I am wondering if my chronic lower back pain and stiffness in my hips might be caused by my Mirena IUD ?? My 1st Mirena was placed due to terrible bleeding. After 5 yrs a 2nd Mirena was inserted to not have the previous bleeding problem. During this time I have had weight increase, a high resting pulse daily of 104, my hair growth is very little, I get pins and needles feeling in my fingers and toes.
But most AWFUL is my chronic low BACK PAIN that comes and goes for no reason. Usually 800mg Advil 2x a day will handle it. Other times, It can hurt so bad I want to cry. That s when I m taking Advil 3x day with muscle relaxant and Ben Gay cream. I have gone to physical therapy, pool therapy( no help) and chiropractor now.(some relief) I do daily stretches (no relief). Hurts most when I stand to take a shower and dry my hair or load a dishwasher or stand to cook. Pain gets better if I sit for 10 min. Can this back pain be from the Mirena ?? Also if I sit for too long at a time, my hips are very stiff and its hard to walk for first few steps. Anyone else have this experience ?? Trying to decide if I should remove Mirena ?
I ve suffered for 2 yrs like this now. My Xray doesn t show any major back problem. A handful of times I ve gone to ER with severe and acute terrible constant pain that wakes me up and doesn t allow me a comfortable position for a minute. This can last several hours, like a pinched nerve.
Definitely! Get that devil out of your system as soon as possible. I had the same experience alon...
Definitely! Get that devil out of your system as soon as possible. I had the same experience along with many other serious side effects. Even if you are not convinced a 100% then it worth the risks to take it out and insert it again later than to spend the rest the of your life in pain and wondering if... But I am re ensuring you that after a lot of research on the topic whatever side effects you are experiencing, scans and x rays will not help. The Mirena has silicone which leaks into the blood cells and causes all the problems. Just keep in mind you need to be patient and wait several months to see a result and as some says (up to 2 years) for your system to recover completely . Keep the physios with the chiropractor to release any trapped nerves and in time you will feel the progress.
I had a number of those symptoms as well--pins and needles in hands/feet as well as an elevated he...
I had a number of those symptoms as well--pins and needles in hands/feet as well as an elevated heart rate (including, at the worst point, palpitations and a racing heartbeat that lasted for days, making it impossible to sleep) and elevated blood pressure. You will find MANY women on this forum with all of those issues. I didn't have back pain while on Mirena but I did get some killer pain in my lower back about six weeks after it was removed (this was the week before my second post-Mirena period, part of my "crash")--a PMS symptom I had never had before and haven't had again since.
A lot of people think that these issues are from the silicone, and that may be true in some cases, but all of these symptoms can result from hormonal imbalances, and I think that that was the case for me (my symptoms post-removal have followed predictable patterns that track my menstrual cycle—I've been using the fertility awareness method since the IUD came out, so I have a good idea of when I'm ovulating, etc). But even with some lingering issues that often happen in the week before my period (though this seems to be getting better each month!) it is SO SO SO much better than when I had the Mirena. I feel like a new person!! It is worth getting it out and trying to get your body back to a healthy hormonal balance. Our hormones affect everything in our bodies!
You won't know if Mirena is the cause of--or at least contributing to--your issues unless you have it removed. And if you have underlying hormonal issues that are causing heavy bleeding, etc, synthetic hormones will not fix those issues--at best they only temporarily cover them up, at worst they create new, and often much worse, problems. There are natural ways to improve your hormonal balance (e.g., eating a good diet with lots of veggies and healthy fats and cutting out certain kinds of vegetable oils, like corn and canola, as well as processed foods).
48 yrs old, mirena for 9 mths, insomnia, heart racing - is it buildup of synthetic progestins - an...
