Ever since I had my Mirena removed I either sleep really deep with vivid and scary dreams (which I have never done before)or I have insominia.The only med's I am on are synthyriod and I take a water pill when I am on my period to help my vertigo I take vitamins also.
ever since the 11th day post removal, i sleep very deep. i can sleep 6 hours and wake up refreshed. i had bad insomnia with mirena. apparently bc pills also gave me side effects too, just not as bad as mirena. my dreams seem more real now.
I had mirena for 16 months my insomnia started a month after mirena and I always had spotting every day , insomnia got worse over time so did the severe anxiety I suffered so badly could not take care of anything started closing my doors and crying one and half year later someone told me it might be mirena I had it removed next day I felt better couple of days later for one day it's been a struggle still every night I pray to go to sleep
One year after the removal now I still have the insomnia not as bad as it was. I can only sleep some nights of the week For 5 hours
I still can not plan anything and have to stop everything I am doing by 7 pm if it I absolutely can't sleep anxiety feelings come of and on with no rhyme or reason
If I talk for more than 10 min with anyone that day I can't sleep if I watch a movie I cannot sleep
It's like I can not do anything I want to do
Mirena totally wrecked my life
Any suggestions to improve insomnia ?
I tried everything from otc sleep meds to prescription none of them helped I tired massages etc also
I hope to sleep all days of the week and be back myself
I heard about dr fein in Dallas Texas about checking testosterone levels and treating as mirena depletes testosterone
Any one had experience there ?
I am very worried and anxious and was wondering if any one out there is going through this..I had mirena inserted at my 6 week post partum check-up. After 5 months of lots of, headaches, dry , red eyes, acne, weight gain, and some very heavy bleeding I decided to get the mirena removed..enough was enough. Low and behold when they went to remove the mirena the strings were nowhere to be found. 2 doctors tried and then they wheeled me into the ultasound room to see if they could locate the IUD that way.....that was my first glimpse of my baby's heartbeat.... I was already 8 weeks and 3 days pregnant. Needless to say, I was shocked, but maternal instincts kicked into action instantly...all I want to do is protect this baby. The doctors agred that my best bet was to remove the IUD (the strings are entirely up in the uterus) by means of hysteroscopy. Unfortunately, during the hysteroscopy, they found that the IUD was enveloped in a large blood clot (probably caused by the iUD) and positioned above the gestational sac. It was too risky to pull it out. Now here I sit with my poor baby trapped inside with this monster they call Mirena. I am now in danger of miscarriage, (heavy percentage even in second trimester), preterm labor and premature birth, septic infection and the possibility of congenital anomolies even if my baby makes it to full term..Even so, I still have a chance of having a healthy, normal baby and I try and hold on to that. There is almost no info out there available on women who carry a baby full term with Mirena in place (which only adds to my anxiety) and I feel pretty alone...The doctor who placed the IUD seems hopeful and tries to re-assure me, but I got the distinct feeling from the doctor who tried the hysteroscopy that the situation is more grim. I am now almost 11 weeks and these days are the longest of my life...Every day seems an eternity as I wait for something bad to happen. I do accept that almost all contaceptive products have a failure rate, but unlike Mirena they are not a danger to both mother and child when they fail. This product should be pulled from the market...it is not right to be put in this position. Please....if there's anyone out there who knows anything about this...please respond.
hi, i have also just got the mirena inserted, however i didnt really get told how long it takes til it takes affect. I was having sexual intercourse before it may have taken affect, and without any other form of contraception. Anyways what i am getting at, is when you found out you were pregnant was it only from having it removed, i am trying to understand with it in place how you can tell your pregnant and if it shows up positive on a urine test or not. I had a really light 2 day period on the time when my period would be due, which ive been told can happen, but since then have had one bout of severe cramping and pressure in my pelvis, chills nauseas all the time, so im worried about pregnancy or eptopic pregnancy.I went to the doc and they reckon it might have been a tract infection but werent sure, it wasnt even showing properly on the test, but a urine pregnancy test didnt show either, but it could be too early im not really sure. I know this isnt really answering your question, its just your the only person that has written about getting pregnant with it in place. The doctor told me my strings are still in place, but im worried about the possibility that something happened before i got it in, as the same thing nearly happened with my son
any info you could give me would really help, i would like to keep in touch to see how it goes for you.
i feel like i have something off to the right hand side of my belly area that feels strange, im not sure if it could be this or something totaly unrelated.The lower of my back can hurt or laying on it pressure wise. I get this pinching pain in this spot. I know this doesnt happen earlier on in pregnancy hence why im worried something may have grown out of place, but i cant figure out what it could be and am curious to know what symtoms you had and finding out etc. What about periods while you had it in? I dont even know if urine tests would show up properly if you have it in or something like eptopic happening.
Ive had two babies and heaps of complications with the birth of my daughter, so hopefully it will get better for you, like it did for me. I didnt have anything inserted for either child but know the pains and joys of birth.
please take care of yourself and get plenty of rest and support, i wish you all the best if you dont get back to me, if you do meet your little one you will never look back as they are the best thing ever! i had 2 in one year and not twins so this says alot..
I had the Mirena in place for almost 4 months and still got pregnant. I had no idea I was pregnant, I only knew I was bleeding really irregularly for almost the entire time. I expected the irregular bleeding the first 3 months, but the bleeding got heavier, especially in the last 6 weeks. I couldn't even guess as to when by period was because it literallly seemed like I was haveing it 24/7. There was probably a break of about 3-4 weeks in February that I didn't have bleeding and I suspect that is close to when I actualy got pregnant. It was because of all the bleeding and side effects of that I decided to get it removed. I never suspected pregnancy for a minute. The ultrasound was done to locate the Mirena after my doctor couldn't find the strings to remove it. That is how I found out I was pregnant...I saw it on the ultrasound machine..it's little heart was beating away...
I am now almost 11 weeks pregnant and my Mirena was put in it September and remains there still (much to my dismay). My biggest worry at this point is the health of my baby. With all the progesterone in my system, no one can tell me that it won't affect the baby...especially if it's a girl.
My advice to you is to go in and get checked again. They should be able to see something on ultrasound by now if you are pregnant, if it's ectopic, or even if the IUD is imbedded or causing havoc to your uterus. If it doesnt' feel right, you've have got to trust you're instincts...I wish I had listened to mine earlier..Maybe they would have been able to remove the Mirena if I found out earlier.. Good luck and let me know how it goes..
anxious - i am so sorry you are dealing with a pregnancy with the mirena still inside of you. have you tried reaching out to any specialists in other areas? i don't know where to start, but maybe a top notch hospital might have a doctor that would take your case on. i'd be begging at this point.
i thought that some women took progesterone shots while pregnant (ivf mommies) in the beginning so maybe it's not *too* bad at first.
i just can't imagine how you are feeling and have been thinking about you. i saw your earlier post that got lost like all of the others. maybe the blood clot it is surrounded in is absorbing some of the hormones, one can hope.
i wish you the best of luck and hope you can find someone who can give you excellent care. take care of yourself.
