I am new to this forum, have had Mirena for three years and getting it removed in a couple of days. In the past few months I've had a few episodes of neurological symptoms that felt pretty scary (tingling in hands and feet, heart palpitations, headaches, brain fogginess, mood swings, in addition to other things--diarrhea, lack of appetite, insomnia, generally feeling horrible).
I'm not jumping to conclusions about Mirena necessarily, but I'm wondering if there is any connection between Mirena and the body's ability to process B12 properly. I have been taking B12 supplements for five years, since I was diagnosed with a B12 deficiency. I didn't have a Mirena then, but I was on the pill. I gradually increased my dosage of the B12 because it became clear that a) I was highly dependent on the supplements--going off of them for more than two days led to fatigue and severe headaches, without fail, and being on B12 made these symptoms disappear completely; and b) taking more B12 made me feel better. So I've been taking 5000 mcg of B12 daily for the past two years and had been feeling great until a few months ago, when the old symptoms that I had way back when I was first diagnosed with a B12 deficiency started, even though I was taking supplements religiously. I went off of B12 for the purposes of going to a doctor, thinking I might get a more accurate blood test, because I was thinking that I wasn't absorbing enough B12, even with the supplements. Not taking B12 for five days made me feel the worst I have ever felt in my life--and this is the first time I've had the constellation of neurological symptoms discussed above. Went to the doctor, my serum B12 was HIGH, not low, though by the time I found that out I had been back on B12 supplements for a few days and the neurological symptoms had gone away. After I got the test results I stopped taking the B12 again, thinking that somehow I had convinced myself I needed it when in fact I didn't, given the test results. The exact same neurological symptoms started up again, in the exact same timeframe as the first time. My doctor was pretty flummoxed by this (and referred me to a neurologist), but needless to say, I have gone back on B12, and after doing some research, I've started taking "methyl B12" (which is the "active" and better form, supposedly). I've improved tremendously, even from where I was when I had been taking the normal B12 supplements regularly (though I am still getting Mirena removed to see what if any role that is playing and if I can stop taking B12 supplements once it's removed).
Long (I know, too long!) story short, I've since read that oral contraceptives can affect how the body deals with B12, and I'm wondering if my recent B12 issues are related to the Mirena. And after reading about so many people with neurological symptoms after being on the Mirena, I'm wondering if many women having neurological and MS-like symptoms (many of which overlap with symptoms of B12 deficiency) are having issues with B12 (even if there is no "actual" deficiency! The serum B12 test is not a very good test and doesn't tell you whether your body is able to effectively use the B12 in your body). Given my own total dependence on B12 supplements, even with my high serum B12 level (due to taking supplements for years), it seems that I am unable to properly use B12 for some reason and I wonder if hormonal birth control is involved somehow. Anyway, maybe women having neurological symptoms with/post-Mirena might try taking a supplement of methyl B12 to see what happens. (An intense reaction--chills, tingling sensations, anxiety--to an initial supplement of methyl B12 can be a sign that your body hasn't had enough of it and has adapted to the deficiency, hence, sudden surplus makes you feel weird at first. Lot of info about this on Phoenix Rising, a site for people with chronic fatigue syndrome, which for some people might be related to B12 issues. Obviously I've spent too much time on the internet researching B12 deficiency! My experience with my doctor on this has been unsatisfying. :/ )
Of course, it's totally possible that my issues have nothing to do with Mirena or hormonal birth control. But a B12 supplement is an easy thing to start, and if it can help anybody else then I figured it's worth posting about.
Update, six weeks post-removal: I can't even find words to express how much better I am feeling. I was initially skeptical that my problems were caused by the Mirena, but count me a believer now.
I started to feel better a week after insertion--fewer sleeping problems, less tingling in hands and feet, heart palpitations lessened and eventually went away entirely. As it happened, my appointment with a neurologist (about two weeks ago) exactly coincided with the start of what I think was my "crash," which happened eight days before the start of my second period post-removal. After noticing the heart issues (my heart would race any time I stood up from a sitting position, and my blood pressure would go up as well; this was stuff that had also happened pre-removal and was the reason I got the Mirena out) and testing my reflexes the neurologist told me that I was "hyperreflexive," said the B12 supplements could be "masking something" and ordered an MRI on my neck. Scared the crap out of me, especially because that night was the worst night BY FAR that I had had since having the Mirena removed--horrible heart palpitations/racing, horrible diarrhea, no appetite, couldn't sleep at all.
Anyway, it got much better after a couple of days and all symptoms went away COMPLETELY within about a week. I feel fantastic and I haven't felt this good in years. (I can do my normal three-mile run again, easily! A couple of months ago I couldn't run half a mile without stopping!) I don't know the results of the MRI yet, but I feel very persuaded at this point that Mirena is to blame for it all. And I think I was mitigating and hiding the neurological symptoms of the Mirena for years by taking B12 supplements. I am still taking the supplements for now--as well as vitamin D because I found out in October, when all the craziness started, that I was low on vitamin D--but am hoping I can lessen my dosage and eventually stop taking them. I can only hope that I will be mostly okay from here on out.
Given that a lot of women (including myself) seem to have a post-removal crash about a week before a period, and that this coincides with the "progesterone" part of the menstrual cycle, has anyone on this forum talked about the possibility that the neurological symptoms of the Mirena are caused by the artificial progestin hormone messing with the body's production of natural progesterone and its role in neurological health, including calming the nervous system??? Having read more about the neurological functions of progesterone (and the fact that artificial progestins apparently do none of these functions), it seems quite plausible to me that the crash I experienced a couple weeks ago was my body not having figured out the progesterone thing yet, absent the Mirena hormones. And that these artificial hormones, by messing with the body's production of progesterone, is somehow messing with important nervous-system-protecting things that progesterone apparently does. Is this too simplistic an answer???