Following a period of anxiety last year, heavy periods and low iron I decided to get the Mirena inserted. I felt better within a month and so far so good. Since Jan I have symptoms that I thought were related to decreasing oestrogen levels and started with oestrogel and then changed to patches. Twice I have had periods of bad insomnia (body feels electric and heart racing as I try and sleep). Fortunately during the day apart from sleep deprivation I can function. Am starting to get suspicious about Mirena - perhaps build up of synthetic progestin and am wondering what I should do. Thought that maybe it will take time for Oestrogen to kickin but perhaps if progesterone levels are low the oestrogen is just making things worse. Any thoughts/comments/advice/stories much appreciated? Many thanks
I’m not peri-menopausal, but I also had heart palpitations and horrible insomnia when I had the Mi...
I'm not peri-menopausal, but I also had heart palpitations and horrible insomnia when I had the Mirena, as did tons of other women on this forum--they are two of the most frequently cited issues here. I had never had those problems before Mirena and I haven't had them since it came out. One of the hypotheses I've read here is that the synthetic progestin in Mirena interferes with the body's own production of progesterone, and the resulting hormonal imbalance (low progesterone relative to estrogen) causes many of the symptoms that people report. Personally, I now tend to think that synthetic hormones do not help our bodies; they may sometimes cover up problems temporarily but at the expense of long-term health.
Tactics for making a doctor do a silicone test please!
I am seeing my gp this week and plan to ask her for my silicone levels to be tested. I am quite concerne3d that she will refuse and I need to be able to convince her of it. Am also seeing my neurologist tis week, who it has to be said this the most patronising and arrogant person I have ever met! I want to hit him.
I there anyone in the uk, anywhere who has been able to get this done and how did you approach it. My current situation as that my MRI and previous blood tests have come back with nothing significant. I have a nerve test coming up.
My main aim is just to know what has been left in my blood and then to treat it appropriately! At the risk of sounding crazy to my gp, I want some anwers! Just need to work out how I can get round her!
Have printed up sections of this site, iformation on silicone toxicity (particularly related to Norplant) and all symptoms of poisoning. I want her to read these and then tell me it's just the internet and it should be taken with a pinch of salt, when I have most of the hideous symtoms!
Anyway ladies, any tactics would be much appreciated!
Happy new Year and may it be a better one for us all!
I wish you all the luck in the world with this, ClareBear! I’m in the US myself, and can’t even fi...
I wish you all the luck in the world with this, ClareBear! I'm in the US myself, and can't even find a laboratory that tests for silicone. I'd be more than happy to pay for it myself (do you even have that option over in the UK?), if I could just find out where to have the test done. I'm sorry I can't be of any help to you (other than moral support).
I do wish we could get all of us who are suffering with these horrible symptoms together in a room with all the doctors who poo-poo our symptoms and try to tell us they're all in our heads. If we could show them our sheer numbers and get them to listen to the same story over and over from thousands of different women, maybe they'd realize we can't all be crazy.
The neurologist said if my brain MRI showed anything he would do further testing on things that at...
The neurologist said if my brain MRI showed anything he would do further testing on things that attack myelin (nerve sheaths). I did bring up silicone and Lyme's disease and he seems open minded. Here are a few more articles for the fire. The first is very technical, so maybe it will carry more weight with drs. They tested for silicone antibodies.
I tell every dr. I see that I visit 2 Mirena websites, and in total there are over 24,000 negative comments on Mirena. I usually leave it at that, or sometimes I say, would you buy a car if it had 24,000 negative reviews? The one time I tried taking the first page of this site (showing the 6 million page views, etc.), the woman wouldn't even take it from my hand. But hey, maybe a seed has been planted. I pray everyone has a better year for 2011!!!
Hello Melanderso, ... ... Great to hear from you! The doctor Myhill report that you posted is th...
Great to hear from you! The doctor Myhill report that you posted is the one I am taking with me to my doctor! It makes perfect sense and is the only thing I have seen which completely fits my symtoms. I have been tested for auto immune diseases and Lupus which came back negative.
I like your line about not buying a car with .... Very good! I might try that one! I think my main plan is to try and stay calm. I have tended to get either extremely angry (to the point where I was scared that I might be violent) or to cry (or both). Maintaining control has to be the key otherwise they seem to assume we are mental. Thank you for you comment and good luck on this roller coaster!