Thanks for your reply. I actually had gone to Rochester Mayo Clinic for the last attempt to remove the IUD. I think the doctors there gave it a valliant effort, but just could go no further because they thought that dragging the blood clot/IUD out would take the baby with it. I am learning to live with the situation I am faced with, but just so worried about the baby all the time. The bleeding has not stopped and every time I pass a clot, I worry.
I am 11 weeks now and simply hoping and praying for the best.
Thanks for your kind wishes...
Not sure if you are looking for answers still but i am. I have the IUD and was having semi normal periods until i think last month and this month so i took a test here at home and i took two of them and both came up positive. I am worried what will happen with the IUD in me and i am hopeing to get in to the dr tomorrow so something will be done. Just by chance where did you get the IUD done at? I am in Fort Rucker, AL
i live about 45 minutes away from you. im sorry that your iud failed in this way. i only had mine for three months before it came out. i got pregnant exactly four weeks later. i miscarried and i know that the hormones left over from the mirena are the reason why. i sicnerely hope that you can find a dr who will take it out for you asap and that there are no problems in the process. if you need someone to talk to, here is a good place. you can also email me if you like and i will listen as well. im assuming you have tricare? i dont, however, i do know that it can be a pain to get in to see dr's because of stipulations that tricare require. my cousin has tricare and she had an appointment to see the dr a couple weeks ago, got there and was told she couldnt because tricare said she lived in virginia, which she has never lived in virginia. her husband does, but she never has. so she had to fight with them in order to get everything straightened out so she could start the process to get hers taken out as well. we had side effects from it, but for birth control it worked great. for a few different reasons. i have had pelvic pain since mine about two weeks before mine came out. now im on a waiting game to see if it will go away in the next few months, if not i have to get a laporoscopy done to see what is wrong, and depending on what is found, i will face a possible hystorectomy. im only 25, im not ready for the fact that i will never be able to have another child. of course my husband had a vasectomy three months ago, but you never know. im also supposed to be on birth control for a few reasons, one of which is to get my periods under control so that maybe that would help the pain. my dr thinks that if i have a few periods then the pain will go away. after my husband is declared infertile, ill start it, but not before. some dr's make out that this is the best birth control ever and that there are no side effects, no problems, no possible way to get pregnant while using. boy, are they wrong. im glad mine is not like that.
but like i said, if you ever need anyone to talk to, ill be there.
I really thought that I should reply to your message because I am having the same symptoms as you! I actually just had a baby back in March. I had my Mirena inserted in April at my six weeks checkup. I have been bleeding pretty much ever since I got it. These past few days have been the only days that I really haven't been bleeding. I'm really scared that I'm pregnant again. I don't know what to do about it. I really think that I should take a test, but then again what if its too soon and it doesn't show up? I actually missed my 2 month checkup for it because I thought I no longer had insurance but I recently just found out that I do so should I call my doctor and get checked out?! I'm about to be 19 and I'm really not ready for another kid but if I am pregnant I hope that my baby is going to be okay. (By the way I have had menstrual like cramps and have been puking....are those signs?)
My heart goes out to you, and what you are going through. Based on the hideous side effects I have seen posted here in healthy, adult females, I think I would also be extremely nervous about giving birth to a baby exposed to the Mirena in utero. In this case, has the doctor suggested you have a specialist contact Berlex to determine what the suggested course of action is when pregnancy occurs with a Mirena in place? I would definitely want two or three opinions about what to do, as it would be incredibly difficult for everyone involved, most especially the fetus, if there were very serious birth defects as a result of this obviously highly toxic birth control.
You need to go get a second opinion, one that is honest and true. I had a similar thing happen, but I caught it at 1 month. Yes, for all those that have asked, IUD pregnancies do show up on take home pregnancy tests.
My obgyn was very honest with me and said prior to getting the Mirena that there was a chance of getting pregnant, but most likely it would be a nonviable pregnancy. She has always been upfront with me (and she is a supporter of the Mirena). I made the choice to get a DNC. It was a difficult choice, but I already had a previous baby that I needed to take care of and decided that I needed to not take any risks that although brutal and the toughest of MY LIFE, I could somehow avoid.
It was too important for my health and and future pregnancies to hold onto something that could kill me. Remember that this is only month 2 and that as you become more pregnant, the pressure on the foreign body (the Mirena) can tear your uterean wall and the cyst can take the blood away from your unborn baby.
I know this is a hard choice to make, but you need all the facts. Do what is best for you. I am so sorry we have all had to become lab test for this form of birth control, but at least we are able to talk about it. Good luck.
Hey I was just reading your story..I have had my iud almost two years and i am very worried i am pregnant!! I was just curious on how your pregnancy went or has bene going..I see you probably have had him/or her by now..email me back im very curious to see if everything was okay! Thanks.Morgan
I know it was September 2007 when you posted...but how did your situation turn out? I have had my IUD for 4 years...and I feel like I am pregnant...all of the symptoms. I have two children and I know what it feels like. Are you pregnant? Did you ever start? I am 2 weeks late, morning sickness, pains...sometimes severe...in my lower abdomen.
I have been trying to find the user by the name of anxious1 who posted back in 2007 about being pregnant with and IUD inserted and I came across your message. Where you infact pregnant I would like for you to respond back. I've had my IUD inserted 15 months ago after my second child was born. This will be baby #3 and with the IUD still inserted I want to talk with someone who has experienced this. I am around 5 weeks. My personal email is firstname.lastname@example.org please email me. If you have any advice or know someone else who has experienced this please let me know. Thank You and God Bless you and your family.
I have the mirena, I too had it put in after 6 weeks of giving birth, and I had alot of problems rigth away, although, my OB is very good and fixed the strings from poking me, and my husband. I think I might be pregnant again?! And I came on here to see what others thought too. Because I was for sure that I couldn't get pregnant with the mirena in. But I haven't seen my OB in almost 7 or 8 months, so I couldn't say on where or how my mirena is positioned. But I too have thought about it moving/repositioning itself. I'm so sorry to hear about your mishap there. I think I might sched. an appt. soon. I wanted to take a preg. test but I'm scared. LOL...We only wanted one child, but it'll be ok if we have 2. HEHE. How was your symptoms as far as noticing them?
I wanted to talk to you and see if this was the same thing im going through. I gave birth on Aug 3 2007. I got my Mirena put it in Oct 7. Just recently a few months ago I was getting this pinching feeling down there, if i walked moved sat a certain way. I went in and my doctor just cut the string. He told me if this happened again he'd have to take it out because the string was too short. Now, today a few months later I go in for a follow up and the doctor says he cant find the string, never mind the actually Mirena. Hes having me go for a ultrasound to see where the mirena is, and if its still in place..... Im so scared that this IUD didnt work, its not in place and I may be pregnant. First, I wanted to ask you. when you went in for your appointment, did they do a pregnany test. they did for me and it came back negative. so i was wondering, because you had said you were getting it removed and didnt think you were pregnant and then your 8 weeks. second, I was wondering what they did when they found out that it was lodged. as my doctor thinks it is. PLEASE write back as soon as possible. Thanks!
