it was still in my body, but from what I've read alot of the persistent problems with accutane are the fact that it alters your gene expression. I've just recently come across a supplement called rna drops which apparently is supposed to correct your RNA. This sounds like the sort of thing that would correct gene expression. I haven't tried it yet but I will, I just thought I'd share this for anyone else interested. It was developed by Dr Carolyn Dean and has lot of really good testimonials, not from accutane users but even so, it sounds like an amazing product.
Sounds interesting... Mind sharing your side effects? I got off accutane 2 years ago and still have a red face and severe facial flushing that never went away. Any experience with that? Know any more about this rna-fixer?
I got off accutane two years ago and have side effects. The worst being a red face and severe, debilitating facial flushing and blushing. It's terrible. How do you go about detoxing the accutane? Do you think that if I properly detoxed then I could reverse and get rid of the facial flushing?
I have been on Roaccutane twice the first cycle 6 months 40mg twice a day (April 2015) and 80mg twice a day for 2 months on the second (April 2016). When I first began Roaccutane I was fully aware of the side effects of the medication so I always used lip balms to hydrate my lips (mainly carmex) that worked perfectly fine. Whilst I was on my second round of R my lips became extremely chapped to the point were thick layers of skin were hanging off the top and bottom lip whilst I was using a carmex medi plus. Immediately I stopped the medication and began using bepathen lip cream, which was advised by my dermatologist, but there were no improvements. I noticed after my second round of Roaccutane the balms were not helping but only adding to the problem, my lips got more severe the more I applied. The skin inside my lips also began to peel. I have tried most commercial balms; Aquaphor, Blistex, plain vaseline, beeswax which were all fine before this problem began but now have an opposite effect. I do use coconut oil, olive oil and honey (when I am at home) but it doesn't fix the root of the problem. I noticed when I use products containing Lanolin the dead skin becomes white and moist; my lips feel like they are sweating. When I use plain Vaseline mixed with coconut oil my lips burn as if I've put acid on them, since then I noticed small red bumps had formed. I was exfoliating the dead skin but it would only expose raw skin underneath so I stopped because I felt it was only prolonging the healing process.
Medication I am currently using:
I am using Clotrimazol again (past 12 days) and Triamcinolone (past 2 days) and it is helping.
Previously: hydrocortisone, Clotrimazol (used together in June for 3 weeks) no improvements. Clioquinol (July - 2 weeks) no improvements and Ampho-moronal lozenges ( October 1 week) which stopped the peeling inside of the mouth.
I have been following the Candida diet for 4 weeks cutting out as much Sugar and carbs as possible (maybe had a cookie here and there ;) )
I also did the candida-spit test, which showed positive for candida (if that’s even reliable)
I want to know if anyone has had this same problem with having a severe burning reaction with lip balms (lanolin/Vaselin etc) and if so what did you use to keep them moisturised so the skin can regenerate?
To everyone suffering from acne I've finally found an amazing solution.. First I'll give you a bit of background info.. I have always been very healthy and meticulous with my diet and exercise.. At one point I went a little off the rails with my Sugar and dairy intake which I am certain contributed to my outbreak of acne and subsequent skin infection, I tried everything to get on top of it and nothing seemed to work. I was put on yasmin (birth control pill) to treat it 2 years ago and it did clear up (after the initial 4 months). I then became aware other problems it was causing to my health in the way of sinus issues, vitamin depletion and a number of other strange coincidences health wise. I really wanted out but could not fathom the idea of having acne return.. then one night I saw a segment on a new acne breakthrough called Photo Dynamic Therapy. It has traditionally been used to treat facial skin cancers and sun damaged skin. The procedure basically consists of having aminolevulinic acid (ALA) put on your face then you lie under an LED light, 20 minutes of red light, 10 minutes of blue. They found it works for acne as the ALA attaches to the sebaceous glands and effectively shrinks them. It is the same mechanism as roaccutane in that it shrink the sebaceous glands but it requires up to 3 treatments and must be repeated every 2 years, so it isn't as permanent as roaccutane. A far better option as far as I'm concerned as it does not carry any of the internal side affects or risks. The only downside is the recovery time is up to 10 days for each treatment. Recovery time depends on the amount of time the ALA is left to soak on the skin. Mine was left for 3 hours. It is basically like the worst sunburn you will ever have with alot of peeling and constant application of rosehip oil/pawpaw ointment/sorbelene creams required. But it was completely worth it, they say you need 3 but my skin has remained clear after 1 treatment. It all depends on the severity of your acne. If you live in Australia the dermatologist that developed a light system for this exact purpose is Dr Douglas Grose. I googled and found a skin clinic that uses his equipment and protocol. Hope this helps you all in the same way it helped me. This procedure is truly a god send if you have over active sebacious glands!! x
A Bible proverb states: “A joyful heart is good medicine, but a crushed spirit saps one’s strength.” (Proverbs 17:22) In other words, your attitude makes a difference! It can affect whether you attain a goal or give up or whether a tragic event brings out the best in you or the worst.
Some people might be skeptical of that idea. They might reason:
‘Why hide my hardships behind a mask of optimism?’
‘No amount of positive thinking will change my situation.’
‘I would rather be a realist than a dreamer.’
Those thoughts might seem valid. Still, there are benefits to adopting a positive outlook. To illustrate, consider the following scenarios.
At their place of employment, Alex and Brian each work hard on separate projects. After analyzing their work, the supervisor points out key errors in each project.
Alex: “I put so much time and effort into this project, and I still didn’t get it right! I’ll never succeed at this job. No matter how hard I work, it’s never good enough. Why do I even try?”
Brian: “My boss highlighted aspects of my work that he liked, but I made a few fundamental mistakes. I’ve learned some valuable lessons that will help me do better next time.”
WHAT DO YOU THINK?
Six months from now, which one will be a more capable employee—Alex or Brian?
If you were an employer, which of those two men would you be more likely to hire or keep on your payroll?
When you face disappointment, which of those two men do you react like?
Andrea and Brittney suffer from bouts of loneliness. Each of them has a different way of coping with the situation.
Andrea focuses most of her attention on herself. She refuses to do things for others unless they do things for her first. She reasons, ‘Why should I waste my time on people who give me nothing in return?’
Brittney makes a concerted effort to be kind to people and to do things for others, whether they seem appreciative or not. She lives by the Golden Rule—to treat others as she would like to be treated. (Luke 6:31) For Brittney, doing good is its own reward.
WHAT DO YOU THINK?
Which of these two women would you rather have as a friend?
Which one is more likely to feel satisfied with her relationships?
If you suffer from bouts of loneliness, is your approach more like Andrea’s or more like Brittney’s?
You probably know people who fit the profile of Brian and Brittney. You might even feel that you are like them. If so, undoubtedly you can see that your attitude can make a difference in your life. On the other hand, what if you are more like Alex or Andrea? Consider three ways the Bible can help you to adopt a more positive view of life’s struggles.
1 AVOID PESSIMISM
THE BIBLE SAYS: “If you become discouraged in the day of distress, your strength will be meager.”—Proverbs 24:10.
WHAT IT MEANS: Pessimism will sap you of the strength you need to improve your situation or to help you deal with it.
EXAMPLE: Juliza’s childhood was anything but happy. Her father was an alcoholic, and her family was poor. They moved from place to place. At first, Juliza was pessimistic about her lot in life. But that changed. What helped? “Even before my parents overcame their difficulties,” Juliza says, “the Bible helped me to improve my outlook. And to this day, thoughts from the Bible keep my thinking from spiraling downward. Now, when people display traits I don’t like, I try to understand why they behave the way they do.”
As Juliza learned, the Bible is a book of sound principles. Its advice can help you to cope with negative circumstances. For example, Ephesians 4:23 says: “Continue to be made new in your dominant mental attitude.”
As that verse implies, your outlook is not set in stone. You can “be made new” in your thinking. However, making such a change is an ongoing process. That is why the verse says that we should “continue to be made new.”
2 FOCUS ON THE POSITIVE
THE BIBLE SAYS: “All the days of the afflicted one are bad, but the one with a cheerful heart has a continual feast.”—Proverbs 15:15.
WHAT IT MEANS: If you see everything negatively, you will feel “afflicted” and every day will appear “bad,” or gloomy. But if you focus on positive things, you will have “a cheerful heart” and even feel joyful. The choice is yours.
EXAMPLE: After several surgeries to remove a brain tumor, Yanko had physical limitations that affected his movement and speech. Feeling that these would stop him from reaching his goals, Yanko was deeply discouraged for years. Then he changed. How? “Instead of focusing on my limitations,” he says, “I learned to occupy my mind with encouraging subjects.”
One way Yanko does this is by reading passages from the Bible. “This keeps my thoughts positive,” he says. “I haven’t totally put aside my long-term goals, but I’m focusing on the smaller goals that I can reach now. When discouraging thoughts creep into my mind, I reflect on the many reasons I have to be happy.”
Like Yanko, you can confront your pessimistic thoughts and replace them with something positive. If you are dealing with negative circumstances—perhaps a health problem, as was the case with Yanko—ask yourself: ‘Is the situation really hopeless? Have I reached a dead end, or is this merely a roadblock?’ Learn to keep negative thoughts out by concentrating on something constructive.
3 DO THINGS FOR OTHERS
THE BIBLE SAYS: “There is more happiness in giving than there is in receiving.”—Acts 20:35.
WHAT IT MEANS: Unselfish giving brings deep satisfaction to the giver. Why? Because we were created to do more than simply look after our own needs. (Philippians 2:3, 4; 1 John 4:11) Experiencing the joy of giving can do much to help us cope with negative circumstances in life.
EXAMPLE: Josué suffers from spina bifida, a severe defect in his spinal column. He is often racked with pain. But Josué enjoys a productive life helping others. “Rather than say, ‘I can’t do that,’” says Josué, “I enjoy thinking of practical ways to help people with their daily needs. I find ways to do things for others, and this fills my life with happiness.”
WHAT YOU CAN DO
Josué washes dishes while he enjoys the company of a young family
Look for opportunities to be self-sacrificing. For example, can you prepare a meal for a sick neighbor? Do you know elderly ones who need help with tasks around the home?
Care for your attitude in the same way you would cultivate a garden. Root out the poisonous weeds of pessimism and negativity. Sow seeds of realistic optimism, and fertilize your life with actions that produce positive emotions. You will reap an emotional crop that will make your life much more rewarding. And it will confirm the fact that attitude makes a difference!
For the sake of their health, some people learn to say no to certain foods; you can do the same with negative attitudes
This is such a great post. Well described and it's easy to read. I just want to tell you that, I've beaten my anxiety with just positive thinking and positive mind state. I've cured myself and my problems. It is very possible to make your life a better place to live if you just clear your thoughts and think positively!
Just some background story: I have E.C. for approx. 7 years and I believe it stems from Accutane.
Anyways, I have recently started taking Vit B Complex again, which had proven some results in the past whereby it prolongs the peeling cycle and thins the dead skin significantly.
It has shown the same results recently, till I decided to ramp up the dosage to 2 tablets a day (the description recommends 1 tablet a day).
I noticed that when I took 1 tablet my urine would be VERY bright yellow, however when I took 2 tablets at a go it isn't that yellow as compared to 1 tablet (which is weird, since it should be the same as not more). What explains that? Could it be that my body is absorbing the B Complex more ?
Also, I noticed that taking 2 tablets slows down the peeling by a lot (granted, I've only taken 2 tabs for 2 days so I can't confirm much yet). Is it dangerous to take 2 tabs a day? I'm afraid that there's too much vitamins that my body cannot absorb or it might lead to kidney issues.
We hear a lot about B vitamins, a group of 8 distinct vitamins, each responsible for aiding various functions in the body. The functions of the vitamin B group range from supporting the rate of metabolism, promotion of healthy skin and hair, as well as memory support.* Since the vitamin B group is responsible for all of that good stuff, can you really get too much resulting in a vitamin B overdose? With some of the B vitamins, unfortunately, yes. In fact, a vitamin B6 overdose can lead to nerve toxicity, while B3 can lead to nausea, jaundice, and liver toxicity. Too much folic acid, too, can mask the symptoms of a B12 deficiency. So how much is too much? Typically, 300 mg of B6 is scary territory, while 2000 mg of B3 is risky. For folate, the Institute of Medicine recommends adult men and women not consume more than 1000 mg per day.
Overdosing on thiamine, or vitamin B-1, is rare but can cause severe symptoms. Mild symptoms of an overdose include weakness and a headache, the American Pregnancy Association reports. In some cases, high vitamin B-1 levels can cause a rapid, irregular heartbeat and low blood pressure. These symptoms can lead to cardiac problems. Some patients will develop a low blood pressure and convulsions.
