Hi there. I'm new here. If you read my profile, I am almost fully recovered from chronic fatigue. My recovery comes from avoiding fluoride, dry fasting, checking my PH daily, and dry fasting.
Also I've been on the raw food diet for 5 weeks.
Not only did I lose 15 pounds, 4" on my tummy, but my energy, sleep, digestion are recovered (But I still have a sinus infection.)
The immune system takes a long time to rebuild.)
My face doesn't look 10 years older anymore. I see a glimmer of my young self again.
My skin glows, my eyes look bigger and brighter,
my cheekbones are back (because my face is no longer puffy), my teeth are re-mineralizing,
and my hair is finally growing thick again. Yay!! And I can wear belts again!
(I was looking allittle sausagey).
I wrote about my experience with the raw food diet on my blog.
Here's my link http://whatchickstalkabout.blogspot.com/
This has been the best diet ever!
Because it's not about losing weight,
which of course will happen but it's not the biggest benefit.
The greatest thing about it is it gives your body the raw materials to
build your most healthy, young body and face ever.
I just have a few questions about dry fasting, that I talk about on my blog:
When you are still detoxing, on a dry fast, if you feel alittle thirsty, should you drink water or not?
After you have detoxed, after many years let's say, does your water intake really become very low?
I've heard of people on raw food diet, who dry fast after 2 or 3 oclock and almost drink no water. Is that possible?
Sounds good for you Pamela, but I prefer the Warrior Diet to Raw Food only mostly because I find it easy to fast for 19/20hours and eat within a 4 or 5 hour period and still keep weight off and even lose some pounds. I would find Raw food too restricting -I really love warm meals -hot soup, hot cream of wheat, etc.
And about dry fasting, I am on day 6 of water fast and am drinking when thirsty. When I wake up I have real thirst and don't like the feeling of being dried and thirsty so I drink a little water and more water as the day progresses. I am sticking to drinking water than dry fasting (since that seems too much to do). And I have had enough detox systems -back pain for one, that with a dry fast I think it would be worse.
there was a group of people in 60's who used to fast on nothing, no water or food. supposedly after 4-5 days they would begin to urinate darker and darker fluid until they would pass black tarry urine for a few days, at which point they would become very thirsty and drinking water was encouraged. they claimed that drinking water at the beginning of a fast actually stops detoxification .
Most information on dry fasting comes out of Russia. They are the experts. It is indeed, no food or water. But the body has to be cleaned, and diet improved first. Meat, gluten, dairy, coffee, sugar, junk ect need a tremendous amout of water to digest. Also salt obviously takes alot of water to expell from the body. I wouldn't attempt dry fasting until these things are out of the diet, at least for a few days. (I am on the raw food diet 95% of the time. It's ideal because it has only salt from veggies.)When you dry fast, you should be no more then very mildly thirsty. If you are thirsty, your diet is not clean enough. After, your diet is improved, you can dry fast by having green juice for supper at 5. After that, no water or food. This gives the body a chance to detox faster than regular food fasting. You can work this into everyday. (If you are thirsty, you should drink water.) As your body becomes less thirsty during your fast, you can go to the next step. Move up your supper to 3 o'clock. (Start your morning with a couple glasses of warm water.) Let your body's thirst be your indicator for each step. Then the final step is to do a 24 hour dry fast once a week. This means you eat all the food you want (remember raw food diet is best, I eat what I normally would in the whole day, before 12), then dry fast until noon the next day.
Wow this is a long post! If you want more information, you can look at my blog, (part 4 of raw food diet talks about dry fasting).
Here's my link
I just finished 6 weeks raw, and did my second 24 hour dry fast. My skin looks even better, and I lost another 2" from my stomach:)
I've also been dry fasting daily for about 16 hours over the past 6 weeks or so and believe i may have embraced it as a lifestyle.
I actually fast mornings instead of evenings and eat until about 2 hours before bed time. My reason for this preference is that my appetite is generally a lot tougher to resist later in the day than it is early, which for me is quite easy, especially after about 3 days of acclimating which trained my body to anticipate this schedule and be happy with it.
Thirst hasn't been any kind of an issue thus far and during the 8 hour feeding window i do drink a fair amount of herbal & green tea and get more water through a lot of veg and fruit.
My longest dry fast was 3.5 days about 3 months ago. That actually turned out to be too long in my unique situation and i really should have stopped at 2 or 2.5 days when thirst became moderate to strong and quite persistent. Nevertheless i was experimenting (cautiously i felt) and curious to see if my body would adapt and the thirst would relent... which it didn't. I don't plan to resist heavy thirst again, but with enough comfortable training perhaps my body will become better at this :].