Great articles - thanks for posting them! With my continued neurological issues and muscle weakne...
Great articles - thanks for posting them! With my continued neurological issues and muscle weakness, I've become more and more worried about other diseases I might have developed. Reading these articles makes me remember again that the silicone reaction might be playing more of role than I realize. I guess it's just that because I'm 13 months post, I feel like my recovery should be further along (or finished!) and that because I'm not back to normal, something else must be wrong.
I continue to believe that adrenal weakness/fatigue play a large role in autoimmune/hormone/thyroid/autonomic dysfunction. I've been reading from here:
This explains so much of what I'm experiencing with autoimmune issues, allergies, autonomic dysfunction, and obvious hormone imbalance. And it even points out that for someone in this state, lab work and tests can be fairly normal even though one definitely is not functioning normally.
If the adrenal fatigue is the reason for the body's reaction to the silicone (and subsequent autoimmune condition) and hormone imbalance, it makes sense to work on strengthening the adrenals as a part of the recovery. Maybe that's what helps the body to "burn out" on the silicone reaction in time. Maybe women with stronger adrenal function are the ones with the Mirena who have NOT had a reaction (yet, anyway!). Maybe it explains why I started having a more severe reaction after the strep throat infections I couldn't get rid of last year. Maybe the Mirena weakened me, which allowed me to develop the strep (which I had NEVER had before), and then this weakened my adrenals sufficiently to allow the downward spiraling of my health and development of autoantibodies. Maybe the hormones in the IUD further upset the adrenal/hormonal balance in the body (which is addressed in the article). Maybe this is why many women have finally recovered in time. They get the IUD out, try to focus on healing, which strengthens their adrenal system, and then they stop posting on this forum! ;) At least I'd like to think that many of the women, especially from a few years ago, no longer post because they are better.
Any thoughts? Does this make sense? Sorry to ramble. I'm just thinking out loud on my keyboard.
It’s a complete nightmare isn’t it! I’ve found form a doctors report that there is only one test ...
It's a complete nightmare isn't it! I've found form a doctors report that there is only one test available in the uk concerning silicone, so I'm I'm going to tell the doctore the code of this when I see her.
Why does this have to be so difficult. As if we haven't already got enough to deal with! I wish I had some answers for you! There must be a place someone that will do it for you. I have become so suspicious of the medical profession that I don't believe they tell the truth about anything much!
I think that this test must be available, but that they are protecting themselves! Verging on paranoia I know, but it's not paranoia if it's the truth. Good lucki and don't give up! One day this thing will come out. It will probably be very cleverly covered up and the Mirena will just disapear off the market.
Anyway, I'm praying that I don't scream at My neurologist. That wouldn't be a good move! He'll deffinately think I'm mad then!
Hey Clare! How are you? Any luck getting your silicone levels tested? I plan to see a neurologist ...
Hey Clare! How are you? Any luck getting your silicone levels tested? I plan to see a neurologist bc I noticed my speech has been slurred, my train of thought has been limited and panic attacks came back so I'm asking they test my silocone levels too hopefully they will but anyways have u gotten any better since ur mirena removal. If so, what have you done to improve. Please help by replying!
HI ClareBear. Did you have any luck getting your silicone levels tested? ... I’m also in the UK &...
HI ClareBear. Did you have any luck getting your silicone levels tested?
I'm also in the UK & trying to find a doctor that will refer me for silicone testing.
I had the mirena fitted almost 2 years ago & a month later my health deteriorated very quickly.
As a result I've been completely housebound for over a year & a half. I have constant joint pain, great difficulty walking with burning & tingling from the top of both legs down to my feet continuously. Along with all the other classic symptoms associated with silicone poisoning . I'm having my coil removed on Thursday & I'm really hoping I don't go through the Mirena crash. My life has literally become a living hell. Does anyone know where I can be tested in the UK or if there's a lab online that I I can send a blood sample too? I'd really appreciate any help.