I saw your message, and I just had to respond. I have Mirena, and I got it after I gave birth to my daughter in November 07. My doctor actually recommended this deue to miscarriage problems. I had this put in beginning of Jan 08, as they made me wait til after my 6 week check-up. Well long story short, I still have it. For the past 2 weeks or so, I have been feeling a bit under the weather if you want to call it that.. I am having what I would call a non stop kinda crampy feeling in my pelvic area, and my boobs hurt. My entire mouth hurts, and I have no idea why. My first thought was Im pregnant. I bought a pregnancy test, but it came out negative. I am still feeling like this, and I am just wondering if you are maybe feeling the same. I dont want to waste a trip to the doctor, but I dont want to ignore what im feeling at the same time. Please let me know!!
I tested positive with a home pregnancy test yesterday, and am seeing my doctor this afternoon. I've had Mirena since February 2008, six weeks after the birth of my daughter.
I understand there is a high risk for ectopic pregnancy, and for complications if the Mirena remains in the uterus with the developing baby.
I'm hoping that the original poster may respond with a happy ending to her story, or anyone else that has experienced a pregnancy with the Mirena.
After my last posting, my doctor confirmed that I was 7 weeks pregnant, with the Mirena still in place.
At 8 weeks, I had another ultrasound to determine if the doctor could remove the Mirena without causing a miscarriage, but at that time there was no fetal heartbeat. I had miscarried somewhere between the 7th and 8th week.
I had the Mirena removed- my doctor does not recommend that I use it again, since it already failed once. My husband is scheduled for a vasectomy.
Kelle, I am so sorry for your loss. I can't imagine how difficult this is for you.
I wanted to let you know many women will not see your posts if you are responding to an old thread. Most view the forum in a non-chronological form, so if you ever have concerns, go to the end of the forum (page 111 right now) and post there.
Please take care of yourself, and know you are in my prayers.
I'm in a confused state right now. I had a scare back in August. I had a test show positive while my IUD was in place. Had blood work done, but it was only a couple points saying I was pregnant. It was too early for an U/S and they suspected it was a chemical. I had a second beta done and it was negative. My doctor told me the test every month to make sure it doesn't happen again since I haven't bleed since April 2009. Now its Oct. 2009 and yesterday I took a $1 test from Dollar General. It showed a faint positive! I couldn't wait and took one more thinking it was a fluke and that one also was a faint positive. I'm not sure if its the tests, but having two in a row doesn't seem normal.
I also chart my BBT to see when I might have ovulated since I don't get a MP. Yesterday there was a dip in temps, cramping like heck, hips hurting and lower back pain. Have any of you felt this even with not being pregnant? I have a collapsed and tilted uterus and not sure if the IUD fits right. Like I said, I haven't had an U/S since getting this IUD.
I'm a mother of 4 and know what a pregnancy feels like and my baby is just 8 months old. I'm not sure what to do or if anyone would respond to this, but I'm searching for help!
I posted a picture on Canyouseealine.com
Its listed until Dollar Tree Tests. Please have a look and see what you think.
if you dont mind me asking what was the outcome of your pregnancy... so far I am 10 weeks and everything is ok but my other friends were able to have their mirena removed... I am the only one that still has it in because of the same reason yours couldnt be removed... I wish there was more information on live births with mirena still in place.
Hey I saw this while searching the same thing you were years ago... I just found out I am pregnant and I have been on the Mirena for almost 2yrs. I got on the mirena to protect from this happening but now that it is I want to do everything I can to protect my baby...I am terrified about the babys health. Did you end up having that baby and is he/she ok? I am so sorry if the pregnancy didnt last and if this is a bad subject but I could really use your help! I know you said you were keeping the IUD in and hoping to make it to your due date. Did you? I had a feeling I was pregnant last 8 days but thought of no cant be...well then I had a dream I was and BAM bought a test and to my surprise I sure am. I am going to get an ultrasound today. No idea if its in my tube, if the IUD is still in place, or what my situation is. I hope you are doing well. I hope to hear from you. Thanks
I wish I had known all of the before I let the doctor talk me into getting the Mirena. I just found out I'm pregnant and the doctor ordered a lab and once she gets the results she'll set me up with a visit. I'm in shock. I am 42 and completely done having children and I feel guilty that I cried when I found out and that my first thought was to get rid of it. I definitely FELT pregnant. All of the normal symptoms. But because I have the mirena I tried to live in denial for about a month. I have no idea what I'm going to do, but first I have to find out WHERE it is. I'm glad all of you are on here. I don't feel so alone.
I have had the Mirena IUD in for almost 5 years and had already decided I would get another when the time came. However, I "felt" pregnant for the last week or so... pregnancy test was positive. I, too, am in my 40's and was shocked and devastated to find I was with child. I chose the Mirena because we were done building our family (4 kiddos) and I have health issues that needed tending to. After the shock of finding out I was pregnant, my mothering instincts kicked in and I began a furious search for information and providers to help me make the decisions that would best benefit the health of my baby. The Mirena was removed post-haste but the waiting game began. I was told I had a 50% chance of miscarrying due to the IUD being removed, but it was safer than leaving it in at this time. I was told yesterday that my HCG levels are dropping. I cannot express the anguish I feel. It may not have been planned, but it was already loved. Never, ever, have I felt so helpless, so empty.
This is unfortunate, and this is my opinion on the situation as we are all entitiled to one. The Mirena is intended for women who do not want to conceive and is worrisome that we still can, sure the Dr. Said there might be a slight possibility but I never imagined it could carry on to 11 wks. I`ve had mine since 2009 & I got the Mirena because I do not like babies, there just not for me. I aksed my Dr. If I could get my tubs tied but he said I am to young for that so for now this is my only option. Now for those who are complaining that your worried about a miscarriage are just plain annoying youre doctor tells you all the side effects and risks before insert. They say specifacally that a pregnancy may occure but greatly fail due to Mirena, so if you all wanted another baby or feel bad about being pregnant while on Mirena and the chance of survival is close to none, sorry to say this but this is what you signed up for. To say you wish Mirena was taken out of the mareket is way to extreme and some of us like this option. I hope I am never in this unfortunate situation because I would be so mad at the fact that I am pregnant... good thing I ran into this, making appt asap to get mine checked up.