From my research, the reason to fast after 3 or 4 is increadibly important. An empty stomach, no work (no food assimilation) for the liver and kidneys put you in the best position to detox. All of your organs have no other work then to clean cell by cell. I find dry fasting after 3 makes me sleepy by 7. I naturally go into the deepest sleep I've ever had in my life. I hope this helps, and I definately know you need to do what's right for you. (I just wish somebody could have told me what I know now, 10 years ago!) I am literally waking up looking younger after one of these 'dead to the world' sleeps!
i really should have stopped at 2 or 2.5 days when thirst became moderate to strong and quite persistent. Nevertheless i was experimenting (cautiously i felt) and curious to see if my body would adapt and the thirst would relent... which it didn't. I don't plan to resist heavy thirst again
sorry if you've answered this before but do you mind expanding a bit on what you consider moderate, strong and heavy thirst.
is heavy when you get the dry mouth that is very intense? and are you saying you resisted that ??
I find when I dry fast I don't really feel thirsty at all much, I suppose I get moderate thirst a bit, but even after 2 days sometimes I completely forget I've not had a drink, then when I go to bed I feel restless and my body feels prickely or something but I don't really feel thirsty. Then one time i woke up at 5am with very heavy thirst and a dry mouth!
do you think it is going too far when you get to the point where your mouth is dry?
to be honest after both my 2.5 day dry fasts I think I've been a bit disorientated the following week so I think that is probably a sign the fasts are too long and that maybe a better way to do it would be to do 32 hours (friday midnight to sunday morning) dry and then drink small amounts of water from then on if I feel a bit thirsty.
"sorry if you've answered this before but do you mind expanding a bit on what you consider moderate, strong and heavy thirst.
is heavy when you get the dry mouth that is very intense? and are you saying you resisted that ??"
Hi hghbuzz : ),
Yes this is what i mean. I was resisting "want to jump out of my skin" thirst hoping that my body would dig deep and take care of it and it actually led to visibly dry skin and moderate nausia for about 10 days.
"I find when I dry fast I don't really feel thirsty at all much, I suppose I get moderate thirst a bit, but even after 2 days sometimes I completely forget I've not had a drink, then when I go to bed I feel restless and my body feels prickely or something but I don't really feel thirsty...
This is what it's like for me usually for about 15 or 20 hours. Then it becomes work to resist drinking... and after about 40 hours it becomes hard work. I have said in other posts that this is in stark contrast to the experiences of Trimnut and Fonty who are able to dry fast comfortably for 7 days and have moist mouths at the end of it. I am feeling something after 20 hours and something much much stronger after 40 hours that they are not feeling after 7 days.
"do you think it is going too far when you get to the point where your mouth is dry?"
In my opinion, no, this is just a fairly early warning and i would resist thirst in this stage again without hesitation. I would probably consider the point at which the mouth first becomes dry moderate thirst (or even light to moderate), but not heavy. I would say that in this recent experiment, i resisted actual heavy thirst for about 24 hours before finally drinking. I don't believe i will resist such heavy thirst again even for an hour and i believe that my actual dehydrative symptoms would have been avoided by simply drinking once my heavy thirst presented itself... and this for me was at about 2.5 days.
"to be honest after both my 2.5 day dry fasts I think I've been a bit disorientated the following week so I think that is probably a sign the fasts are too long and that maybe a better way to do it would be to do 32 hours (friday midnight to sunday morning) dry and then drink small amounts of water from then on if I feel a bit thirsty."
I can't really comment on this since i haven't actually encountered disorientation, but i suppose that could possibly be a symptom of dehydration. No drying skin?
For me there is a sliding scale to thirst. Mild thirst that actually disappears on it's own, to me, is not the kind of "thirst" that needs to be satisfied as in fulfillment of the "drink only to thirst" recommendation in a fast. I have actually gone to sleep in a dry fast fairly thirsty (mild to moderate) and awoke with little or no thirst. I am trying to recall if i have had a dry mouth become moist, but i don't remember.
For me a case can be made that actual thirst (the time a dry fast should be broken and the time people in a water- only fast should ideally drink) arises once it becomes moderate and persisting... or it might even be that a dry fast should not be broken until thirst becomes heavy.
With so little literature on the subject i find myself feeling my own way through this, but i believe that any minor harm to myself (visibly drying skin and moderate nausia for 10 days before emerging feeling good) would have been averted resisting even moderate, persisting thirst as long as i drank right away once my thirst became heavy.
I'm interested in practicing that which is optimal for my health and it seems there is a fine line (where optimal health is concerned) between drinking too early and drinking too late, but progressively intensifying thirst certainly gives us a very strong cue to go by. I don't know if moderate thirst should be resisted (though i will continue to do so in my own life), but from my own experience i would definately encourage anybody to drink promptly once thirst becomes heavy.
the only dry skin I've had is the tops of my hands go dry and probably take about a week to recover without moisturiser.
when I say disorientated I think I mean my mental state is in a completely different place for about a week, obviously because of the stress of doing the fast, which in fact is something I get with every fast with varying degrees depending on how hard the fast was.