Hi! I had my Mirena IUD placed just over one year ago. Just like so many people on this forum they could not find the strings at my first follow up appointment. Just one month after I had it put in I started having these odd almost peircing headaches on the left side of my head followed by numbness in my face, arm and leg, all on the left side of my body. I've had cramping in my arms, and severe fatigue. Since then I have been to countless doctors and have been tested for too many things to even count, but let me try. MS, brain tumors, lupus, Vitamin deficiencies, neck and back injuries etc. I have had 3 MRI's of my brain, tons of blood work, and I've see 2 nuerologist. Thankfully all of this testing has found nothing serious. I have at every single appointment asked if it could be the Mirena. Every single Dr. has said no way. There is no possible way. But I am not convinced. I have experienced some weight gain, some painfull gas but my main concern is the other symptoms. I was wondering if anyone has experienced any of these weird things?? Most days I feel like I am losing my mind. I'm not muchof a complainer but I can't deal with this stuff. I see my neurologist this week so I am looking for info to take with me to have another discussion about this. Thanks for the help!!!!
I had all of your symptoms and then some but never attributed it to Mirena. The headache was so w...
I had all of your symptoms and then some but never attributed it to Mirena. The headache was so weird, like this surge of sharp pain in one spot constantly. If I could take a sharpie pen and circle it, it would be the same place every time. I used to have it almost daily, but it has only happened once since I had it removed three weeks ago.
yep, had most of them. Headache seems to be one of the most common complaints. I had most of the s...
yep, had most of them. Headache seems to be one of the most common complaints. I had most of the same testing done too! Nothing. same bullcrap from my docs. I would recommend you get a new doc and get the mirena out. the fda lists migranes as one of the side effects. (as well as many of your other symptoms) My headaches went away immediately when I pulled it out. all my other symptoms are either gone or MUCH better 7 weeks post. Good Luck!
I had the mirena for almost 4 years and started having symptoms in July of last year with vertigo,...
I had the mirena for almost 4 years and started having symptoms in July of last year with vertigo, migraines which I never had one before, a vibration in my head blurred vision,numbness,anxiety,also fog brain and neck pain. My headaches would be really weird and extremely painful that I would have to stay in bed for days. I went to so many different Dr's and also had a MRI. I had my IUD removed Sept. 17th and the first week it was out my headache was gone, which I had for 2 1/2 months. I have not had a vertigo episode since but I still have the vibration and numbness in my head and sometimes it moves to my body. Also had my thyroid tested and it is hypo and I am in pre menopaus.I am still don't feel all the way right but every month is getting better. Exercise is helping saving me and eating healthy. I know that my vision will never go back and the mirena caused it. I would really recommend that you have it out as soon as you can.Good Luck!!!
I had this as well, diagnosed as ”mixed migraines.” I started taking Topamax to prevent migraines ...
I had this as well, diagnosed as "mixed migraines." I started taking Topamax to prevent migraines which keeps me down to 2 a month and I thought the tingling in extremities and double-vision was due to the Topamax.
However, since the depression and mental fog I had went away immediately after I took the mirena out, I'm going to wean off the Topamax and see if the rest of the symptoms fade too, as many other posters have reported the same symptoms with the mirena.
My migraines manifest as sharp pains on the right side of my head, like a pick stuck in the back of my head to the back of my eye with the usual light and noise sensitivity/nauseau. I used to get those occasionally.
However, with the mirena, I started having these *all the time* ALONG with "mirror" headaches on the left side, same sharp pain, same place, but without the migraine aura. Went to neurologists, etc. and have been treating as chronic migraines.
I will keep posting as to whether my symptoms fade. I'm pretty sure the accelerated migraines and additional headaches are due to the mirena tho.
Yes, I have had this happen to me two times. After a lot of testing, we just found out mine is re...
Yes, I have had this happen to me two times. After a lot of testing, we just found out mine is related to Sugar levels also but I never had this happen prior to mirenda iud. The scary part of me is once it happened to me while I was driving. Thank god the kids were not with me. Yes, I went out and I had a head on collision. I woke back up on impact. I felt it coming and I tried to get off the road. I know I came to a complete stop but didn't get the car in park before I went out. My foot came off the break. This happened about a month ago and it seems to get worse for me at the same time of the month every month. I don't have periods any more so I'm not sure if it is happening during my period or not. If you are having this side effect, please get yours removed asap. I'm lucky to still be alive!