I have 2 children 3 and 4 years old. I had Mirena since the birth of my second child, about 3 years ago. Three weeks ago I started spotting but I though that it was not a big deal since the spotting is usual with Mirena. Couple of weeks ago I started to feel weak and light headed but I still though this symptoms were due to bleeding. About 10 days ago bleeding got worse and I started to worry so I got home pregnancy tests both came out positive. The ultrasound showed healthy heartbeat of the baby but there is a blood clot right next to the placenta. The doctor said that the IUD is too close to the baby and said that the best bet is to leave the IUD. This week was better, spotting got brown and the doctor said that this was a good sign. Today I took my children to the park, when I came back bleeding came back. I can not describe how much worry the situation is causing me, I can not sleep and just pray and cry all the time. I constantly feeling myself and on the alert. My husband and I want this baby very much. I can not believe that we are that 1% out of 99 that have to experience this. Please post, reading and posting gives me hope.
Here is my brief story outlined in a list! I would love to hear what others may have experienced
OCtober 2009 - Son born
DEcember 2009 - IUD place
2/1/2010 - Woke with one sided facial numbness which over the next 3 months turned into
1. Muscle fasciculations (twitching) in legs mailny calves
2. Perceived Weakness
4. Facial tingling and a feeling of facial numbness
5. Tingling in legs and arms
6. Weakness in one hand
7. Adies pupil and blurry vision
8. Feeling of heaviness in legs
9. dizzy at times and feeling almost drunk when walkings
10. Weight gain, especially after weening, literally 7 lbs in a week and I run 9 miles a day
I have had 1. Brain MRI 2. Spinal MRI 3. Optic Nerve MRI 4. Opthomologist visit 5. Evoked potentials and 3 neurological exams 6. Blood work. Everything is 100% normal. I am so scared it is something else but NONE of this started happening until Mirena. I just got Mirena out on Friday and hjave to say I am feeling better
Wow. I've struggled with #1-9 at various times over the last year since I've had the Mirena removed. I started having problems after it had been in for 1 1/2 years. I had it placed when my baby was 10 months old, however, so a little later than you. I had a brain and optic nerve MRI. Both normal. I feel better after a year since having it out, but still struggling mostly with tremors, weakness in my arms and legs (worse on the rt. side), heavy legs, vision distortio, slight dizziness (it was vertigo at first so this much better and doesn't bother me too much), occasional twitching (most recently my eye lid twitching horribly for a month. Now it has stopped.
Get the IUD out and start recovering! Glad you've joined us!
I hope you are doing ok and have continued to feel better. Thank you for sharing you symptoms.
I had mine in for 4 years
only leg pain
Arrived at complete loss of posture
Began to have sudden weakness
upper back pain
Emotionally like I was pregnant
Lack of coordination of legs and hips
Flu like symptoms
Loss of appetite
extreme pain in various places
Numbness in half of face and slight damage to vision on that side
pain in knees
loss of walking
feeling like nothing is supporting my insides
See sick felling
exhausten all the way through
obbsessive thoughts about suicide
7 weeks post
Have regained walking
Weakness has improved
No more anxiety
Feel that my body tissues are damaged but don't know what to do about it.
Still some pain
horrible feelings in body
extreme body odour
Auto immune tests
have all come back clear, but I know something is still wrong.
Having nerve and muscle tests on the 15th
Thats my Mirena story told a concisely as I can and i have probably missed some symptoms. This site is amazing and you will find it an absolute godsend through your recovery. Take it easy on yourself. This can be a slow process, so give yourself time.
November 2009 -son is born
January 2010- IUD inserted
end of OCt. 2010 when I started weaning my son I noticed a numb spot would come off and on in the middle of my back, like someone had applied icy hot. I also had a day of vertigo.
since then, I have experienced the following:
1. facial numbness and tingling, more on the right side around the ear, but also other parts of my face and lip.
2. legs numb and tingly especially calves. More on the right side also.
3. restless leg feeling, especially at night. My leg feels tight and like it wants to twitch, but it doesn't
4. My body kind of jerks as I am falling asleep, like I am scaring awake.
5. stiffness in knees, particularly when I take a bath.
6. Numbness and tingling in arms and hands
7. dizziness and nausea -I feel like when I am pregnant or motion sick.(I am NOT pregnant)
8. throbbing/aching in legs, more in right leg
9. anxiety -probably due to the fear of having MS
I have had an MRI- it showed tiny spots, but the neurologist wasn't sure if they were normal for my brain or due to something else. The report said not diagnostic of MS, but early ms could not be excluded completely.
Blood work was all normal. I had a spinal tap, but the results will not be back until later this week. I am praying it is all normal and I do not have to head over to the MS forum. I have not had my Mirena out yet, but if this test is normal, I will.
Hope this helps you!
I am so thankful to have found you all. I have had so much anxiety that even thought ALL tests point to this not being MS it could be. But now that I know that others are out there with the same problems I feel so relieved. Trisha, I will be eager to hear what spinal says; I am confident it will say nothing!
My report said exactly the same thing...two tiny spots not diagnostic of MS, but early ms could not be excluded completely.
I am scheduled for an MRA tomorrow because I have an unusually large blood vessel in my head and I guess they are worried about aneurism (sp?).
Funny thing is, my facial numbness has disappeared in the couple of weeks that I have been making trips to the neurologist. Now, I spent Friday night in the ER having chest pain, for them to tell me it wasn't my heart, but my chest wall muscles spasming.
Gotta love Mirena!
What did your neurologist say about your MRI report? Did he think it could be normal for your brain? Did he encourage you to have a lumbar puncture (spinal tap)? I am so happy to hear someone else had something show on their MRI, but still not MS. I have been thinking I was doomed because mine showed something and everyone elses was clean. I am praying this is just the Mirena. There is a good chance I will have spinal tap results tomorrow. I will let you all know. PLease keep praying for normal results! I want this chapter in my life over!
My brain MRI said I have 15-20 tiny lesions on each side of my brain. My follow up with the neuro is Wed. The report said the pattern is not the usual for MS, but it can't be excluded. Could also be blood vessel problems. I think they will do more tests. . .I am 15 months post but Mirena was outside the womb so I got a 10x dose of progestin (according to the 1 medical journal I found on the subject-)Good luck on your results, fabteach, and welcome ashymae.
I haven't gone back for the revisit since the MRI since my doctor has cancelled out on me TWICE. I went to the hospital and picked up my own report. I'm supposed to go in next Wed. to see what the doc. says.
Hi- I know this is an old post- any updates on your results? How are you feeling now?? I am about 3 months post removal and still have symptoms. This has been the worst year ever. Any updates would be helpful. Xo allie
The side effects that everyone is experiencing, that they think is or is like MS, is not MS it is a bad side effect of levonorgestrel, a harmon that they use in your IUD/Mirena. If you are having these side effects, you should have it removed as soon as possible by a ob/gyn, not yourself, and do not let anyone talk you out of doing it, unless you want to have worst problems. You can look at the list of side effects caused by levonorgestrel on, http://www.drugs.com,
and put levonorgestrel in the search engine.
I just got my IUD out on friday and already feel much much better. It is almost like a year from absolute hell that is finally over. I cannot believe all of the MRI's and other tests I went through were,most likely, due to mirena
I am from Poland, and- any way, first sorry for all my mistakes and missunderstundies ;)- but I'm reading this forum and I start to scare! I have Mirena since 3 months and I feel worse and worse :( I saw many doctors- and nobody see anything bad, but I feel sick! Do you really think that there is a problem with MIrena?