There are few potential side effects from high doses of riboflavin. The most serious side effects concern an increased rate of allergic reactions in patients taking high doses of riboflavin. Symptoms of allergic reactions include swelling of the face or tongue, hives and difficulty breathing, Drugs.com states. Consult a doctor if you develop these symptoms after taking vitamin B-2. Riboflavin can also cause a harmless yellow-orange discoloration of your urine.
Overdosing on niacin, also called vitamin B-3, can lead to rare side effects. The most apparent symptom of a niacin overdose is a blurring of vision, the American Cancer Society says. This can be a sudden symptom that is disorienting and frightening. You may also experience gastrointestinal symptoms such as nausea, stomach pain and vomiting.
Pantothenic Acid and Biotin Overdose
Pantothenic acid, vitamin B-5, and biotin, vitamin B-7, are necessary for normal metabolism and the breakdown of proteins and carbohydrates. High doses of vitamin B-5 can cause severe diarrhea according to Medline Plus, a service of the National Institutes of Health. However, there are no known toxicities associated with biotin intake.
Toxic levels of pyridoxine have been known to cause a variety of muscular or nerve problems. You may experience burning pains, clumsiness, a loss of muscle coordination and even paralysis, the American Pregnancy Association reports. Vitamin B-6 toxicity can also cause rapid breathing and dyspnea
Folic Acid Overdose
Folic acid, or vitamin B-9, is dangerous when taken in high dosages. Normally, folic acid is given to help keep nerves healthy and ensure a healthy pregnancy. However, in doses greater than 15,000 ug per day, vitamin B-9 can cause damage to your central nervous system, the American Pregnancy Association warns. This may manifest as movement disorders, paralysis, pain or numbness.
Excess intake of cobalamin, or vitamin B-12, may cause some symptoms in patients. You may develop blood clots, itching, diarrhea and serious allergic reaction, Medline Plus says. To avoid these symptoms, take vitamin B-12 as recommended by your doctor.
My EC spreads if I don't let water touch it . I have again tried to not let water touch my lips for 2 weeks now and the EC again spread .2 months back I tried complete leave it alone and that time too ec had spread to the non affected part but it healed afterwards. I don't know why this is happenning. Could it be some kind of infection that spreads when lips are dry? If so what infection could it possibly be?
I took a lot of antibiotics in my childhood and I used to have dry lips back then. I took 3-4 courses of antibiotics over a period of 2 years for my acne. Acne used to clear when I took antibiotic but it used to reappear after stopping antibiotics. So after 3-4 courses, the dermatologist prescribed me accutane and after that my acne cleared but I got EC. I also used to have constipation most of the time and still do.
I took probiotics and it did solve my constipation when I took them but when I stopped taking them, constipation returned. I stay depressed most of the time nowadays as I am now hopeless that it won't be cured ever. I can't remember the last time I was happy. I spend most of the time at home and never step out. I cannot make an eye contact with anyone while tlaking to them. When I look back, I realize that life was much better for 2years when I was managing EC by exfoliating every 4th day but the past 7 months have been a nightmare. I used to skip college and due to this my grades have also been affected. Life is miserable. I am now ready to give up. People of my age are enjoying their life and I am living like a hermit. People can show empathy towards other disease but not ec as no one has experienced it.
I have tried these things and nothing has worked so far. What should I do? I have lost all hope. I know there are worse conditions people suffer but EC is not less than any of them. But the bright side of ec is that any other problems I face in life seem too small and once I am cured I will be much stronger.
When my EC initially began, it was only on the lower lip. I was "managing" it by constantly rubbing it off so they would appear normal and I was still licking my lips during this. When the problem persisted, I began looking my symptoms up online and found this forum.
I searched for success stories and stumbled upon the famous "leave it alone" method to which I immediately tried. Within a week, my EC spread to the upper lip out of nowhere and my lower lip was in constant pain due to the unbearable dryness. I honestly have no idea if it spreading was a coincidence, or it spread because I left them alone.
It's quite a shame that in our era of advanced technology, not even the most qualified doctors can explain or give at least a single clue about this condition.
While leaving it alone, did you let water touch your lips? What do you think was the reason for your ec to spread?
I think that it is some kind of infection(bacterial/fungal/viral) which spreads when the lips are dry.
The lips also become inflammed when I keep them dry.
There should be some connection .
Since only the lower lip was initially affected, I could still drink normally, and I even remember thinking to myself at the time, "Thank God it's only on the lower lip". I began reading a few posts here once I looked up my symptoms and read about how leaving them alone "would eventually heal them", so I did.
I left them alone by stopping what I was initially doing to them, which was rubbing them. I still drank and ate normally although I was more mindful. I think it wasn't even a week, it was more like within 3 days that they spread. Anyway, I go about my normal day, drink water normally (obviously drinking normally means you let water touch them, and the upper lip is the lip that is mostly in direct contact when drinking) and what do you know, the dreaded triangle in the upper lip and some small sections that flake appeared, I wasn't even causing trauma to them.
I personally think that EC is primarily immune-driven. How or why it happens I honestly have no idea. As someone who suffered from dry or chapped lips from time to time before EC happened, I can assure you that the lips are one of the fastest to heal despite the trauma, which is why I don't think that anyone here should be blamed at all. It's probably different if you had chronic, dry lips that you almost had to peel everyday but it seems that most of us here have stated that we all had a period where we wake up and saw or felt the lips were suddenly very dry and started to apply chapstick and then EC happened.
In my case, I was peeling my lips a few times because they were dry, but I'm sure they returned to normal because I wasn't a chronic lip picker anyway (since I never had chronic dry lips). Then after many months of normalcy, I woke up one day and realized my bottom lip was severely dried out which was why I asked for chapstick, although what confuses me is that I barely used the chapstick after that since everything went back to normal as I expected, whereas most people here say they started getting dependent on the chapstick. Many months later, I just woke up with EC.
I have to emphasize 'months' in my case because that's how it really happened, sort of like a really late delay between normalcy (I mean I was peeling my lips because they were so dry back in January '15, but I have pics of me on Feb '15 and March '15 where my lips went back to normal, so why didn't EC happen sooner and not almost a year later after so many months of normalcy? Do you get what I mean?). Logically, trauma may honestly have something to do with it, but I think the sudden nature of lip drying is more suspicious and perhaps has something to do with the immune system.
Sorry if this is was quite long, it's just frustrating and confusing that I really have no clue on what's going on with us. As someone who usually always has a solution, this condition is honestly an insult to my intelligence.
Have you tried a salve? I use touchy skin salve by ora's amazing herbal for psoriasis and it's made for eczema. It may help reduce the look on your lips. Also, face oil serums that a very moisturizing or natural lip scrubs may help as well.
I had to same thing , EC spread to my top lip when leaving it alone. This is because EC is caused by DROUGHT, so when u completely leave it alone the bottom lip completely dries out, and eventually the top lip will also dry out because they're connected. So never leave it completely dry!
You have parasites clogging you up. Count on it. Do Dr. Clark's cleanse which includes needing to use a zapper. Here's my new favorite quote from her book:
"Only Two Health Problems
No matter how long and confusing is the list of symptoms a person has, from chronic fatigue to infertility to mental problems, I am sure to find only two things wrong: they have in them pollutants and/or parasites. I never find lack of exercise, vitamin deficiencies, hormone levels or anything else to be a primary causative factor." 'Cure for All Diseases', page 2
Don't believe any 'doctor's' diagnoses--they are trained by the pharmaceutical cartel-backed medical 'schools' aka brainwashing institutions to disregard parasites entirely, as well as any infestation symptoms, which is what all these auto immune 'diseases' actually are.
They say 'cause unknown' because they can't think of a good pretend reason for those symptoms.
Again, regular 'doctors' and their tests never detect any real parasite problem. If they aren't in your digestive tract, they don't really register on the deliberately inaccurate tests.
The 'elites' don't want you to know how badly you're infested. They count on those infestation to make you sick, manifest one of their pretend 'diseases', and need boatloads of their products, natural stuff or drugs (they now own both, pretty much), to try and get well to benefit their most profitable arm, the pharmaceutical cartel.
I've been a frequent follower of cure zone for quiet some time, and I can say many of you guys have been through hell and back. I'm reaching out because I'm tired of just following diets and not getting any good results.
Drugs I've taken: Rounds of Antibiotics, and Accutane.
My symptoms: Dry skin, leaky gut, acne, psoriasis/rosacea lethargy, poor sleep, overall weakness, no libido, lipomas, thinning hair, brain fog, poor concentration, food sensitivities, hard time sweating and constipation.
My meals are pretty healthy, I've been following an anti-candida diet with no fruit and root starchy vegetables aside from carrots, no dairy,wheat, legumes, and eggs. I eat brown rice for carbs, and I eat meat and fish. I generally try to eat animal products that haven't had any antibiotics, besides fish occasionally. I try to always get some form of cooked vegetables with every meal.
I've been seeing a naturopath, but I feel as if I'm getting my money taken from me. I went to try and get "professional" help in desperation as I was getting no where with my skin rashes. She told me about leaky gut, and put me on the anti-candida diet, gave me a list of supplements to aid in the healing. I started feeling alot better , but I feel the only reason it did is because before I went to see her, I was attempting a raw fruitarian lifestyle. That sent me into hell, as I was just always anxious , and had frequent melt downs. She put me on a protien supplement called, opticleanse ghi, a multi vitamin, an anti-fungal called berberine, 5000 vitamin D, and a probiotic. I got a food sensitivity test and have been avoiding the foods that cause me problems, and has actually been helping me alot. The rashes seem like they're regressing. For some reason though, I have a gut feeling that this is only temporary fix though. I can imagine that avoiding foods that cause damage to your gut would cause inflammation and problems in your body, but I have a feeling that this isn't something that will permanently fix my problems. I've also got lipomas in parts of my body, but I feel as if they are from the protein drinks I use to drink when I weight lifted extensivly. I'm reaching out to see what you guys think, as I've seen alot of people on this forum have been through the ropes with these type of problems and could give some advice and thoughts about my circumstance.
I also want to do start doing some liver flushes. Since I'm on a anti-candida diet, I was wondering if there were any herbs that anyone could suggest to me to take before I attempt this to aid instead of drinking apple juice, and eating apples 7 days before the cleanse as that would go against my anti-candida diet.
I was also wondering if a parasite cleanse would be helpful as well?
Any advice and hopeful words is welcome, as I've come to wits end trying to deal with this.
I'm only 21 years old, and having these problems worries me of my future if I don't get it under control..
Thank you for taking the time to read, and I hope to hear from you guys soon!
Mattk3 makes a significant point.
Only reason you'll
Need a naturopath is for them to run a metal and mineral hair test to access the heavy metal burden. The test cost something like $60 bucks
And the $60 bucks will make your recovery much much much faster.
i am on matt's protocol and took that advice and my mineral analysis showed uranium was off the charts. rest are normal. Uranium is a heavy metal and i looked it up and it causes all kinds of cancers and health problems. The test guy my doctor and i have no idea how this is but its not good. Anyone have any input on this?
Take selenium, some silver, a multivitamin w/o iron Now Foods 3771, and 2 grams of chlorella every evening for a year, the radiation level should fall.
Remember, chlorella pulls out not only toxins but trace metals as well, and you need a lot of them, so you must supply them, as well as remove the bad ones. Only way to remove radiation metals is using chlorella, the Russians used a lot of it after their reactor melted down.
The immune system attacks itself, instead of the invader, causing a strain on white blood supply, and greatly increases the inflammation. This can cause a GI trac infection that spreads. Routine Supplementation of Immune vitamins, Rosehip seed tea, magnolia bark extract, and Chaparral will stop this genetic transcription error in the DNA. Once your immune system is regulating correctly, fighting your infection is easier. I would take up to 4 capsules of magnolia bark, 4 cups of rosehip seed tea, and 2 capsules of Chaparral, twice a day. Very Very Powerful. Also keep in mind that Stinging Nettle root robs fungus of chitin. The stuff that makes the shell of the fungus, up to 6 caps per day really weakens fungal infections.
33% of people have the defective Gene.
Psora goes back thousands of years.
Look up Psora, it is just now receiving some attention.
One of Psora body types biggest problems is in the behavior of FXR, the regulation of ornathine, and the removal of ammonia from the body.