Since my issues started (nowhere near as severe) when I was on an oral contraceptive (Ortho try-cyclen lo), I think that for me this is a hormonal contraception issue and not just a Mirena issue, though I think whatever Mirena does is somehow much worse. No more hormonal contraception for me!!!
Starting for 2017 the pharmaceutical grade essential oil supplier is having trouble finding anyone to ship to America….the customs are demanding huge export taxation and even then not willing as of yet to ship anything to America…
So it seems I waited a few years too long--------that is what I have warned everyone on this forum from day 1---if you are smart and you find something that works---you buy a lifetime supply if your able……..
I put off buying the top 10 essential oils and trying to resell them because I figured no one would buy them---because they buy the cheapest (synthetics) and never care what they buy and are scammed by the endless bad websites that sale essential oils which are really not true essential oils at all if they are acid produced or all synthetically made in a lab.
The manufacturer has their people working with their government and no one knows what America will do tax wise---because TRUMP wants to put an end to selling america to other countries and bring back american jobs….
The one that would suffer the most is all the commercial stores in america----most of them sell imported trash products only--wally world and her dozens of sister companies only sell imported trash and that basically put american workers out of business….TRUMP will save american lives by the millions; because in the past 20 years many people have killed them selves because they lost their jobs or didn't have children because they could not afford them, etc…..putting Americans back to work will eventually save the world "if" they all wake up and eliminate the people that refuse to work and only want free food and free housing and fee drugs……when clinton ended welfare after 2 months, the people did go back to work, but in the past 8 years they tried to give away america to every human that didn't want to work..it will take years to undo the damages of the past 8 years……many years to make people learn to work again.
Essential Oils are not made in America because it takes allot of land and allot of work----which equals the commercial people making the synthetics will control it all.
Congress has pledged to put a stop to supplements and import the cheapest drugs on the planet---so you can watch herbs be phased out as well as they continue to put herb suppliers out of business so they can push more free drugs for all.
"IF" the best supplier of real oregano oil says he can no longer ship==========that only means the prices will instantly go out of sight or basically no longer available…..I know I will keep what I have.
Neocon's under General Jerry Boykin, dedicated to serving Israel at any cost to America, may well have been coordinating the war on Syria for a very long time, now fully inside the Pentagon on an official basis.
TEHRAN (FNA)– An informed source described clashes between the Syrian army and the ISIL terrorists in Deir Ezzur as one of the fiercest battles all throughout the crisis in Syria, and said the Pentagon is guiding the terrorists through the war in the Eastern city.
Al-Hadath news website quoted the source as saying on Thursday that the US is helping ISIL to win control over Deir Ezzur in an attempt to force the Syrian army to concede to the federalization of the country, “and in a later stage, it will help the Washington-backed militants to defeat ISIL in Deir Ezzur and Raqqa to bring the two major cities under its influence”.
The source said the US-led coalition heliborne operations in Deir Ezzur before the start of ISIL attacks is yet another indication of Washington’s direct support for the ISIL.
Noting that the Syrian army’s top commanders are aware of the US plots, the source said that Damascus is resolved to thwart Washington’s plots by liberating Deir Ezzur city.
Media sources in the region said on Wednesday that US-led collation’s air attack on Syrian army positions in Southern Deir Ezzur in September paved the ground for ISIL’s large-scale attacks on government positions in the last couple of days.
The Arabic language Lebanese al-Akhbar paper reported that recent attacks of ISIL on government positions in Deir Ezzur in the last two to three days are the results of the US air attack on army positions in September as the air raids weakened the army troops.
The paper added that ISIL’s control over the entire territories in Deir Ezzur province will benefit significantly the US-led coalition.
The paper said that ISIL intends to take full control of Deir Ezzur city and vast regions in Syria’s desert from South of Sweida up to Palmyra in Homs and from Raqqa to Deir Ezzur to take control of Syria’s border with Iraq.
Al-Akhbar underlined that based on field information the ISIL’s plan was practically kicked off when the US-led coalition’s fighter jets bombed the Syrian Army’s positions in al-Thardah mountain in September 17 that left tens of army soldiers dead and wounded.
The army later pulled back their men from trinary al-Thardah mountain that plays a protection role for Deir Ezzur airbase. The US-led coalition’s air raid opened way for ISIL to use its suicide attackers and suicide vehicles to intensify attacks on Deir Ezzur airbase.
A source in military operation command in Deir Ezzur also said that that the army along with Syrian and Russian fighter jets try to open the international road between the airbase and the city, adding, “The Syrian Army still has the upper-hand and will soon turn field equations to its favor.”
The source went on to say that over 200 ISIL terrorists have been killed since start of their attacks.
Russia deployed six long-range supersonic Tupolev Tu-22M3 bombers from Russian territory to strike Islamic State (IS, formerly ISIS/ISIL) targets in the Syrian governorate of Deir ez-Zor, the Russian Defense Ministry reported on Saturday.
The bombers hit militant base camps, weapon stockpiles, and armored vehicles, the report said.
Russian fighter jets scrambled from the Khmeimim Air Base in Syria, providing air cover for the bombing sortie, it added.
The report comes amid intensive fighting in Deir ez-Zor between government forces and IS, which apparently seeks to capture the provincial capital.