In Poland all of doctors whom I know (gin) say that it is the best way and the most saftly from the other??
I will be really very happy when you will answer me!
All I know is that I never had visited an online health forum in my entire life until my health fell apart while I had the Mirena in. I am slowly getting better now that the Mirena is out. My Dr. also said the Mirena couldn't do this. Just about every one on this forum had a Dr. who said the Mirena could not to do this. But they are obviously wrong (the Drs.). Just keep reading, and you will start to see the truth.
I'm reading these posts and literally feeling like there might be hope in the future for me. I am having my Mirena out next Friday. My doctor says "It's been lost in your vagaina". Great.
I had my IUD put in in 2009 with very little side effects. I was thrilled that my periods were so light. I bragged about how great it was.
This summer has been living hell. I woke in the middle of the night to painless muscle twitching in my legs. Annoying, but I didn't think much of it. Now, in October, I have muscle twitching over my entire body, my leg and arm muscles are so weak I can barely walk or hold my hairdryer. I have had MRI's, xrays, bloodwork enough to fill the blood bank, Lyme disease testing, nerve testing, and seen 5 different doctors. I cry ALL the time. A mother of 2 (3 if you count my husband) I don't want to slow down, and this has literally immobilized me. At one point I thought I was having a seizure because the "buzzing" wouldn't stop. My joints are inflammed, and I hurt everywhere. I sleep, but wake up as if I haven't slept in days.
My doctor's response "You must have a virus". Thank you all for posting and making me feel as though there is hope on the way. I will keep you posted on my status after they rip this thing out of me!
I got my mirena inserted around april/may of last year and have been seeing ear/nose/throat specialists since september. I have beendiagnosed with acid reflux (but don't even feel it) and am having major problems with my mouth and throat. I have on 2 heavy doses of acid reflux medicines for 3 months and nothing has changed. It's hard to explain but its a constant pain that was never there before, its kind of like I always have a lump in the back of my throat. I am a medical mystery according to my doctors, but he keeps saying that he thinks he is missing something. It dawned on my husband and i that it all started beginning a few months after I got the IUD put in. I am (or at this point was) a very healthy 31 year old. Needless to say I scheduled an appointment for wed to get this thing out. I never thought that having something inserted in my uterus could cause this many problems in my body, but it has to be. I went through so many blood tests and ruled out everything else they could think of, but it seems it comes down to my hormones being all out of sync.
Has anyone else had such strange side effects? It has ruled my life for the past 6 months and it has been misserable. Hopefully getting the IUD removed will help me somehow.
I had similar problems with my throat while having the Mirena. I was also diagnosed with reflux but never believed that was the problem. The ENT specialist just didn't know what else to call it. Several months on meds didn't help me either. Throat problems like yours can be attributed to an autoimmune response from the IUD, probably from the silicone it's made of. The Mirena has been associated with all kinds of autoimmune symptoms/diseases. I'm glad you're getting it removed. Hopefully your body will recognize the foreign body is gone and give up the attack. Be patient...it may take time.
I had my Mirena in a year before I noticed the throat problem. It felt like the lump you are discussing, but it was also like I couldnt get a deep breath at all. Went to the throat specialist and the gastrointerologist...no one figured anything out. When I got the Mirena removed, I no longer had the problem breathing, but the acid kicked up and I could actually taste it in my throat.
I think it is different for everyone since our hormones are all trying to regulate. Hopefully this Mirena hell will be over one day.
I had the same problem and suffer from reflux abouth 3 years. Never relate this problem with mirena, but the first thing I notice right after removing Mirena is that I didn't need to take my acid reflux pills any longer. Hope you feel better soon.
I felt like my throat was closing and that was one of the reasons for removal. Before I had it removed I also felt a lot of fullness in my ear and popping. The throat stuff has gone away, but the ear problems keep repeating. I also feel a fullness in my neck and have a small lymph node that has been popped out on the side of my neck for months now. They all say it's nothing. But hard to believe when you know you don't feel normal.
Thank you to all of you that replied. I can't believe it took me this long to figure this out...i just hope it is the cause. One thing I forgot about was that the only bloodwork that came back wacky dealt with the autoimmune but the doctors all said it wsn't related...
how soon after you got your mirena's removed did you start to feel relief. I have been patient for 6 months, so I guess I can handle anything.
Thanks again, and I am glad I am not crazy!
I am 15 months post, and I still sometimes have a hard time swallowing. My tests for autoimmune also came back "hinky", but nothing she could pinpoint. that's why she gave me the diagnosis of drug induced lupus.
Some of the symptoms I had cleared up within a couple days, or DRAMATICALLY improved. Others, mainly the fatigue and mild anxiety are still lingering. Like L said, if I look back to where I was a year ago, I feel great. If I look back to pre-mirena, not so great, BUT I am 6 years older (42), very stressed out, in the middle of a gloomy gloomy winter, and in menopause. I dont know how much those things play into it. the stress is probably the kicker.
I had mine in for almost the full 5. I think for many of the women who did not have it in so long the symptoms clear up quicker.....hang in there!
I had the Mirena in for just shy of 2 years, and I too had/have the same symptoms. I have a swollen lymph node on my neck, and I am also having issues with acid reflux (never had issues with digestion before). I had Mirena removed almost a week ago, but I don't feel that much has changrd. I have digestion issues, anxiety, insomnia, night sweats, headaches, mood swings (severe pms), etc. Can anyone tell me if their acid reflux ever resolved?
I also am experiencing throat problems as a result of Mirena. I've never had problems with my throat or acid reflux in the past, but since the Mirena I've been diagnosed with reflux and sometimes, I have this annoying, faint pain in the back of my throat. My symptoms seem to get worse in the winter than any other month though.
I'm going to be watching for this. I just had the Mirena inserted three weeks ago. I happened upon this site because I started what appears to be another cycle this month and I wasn't sure if that was a side effect. Oddly enough a had a couple of other issues going on that I hadn't even connected to the Mirena. I have broke out in a horrible rash, mainly on my face and down my neck. Then when I saw your post it made me wonder about my throat. Years ago I used to get fever blisters on my tonsils. Just recently I have had that happen again. I will be keeping a close eye on these issues. I am already wondering if I should have the stupid thing removed and am ashamed that I didn't do more research before I made the decision to have it inserted. Like many others my obgyn recommended it highly and boasted about the fact that there weren't many side effects.
First of all do not be ashamed...unfortunately most of us are in the same boat. I would suggest if all this started happening after mirena was inserted...GET IT OUT! I wish I found this site sooner and would have put it all together much sooner than I did. I am one week mirena free, not much has changed, but I have a good feeling that it will.