FXR Farnesoid x receptor:
The bile acid receptor (BAR), also known as farnesoid X receptor (FXR) or NR1H4 (nuclear receptor subfamily 1, group H, member 4) is a nuclear receptor that is encoded by the NR1H4 gene in humans.
It plays roles in:
FXR is expressed at high levels in the liver and intestine. Chenodeoxycholic acid and other bile acids are natural ligands for FXR. Similar to other nuclear receptors, when activated, FXR translocates to the cell nucleus, forms a dimer (in this case a heterodimer with RXR) and binds to hormone response elements on DNA, which up- or down-regulates the expression of certain genes.
One of the primary functions of FXR activation is the suppression of cholesterol 7 alpha-hydroxylase (CYP7A1), the rate-limiting enzyme in bile acid synthesis from cholesterol. FXR does not directly bind to the CYP7A1 promoter. Rather, FXR induces expression of small heterodimer partner (SHP), which then functions to inhibit transcription of the CYP7A1 gene. In this way a negative feedback pathway is established in which synthesis of bile acids is inhibited when cellular levels are already high. FXR has also been found to be important in regulation of hepatic triglyceride levels. Studies have also shown the FXR to regulate the expression and activity of epithelial transport proteins involved in fluid homestasis in the intestine, such as the cystic fibrosis conductance transmembrane regulator (CFTR)
Farnesoid X receptor has been shown to interact with:
Peroxisome proliferator-activated receptor gamma coactivator 1-alpha and
Retinoid X receptor alpha.
Demand for immune stability is enhanced using:
The Farnesoid X Receptor (FXR) is a member of the nuclear receptor superfamily of ligand-activated transcription factors, which plays crucial role in bile acid, cholesterol, lipid and glucose metabolism, as well as in the development of atherosclerosis, intestinal bacterial growth and liver regeneration. FXR is also involved in the pathogenesis of cholestatic diseases, non-alcoholic fatty liver disease and inflammatory bowel disease. Recent evidence further suggests a key role for FXR in apoptosis and cancer. Notably, FXR deficiency promoted intestinal inflammation and tumorigenesis, suggesting that FXR activation might be a promising strategy in the treatment of colon cancer. FXR deficiency in mice led to the development of spontaneous hepatocarcinomas, while FXR inhibition might represent a novel therapeutic approach in Barett's esophagus. In Breast Cancer cell lines, FXR agonists down-regulated the Breast Cancer target gene aromatase. FXR inhibited Leydig tumor growth and progression, supporting evidence that FXR may be an important regulator of androgen homoeostasis. Further studies are required in order to establish possible antitumor effects of this nuclear receptor. Either reactivating or inhibiting FXR expression may represent promising therapeutic strategies in the treatment of certain types of human cancer.
The farnesoid-X receptor (FXR), also known as the chief regulator of bile acid metabolism, is thought to play a role in some hepatobiliary and gastrointestinal disorders. In a study published in The American Journal of Pathology, researchers demonstrated dysfunctional intestinal FXR-signaling in a rat model of cholestatic liver injury, accompanied by intestinal bacterial translocation (BTL) and increased permeability and inflammation.
Do you know anybody who has had success clearing psoriasis with this regimen? It worries me because chaparral is listed as an unsafe supplement. I'm willing to try this, but I don't want to take something that is not safe.
Thank you everyone for taking the time and reading my story. I will look into the hair analysis. Though from what I've been seeing its in around the $160 range, I'll have to just keep looking.
Thank you for the information about the defective gene, I do remember my mother telling me about her having a type of skin reaction once. The thing that's weird though is I only have it on my face. Not any where else on my body. I will look into the herbs you listed.
How many have you done? and was it intense?I've think that's what I'm going to do, but from what I read you should do a parasite cleanse before you do a liver cleanse.
Does anyone know of any symptoms of having a parasite? I wake up religiously every night with weird twitches, and I'll be itchy. I don't really have a hard time falling back asleep, but its just an annoying habit and I'm not sure whats causing it.
From what I'm reading, I think you should take B1 (thiamine) a few times a day as it can only be absorbed in small amounts (so don't bother taking mega doses, just small doses 3 times a day) and Essentiale for your psoriasis. This product can be found on ebay and other outlets:
Hi Jinx178 (hah I realize your username is quite similar to mine)
Note: Apologies because I'm not a curezone veteran. I'm just an acne veteran with a similar story to the OP. I'm new to the forum, and a lot of good answers have been given, so I hope I'm not repeating advice and apologies if I am.
A little backstory:
I'm 23(f), acne-free for around a year or so now. Too bad I picked at my face though, as I'm left with textural scars. But I'm learning to accept them and appreciate what I've been through, because as you can probably relate it was a very painful experience having acne.
I went through 6+ years of pretty regular, cystic hormonal acne, from about my junior year in h.s. (my parents officially divorced around the same time curiously enough) til around this time last year, now that I think about it.
I went on birth control originally for acne, but knew, like you mentioned among other things, that it was just a temporary fix. And a shitty one at that.
It almost ruined my relationship at the time because of my depression and mood swings. So I went off it and started researching the sh*t out of acne, because my breakouts wanted to come right back.
Anyway, that's probably enough about me. I'm going to make a pretty general recommendation based on what you wrote. I think you're totally right in thinking what you're doing is only a temporary fix.
Healing from acne takes time. For me it did. Especially if you have gut problems which I had and you do. Some cream or vitamin or herbal supplement wont take care of the problem entirely if your lifestyle doesn't support clear skin. What worked for me, and continues to work is:
A Gut-Healing Diet, specifically a Low-FODMAP diet. I'm surprised this isn't mentioned for acne sufferers more, but I'm trying to change that. I've done the crazy diet rollercoaster before and it's done a whole lot more harm than good. This, despite the un-sexy name, FEELS good. It's also completely tailorable because it allows you to find what exactly causes you gut issues. Seriously, check it out.
I recommend against the liver flushes. Please. Don't. Do. Them. I've done them in the past, back before I didn't care if things were clinically proven or not, and it did nothing. I'm not against holistic medicine entirely, but I now highly value clinical evidence, of which there is none for liver flushes.
If you want to supplement to help balance out hormones, I would recommend Berberine. I won't go too deep here on it, but it helped me when I needed extra ammo against acne. Always know side effects before taking things though.
Final tip: a good probiotic every day. I'm a fan of drinking kombucha and making my own probiotic sh*t because sh*ts expensive if you get it at the store.
Wow. That was long. I'm tempted to do a tl;dr but sincerely hope you read all of this and benefit from it, even in a small way.
Let me know how it goes, whatever you decide to do!
I'm a big fan of simple, so the recipe for fermented veggies from an article in StoneSoup worked well for me. They won't let me link it here but I think the post is called 'The Number 1 way to Improve Your Gut Health.'
I've been wanting to experiment with making my own kombucha too, once I have time for a bigger project :)
So I recently did a Candida cleanse and parasite cleanse to check to make sure I wasn't suffering from either, as I had been to a poor country a few times in the last year.
After I came back I possibly had giardiasis, and was also on a very strong antibiotic called levofloxacin.Taken twice a day after surgery,which caused me to start having very bad watery stools,bloating, yellow in color, gas, a very bad smell, leaking of Candida and other things. It went on for about three weeks. literally-if i ate the wrong thing I'd be on the toilet, for the whole day off and on & things went through me.
Then it disappeared, but I did pass little floating almost cut in half pipe cleaners, which were white, and a painful passing of a small, root like structure that was white.
I had no problems but was also on medication later (unrelated) for other things that caused constipation, etc.
I then decided a week or two ago just to do a cleanse, as I noticed after I used certain spices, I would have an urgency to go, and would pass white or yellow,orangey stuff wrapped around my stool.
So I began the cleanse, taking antifungals, and other things to get rid of it. Then I got very constipated after a week or two so I stopped taking it. However, the constipation was worse than i had ever experienced, it literally would not move.
So after a week and a half of stopping the antifungals, etc ,in case they were causing my intestine to freeze, and also cause my constipation, I started using a veggie wash for my food, as i would rather be safe than sorry, as it has antifungals and antimicrobials in it.
I also had leaky Candida or something when I had to use the bathroom,and a lot of long vaginal discharge which i never had before/ was not to the extent it was coming out at times.
I took a strong laxative..some other fiber and waited,
I then later a few hours later..
I Passed a very thick,slightly yellow slightly orange colored heavy matter that as possibly, Candida? or Bio film.
It was about 1 OR 3 inches in length!!! attached to one of my bowel movements, and the other stool had bits sticking out in the same color. I was shocked!
It was heavy to pick up and remove with a qtip and it was not slimy but rather like a heavy DAMP piece of tissue paper or cloth almost? I'm not sure how to describe it.
I have suffered from anxiety and other things and had a poor diet growing up.
Only began taking probiotics, real butter on things, and coconut oil in the last two years.
I was on a lot of antibiotics as a kid but hadn't been since i was around 13. it was around 9+ years ago. I also was on accutane for 6 months. I have never taking birth control for longer than 1 week ( in 2015) and was on spironolactone(2015) for a short time(1-2 weeks).
Doctor thought I had pcos but no longer take it as i don't have it.
At the time( surgery and travel) i believe I did contract giardiasis. I got bad watery diarrhea but I also was taking proton inhibitors,sleeping pills, anti-allergy medications and Tylenol.
It also got screwed up as the nurse gave me juice and other things that was filled with sugar, and other no nos.
I normally did not take any medication for anything at the time, so it was a lot for me to take!
I have a little bit of acne, but had very bad before accutane(age 12). Easily dried out skin(12 years old onwards) and eye bags since I can remember.
No health conditions or stds, allergies, lactose issues. No health problems.
I Also have had no issues slimming down recently and get small cravings for sweets and fast food but have not eaten it but rarely in 4 months.
Was this Candida?
I did see possible rice like things on my tissue paper before, but only one at random times e and some seed looking things in stool but not recently, and i don't suffer from itching there or anything abnormal.
Maybe it is asymptotic?
I just have bad constipation that leads to a painful butt and possible fissure at times and some blood but nothing beyond that.
I also have suffered from bad dandruff since I was 13 or so and believe it is fungal induced,as zinc, and sylici acid anti-dandruff does not cure it for me but relieves it for a short amount of time.
I have always been fatigued easily, and depressed/ negative thoughts..
and now that i passed that lump of possible Candida, i feel a lot more clean and light and almost unburdened?
I never had any issues besides occasional constipation prior to this year and actually was very regular but now I suffer from that leaky Candida at times and now the passing specks (yellow) at times on the stool.
i also wash my hands very well no matter where I go in public and I use purell etc when needed.
You just opened the door to having parasites spread all over your body is what. Herbs don't deparasite the whole body--only the digestive tract. Do real deparasiting with zapper and then see what infections they've left you with. Dr. Clark explains that very well in her book---get it for doing the deparasitiong properly. She was the first zapper owner--she learned how to use it properly.
Her take on today's 'diseases:
Only Two Health Problems No matter how long and confusing is the list of symptoms a person has, from chronic fatigue to infertility to mental problems, I am sure to find only two things wrong: they have in them pollutants and/or parasites. I never find lack of exercise, vitamin deficiencies, hormone levels or anything else to be a primary causative factor. So the solution to good health is obvious: Problem --- Simplest Cure Parasites --- Electronic and herbal treatment Pollution --- Avoidance
'cure for all diseases', page 2
You're just making yourself sicker with all the fiddle fuss products of the pharmaceutical cartel (they own all the health industry now). They don't want you well. How can they make a profit??
FYI: the FDA is putting human killing frequency chips into I'm not sure which zappers you can buy. I kow the ones here are compromised, so maybe should make yourself the simple one Dr. Clark shows, to get you by. Otherwise you could electrocute yourself and end up quite damaged and weakened with no hope of recovery--all the test animals she tried it on died a slow lingering death.
Never take meds!! At all! They'll kill you faster than parasites. Zap and 3 herbs--be free of all this crap, except for the infections the dead parasites leave behind. 3 other herbs can get rid of those.
Pharmaceutical crap is the natural health stuff too. They own both sides of the health industries. Thus far the pure herbs have been ok, but no combos or mystical magical 'healing' dirt or salt or whatever. That stuff is all hype and lies and won't help at all.
Unless you're not really here sick at all--just setting up a sales platform that other 'posters' can use to 'recommend/endorse possible pharmaceutical cartel products. I've seen it happen, but hey, surely not you.
No, YOU wouldn't be selling anything, sweetie pie. You'd be just setting up a platform for others to 'rescue' you with all their 'great' cartel product ideas, baby boo.