Hi, I used Mirena for seven or eight eight years with great results and no apparent side effects....
Hi, I used Mirena for seven or eight eight years with great results and no apparent side effects. About two months before discontinuing Mirena, I developed tingling on the left side of my body and much of head. I've had it since October with just a break of a couple of months when my thyroid level and migraine preventative doses were just right. Since it has continued so long after removing Mirena, it is highly unlikely for either to be related. I've had an atypical migraine condition for years which I think is causing mine; all the big things were ruled out. A neurologist that specializes in headaches might be able to really help with your headaches. Tingling is often related to blood flow and nerve damage, plus anxiety. The anxiety type isn't usually on one side, I was told. I hope this was helpful.
I had the exact same symptoms. I’ve had the Mirena in for 5 weeks then started to feel off. Headac...
I had the exact same symptoms. I've had the Mirena in for 5 weeks then started to feel off. Headaches, joint pain, sore neck and breast tenderness. I went back to the Dr who said it's absolutely unrelated and suggested I keep it in for 6 months. After doing research, I demanded to get this foreign object out of me. I got it out today and literally, my brain fog has gone away. With the Mirena I also had weight gain, no desire to workout (which I did before this), no desire to cook or bake (which I did before) or even leave the house. I went back to another doctor today who said my symptoms were hormonal.
When she pulled it out, she said showed it to me and said this was the devil that was the cause of your pain. Since having it out eight hours ago, my appetite and energy are back.
It works for some but I wasn't part of that. I'd rather have a sore back and cramps than to deal with this again. Good luck to those who have it.
Hi, I had the Mirena inserted in March 2009, and by the middle of May 2009, the back pain started. Since then, I have had chronic upper back/shoulder/neck pain that won't go away. I am a gym rat, so I thought I had an overuse injury, and was seeing a sports physician, going to PT, etc. PT helped a little, then my back pain got worse. A lightbulb went on last night and I finally realized it may be due to the Mirena. Also about a month ago I started clenching at night or just having jaw tension. Anyhow my body is so tense and full of knots that it is so incredibly painful, and generally I'm in great shape. So I don't understand why I'm feeling this way and why the back pain won't go away. I've seen a lot of posts on this site for this, but I"m wondering 1. do others have this problem, and 2. if they do and removed the Mirena, did they see a difference? ie does the pain go away once the mirena is removed? Oh, I also have what the dr called "snapping hip syndrome"- my left hip is completely out of alignment and snaps or clicks every time I walk. PT told me to stretch, which doesn't do anything for it. Help!
Hi there - you are defo like me by the sound of it. I got mirena in Nove 08 and at the end of Jan...
Hi there - you are defo like me by the sound of it. I got mirena in Nove 08 and at the end of Jan got the most painful neckpain /head/shoulder pain which i was told firstly was an iritated nerve and then a muscle spasm, i also have been told it is arthritis, wear & tear,must have picked something up wrong and then would you belive 'menopause' makes you ache a bit!!! - i tried to tell them it was the mirena that i thought had caused this but no one would listen - two weeks after the neck/head pain started, a pain in my elbow started too and i couln't even pick up a cup - this with all the other horrible symptoms just seemed like too much of a coinsidence for it not to be related to the coil. I eventually, practically cried for them to take it out and that was in June and next day my arm started to feel better and within a week i could pick things up again without crying with pain. I've have PT, chiro and they were no help at all and agreed with the gp - that they 'couldn't see it being the coil' - i also have the clicking in my hip and knees and i still have my neck pain but its getting better every single day and i feel like a different person now - hope this helps x
thanks so much for responding, bugsymalone. that makes me feel better, though I’m really concerne...
thanks so much for responding, bugsymalone. that makes me feel better, though I'm really concerned that you still have problems even a few months after it was removed. I talked to the nurse at my dr's office who never heard of my pains being associated with mirena (of course), but I have an appt to have it removed next week. I cannot believe you have clicking in your hip - I have been trying to figure out how I got it, it is the strangest thing - everyone thinks I'm crazy. Thanks again.