OMG!!! I have had the same symptoms. I had the Mirena inserted June 8th and removed Aug 3rd, 2010. I am a professional singer and I felt that the Mirena had everything to do with my voice not being the same. I feel so bad because the Nexium that was prescribed didn't help at all. I wish that they had a pill and my voice can go back to normal. I am so upset with myself for getting the Mirena, thinking that it would help with my periods, but it made everything else, especially my voice, worse. I wonder how long does it take for my voice to go back to normal. My ENT Specialist told me that I didn't have any nodules on my vocal cords so that's a relief, but however, I need my esophagus to stop being swollen, due to the acid. I have never had GERD/acid reflux in my life until the Mirena came into my life. I am just praying that God will relieve me and make my life normal again! Has anyone had any relief or their voice back to normal since their removal of the Mirena? If so, how long did it take and what did it take for it to return? Vocal rest? Any home-made remedies? Please advise soon! Many blessings!
I had my mirena inserted in March 2008 and started having severe acid reflux issues in January 2011, as well as digestive issues that have been diagnosed as IBS. My gastroenterologist doesn't believe they have anything to do with my mirena, though she can't tell me what is causing the issues. Acid reducers (2 Prevacid a day) and fiber seem to help some of the time, but never quite do the trick. Has anyone else also experienced digestive issues such as cronic gas, constipation, or diarrhea since having their mirena?
Unfortunately Yes my self and many of us here suffered with reflux and many other side effects. That was one of my first symptoms and I took acid reducer medication for 5 years. I lost so much weight that even water make me feel really sick. I'm now 3 years post removal and although I still suffer from other side effects from mirena, the reflux problem is gone. I can now eat anything even spicy foods. Don't trust your drs so much I trusted them and now 3 yers after removal my health is not back to normal, and till this day they still don't accept that mirena caused me so much damage. Get it out before it gets worst.
You might want to remind your doctor that progesterone affects smooth muscle. Your esophagus and intestines are made of smooth muscle. It's all related. I had the same issues. The Mirena has been out 4 years and those probs have been gone for a long time.
I had the Mirena inserted in November and got acid reflux about 3 weeks in. Nothing seems to help it go away. I'm fed up with it. I also lost vision in my right eye just after Christmas that is still being tested to find out why. But I'm considering removing the mirena since these two things occurred after mirena came into my life. I had it put in to help with my iron deficiency but now I'm not sure what's worse!
Hi. I know your message is very old but I am hoping you still see this. Did your situation improve? If so, what helped? I have the exact same symptoms as you had. Got my Mirena in December and started having problems in February. Has it taken out a few days ago. Just got results of endoscopy and said mild reflux. Going to try new medication but wondering what happened. Thanks!
I have had the Merina IUD in since October 2005, after the birth of my second child. Almost immediately I did't feel quite myself. The first thing I noticed was increased irritability - like having PMS all the time. My face also started to break out worse than it did when I was 16! I spoke to the OB at my next checkup and she said the hormones from the IUD were so miniscule that it couldn't possibly be causing the moodiness. She suggested an antidepressant, which I turned down because I fear them and I was nursing. Over the next few months I noticed I was starting to have heart palpitations and even hot flashes as well as the acne and some weight gain. My mom (who was going through menopause) said my symptoms sounded like hers. Being only 32 at that time I dismissed it. The symptoms seemed to come and go. At the worst times I would go in and have my thyroid levels checked (mostly because of the racing heart, feeling like I was going to climb the walls. I had a hyperthyroid at 19 so this seemed logical). Every time I was told my thyroid levels were perfect and I would go on about my life. 2008 has been a bad year all the way around and my stress level has been horrible. In June I attempted to give blood and was refused because my resting heart rate was 118! Well I remembered my husband telling me several times that my heart was racing when he would have his head on my chest. This started to worry me and I soon went in to the doctor again. My resting pulse there was 135! Now, I was terrified that she was going to tell me I was having a heart attack, so that surely had some affect on the rate, but still! She did an EKG which showed sinus tachycardia. She tested my thyroid, as I had other symptoms like irratible bowel, anxiousness, insomnia. It came back fine. She told me to cut out all caffeine (I hardly had any in my diet to begin with) and to stop all herbal suppliments. She also put me on a low dose of a beta blocker. Three days later I was in the ER and had another EKG showing the same result. They tested my electrolytes, which were all normal. The doctor then ordered a 24 hour urine test to check for an adrenal tumor and doubled the dose of my beta blocker and put me on an antidepressant to boot because by then I was freaking out! I had a week wait to find out that I had no tumor - thank God! Now she is simply treating as anxiety, which feels like a band-aid. Now it seems as though the beta blocker is not working well - pulse between 90 and 100 for the last week straight! I am thinking that I am likely due for a period, but since I don't get a period on this damn thing, I can't know for sure.
I started researching this week trying to find answers and it looks like the Merina Monster may be at least a good part of my problem. I told my husband that it is time for "snip'snip" and I have an appointment to get it out on Monday.
Has anyone else developed not just palpitaions that come and go, but a more persistent tachycardia? Would my hormones be so far off after nearly three years with this bane of my existence?
Several doctors have said "no way is it the Merina". I have never in my life had anxiety issues before, and the only time I had a racing heart was with the thyroid issue and that is gone.
Interestingly enough the nurse at the doctor's office had her Merina in about as long as me and she said intuition told her that her problems traced back to it. She had it removed and she said that three days later she was herself again.
Any advice for surviving the crash?
You can e-mail me privately if you want or keep it public.
My heart rate always felt way off w/Mirena. It affected my breathing as a result and of course made me dizzy because my brain was not getting the right amount of blood and oxygen. I had a hard time with cardio exercise, and I had put on 40lbs and was just miserable. With the Mirena, I would have one cup of coffee in the morning with breakfast, no more than 10 oz, any more than that would make my heart rate crazy. If I happened to have a second serving of caffeine, via coffee or soda, I would have to sit down and wait for the side effects to pass. I would pound a lot of water to try and flush my system. I had the Mirena in for 3.5 years and it has been out four months. I can drink two cups of coffee now and sometimes I have a third in the afternoon with no problems other than keeping me awake. The crash was easy to get through, but the day before my period isn't easy. I get achy in my joints and muscles and get migraines. Its decreased in severity every month. I just started seeing a general practitioner about an unrelated problem and we discussed the side affects I experienced from the Mirena and she agreed that my side affects were related to the hormone in the birth control, whereas the NP from a different practice who removed my Mirena told me it was highly unlikely my symptoms were caused by the IUD and more likely came from stress. I see an endocrinologist 2x a year and he agreed that the IUD was the cause as my thyroid levels were all conservatively normal. Good luck.
The doctor gave me the same song and dance as when it was first put in and when I first complained. Couldn't possibly be the IUD. She even had the gall to say that my current hormonal state is likely more my natural state than when I was on the pill. Needless to say I will never go back to her.
The strings had disappeared so it took some doing to get it out and I am having a lot of cramping now, but it is worth it for the relief I feel having that thing out.