And if you got yourself a decent zapper, the only thing you've failed to even try, and then wonder why you failing so miserably and I don't care really, because obviously you don't (I'm not going to even bother with that warning again), you wouldn't have globs of ANYTHING falling out of your butt. Just kill it already, honey cakes. NO identity needed. Period. If it's dead, it doesn't matter if it was a alien worm monster, or undigested lump of cheese.
LOL!!!!! Ok! Dr.clark and associates, continue promoting your stuff here, i regret buying anything from your website if you have to get people to your site this way, and nice anon by the way. You should just post under your name if you want to increase it, perhaps zapperbydrclark? it would work for you honey bear
As noted many times previously, I use #461 because it shows how long I've been here (the numbers are in the 200,000+ range now I think)--working to get well. And now that I am, I'm here sharing the good and actually quite easy to do news. And whistle blowing the crap that's interfered with that goal, my dear little hunny of bunnies.
Yes---dang it, making the little 'sell products' vignettes obvious, pointing out totally idiotic 'protocols/methods' for 'health' I've tried (or not--some just fly too far in the face of common sense) and had each AND everyone fail, except Dr. Clark's protocol which worked great! None of this pharmaceutical crap WORKS---none, so I think the real posters lurking and dare not post (pretty much just cartel employees post now, so it seems like the majority of poster are against me, a ploy they used to drive away many of the real posters in the past, ie, the pharmaceutical 'norm') are deserving of knowing what I observe and have learned. If you watch, it's pretty obvious.
No doubt, I'm horribly disruptive to the employee's agenda of keeping you buying pharmaceutical products which include supplements as well. The cartel owns it all. I just think helpless little old ladies and desperately ill people don't deserved to get mugged by the cartel down some dark forum ally.
Whistle blow every vignette or damaging protocol/method, you mean WAYN? Just like you always try to 'protect' them with your supposed opinion leader rhetoric?
It easy, really. Just stop doing such obvious sell platforms and advising crap protocols I've found to be actually harmful or not at all helpful, and I'll not say a word. Just keep telling my experience of total success with the Clark protocol withh zapper.
That person is loony. Her world view is that only her way of seeing things is right. "All drugs are bad". She's so conspiratorial I wonder if she is from the DEA lol. She has no proof for her claims.
Yes, the drug companies are fueled by money! Bit they don't give a f about a few people taking anti parasite herbs or drugs. They deal with billions of dollars in profits. This forum isn't even .01% of what this country spends on medicine.
There's also the absurd straw man argument with 461. If she disagrees with you she will just say you're from a government agency lol.
Hum-----blowing whistles sure upsets some folks and common sense doesn't need 'proof', it just needs sense.
And curezone's got plenty of readers (few posters cuz people hate to be mugged) and word of mouth is quite surprisingly effective.
Does big pharma worry about Curezone?? I'd say the fact that they're willing to hire all the employees being here all day to try and keep info about zappers quiet and push the big pharma cartel products, says yes indeed they do worry about 'insignificant' curezone--rather quite a bit.
Big pharma makes money off ALL drug sales human or animal. You better believe they don't miss a penny. And all natural 'medicine'/supplements dirt, hydrogen peroxide, etc---is sold by them too. And they'll sell you some lame product when you try to fix yourself after the first bunch.
I can see the memories of everyone in the collective unconscious. Of course the 'elites' control the media, so no physical plane proof will ever be allowed to get out. The government isn't ours anymore. They just use it to control us and steal our money.
You have superhuman powers of foresight and yet you cannot spell or grasp the most basic concepts in electronics. Did your superpowers activate before or after the cancer? Have you considered a career in the Marvel Superhero Fictional Universe?
No, no super powers here--maybe some of the meta skills are starting to come on line, which we all possess but which are dormant--EFT is amazing.
And you are so very prone to inaccurate and deliberately twisted accusations again and again--obviously your meta skill. I wouldn't even think of the way you twist crap.
And one word---boy that totally proves I'm a Neanderthal, for sure.--now where is *your* double masters from? What topic? I must have missed your answer---I'm sure you're soooo proud.
I've been working on activating my meta skills for a while---the cancer happened in the middle.
So what cancer have YOU survived?
In fact what illness do you have that you're trying to cure by being here?
While giving 'oh-so-helpful' advice about available cartel products and making it your personal mission to attack--er--cry ohhh moderators, against those of us not pro 'mugging grandma down a dark forum' ally?
This is a forum owner named Moreless, permanantly banned except on his forum. Notice the negative speech, and cutting down, in this example, all zappers. Dangerous. (ghostwriters) He is Holysin and 461
Hi, I took 2 courses of Accutane, several months each, years ago. I had to interrupt the second one because Accutane caused severe depression. Some 3 years later I got a neurological issue: my right hand dropped and I lost thumb extension. About a year ago my left hand got affected. I have mobility issues in both hands and severe muscle wasting in hands and forearms. I got diagnosed 1 month ago with MMN, multifocal motor neuropathy, a serious and progressive neuro-muscular disease. The cause is unknown, but I cannot help thinking Accutane caused all this. Now, I must know how to stop the damage and how to clean my system from Accutane, because there is no real, lasting treatment for my diagnosis.
To remove toxic heavy and kill all infections research and start a whole body cleanse; 'vitamin C bowel tolerance’. All vitamins/mineral are important to whole body health. I Have bad teeth I cannot a ford to fix. Three times over the last 4 years I have had 3 bad infections, pain and inflammation. Vitamin ‘C’, between 16, 20, and 135 grams in less than 20 hours controlled these flare ups. Now and the last 4 years I have taken between 12 and 20 grams ‘C’ a day to prevent until I get the money to have the dental work done. Few people Know the ‘C’ is a pain killer by not allowing infections and rids the body of heavy metals. All vitamins and minerals are vital to health.
Few people understand the crippling effects to the immune system by toxic refined sugars, processed vegetable oils, junk foods, chemicals in processed foods, all soft drinks, soy, soy milk, microwave, deep fried foods and artificial sweeteners. The excess sugars in the body are used by fungus, yeasts, parasites, diseases to grow and replicate.
Cause allergies, bipolar, depression, obesity. B 3 has a positive effect on depression, nerve damage and bipolar. Research???
Human/animal grade diatomaceous is important with ‘C’ to control parasites that drain the body of nutrients, energy and to replace cells burnt up by inflammation and to control the destructive force of free radicals.
Plain B 3, niacin to a body flush to cleans the heart, veins, liver, bad cholesterol, and toxins. The flush can be scary for some of the toxins are dumped to the skin causing a flush and burning sensation.
About 3 hours into the flush I shower and change clothes.
Research; ’niacin flush’ Many 'real' doctors are now recommending niacin and vit. E to replace expensive and dangerous drugs.
I'm so sorry to hear about your motor neuropathy. I was recently also diagnosed with MMN. Mine is the version where the drug doesn't work. LOL! I don't want a drug anyway! I am wondering if I didn't get it because I severely restricted healthy sugars and carbs for a long time... Like a decade! Have you had any success reversing your symptoms?
This message was shared by Zach Lake on another Accutane forum.
Some interesting Information about Accutane, relevant for those suffering from Acne, Exfoliative Cheilitis, Folliculitis, etc.
Accutane side effects:
1. Mental side effects: Accutane has been shown to cause hippocampal cell death in mice. It has been shown to alter metabolism in the orbitofrontal cortex in humans. There are documented instances of brain damage as well. Accutane is in the top 10 of all pharmaceutical drugs for association with suicide.
2. Gastrointestinal diseases: Many people have successfully sued Roche because internal studies have demonstrated that Accutane errodes the intestinal tract. These studies are not available to the public, but are widely cited as a reason why users are successful in suing Roche. (Court orders reveal what Roche may have a vested interest in stifling.) Some public studies have also established a correlation between Accutane and IBD.
3. Drug regulators working for Roche have testified that they recommend clearer labels for potential side effects decades ago, but were shot down by the marketing department. Basically, the bottom line is what is most important to Roche. (Surprise, surprise.)
4. 30% of Accutane metabolizes into a drug known as ATRA in the body. ATRA downregulates the telomerase enzyme in the body. Tolomerase protects telomeres; telomeres regulate how many times a cell can divide before it dies. So to sum it up VERY simplisticly: Less telomerase = shorter telomeres = increased cellular death. This is why Accutane was explored as a cancer drug. As we know, chemotherapy affects all different cells in the body. When we start dealing with telomeres, we're talking about several different organs in the body. This is why ex-Accutane users report long-term issues pertaining to everything from depression, joint pain, IBD, etc.
Dr. Bremner is a researcher who tried to establish a link between Accutane and suicide. Roche tried to stifle him at every step. They hit him with frivolous lawsuits that forced him to give up all of his data for a time.
(Read the book, "The Goose That Laid the Golden Egg.")
Obviously, this has deterred future researchers from trying to establish links between Accutane and other diseases. Nevertheless, we still have data. I will now provide links for everything I stated in my original comment.
2. "Roche first advised physicians about a possible association between Accutane and inflammatory bowel disease in 1984. In the ensuing years, the evidence accumulated by Roche and outside scientists demonstrated that, far from a coincidence, Accutane was in fact inducing inflammatory bowel disease in Accutane patients."
"The verdict capped a five-week trial in New Jersey State Superior Court and follows a series of recent plaintiffs' wins here and in other state courts against Nutley, NJ-based Roche over allegations that Accutane was a cause of severe bowel maladies, in some cases even after the plaintiffs discontinued use of the drug."
"The jury saw evidence of Roche studies, never published to the scientific and medical community, that Accutane's by-products damage the gastrointestinal tract and lead to degeneration and erosion of the intestinal lining -- a trigger for IBD.
Significantly, those studies, which were done in animal models specifically to test the gastrointestinal safety of the drug, used exposures of the drug that were lower than those given to humans.
Likewise, in the company's files but not shared with the medical community, were numerous patient reports from physicians where Accutane use triggered the symptoms of IBD, which subsided when Accutane use was terminated but then reoccurred following subsequent Accutane usage; those patients were ultimately diagnosed with IBD. Roche repeatedly determined internally that Accutane was the best or only explanation for the patient's condition. While Roche internally concluded that Accutane use was "causally associated" with the development of inflammatory bowel disease, in this trial as in others, Roche argued otherwise to the jury."
3. "The company’s own safety experts had recommended in 1997 changing the US label to reflect the evidence that Accutaine "probably caused" depression and other psychiatric illnesses in some patients." USA Today reported (December 7, 2004) that Hoffman’s head of regulatory affairs testified in court that the marketing division argued that such a warning would "impact on marketing strategy and product liability." The marketing division prevailed and no such warning was issued."
I've been dealing with chronic inflammation and some pretty serious health issues for quite a few years now. I'm turning 27 in July. I've had a lot of antibiotic damage throughout my teen years up to 20 yrs old including potent poisons like accutane, bactrim, minocycline, etc. My immune system and liver are shot because of this.
One thing I noticed on tests is an incredibly high lab result for hepatitis b surface antibody (not the antigen, that came back negative)
I am now at a reading of 475 since 2013, which seems like a nice marked improvement, but holy cow is it still high. My lymph and monocytes are low. My homocysteine is elevated as well. I have to imagine my liver is so toxic it can hardly do anything. I have tested positive for lyme, I have GI issues, allergies to all sorts of things, total body dryness, easily fatigued and general lack of energy, brain fog, depression, anxiety, nerve and joint pain, etc.
I know a lot of what's going on in my body but it's been hard to combat. Is a Liver Flush a really good step to seeing some positive results? I've held back for so long despite really wanting to give it a shot. Can anyone offer some valuable advice for someone in my situation and the effect a Liver Flush may have?
Thanks so much. Happy to share other info as I have done many labs and tests over the years.
A coroner is to ask for a review of guidance on possible side effects associated with a drug used to treat acne to be following the death of a man in Suffolk.
David Chow, an internationally acclaimed photographer, blamed the drug for years of ill health before he took his own life.
Yesterday, an inquest at Bury St Edmunds heard how after suffering depression and anxiety after treatment failed to improve a condition which made it painful to eat or talk, Mr Chow had killed himself.
Mr Chow, 38, of Cottenham, had in 1994 been prescribed the drug Roaccutane, also known as isotretinoin for mild acne after being impressed with the results it had for a friend, the inquest heard.
Suffolk Coroner Dr Peter Dean said that within days of starting the treatment Mr Chow had began suffering from dry lips and minor nose bleeds but was told they were possible side effects and would clear.
However, the condition progressed to swollen lips and infections which, at times, left Mr Chow unable to speak for long and made eating difficult.
