After reading all of your messages I feel obliged to let you know that lichen sclerosis can indeed turn to cancer. I know because I have had three laser treatments in that area where they burned the skin off right down to the last layer and still ended up with two major surgeries. I know this is not what you want to hear but it is what you need to hear. I have had both a vulvectomy (first surgery) and a radical vulvectomy because of cancer. Doctors try to avoid this disease because they don't understand what they are dealing with and some really don't seem to care. I have seen MANY, MANY doctors about this and not one of them prescribed anything but the steroid. After ten years of suffering, I tried yet another doctor because I had moved to a new location for my employment. Thank goodness he was "with it" enough to immediately take me off work and get the ball rolling. I would not be alive today if it had not been for this man. Seems like all of you - the ones I have read anyway - have so far escaped this. I was given steroids and, not knowing what the side effects of steroids were, used it all the time and in ample amounts. Not one of the doctors I had seen prior had mentioned anything about the dangers of this cream. I cannot stress enough to use anything BUT the steroids.....anything!! Obviously, I am very depressed about having my vulva and clitoris removed but at the same time I am happy that the doctors, and I had a team of them, found the cancer in time to save my life. I have grandchildren - 5 of them - and I want to be able to enjoy them - I have learned so much from this forum that I feel I may have been able to avoid such measures if I had had more faith in the internet and what's on it. I still have lichens sclerosis on the parts that are left so I will indeed try some of the things that you people have suggested here. Thank you!!
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