This is what angers me most about this whole thing, that despite the fact that these side effects are listed on the physician information insert, printed by the makers of Mirena, the doctors continue to say it couldn't be the IUD...they're so full of it!!! check out page 13 of this link, it's right there in black and white. Print it up and take it with you to your removal appointment.
As far as the 'crash' is concerned, there's not a whole lot you can do to make it better, but knowing to expect it will help you cope, you'll know your not going crazy. It also helps to have a good support system. Good luck :)
Only thing I can say about the crash is to have a good support system to remind you that this is normal. You may get depressed, experience anxiety, have physical symptoms, etc. I kind of felt like I was going to lose it during this period. I took some time off work and talked to my mom and girlfriends a lot. Distraction helps. Laughter. Fresh air. We're all here for you too. You'll be ok. Just get that thing out.
I had my mirena out about 3 mths ago,after having it nearly 5 years,I also suffered heart palpitations(SVT),I am on Metoprolol to control them but, I still get them bad so I started taking Magnesium to see if that helps and it is a bit better,I had my thyroids removed about 2 years ago,just after the op I got my palpitations and couldnt stop them so they wired me up and I had a heart rate of 172,the next was the worst I had to have the injection called Impending Doom to slow my heart rate and was in intensive care for 3 days,My palpitations got worse while on Mirena,luckily I have learnt how to stop them myself Most of the time.
Its an electrical problem in your heart that causes it,you can have an op to fix it ,if they can find the exact spot where the trouble is.Try the magnesium.
This is how my whole mirena ordeal started i was just sitting watching tv my heart just started racing felt like it was going 200bpm then i started blacking out it was very scary my mum called the ambulance they said it was just a anxiety attack yeah right !! this has never happened before then from that day on it just got worse and worse with many other side effects until i realised it was the mirena causing all of this thanks to this site which my mother found for me cause the doctor kept telling me it wasnt the mirena causing all of this and i believed her , it has now been 9 months post removal for me and doing a lot better still not right just before my period and during i still have a bit of joint and muscle pain and numbness and tingling in my feet and hands around that time my period that is and a bit of anxiety , the racing heart went not long after removal thank god cause that was scary everytime it would happen i thought i was going to have a heart attack!!
I have had mine out for three months and still have heart palpitations when I get my period. Even though I'm pretty sure it's from the mirena it still scares the crap out of me every single time it happens. My side effects were...
First palpitations-felt like my heart was turning flips in my chest
Second came racing heart up to 157 while at rest-probably panic attack b/c of palps.
Then I started having chest pain, shortness of breath every now and again, blurred vision, DIZZINESS with the palpitations, sick to my stomach, you can see my carodid artery pulsating....
I have been to a cardiologist all test were normal other than a few PVCs and dropped beats on the holter monitor. Stress test was fine, echo was fine, all EKGs have been normal. All blood work has came back fine so has chest xray. So that just leaves the hormone imbalance from the IUD!!!!!!
I feel like because of the palpitations now I notice every single little thing that goes on in my body. I use to not worry about anything. I quite drinking caffeine, stopped smoking, and having drank alcohol since all this. But still the palpitations. Does anyone else feel like they are messing up your whole life?
I still get palps around period time i also had to give up drinking coffee which i love i do still sneak a coffee here and there but i do pay for it and i havnt had a drink of alchol for about 10 months now i had to give that up to !! i wish i could go back the way i use to be just carefree and happy and didnt worry about nothing this has really taken a toll on my life i hope one day i can be 100% my self again
Hi Aussie Girl,my Dr told me to take magnesium to help control heart palps,it has been helping a bit and I get mine worse just before my period also even the Metoprolol i have been on for years doesnt control them so thats why im now on Magnesium as well.
Good luck from another Aussie.
Oh my! This is me. I just started the heart "flips" and shortness of breath last week. It is not going away but I have times when it is so much better. Seems to come on strong in the afternoon. I have been dizzy often and lost a lot of hair, not to mention the bloating that has been happening for the last year and a half, but this is crazy. I have never had heart problems (except short of breath and dizzy when pregnant - gee lots of hormonal changes during that time - right). I know I am not preggers. I am on a holter right now and searching for answers because so far they are telling me everything looks fine. Doctors say NO RELATION. Feel like I am so weak since the only solution so far is to sleep more and not have stress. Whatever, I have not slept in 9 years since my first was born and I have no more or less stress than usual. I do not want to live like this. Has it gotten better or gone away after removal? Reading all these posts made me think that as soon as it was out I would be cured or soemthing. Please keep me posted!
I do and am getting it out on Thursday. I am so short of breath that I cannot seem to do anything without feeling winded and am still havin minor palpitations. I am hoping that it will all go away once I have this out, but am getting doubtful and scared reading all of this? Does that breathing thing sound like a side effect you have heard of on here?
Kdogg-you might want to post this as a new message. You are posting under chronologicocal order, and may not get any responses this way. (you responded to a very old post)
I know there are several women with the same symptoms-some current posters, who may be able to help you, but anyone with the "standard view" will never see your question. I cant help you b/c these arent my issues. there are women who can. Hang in there!
Hi wanted to know if your palpitations went away? I have been suffering from the same symptoms as you and its been 2 months since i had mirena remove,i had the mirena in for 4 years.I had tachycardia before removing mirena so i had to go to the er but everything was fine they said i have anxiety attack, so i had my mirena remove thinking that was the cause.
I am so glad to find this forum as after reading posts by all of you ladies I feel less alone. Some background on me.
I always had very normal like clock work periods. When I was 19 I had an accidental pregnancy. I had shied away from hormonal BC prior to this because I was afraid of the hormones. This was no longer an option for me. I started on the BC pill. Was miserable gained some weight in the first year and had no interest in sex what so ever. It was definitely effective as far as BC on that note.
Deciding that I needed less hormones I considered the copper IUD. I made an appointment at Planned parenthood but was talked into the Mirena since they didn't recommend the copper IUD because of the long periods and cramping. I explained my problems with hormones and was assured that mirena is such a small amount of hormone and that it only effects the womb. I went with it.
I continued to gain weight. I went from 125-130lbs to 185. Since the initial weight gain was from the pill at the time I didn't really think about how much i was gaining on Mirena.I would say about 2 or 3 years into mirena is when I noticed the hair growth on my chin. we are talking gnarly crazy spiky chin hair that I had no choice but to tweeze away. I was able to get by doing this for quite some time. However over time it got worse. I asked my doctor for a scriipt for vaniqa to try to help with it. This seemed a fix for a while. Over time it got even worse to the point to where now its out of control.
I was never certain that it was mirena that did it. Everything else seemed to be great and I was one of the lucky ones ( or so i was naive to think at the time) who longer got periods as a side effect.
5 years in and I switched out for another. I'm 2.5 years into my second mirena. So its been almost 7.5 years of usage.