Consultations with a number of specialists failed to resolve the situation and Mr Chow was diagnosed as suffering from exfoliative cheilitis which led to severe crusting of his lips and in time began to cause “agonising pain” in his jaw because he was not able to move in a normal way.
Two operations and more treatment did not solve the issue, said Dr Dean, and for four years Mr Chow chaired the UK branch of an action group set up by people who believed they had been adversely affected by the acne drug.
In a statement, Mr Chow’s parents Dr Arthur and Mrs Joy Chow, said their son had become anxious and depressed but was able to complete courses leading to business studies and accountancy qualifications at university.
Mr Chow’s most recent training had been in photography and he had worked successfully, despite being socially affected by his condition, specialising in restoring historic glass negatives and producing prints for organisations including the National Portrait Gallery, gaining international acclaim for his work.
Last year, Mr Chow had been staying with his parents at their home in Bury St Edmunds when on December 30, after complaining of agonising neck and face pain, he locked himself in the bathroom.
His father broke open the door using a hammer and found his son on the floor after trying to kill himself. Attempts to revive him were unsuccessful and he was declared dead at the scene.
A post mortem examination conducted by consultant pathologist Dr Carl Love confirmed that death had been due to wounds with contributory factors of anxiety and depression.
In a statement, consultant Professor Steven Challacombe who had seen Mr Chow at Guy’s Hospital, London said he had no doubt that the acne treatment had been the major cause of the exfoliative cheilitis.
Professor Challabombe said he believed that the medication had also increased Mr Chow’s depression, despite it having been used by Mr Chow 21 years earlier.
Recording a conclusion that Mr Chow’s death had been suicide, Dr Dean said: “He was someone who was clearly a highly gifted and highly talented young man who despite his difficulties achieved a great deal both academically and artistically in his life.
“It is also clear that he had a variety of difficult medical issues and concerns about the effects of medication that had been prescribed for him.”
Dr Dean added: “In view of concerns about the possible side effects of this medication I will write to the Chief Medical Officer and the Medicines and Healthcare Products Regulatory Agency to ask them to look at possible problems with the drug and possible further complications.”
The Coroner said that throughout his problems, Mr Chow had been greatly supported by his family and he valued them greatly.
This is so sad! did this guy post on the forum? this condition is very difficult to live with and i feel so sad that he has had to deal with it since 1994. He battled the condition for so long i hope he is in a better place.
There are lots of people who got ec from taking accutane which is well known to cause eczema as a side effect. As it dries out the skin so much. Its strange because a lot of people got it from taking accutane but also theres a lot of people who have ec who didn't take the drug so its very confusing.
I hope everyone is doing ok! Please stay strong guys!
This is very sad - people don't understand how much this affects people. I would have thought my son was overreacting if I didnt come to this site and hear about what other people are going through.
Interestingly enough, I think my son got this from Minocycline - he is not convinced. He recently went to another derm who recommended Minoocycline!
For inflammation - Minocycline is actually an antibiotic! I was really concerned - Minocycline also has been known to cause lupus, blindness, etc. I didnt want him to take it, but he is going to because he said if his lips get worse at least he knows what causes it - and then maybe can figure out how to cure it.
I am very concerned but he is 21 and and has had this for 5 years - at this point he doesnt know if he can continue with his Engineering program because he has to take classes together. As worried as I am, maybe it will help him figure out the cause.
I know that this condition can be very tough but your life is worth more than this. We think that we are the only one with problems but everyone has their own problems . I am not saying that EC is a small thing . I have been suffering from the past 2 and a half years and it didn't bother me much when I was just managing it . Only when I started looking for cure is when I became depressed since i have been leaving it alone .
Problem with ec is that no one can empathise with us as it is a very rare condition.
Try to find something that can help in making your lips look normal if not perfect until we have the answers. I am now regretting taking accutane but I am still hopeful that one day ec will just be a bad memory from the past .
"This too shall pass"
What a read. I remember reading previous suicide posts here and others would ridicule them just because of something like this. I'm all for a strong heart and mind but come on guys, a lot of us here including myself were living a normal life prior to this and as hypocritical as I can get, there really is no use crying over spilled milk but I at least want some answers as to what spilled the milk. I know there are a bunch of other problems that other people have but that's not to say our problem itself is invalid.
This may sound cheesy coming from some teenage stranger on the internet because for better or for worse, but I'm thankful for this forum itself and for you guys no matter how depressing it can seem sometimes.
That's really sad to read as I can totally relate. In these past 5 years of ec I've experienced major depression & had many times thought about committing suicide because it seemed like "the only way out" of this horrible nightmare. There were nights I've literally cried myself to sleep because of depression wishing I'd never wake up again and as a man in my 20's I'm not ashamed to admit it. Not only does this affect you physically but mentally too in every way that you neglect everything else in your life like you just don't care about anything anymore. "What's the point of being alive?" I ask myself constantly.
I'm sorry for this guys but after reading that post, I felt like I needed to get that off my chest.
I feel the same way Cotton, and I turned 30 this year. My achievements in life are those I feel I've managed to string together whilst spending most of my time restricted in body and mind.. as though I am living in an open prison.
This is exactly what it feels like, a prison. There's so many things I wanna do in life (travel the world, live in a different city, have a beautiful girlfriend, just to name a few) but I feel like I can't reach my full potential when my lips aren't 100%. I'm gonna use those goals as motivation to get better and I think everyone here should have some goals or dreams they wanna achieve just to give them that extra motivation needed to try & cure this condition.
It would be helpful if you also had a test for IgM, which shows if the infection is current.
IgG shows a past infection. If IgG is high with IgM, it means you had a past infection and still have an infection. If IgG is high without a high IgM, it means you had a past infection, but you do not have a current infection. High IgA may reflect a more superficial Candida infection on the mucosal surface, such as the lips.
Have you had the blood test for the Candida antigen? If high, it indicates the mucosal and immunological barriers have been overwhelmed with candida. My past blood tests for this have always been very high, but conventional doctors ignored it likely because they weren't taught about it in school.
IgE and IgG are typically elevated during allergies or chronic infections(IgG)..
IgA is the main gut antibody. Basically if your IgA is elevated that means theres some kind of infection in gut. In my opinion the best test you can buy is a hair test because it tells you WHY you have candida or any disease for that matter.
I had a hair test before. It showed which vitamins/minerals I was deficient in. Is that what you mean by it tells you why you have candida? Or is there a more specific hair test which gives more information?
I saw what seemed a really good test online where you wake up in the am with a clear glass of water sitting over night and rinse and then spit into the glass. if you see speckles floating in or on the bottom or strands under floatsom on top you have it. Sure you can find it if search. Are you in pain or having symptoms? Why the concern over something everyone has to some degree? i have my own story. Tks.
I've been dealing with Blepharitis for quite a few years now (read: feels like forever... ) and I haven't been able to find anything that really helps. For those of you not familiar with Blepharitis it's an eye disease that a lot of people suffer from but are unaware as it's often mistaken as allergies and the likes (think red eyes, irritated eyes, etc.). It's often associated dandruff in your eyelids which leads red, irritated and sore eyes and can also dry your eyes out. I've tried a lot of things to get rid of it as there are no cures. I've tried baby shampoo, prescription shampoo, wet ones, special eye treatments etc. and none of those have worked for longer periods. Recently though I was told about a new product by my sister. So last week I bought a Style'n'Clean pen. It's basically an electric eyelash curler but the difference is that it comes with small sponges you can attach to the the pen and you can then use it to clean your eyes. The pen can rotate and heat up so you can clean your eyes way more effectively than anything I've ever tried. I bought it on sale where it comes with a cleansing gel that is so good for my eyes. I use it every morning and it has really been a life saver. Hope that this can help some of you.
I'm curious how many if any MRSA carriers received IV antibiotics, and the outcome.
Tim Ferriss reported a severe MRSA which was cured with IV antibiotics, he looks very healthy. I think Vancomycin is the drug of choice but getting it prescribed from a doctor is like parting the red sea.
A protocol I used for MRSA for my patients was black seed oil, luffe, olive leaf mixed with many leaves such as pomegranate, oregano, fennel and more. My patient reported she felt better than she had in 5 yeas.
I've been struggling with my skin ever since I can remember. Probably since I was 12 or so. At first it was just plain acne, which I tolerated until I was about 17 and then after my first EVER visit to a dermatologist - I instantly got prescribed accutane. Looking back on it I think I was way too hasty to accept the treatment. But the doctor promised great results and I was really desperate to find relief. Everything went as the doctor promised. About 2-3 weeks into the treatment I was free of acne. My self-esteem skyrocketed, I became way more social and life seemed much more fun. But my good times were short lived, because a little less than 1 year after the treatment, I started getting this weird red flushing of my skin. Almost like I was blushing, but with a hot burning sensation. Like my face was on fire. Fast forward a couple months and a small hint of redness became permanent and it only got worse from there. The redness increasingly spread and became more visible. It's been about 3 years since my first flushes and now it seems to be a combination of Rosacea and perhaps dermatitis. I wasn't even sure which section to post in. I wonder if this condition could be somehow related to accutane or whether it was just a coincidence?
So what have I tried? I've tried water fasting for up to 7 days, I've tried taking probiotics, using tea tree oil, soaking my face in a high concentration diluted Sea Salt all kinds of over the counter creams, moisturizers, shampoos etc. But I still haven't found anything. However I did notice times when my skin is much better and also times when it's much worse. In fact this very picture that I'm gonna show you of myself, was taken about 4 months ago and as you can see my forehead is completely clear in it. But right now(4 months later) the middle of my forehead is full of bumps and is inflamed. My forehead has gone back and forth about 2 times already. But I still haven't been able to identify why that is exactly. Anyone has any clue? Was I on to something or was it just random?
I'm kinda lost right now and I'm not even sure of what my condition really is. The dermatologist I went to diagnosed me only with seb. dermatitis. It's only after doing research that I identified myself with having rosacea as well. If anyone can offer me any advice or even just a second opinion on my condition would help greatly. I was thinking of going to a dermatologist again, but I don't really trust them. I'd rather first try whatever I can try on my own.
You have a very common problem. Millions are suffering from skin problems. Our skin is the largest organ of the body and it suffers from many toxins in our food, water & environment.
Try to eliminate the most important cause of toxins first. Eliminate the Chlorine, fluoride or other chemical added to city water by drinking ONLY distilled or mineral water. No soda pop, diet or otherwise as it contains artificial sweeteners that are toxic. No fruit juices.Eat the fruit instead. In a word: Stop poisoning yourself. Stop eating bread that contains bromide. Eat only bromide free non Genetically-Modified-Organisms bread. I suggest going on a strict Paleo Diet to eliminate ALL packaged foods. https://sites.google.com/site/iodinereferenes/optimal-health
Wheat is a major cause of skin problems:
Acne is among the commonest expressions of the health disruption of wheat expressed on the skin, something experienced by 90% of adolescents, with continuing struggles for many adults. Here is Kelly’s story of finally being freed from the constant annoyance of acne with her wheat-free experience: http://www.wheatbellyblog.com/2012/12/the-acne-miracle/
Thank you so much for your reply, Grizz. I've been reading up on all of those things yesterday, but didn't reply. So thought I'd let you know. Even if I wanted to try iodine, I have no idea where to get it though. Are the Iodine solutions sold in pharmacies the way to go?
I order all of my supplies from Amazon.Com. Free shipping on orders > $30. There are many other suppliers for iodine. Do a google search for Iodoral capsules or for Lugols liquid iodine. I prefer the Iodoral capsules.
Every cell in our body includes an iodine receptor, which is required by our immune system to kill fungus, disease & cancers. We get sickly because the toxins of fluoride, bromide & chlorine take over these receptors. The results are devastating to our health, as you can easily see in our testimonials. Optimal Health requires iodine supplements, and Dr. Brownstein recommends 50mg daily.
Our neighbor was sent to home hospice to die from her Uterus Cancer. We gave her Lynne Farrow's book (The Iodine Crises) and she started on iodine. 9 months later, all traces of her cancer were gone. She is still doing well today.
More on iodine & cancer:
I tried the earlier mentioned water fast about a year ago. But I was pretty stupid and didn't take any pictures. I recorded a video each day on my webcam, but they all ended up blurry and the lighting is really poor... Can't see how the skin was looking at all. I'm almost certain that the skin looked better after that week. At the very least the bumps seemed to clear up and no new ones were appearing, but not sure about the redness. However the water fast presented me with some symptoms that were really hard to bear. I would get dizzy at least a couple times a day, where I would even need to lean against some object to keep my balance. Another and the most annoying thing for me was heart palpitations. MY HEART WAS GOING CRAZY. I was barely getting any sleep cause of this. I'm talking about heart palpitations here. I assume that's just perhaps a symptom of something else wrong with me and not part of the average water fasting experience. But anyway, I didn't try it again and I probably won't. I'd rather address this in terms of diet. But I do still have this curiosity in me, what if I had gone up to 3 or 4 weeks with the water fast... Who knows.