I’m one of the firm believers that the Mirena IUD causes some of us to have an autoimmune response...
I'm one of the firm believers that the Mirena IUD causes some of us to have an autoimmune response to the silicone. Our confused immune system tries to "attack" the foreign body and instead attacks muscles, joints, and tendons. We end up with all kinds of migrating pain that mimics autoimmune diseases such as Rheaumatoid Arthritis, Lupus, Multiple Sclerosis, fibromyalgia, etc. Some of us end up with damaged thyroid glands (another autoimmune disease) and require meds for the rest of our lives. I've had migrating pain in my feet, knees, hips, groin, hands, neck, jaw, wrists, elbows, shoulders, and various muscles. Sometimes there's clicking. Sometimes there's weakness. Sometimes it feels like tendonitis. I'm about 6 months post removal of the evil device. I think I can finally say I'm getting better. The episodes are less frequent and less severe. I've read this type of autoimmune response can burn itself out with time. I'm hoping for continued improvement. Wishing all of you good health...
Back/chest pain was one of my first symptoms, within 3 weeks of insertion. I am still dealing wit...
Back/chest pain was one of my first symptoms, within 3 weeks of insertion. I am still dealing with it today, 6 months post removal. Some days its there, some days not. I also have the jaw thing as well - feels like my face is stiff, like my jaw doesnt want to move right... its a weird sensation and I am painfully aware of it when I talk to people. It also comes and goes.
I would remove it asap. The recovery is long, but leaving it in has got to be worse.
I think it is very possible that the Mirena is causing the joint clicking and muscle spasm as well...
I think it is very possible that the Mirena is causing the joint clicking and muscle spasm as well as weight gain, acne, mood swings and migraines. I thought my fibromyalgia had been improving before I had this inserted but as I read more and more on this site I am doubting that. I want to have it removed but I don't even want to go back to my same gun who would have put this into me in the first place. Can a different Dr take it out than put it in?
Hi there. Well it makes me cross to have the answer: it is not related to the MIRENA by the nurse ...
Hi there. Well it makes me cross to have the answer: it is not related to the MIRENA by the nurse since I have never had those funny things before!
In my case, I started with cramps and joint pain (shoulders) and then even muscular spasms. For one week the muscle of my upper leg jumped! After that my eyelid for one week too.
I have bruxism (clenching of the teeth) I wear a mouth guard which made the symptoms disappear until the Mirena. I started grinding more, you feel it next morning. I have been reading about it and it seems that the drug causes bruxism (in my case worsened it). But it also could be the pain during the night that make us clench more. When I go to talk about the symptoms, the nurse said: 'they are not connected'. Well ...I know my body and this never happened before. I am a very busy person, fit and active.
Now, they told me to persevere because the Mirena is working on me. I mean, I was advised to have it fitted because of the terrible periods I normally have. Well, the Mirena seems to have stopped it to almost nothing (blood loss). Of course I have acne and it is destroying my face, neck pain and hip pain (right side) but I can't decide whether I should have it taken off and it does not help that the GP advices to persevere. I am optimistic and I tend to focus on the bright side but that sometimes makes you carry on with something that you shouldn't............. I will see. I suppose I will wait 6 months as they said. The pain in my upper arm is what brought me to your comment. I have it and it is worse during the night. I wake up with it and it seems to disappear during the day to come back at night and morning! Weird!
Hi - thank goodness I found this site, I thought I was going crazy. My face constantly hurts, I ca...
Hi - thank goodness I found this site, I thought I was going crazy. My face constantly hurts, I catch myself clenching for no reason during the day. I assumed I was grinding and wear my mouthguard when i remember to.
I wanted to check in and see if after removal, have your symptoms improved- jaw pain, still facial muscles??