I only dry fast for max. 24 hours. I always have much lovelier skin and eyes by morning. I am a believer that daily dry fasting from 4pm til morning, and weekly 24 hour is easy and doesn't ever make me more than a slight phlemmy feeling at the back of my throat. I just love the deep sleep I experience.
Keep in mind that in the beginning you will be under a spell in which you believe only raw food is proper food.
I ended up completely ruining my digestion and it has taken me 10 years go recover. Yes, 10 years.
Raw vegan works for short periods. But I would restrict it to a month or two tops.
If you want to remain raw then I recommend raw meats / fish in addition to veggies.
There is a small proportion of the population who do OK on a raw food diet long term. But your chance is pretty slim, and the risk is serious health problems. I have known many many people who have suffered negative health from remaining on raw foods long term.
You can heal your body but find a balance that includes enough protein. I find I do best with cooked seafood and salads and some meat. People tell me all the time I look 25 even though I am 32. I hang out with people who are 20 years old all the time and when I tell them my age they are always shocked....
to say the least haha. What do you think happened between raw and your digestion. I ask because this is the first time in my life I'm not constipated. I go twice a day!
I value your experience. I find it all very interesting! I had a friend who tried raw, and started having bad hair and nails. I was shocked she didn't change something because her body was obviously not getting all it needed.
My experience has been the opposite. I undid my health problems and just keep looking younger and younger. If I looked bad, I would definitely would change something.
But there's SO many factors! I get all my blood work done every 6 months and it all looks good. But I promise to keep learning, experimenting and loving life!
I wonder if you are still raw. I have been raw for many years as have many many other people. There is no reason to add meat to your diet for digestion. This doesn't even make sense. I hope you are feeling great.
My health problems were essentially caused by a raw vegan diet. Its taken me 10 years to even begin to recover.
I agree with the other post about the warrior diet. I now eat some meat and plenty of veggies for every meal. No grains, dairy on occasion. There is a lot of raw veggies in this diet but it also gives you the things that you would be missing on raw vegan, namely a good source of protein.
Do yourself a favor and realize that raw vegan is good for a short cleanse but it doesn't work long term for the vast majority of people.
I was hard core convinced that raw veganism would work for me. Its almost like a religion.
You CAN have that youthfulness permanently.
Realize that the main cause of aging is GRAINS and processed foods.
Cutting out grains is just as important as eating plenty of raw foods.
I just started seeing an ND who did all sorts of blood work and stool testing. I came into her because I was diagnosed with Meniere's disease (pretty severe) and fibromyalgia but was only offered pharm options or surgery (for my ears) -- which doesn't work for me. One, it doesn't tell me why I'm sick, what the cause is and two, it actually doesn't cure what's wrong, just drugs you out.
I'm 40, vegetarian, eat a pretty clean organic diet with lots of veg, drink lots of organic fresh green juices, use coconut oil in smoothies daily etc... But the Meniere's has knocked out, or I should say whatever caused the Meniere's has knocked out my balance nerves and makes it very difficult to exercise. I struggle with severe exhaustion, too. Most days I have a tiny bit of energy in the morning and then am wiped out again and have to sleep for a couple of hours midday. I also get nystagmus, my eyes go into spasms and I have oscillopsia, which means that when I walk everything moves with my movement. Normally we have nerves that visually stabilize the world around us as we move. So if I'm walking, things are out of focus and moving up and down with my movement, or if I turn my head in a particular direction, everything swooshes along with my head. And I have bilateral vestibular hydrofunction, also apart of the whole Meniere's stuff.
I also suffer from nerve and muscle pain, muscle weakness, wrist and hand pain, I have TMJ and my jaw hurts all the time. I get sick really easily and feel like I'm coming down with the flu a lot -- achy and hot and exhausted.
I also have low blood pressure, which drops sometimes when I stand.
I also have bloating & gas.
Doctors told me nothing was wrong with me for the longest time, that I was probably stressed. Finally one doctor said I needed to see a neuro stat -- which I did. He thought I had MS but my MRI came out clean, no lesions. After that he was sort of like, eh..don't know what to tell you, something neurological seems to be going on but not sure what's up. He did do the balance testing and all of that came out badly, so I ended up at an Otologist -- which is how I finally found out I had Meniere's. It goes on and on like this with other doctor's for the other symptoms.
It took almost four years to finally get the Meniere's diagnosis, then got the fibro diagnosis but like I said above, only offers of crazy meds and no answers.
Just went to an allergist, tested allergic to mold, ragweed, and dust mites. Wondering how this plays into my symptoms. I also have asthma.
I'm now finally seeing a ND but she is expensive and I'm poor. My insurance covered the blood work and stool tests she performed though.