I asked about your fasting experience, cause if your face symptoms improved during the water fast, that could be an indication that you are eating some foods that do not agree with you, foods you have problem tolerating.
One way to find out what foods you can tolerate, is to go on juice fast or water fast or any other restricted diet, and if the condition improves, you use it a starting point to find out what foods you react to.
After a several days juice fasting, you include one food item in your diet per day.
Whatever food item causes increase in symptoms, worsening symptoms, you eliminate it from your diet for several weeks or months, and you re-test it again later.
Whatever food item gives no symptoms, you place it on your white list.
Some foods like sugar, food preservatives , margarine, processed foods, MSG, etc should be placed on the "black" list immediately.
So, after several weeks or months of testing, you will have 3 lists:
White list: good foods, beneficial foods
Grey list: foods you can tolerate in small amounts or very occasionally
Black list: foods you should avoid
If an of the natural foods ends up on our black list, you should re-test it every 3 to 6 months.
In-between your food testing, you should do a series of Liver Flushes and you should learn about FMT , home made yogurt, paleo diet, low FODMAPS diet, GAPS diet etc.
Rosacea and seborrheic dermatitis are commonly associated with each other. Both conditions can look similar. I find with seborrheic dermatitis you'll often find your skin to be oily with flaking around your nose or anywhere where oil builds up. Typically the T zone and also on your chin. Have you tried applying apple cider vinegar? I think it will help fade your redness and if you do have seborrheic dermatitis you should start seeing less flaking.
Hi I think I have candida because I have some symptoms like eye floaters, tinnitus, zero libido, some erectyle problems, urination problems like it takes some seconds before the urine starts. Plus I'm young just 20 years old. I don't have Amalgam silver. I came to the conclusion I may have candida because I saw one guy on propeciahelp forum that cured all his symptoms specially the sexual ones by eating a strict diet with no Sugar and no carbohidrates. Also he took some medicines and chinese herbs that made him poo 5 times per. day and even some day he said that he did it 12 times.
He said that now he lives a normal life eating everything and no need to supps or meds.
I'd like to know some things. Is possible to cure floaters and tinnitus by treating candida?
What can I eat? I saw that lemon helps, can I eat orange too or it has too much sugar?
Reading his recovery topic gave me so much hope. I'm applying progesterone cream 5mg and thinking about to supplement maca too. It helped me with energy, brain fog and noturnal erections.
By floaters do you mean eye floaters? I recently started getting those and tinnitus, and I had my wisdom teeth removed about 6 months ago. During the healing process I noticed a hard lump in my gums that wasn't there before and I suspected infection. It never entirely went away. Could this be the cause of my issues? How do I go about looking into it?
Hey there, I have no way of knowing if you have an overgrowth of candida or not. It does often go along with some of the symptoms that you are listing but is not the cause of these problems. The cause of candida and other symptoms is an underlying imbalance in your body (endocrine system, immune system, nervous system), to get your body back into balance, go so an ayurvedic practitioner or a traditional Chinese medicine practitioner. Best to get a referral, if your friend knows a good one go with them.
Maca may be helpful, but ashwagandha has some of the same properties and is way more effective. I am not a fan of low-carb diets, they seem to make things worse for most people. Candida is fed by sugars and carbohydrates but can only grow out of control when the immune system is impaired. Better to make smart choices, eat carbs that have a low glycemic index that don't feed the candid to quickly, avoid sugars and processed starches.
Saywhatagain is exactly correct, "Candida is fed by sugars and carbohydrates but can only grow out of control when the immune system is impaired."
Truer words were never spoken. Thank you so much for speaking up! I was starting to feel like I was talking to a brick wall about the vital need to boost our immune system. What are your best tips to boost the immune system?
It's very hard for me to give tips on boosting immunity because it depends what you want to do to the immune system, do you want to inhibit an over-active inflammatory response, increase T1 immune response, increase T2 response? It depends on the person and what is going on with them.
Grizz I read that you and Dvjorge was debating about Iodine I guess and he said that it is not necessary I really don't remember which topic you guys were debating. But I'm only affraid to try Iodine because I read somewhere that it can cause thyroid dysfunction.
He basically started with diet than nystatin, silver colloidal, chinese herbs and got cured and now can eat anything again.
The things that I want to improve more than anything: Libido, Erectyle Function, my tinnitus improved but I still have it, eye floaters is the same thing. Pocketlady did you cure your tinnitus and eye floaters?
I'm so happy to read a testimonial of a person who got back to normal he tried hormones and it didn't resolve his problem then he started to treat candida and got better, better, better, cured.
I don't have a problem with Dvjorge. He is focusing on the treatmant of Candida and I am focusing on the cause - the immune system. He is at one end of the problem and I am at the other end of the problem. His knowledge of Candida is excellent.
"I read somewhere that it can cause thyroid dysfunction."
You read correctly. Iodine by itself WILL cause thyroid problems. The reason is that Iodine must ALWAYS be taken with selenium. The thyroid needs both. One without the other is a problem: http://www.greenwillowtree.com/Page.bok?file=selenium.iodine.html
The Doctor Brownstein Iodine Protocol is time tested & proven with thousands of cases over the years.
Could you contact me by e-mail? I read something about baking soda that helps. Other thing I'm really in doubt what is enemas? Dvjorge said it. is not expensive to fix candida. He took sodium bicarbonet enemas. I have sodium bicarbonate or baking soda I don't know if its the same thing.
I prefer public messages for the benefit of all. People around the world learn from our messages.
Dvjorge is doing a brilliant job helping others, so I cannot fault anything he says or does. He is working on the symptoms of Candida, and is having some success. God Bless him.
I am at the opposite end of this horrible disease. I am focusing on the source of the problem - the Immune System.
Until you guys focus on the immune system, there will be no cures. Candida is such a terrible affliction that it actually destroys our entire immune system, resulting in auto-immune disease & death. IMO, the sooner we start beefing up the immune system, the sooner we get cured. It is our immune system that is supposed to kill off fungus, not the fungus killing our immune system.
I am in the fact gathering stage in my Candida Research. All of my discoveries are logged in here: http://tinyurl.com/Iodine-Candida
I always create a file with my research so the valuable information does not get lost in years of message threads.
You will find this message logged in from a woman who cured her own candida:
This is a list of what I've taken internally for candida issues:
*Oregano Oil capsules- Awesome stuff!
*Coconut Oil- also wonderful for leaky gut
*Turmeric- also great for intestinal issues (leaky gut, IBS, crohn's)
* Colloidal Silver
*ACV w/baking soda
*Food grade H202- haven't used in years b/c I had a bad reaction. I hear it works wonders though.
*Borax (NOT Boric Acid), boron would be a good alternative. Use sparingly.
*High potency probiotics
The important thing is to rotate anti-fungals every few weeks so the candida doesn't get resistant - needtobreath - http://curezone.com/forums/fm.asp?i=2181321#i
Grizz thank you so much. Can you give me some information I have so much doubt. Did you have candida? Did you cure it? Now can you eat everything again like breads, pasta, Sugar drimks.
One thing is not clear do I need to make my body poo more?
What do you think about enemas? I'm really affraid to try but some people say that it helps a lot.
I'm using natural progesterone cream and in the first week I got much better but lost all the benefits, everybody say the healing comes in waves of ups and downs until we get cured.
What can I do first? I bought liquid nystatin because I'm trying to follow the guy who took propecia. I don't believe it can cause permanet side effects and also I saw many people curing it. I have never taken it.
I've been reading the Iodine therapies in your web site. But I have some questions. If I take such a high dosage like 50mg, 100mg will I become dependent? Will I need it for my thyroid always?
The guy that I sent the link eats everything now. So maybe there is something missing with your protocol.
Could you tell me all the symptoms you had? Did you read his protocol? I want to cure my sexual sides, tinnitus, eye floaters and some guys did it. and also now they have a normal life with sugar, carbs, alcohol.
I don't want to live in a cage with supplements, iodine, etc. In my opinion when I say cure I mean completely free of everything.
What do you think about nystatin liquid and tabs? And the chinese herbs that he took.
You must understand that Iodine is a daily requirement for our health, in the same category as required vitamins, minerals & food. So, yes you will want to take vitamins, minerals & Iodine daily for optimal health. You will not become dependent on iodine.
The reason for taking high dosages of iodine is to detox the cells of our body. Every cell in our body has an iodine receptor that has been taken over by the toxins of bromide, fluoride & chlorine. It takes most folks a year to detox the trillions of cells in our body: http://tinyurl.com/iodine-and-halogen-robbers
After you have detoxed and become iodine sufficient (90% of the cells in your body have their fill of iodine) then you can reduce iodine supplements to a maintenance level of 12 mg daily.( or else eat a LOT of seafood & seaweed ) Seafoods are not recommended because of contamination.
Sorry but you cannot "Eat & drink Everything" if you want optimal health. That doesn't even make sense.
I can't make any promises that all of your symptoms will magically disappear. I can say that iodine will help boost your health and detox your body. Optimal health is not cheap nor is it easy. We have to work at it.
My worst Candida Symptoms were severe constipation, prostitis, and Asthma. All are now cured, with many thanks to iodine.
Iodine is not a cure-all. It is simply a required mineral for our immune system & optimal health to prevent the listed iodine deficiency diseases.
I disagree with many things here but don't have a cow because I take Iodine as well...
If you cannot eat bread or Sugar from time to time then you are not cured of whatever the problem was, if it was candida or something else causing candida. Healthy people can live on road food for a while within limits and then of course everyone needs home cooked food too. But young college kids and healthy adults absolutely can eat some junk food, and that is the proof that they are in fact healthy.
Actually that's how you know you're cured, because you can eat some junk food and your body has the resilience to withstand it. An old time healed schooled me on the truth of that and he was totally correct.
I still have candida but I can eat bread and some Sugar sometimes so I know that I was really healing deep down through what I did to cleanse the gut. Still got a ways to go though. Maybe coffee enemas
One bowel movement per day is not healthy man!!! How can you say this? Yeah sure compared to people who cannot go every day it's miles and miles better but one per day is not healthy. Three per day is healthy, period. One for every meal.
Anyways I agree with you about treating the cause so you're on the right track but I'm not sure where you got some of you infos.
I think I also disagree with 'boosting'. Yeah when you're sick you want to do whatever you can to get well, but ever hear of the old saying 'what goes up must come down?' I tried allot of boosting herbs and things and really they just made me worse and I'm not talking about Iodine which is a nutrient, but stuff like echinacea or eating like 5 steaks a day because it's high in vit. b, etc, you get the drift. Just my 2 cents take it or leave it.
And yea brazilguy I agree with you sort of, you should look for a cure not go half ass. I think if we seek a full cure it is a way to honor ourselves and not settle for second best, just my opinion.
It is not mine. Is one guy that cured him better than you cured yourself because now he can eat anything and you don’t. Now he is living a normal life. TEll me what you think of his protocol. ... ... ”Hello all, I hope everyone is doing well, at least as well as they can with this god awful disease. ... ... I just want to report that I have made full sexual recovery. All that is remaining is residual brain fog, which is improving monthly. If all continues at this rate, I should be mentally recovered by June/July. Also, I have been fully sexually recovered since October give or take, and I have been ... [This message is long. Retrieve the whole message]
DvJorge is better qualified to comment on this testimonial. Are you there Jorge?
It is my job to document the best cures I find so they don't get lost in the clutter of 11 years of message threads. The only way to stop this endless drifting in circles is to have a common reference guide that everyone can work from. Our readers digest of Candida Cures is taking shape every day of the week.
I hope you can get cured too with his protocol. Could you do a research about these Chinese herbs? I'm in doubt with a thing he started to go to the bathroom a lot and he said he got very well after this. So I'm thinking the nystatin, diflucan and others stopped candida from growing and the chinese herbs I think made all of it going down as poo. What do you think? What if we start to use laxant to poo?
You have good questions, and I don't have answers yet. I'm trying to get something from dvjorge
I Have re-organized our Candida References so it makes better sense. Everything is now far easier to find with a table of contents.