Over the past several years my already fine hair had started to get finer and fall out. For the longest time my husband told me i was paranoid but even now he cant deny how thin it is.
Two years ago the cystic acne began on my back. Ive always had a degree of acne but never cystic or body acne. It was so bad I went to the dermatologist earlier this year for accutane.
I was also put on Spironolactone by my diabetes ( type 1 juvenile auto immune type not 2) endo to help combat the hair growth and hair loss. ( androgen blocker).
I went to see a specialist on PCOS and LOCAH as it was suggested that maybe because I am on insulin its stimulating my ovaries to produce androgens like in PCOS.
Did you know that ever single person I have asked has poo pooed me when i asked if mirena could be causing my imbalance?
They told me that I don't have PCOS but a variant caused by my insulin that I have to inject. They couldnt even put me on the PCOS camp I recieved no official diagnosis! Plan of action lose weight and go on a low carb diet.
That's all fine and dandy and I need to do it anyway but it didn't explain my symptoms or why everything began after I was on the mirena. I have been diabetic since i was 16 years old and like i said before regular periods normal hair growth etc etc.
Mirena sparked this rebellion in my body. Oh i do not have poly-cystic ovaries however i do have what my doctor referred to as a normal amount of cysts. I have since found out mirena causes cysts among all the other nice symptoms I am having.
So here I am freaking out thinking I may have some version of PCOS, and that I may not be able to get pregnant when I start trying. Now I am again wondering if its the stupid IUD.
Thanks for reading and sorry its so long and jumbled/
I'm new on this cite. I googled Mirena IUD side effects & your post popped up.
I had my first Mirena inserted in March of 2007. I had it removed on 10/22/08 which was the same day I got my second on inserted. I got the first one removed because it was extremely painful & at one point I thought I was pregnant. Come to find out it wasn't positioned correctly. Anyways with the 2nd IUD, I am having pretty much the SAME symptoms as you. I have the WORST acne I have ever had in my life & it is everywhere. Face, back, chest, scalp, behind ears, neck, arms, I mean almost everywhere. I also have hair growth on my chin, side of my face, & some on my back. In addition to my hair breaking off more easier & it thining out. I also have breast tenderness, back pain, feel fatigued all the time, and I have had a loss of sexual interest. Not to mention all of the weight I have gained. I went from 165 to 222 from 10/22/08 to 1/9/2010.
I went to the doctor on 1/4/2010 to check out my issues. He thought I had PCOS so I got blood work done & everything came back fine. I am so concerned over these changes going on in my body. I am tired of feeling fat, ugly, & tired. I want to get this IUD taken out but I don't want anymore children right now. And pretty much all birth control out there I can't use because I weigh over 180 (Thanks to Mirena!!!!) I am so stressed over the whole issue. I have an appt with a dermatologist for my acne in a few weeks, hopefully I can find out something. But, I doubt it... No one wants to blame the mirena. I got to figure out something because this is pure hell!
Sorry just venting! But I just wanted to let you know that you aren't alone & you aren't going crazy it has to be this IUD!
It is frustrating to go through all of this, especially when doctors don't want/know how to give clear cut answers. I'm 28 now and stumbled upon your story in doing research on IUD use with PCOS. I wanted to share with you that your experience of developing PCOS symptoms (weight gain, hair growth, all of it) mirrors mine exactly at the same ages, except that I was not using an IUD and I do not have diabetes (pre-pre-diabetic at most checks). I was actually taking birth control pills and still developing symptoms due to gaining weight (poor habits on my part). Given that PCOS seems to start to rear it's ugly head in that age range, and is very involved with the endocrine system, it is possible that you had PCOS which was unchecked with the Mirena as other forums I have read have noted that this happens to women with PCOS when switching from hormonal birth control to Mirena. Obviously every story is different but I wanted to share mine since ours seem similar. Hope you're finding some resolution.
This is me!!!!!! I know this is an old post, I have just found it as I am trying to get some answers for what I have been going through! I am 46 now and have had my family - but same history of 'undiagnosed PCOS', no abnormal cysts but all the hormonal disruptions. After years of disastrous hormonal bc, I went off everything - felt amazing! Regular as clockwork, new my body/cycle, felt great (now I look back lol).
Then I had a high cell change in my cervix, unable to use my old fashioned diaphragm anymore - let's give you a mirena while you are in surgery! Hmmmm.......I don't really do well with hormonal contraception.....Oh rubbish (HE says) so off we go. I must admit the idea of having no period did sound like a bonus. So I get ready for the 4-6 month settling period. That in itself was a nightmare, but I was determined to have the fabulous result all my friends with mirena had.
Long story short, it never settled - I had it in for 2 1/2 years. It was getting to the stage I was continually bleeding/spotting. All the horrible PCOS symptoms I had almost forgotten about were creeping back with vengeance. I was put on Lovan for my PMDD (at that stage I didn't even think back to PCOS, life was stressful - just figured it was part of that)
The facial hair, hair loss - weight, weight, weight!!!! My GP was lovely, but she had a mirena herself which was textbook perfect, I know she thought I was just depressed and was humouring me. Twice to the ancient endocrinologist to be blow off both times with 'lose weight, you are not that hairy'
So it came out, 4 months on still bleeding/spotting, which I expected 🙄
I am back to see GP early Feb, she has been on leave armed with all my info, I am suggesting I go back on the metformin (I had success on it back then) and because I also have 'mysterious' HBP (which I have never had in my life, even when I was pregnant! Oh I know.....it's because you are overweight, blah, blah) I may suggest we switch med's from coversyl to spirrolactone? I am honestly at wits end......thanks for listening
I know this is an old post...
But I couldnt help it.
I am 28... I have had mirena lodged in my cervix since 2014... And I already had PCOS. Like these ladies above, I was researching PCOS and IUDs (or mirena) and found this. My PCOS has gotten especially worse since my doc suggested this shit birth control to me. And I really like her.... So it sucks. She has been the only doctor to help me and get it all right with me...she even found a chiari malformation (in my brain) which lead to brain surgery and saved my life. She's a damn good dr.... I wonder how she missed this?! She knows about PCOS... Maybe the fact that mirena, on top of being a legitimate torture device alone without the PCOS addition or magnification, causes it to get worse... And may actually cause this horrible syndrome...just slipped passed her brilliant brain? I use mirena because I have endometriosis and adenomyosis and it helps with all that slightly. It's all pretty severe... And I just happen to have PCOS also. Now I know why everything has been hell since it was put in! It a) makes since now... To a certain extent. Now to bring it up to my new Dr (I moved away from the be brilliant one... Back home so I could have brain surgery in the best medical center in the world) Hopefully my new Dr can handle all this. She already wants to put me through another round of depo lupron.... And I just can't do that again. No way. It was hell. Well not as bad as all the pain. I just couldn't sleep at all for a week.
Thanks for the OP. I needed that! And thanks also for all the replys!! It really helps to see that others are going through the same and I'm not just a crazy person LOL!
Have a good one
And good luck everyone!