I don't have much left to cure. My only remaining symptom is a bulging belly, and that has been lingering for decades. That belly fat has surely turned into bacon by now. I'm starting this attack with with coconut oil. I'm sure the belly is bulging because of Candida. What do you think?
I got E.C after taking accutane nearly 10 years ago. While I was on the drug my lips were terribly chapped, always bleeding, and crusting regularly. It got to the point where my lips became far more stressful than my acne and I wondered why I ever took the drug in the first place.
Fast forward a few months to when I finished my accutane course. I took my last pill excitedly knowing that in a few weeks my lips would be back to normal, or so my doctor had told me. The only thing was that my lips never returned to their prior healthy state. That is, never until now. I should say too that during the course of my accutane regimen I became quasi-obsessed about keeping some sort of chapstick or ointment on my lips. After all, my derm told me that this was my only option for relief.
So now it's nearly a decade later and I've finally started to think that I am cured of EC. More than that, I am beginning to doubt whether E.C is really a disease at all.
I don't expect this to win me many friends here, but frankly I don't really care. This is more therapeutic for me than anything else. If it helps anyone, great. If not, well, that's fine too.
This is what I believe and why I believe it:
What we call E.C is a predominantly self-inflicted disorder, the product of a subconscious and compulsive mania similar to the classical display of OCD symptoms. I've been reading this forum for a long time - many years actually. As I see it, the common thread linking all the e.c patients on this site is that they are all somewhat (or more often very much) obsessed about their lips. Now granted, they are obsessive because they are stressed out about how bad their lips look, but my theory is that the obsession itself is what fuels the vicious cycle that is E.C. It's what turns chapped lips into something else.
Like me, for instance. My problem began as a consequence of my taking accutane. At the time my lips were objectively hideous. But when I stopped accutane my lips never returned to their normal healthy state because I was too entrenched in my obsessive habits. I was constantly smothering aquaphor on lips or subconsciously touching or licking them - peeling them. I had forgotten how to relax my mouth. Forgotten how to chill out. I started reading this site all the time and trying different things. I still read this site now even though I would never even consider trying a new treatment.
In the last 6 months I have seen a total turn around in my lips. Granted, a lot has changed for me. I moved to South America, I changed my diet, and I've been all around healthier. Still, I believe the real catalyst for my healing lips has been 1) I stopped putting stuff on my lips and 2) I stopped caring about them.
Like magic, they just started to heal. Now, as many others have reported, it's a slow process. Often it feels like it's 2 steps forward 1 step back. Still though, for the first time in many years my lips look like what anyone would consider "normal lips". This, and I am no longer plagued by the constant need to carry a little tube of chapstick or ointment in my pocket. I can't tell you how liberating it has been to break my dependency on these products and discover that I'm actually better off without them. I guess actualy whoever is reading this would understand best. I don't think I'm exaggerating when I say that at first, it was better than sex.
In the end, my experience with E.C was pretty horrible. It was an incredible burden that hampered my quality of life for nearly a decade. Obviously if given the choice, I would never do it again, but now that I am at a point where I consider myself "cured", I have to admit that I feel stronger (or at least smarter) for it. I've learned a lot about the ego and the manias that can develop as a consequence of the influence it exerts. I've learned a lot about myself, both how weak I can be and how strong I can be.
I don't know if I'll ever check this again but if I do I'll try to answer any questions you may have. I won't however, put up with any of the ridiculous and juvenile temper tantrums that I see on this site all time. If you don't like what I've written here, (and I imagine many people won't, considering the implications of what I'm suggesting) that's great, but don't expect me to have a conversation with you about it. I don't care anymore and frankly, it's against my treatment plan. That my cure after all - to chill the **** out.
Thanks for the inspiring words. I have also been a fellow sufferer and had this condition for almost 10 years. My problem is trauma related, and started when I took a swig of water before the cinemas and went to the bathroom. When I looked in the mirror I noticed my lips had turned white, so I wiped them with my sleeve and that was that. What I did not know was that it would start a vicious cycle, which if I knew back then that it would plague me, I would have left them alone to heal.
I also became completely obsessed. I was at school at the time, so I didn't want a white line constantly on my lips. I picked them until they looked normal. Now I am suffering the results.
I never tried to heal my lips up until a year ago when I saw Daniel Millers blog. I thought all this time that it would just go away. I am on the constant moisture method. Parts of my lips fall off because they are always moist and weak, but its better than having painful lips.
This leads me to my agreement with you. I am obsessed with my lips, I have OCD about them, and I honestly believe this is one of the contributing factors to their state. I believe if I completely leave them alone and stop picking and trying to care for them, than it will go away.
Thank you for making this post, it inspired me to make an account and share my story.
I am so happy to hear your story. It sounds like your head is definitely in the right place. A word of caution though, I didn't start seeing real progress with my lips until I completely stopped putting stuff on them. In fact, the constant moisture method was pretty much what I was doing all those years I dealt with this condition. I've probably spent a small fortune on aquaphor over the last 6-10 years and I honestly used to swear by the stuff. Still though, looking back I think that in applying it I was peeling my lips in the process. Short term it made my lips look better but long term it had the same effect as wiping my lips with my sleeve.
I'm hesitant to call what I'm doing now the "leave it alone method" because since I believe that this is a self-induced compulsion, leaving them alone doesn't really do the task justice. You can't just leave an OCD tick alone and hope it goes away. It takes hard work, a disciplined and methodical reprogramming of one's subconscious habits. In fact, it's almost the opposite of "leaving it alone". Each day I concentrate on not licking my lips, on not messing with them, or leaving water on them to soothe them. It was hard work at first but once I chilled out about my lips it got infinitely easier. Now that I don't have to carry around aquaphor anymore I feel physically lighter, like the weird feeling you get sometimes when you're so accustomed to having your phone in your pocket and then decide to leave home without it. It's great.
So based on my results, I would recommend trying to see if you can get by with nothing on your lips. I don't what to tell you what to do, and if constant moisture is working for you then by all means keep at it, but it does feel awesome not be a slave to those products anymore. I'd say I probably saw improvement within the first week or two.
Another thing that I should mention is that my father is a psychiatrist. I've come to my conclusions about this condition after consulting with him extensively. For lack of a better word, this "disease" is a real mind****. Having a trained medical professional to talk to about this has been incredibly beneficial for me and if it's an option for you I think you should consider it. In fact, when I finally consulted him about it my dad said he's seen (and treated) similar stuff in the past. I don't know why this hasn't been suggested to people before, but if E.C is affecting your quality of life as strongly as the consensus of the posts makes it seem, then I highly recommend people start seeing psychologists (As my dad would be the first to admit, psychiatrists might be a little quick to write RXs. Psychologists can't prescribe, only refer).
I've also gotten more into transcendental and mindfulness meditation, at my dads recommendation. A common misconception is that it takes hard work to see results from stuff like this, but modern research suggests otherwise. I try to practice 5 minutes in the morning when I wake up and 5 minutes at night. Hate to throw a wikipedia article out there but this is a great one for whoever is interested.
any "normal" person that will have/get ec now or in the future will all go through the same process as with all chronic skin conditions i can't understand why people like yourself think ec is any different. self conscious, depression, anxiety, disappointment and altered life comes with lots of chronic diseases especially skin condition in young teenagers and adults as i can assure you is a common thing its a secondary issue to the disease its self. i myself would find it strange if a "normal" person as you state got a disease such as ec, eczema or psoriasis and didn't become a bit self conscious or have some alignment of deppresion. Its completely normal and most good dermatologist and doctors now know this. Im sure before you got ec and started taking accutane and your lips started to get really chapped did you ever have OCD over you lips before?
My ec came out of no where i never even thought of my lips let alone touch lip balms or pick or even look at my lips before ec came into my life. i was 100% normal and then over night i had ec.
i think ec is a very mis understood disease and since there is no answer everybody has there opinions and thoughts. and thats great everybody has an opinion and every bodies should be respected.
have you ever considered maybe your ec has gone into remission like many people with skin conditions were it just comes and goes out of the blue and also have you considered maybe your new healthy stance on diet and lifestyle could of contributed to your healing.
i agree chilling out and relaxing everyone must try and do.
My partner as with lots of girls obsess over having beautiful thick moisturised plump lips she is constantly applying lip balms lip gloss lip sticks and Guess what she doesn't have ec!!! In fact the cosmetics lip balm industry is probably a multibillion dollar industry so I'm sure theres plenty of customers who enjoy keeping there lips constantly moisturised and I'm sure they don't have/get ec.
anyways congrats on your healing. also your post was a bit confusing are you 100% cured of ec or has your lips just hugely improved to the state they don't bother you anymore? anyways well done and i hope you are enjoying life! always good to hear a positive result.
I practice yoga and meditation everyday, it is one of the only things keeping me sane whilst I have this obsession. The funny thing is, my lips got worse when I tried to start healing them. All the creams that dermatologist gave me gave my lips flexibility yet always ended with them peeling. I will say though, if I didn't eat, talk, or move my mouth whatsoever, I believe they would heal in no time.
I agree and think if you have tried everything in terms of elimination diets and healthy living and still have EC, than it has to be trauma related, hence why it is a disease of the mind and hence why people have been cured when they have changed lifestyle and not had the time to focus on this disease.
I have traveled to places all over the world, yet I still always obsessed with my lips.
I am going to try the no moisture method again, perhaps only using oils when they hurt.
In my case, celiac disease has been known to cause peeling or fissured lips. I also have a DNA abnormality that can be activated by stress and food sensitivities (which could be the gluten sensitivity). If others have this DNA abnormality, then stress can activate it. I also know that the drug Accutane causes this DNA abnormality. Not saying this is the cause, but stress can activate many conditions. So, it may be more stress related. And I can see how meditation helps with stress.
i am living proof! i have many scars all over at varying depths and they are ALL healing just from doing cleansing and flushing. in fact they are healing before my eyes!
i have some raised keloid scars that are shrinking day by day and just a few days ago, one has started to smooth down to the level of my normal skin. i just looked at it the other day and noticed a section in the middle that was TOTALLY FLAT - and now the rest is following! i was under the impression that keloid scars never heal - this is not true!!!
on top of this, my deep scars are becoming filled. one scar that i was sure would never heal as well as the others is now healing the fastest! previously it was deep and never filled properly, lots of holes and 'texture' in the healing but now it is filling up with brand new tissue!
other scars that were previously filled quite well are changing colour from white to skin colour to match my skin! and those that were already skin colour, the very superficial ones, are blending out of site.
looking at my scars makes me understand what my body was doing when it created them - it was healing as best it could with the resources and energy it had at the time. cleansing and flushing has given my body the time, resources and energy to finish the job properly. trust me - your body never leaves a task half finished if you just give it the chance to do what it needs to do! this is all you need to do, and your skin will finish healing. i thought my scars were permanent - i never realised they were WORKS IN PROGRESS!
even more amazing to me is that i do not put a single thing on my skin except for 100% natural soap and sometimes olive oil. not even moisturiser and definitely no scar treatments! in fact the healing i am witnessing is working at least 10 times as fast as the most successful scar treatment i have used in the past. that is no exageration!
so keep cleansing, keep flushing, be patient and you will see your body's own amazing capacity to heal right in front of your eyes! you dont need to spend your money on expensive treatments - if your body is not ready to heal it will be hard for these treatments to work!
AND what is better than seeing your skin come alive and beautiful again is the feeling you get that maybe we are actually really lucky to be able to witness such a striking visual demonstration of active healing. for those who believe, it really is a sign from God!
i started cleansing about 2 months ago. it will be a lifelong project! i am that inspired by my results so far.
my cleanse plan originated from two needs:
1. to detox, cleanse and flush my whole body - to go towards the perfection of 'natural health' (and natural beauty!!)
2. to complete my plan with all natural (and therefore CHEAP) ingredients, with a minimum of commercial supplements.
these are the principles i followed, from reading and experience (copied from another of my posts in Bowel Cleanse Forum ):
1. supporting and improving the elimination routes (kidney, bowel, liver in that order and skin, lymph, lungs throughout)
2. acid/alkaline balance or alkalisation
4. diet (raw foods, food combining etc)
5. removing environmental sources of toxicity
6. assisting the body in removal of toxins (water soluble, fat soluble)
8. listen to the body (no matter what!!!)
these are the cleanses i did:
2 oz lemon juice, 2 oz OO, drink on empty stomach. fast as body dictates, resume normal eating when appetite comes back.
i combined this with oil pulling and partial fasting for about three weeks or so.
300-400ml kefir on waking (empty stomach) with 2 tbsp ground flax seeds mixed in. some days i added 100-150ml in evening on empty stomach before evening meal. this repopulated my bowel flora and got my BMs to 2/3 (and 4/5/6 lol!!!) a day. this i did for about a month and continue to drink kefir in the mornings after a short break.
enema a few times a week (3-4 while juice fasting, 1-2 otherwise). i did this for a week before and a week after juice fasting. my juice fast was only 3 days (lost too much weight!). enema solution was: saline (poor results), salt + soda (medium results), mae west coffee (good results), regular coffee (excellent results). i have switched over to only doing coffee now, 1-2 times a week.
egg/lime/oil with swf a few days in a row, then break 1 day, then another few days. i dont really remember how often, when i did these but i had great results (it was about a month or more ago i guess). i combined it with fasting.
i am working up to a HC flush in 2-4 weeks depending on what my body wants!
lymph, lungs + skin:
skin brushing, variety of detox baths (every day mostly!) successful combos = ginger, cayenne cinnamon + Epsom Salt no oil; green/white tea/ + Sea Salt or epsom + cover whole body in olive oil; mostly mix and matching all kinds of spices, herbs, oils, salts etc!! acupressure facial massage (the do it yourself kind!), reflexology massage (same), abdominal breathing, olive oil scalp detox (see hair forum)
rowing, yoga as and when healing crises allow. try to do brisk walk every day for 20-30 mins. trying to get around to starting skipping (got the rope, not the energy to do it!)
master cleanser drink, juicing, raw fruit and veg (increased to about 40% so far, some days 90-100% if healing crisis), chlorella (optimum source)
eating 1 or less food type in one meal. eating fruit and veg on their own and separately. reducing refined carbs/sugar. increasing % raw. no drugs, alcohol, coffee, black tea.
eliminating environmental toxins
got rid of all commercial soaps, body care etc (basically threw away everything that was in my bathroom!). switched to olive oil soap for body and hair (later all natural msm soap), oil hair with olive oil, use miswak for teeth, gave up make up until can find suitable non-toxic alternative.
assisting body in removal of toxins
drink 1/2 body weight in oz of water and herb tea per day. take good fats (organic butter, flax seed oil, olive oil) and use on skin.
that is pretty much it. not sure if i remembered it all but there you go! will add if i think of more!
Hi. My apologies, I only saw this question now. I am trying Bentonite clay with organic apple cider vinegar. Next I plan to do some homeopathic medicines and then maybe, I will do the detoxifying.Hope I can get rid of these keloids. Take care
That is great...if indeed it is true. The sad fact is that I have thought the same thing was happening to me soooo many times. I would get so excited thinking that my health regimen and my fasting, cleansing, and flushes were actually repairing my scars.
They would really look like they were filling in and healing, and then inevitably, a couple days or weeks later they would be exactly the same again.
It's kind of a cycle for me now. Some days my sunken scars will look like they are almost filled in and then a few days later, they are totally sunken back in again as they were in the first place. I am so used to it now that I know not to get my hopes up when it looks like my scars are filling. I know now that it is only temporary!
I have spent years working on my scars from a holistic nutritional standpoint and my scars are absolutely exactly the same. Actually, they appear to be getting more sunken in all of the time. It is as if the skin continues to atrophy. I look so much older than I am.
I am on the verge of giving up. It is just not in the cards for me to heal my scars. Some people are meant to heal them, others aren't. That must be it because I have tried EVERYTHING and they only worsen.
My scars have RUINED my life, and attempts to remove them have CONSUMED my life and I have gotten NOWHERE.
I am at the point now where I feel nauseated when I look in the mirror!
I just wish I could go to sleep and never wake up.
i feel really bad for you that you have been disappointed so many times. maybe there is one factor in your regime that is missing or something? though since you have been working on it for so long i am guessing this is probably not the case.
i cant imagine how you feel, but i know i have had a lot of issues with 'the mirror'. from a spiritual perspective, i have taken so many years trying to get over these issues and finally let them go. it has been a lot of hard work, but i have got to a place where i can honestly say i have worked through and overcome them. they will not ever completely go away i dont think, there will always be traces of them in my memory at the very least. maybe this is like my scars too.
it is only since i have laid these issues completely to rest that i have actually started to see things turn around. im not talking psychologically (that has been a gradual improvement) but the actual material fabric of the problems in my life is changing before my eyes (again - like my scars!). i attribute this to the spiritual truth conveyed in the parable 'the three loaves' and that is this: 'once you let go of this material life and desire only the life of the hereafter, God will set right your affairs of this world and guide you on the straight way to your reward in paradise' amazing!
for me, the only way out of unhappiness was faith. it can be the same for you if you choose! it is possible that no matter how bad things bother you, or how terrible your life is to get to a place where it does not matter in the slightest. no thats wrong - it matters even more because you are grateful to have experienced something that brought you closer to God and made you a better person!!
good luck to you plasticat! remember even if you cant change things on the outside you can change things on the inside and that is better in so many ways!
hi plasticat. i would like to tell u about my scar story. i have not done any cleanses yet,,i am in the middle of a Bowel Cleanse and will continue to cleanse in due time.
i have a scar on my face on one side of my cheek. it was an accident that happened when i was 9 yrs old. i needed a lot of stitches to sow up the deep cut. as it healed i was left with a line on the side of my cheek,,fairly deep..i believe my scar would be a lot deeper than any acne scar. anyhoo... i applied vitamin E serum to my scar as it healed and over a yr my scar was softer but still noticable. years later remained the same..so when i was 16 i went and had dermabrasion on it,,this made the scar sooo much softer..i could apply concealer over my scar and noone would ever know... .. it wasnt completely gone but i didnt really care cos it was hardly noticable..
the doctors said if i got the dermabrasion done 2 more times, the scar would be gone...but at 16 i cared more about going out (if i could conceal it then who cares,,right).. after demrabrasion u need to wear a bandage for over a week and then ur left with pink skin for a few months....
so long story short ... i never did get any more dermabrasion done.
i am now 25 yrs old and am ready to do the dermabrasion again,,after i have cleansed would be wise.
i would like to tell u about a new serum i have discovered,,which has faded my scar even more... its called seabuckthorn seed oil...contains vits A,C,E and k... my scar has faded without any more dermabrasion.
iv been reading about the healing powers of this oil...and if applied after the wound is new,,it will not form scar tissue.....
so if u want to get rid of ur scars..u need to get aggressive dermabrasion done and then apply seabuckthorn seed oil everyday 2-3 times when the wounds are new......this will allow the vitamins in the oil to allow ur skin to develop new skin rather than scar tissue. good luck.
Just wondering how your scars are doing?
Are the scars still improving? Natural healing is amazing!
I am just starting to cleanse and detox, been doing a lot of research on supplements, raw foods, superfoods and different cleanses.
One thing that I just did for my hair was a apple cider vinegar hair rinse, its one Table spoon apple cider vinegar with 1 cup warm water mix, shampoo hair rinse shampoo well, apply apple cider mixture, leave on for a few seconds, rinse with cold water, don't worry about the smell it will not be noticable after the rinse & do not condition.
After trying it out for myself, I would say it is very nice, I usually have to wash my hair everyday due to oil bulid up but today, no oil! :)
What the apple cider rinse does for the hair is to remove bulid up residue from hair products and chemicals from the water supple, at the same time ph balancing the hair.
I read that apple cider vinegar is alkaline but have read mixed comments on it acidic rather than alkaline? ? ?...
I also read how to make a apple cider vinegar face toner, which is one part apple cider two parts brewed green tea, I'm going to use my green tea mint and maybe give it an extra kick.
I think it might be ph balancing for the skin as well but am not sure due to the mixed reviews I have read on it.
I'm starting off my Colon Cleanse with psyllium husk, that I ground into a fine powder and hydrated Bentonite clay, aloe juice, herbs, apple cider, apple juice and maybe some lemon juice, I dont wanna add to many things at once
next I wanna do a liver/gallbladder flush
and then maybe a pineapple lung fast
and then maybe a juice fast
I also want to do dry skin brushing, and steam bathing & body wraps with the bigger type ace bandages that you can get with aztec clay and a apple cider vinegar mixture or different combinations.
I wanna start growing kefir too, water kefir, milk kefir, and kombucha juice/tea/ probiotic
I am going to try to grow the milk kefir in coconut milk, I think that would be a nice flavor and vegan kick but am not sure how well it will grow.
and I wanna start growing and juicing wheatgrass & barley grass
and wanted to try some supplements like, krill oil,
Co Q 10, kelp powder, spirulina, chlorella,
Oceans alive marine phytoplankton, MSM powder,
N-Acetyl-Cysteine (Nac) powder,
alpha lipoic acid, (resveratrol & acai powder mix)
I feel that there are natural healing powers in detoxing, fasting, and eatting raw organics, I think God has lead me to this path!
respected "ozone bubble", im very happy to read your review. i had large mole on my right chest near my arm which never made me feel good. 18 years i had it and finaly searched for a good hospital for mole removal on google with disappointment. but first search result was "dermatend". i bought it which came with a healing balm which was optional for faster healing. my mole was flat and had many small moles on them. so the treatment was to use a toothpick for flat moles and a scrubber (sand paper-like). this product was famous and had good reviews on its official site. so i tried ones with toothpick which didnt help for couple of weeks but later i tried with the scrubber. the procedure was-
1. scratch it until the pores open (area gets reddish)
2. use warm water and wipe it (slightly burns)
3. apply the product (burns too much)
4. couple of minutes later, wipe it off.
finally i had the scab formation which was the correct result for a mole removal. but it was not complete, it was only 1/4 of the mole. which later got some whitish puss-like, i guess some infection because of dampness. i got fever. i was alright and finally found that the scab was covered even outside the mole. which later turned into keloid-like. i was happy to see that the keloid was healing and reached till the mole and with no scar on the normal skin but after that when it was on the mole. the keloid showed a slight sign of healing but its taking too much of time and im worried. im even applying the healing balm from past 3 days which came with the product. it gives a slight, very very slight itchy kinda burning sensation. i'm worried too much and read review that keloid wont go. some people's revieve was like for 10 years it didnt go and they were talking about some blood-root or something i dont know. but finaly when i found your post, i felt so relieved. im sorry to write such a long expanation but i'd appreciate your help.
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I just wanted to share my acne story. I had cystic acne for 13 years. I tried so many things to get rid of it, including going on Accutane for 3 weeks, which worked but gave me severe symptoms, so I stopped. My acne came back shortly after I stopped it.
I eventually read about taking Vitamin D to get rid of acne. I tried it and it completely cured my acne to my surprise. I take a fairly high dose, which is recommended by the Vitamin D council. Right now I'm taking between 7000IU - 10 000IU per day. (Note: if you take more than 10 000 IU per day, you may overdose). I started with lower doses at the beginning (around 5000IU - 7000 IU) because if I took more, my skin would really dry out, especially around my eyes. But it doesn't dry out anymore so I can take up to 10 000. I recently tried to lower my dose, but after a few days I got acne again.
I have written a whole blog about it, so I won't go into detail here, but it works because in order to produce Vitamin D, your skin produces an oil in your epidermis, which reacts with UV rays to create Vitamin D. If you are deficient, your skin produces a lot of this oil and it causes you to breakout.
I have found four medical papers that conclude that Vitamin D deficiency is likely linked to acne. Each paper has also stated a high percentage of cured acne cases using only Vitamin D. The reason this Vitamin D and acne link does not get studied any further is because there is no funding for these types of studies. There is no drug anyone can profit off in the end.
If you want to know the details of my own experience, you can find it here: https://vitamindforacne.wordpress.com/
I am posting this website for strictly informational purposes and am not selling any products or services.
Also known as slag slag is ore gangue, Burden of flux and other slag components, metal silicates in pyrometallurgical process of the formation of a mixture of ferrous salts and aluminate. In addition, the slag also contains a small amount of metal sulfide, metal and gas.
Extensive use of slag as substitute for natural gravel aggregate concrete, roadbed, railroad ballast, basic bedding, etc., can also be made from slag wool, swelling balls, cast stone, glass. Agriculture, can be used as soil or used as fertilizer. Just change form slag, pulverized with a mill, slag can change waste into treasure, to achieve recycling.
In recent years, reprocessing of slag has become a new economic growth point, steel prices will not be a headache because of these residues, on the contrary, but for many of the raw materials, but also gradually favored. In terms of the use of slag, slag mill is inseparable from the slag processing through the mill into flour, then in order to play value, but also easier to transport and storage. In the current market, slag mill mainly Raymond slag, slag micro-grinding equipment, according to the user's needs, different fineness, using different milling equipment, choose a different mill.
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