The blood work showed that I've had Mono, bacterial pneumona, tested positive for herpes 6 (I think this is what she said) -- which is why she diagnosed me with Chronic Fatigue. I'm severely D deficient, even though I supplement. The stool showed a major growth of bad bacteria and pathogens and she said probably parasites and candida and leaky gut/IBS even though parasites didn't show up on the test because of how bad it was.
SO here's where I am with her, with the ND. She told me to, for the next month to juice daily - greens and ginger, no fruit, except maybe a little apple, take digestive enzymes, probiotic, 5,ooo mg of Vit. D, drink Ultra Clear Sustain, and do a Rotation/Elimination diet, and when I come back to her in a month she would start treating me for the Candida and parasites.
If you've read all of this, thank you! What I'm looking for is some info from others who have Chronic Fatigue, Fibro,
Meniere's, and anyone who has/does have my same symptoms and what you've done/are doing that is effective.
I really like my ND and am hopeful but at the same time I cant see her endlessly. Now that I'm getting more information, I feel like I have a more clear path.
I have fasted a couple of times a year for the last 7 years or so. I've had this exhaustion, though it's gotten progressively worse, for 14 years! I used to think it was really bad but now it's unbearable. Does fasting help or hurt Chronic Fatigue?
What about getting my gut healed and getting rid of parasites and candida?? How do you guys do it? Should I still keep taking the coconut oil?
I can't afford the Igenix lyme tests right now. I've had people with lyme say it sounds like I have it.
There can be many issues: Some of the things that come to mind:
1/ Inadequate protein consumption or utilization. Protein is so critical for cell functioning, with increased burdens on the body it is harder to digest or assimilate protein. Friend went off a veg diet and returned to a better state of health.
2/ Veg typically have low levels of B12 - b12 is critical for methylation. Methylation also depends on many other nutritional factors - weak methylation generally occurs with debilating states - also has other effects such as decreased liver processing, protein assimilation etc. Very critical to have good methylation.
3/ Check vitamin D status. Critical for immune/neurological, levels are generally low. vitamindcouncil.org has the most reliable information.
4/ Mineral status is generally overlooked and critical elements may be toxic or low - for instance copper is vital for immunity but in some cases may be high which can cause problems as well. TEI (Trace Elements Inc) has a very good and reliable test for less than $100.
5/ Environmental or heavy metal toxicity can cause many problems. Metal toxicity is difficult to detect unless using a heavy metal challenge test. Infections impair detoxification and many sick people have continual issues with detoxification.
9. Fibro is caused indirectly by chronic infections and calcium and magnesium loss caused by stress reactions - the stress reactions are not necessarily emotional but physical (e.g. chronic infections)
10. Adrenals become worn due to the continued stressors of infections, toxicity, nutrient defects and the psychological stress of being sick and misunderstood, not to mention the financial stressors of being sick.
Thanks for all the info. I just checked out your blog.
I have extremely low Vit. D. I've been taking 4,000 D for the last couple days.
My ND says to get my gut repaired over the next month before doing the candida parasite cleanse she'll put me on. I'm trying to figure out the best way to do that.
In the last 4 years I've had the flu a number of times, had pneumonia a couple of times, once in bed for a month. So yeah, my immunity is very compromised. Sounds very much like what you've listed.
My GUT is huge, totally puffed out. I'm not heavy but sometimes it extends out so much I look pregnant.
ANd yes, the stress of being sick, of doctors dismissing me and making me feel like I'm crazy has been awful, the worst -- both emotionally and financially.
I'm just trying my best to figure out how to heal so I can work again.
I was told my problem was yeast when in fact that was secondary to the parasites. Parasites are much worse than yeast and often misdiagnosed. Bloating of the abdomen is a sign of inflammatory immune reactions in the gut. Repair of the gut should center around sIga - http://pptu.lefora.com/2011/08/20/secretory-iga-siga/
Look at the post about the parasites, these tests should help pinpoint the problem. PM me if you need more help.
I just stumbled over this and was puzzled by how well you described my symptoms here ;-) thus the question: have you found out what's the origin of all this? Or have you found any remedy for the dizziness and pain?
I hope you're still reading messages here as that post is now 3 years old... thanks if you do! All the best!
Just wondering if anyone else experiences this really annoying symptom. Within moments of food hitting my stomach I become freezing cold. It doesn't seem to always happen, but it happens often enough. It's not just a little bit cold either, it's like a deep into your bones cold.
I used to have the problem when I ate things which caused a yeast reaction. I would become pale and cold. I think it was my body diverting energy to fight the sudden influx of yeast poison.
This problem went away when I started following the diet strictly.
I'm not sure if this describes your situation or not though. Do you follow the diet strictly? I suggest you think about what you ate before you experienced the chills (or at least pay attention to this in the future). You may find a common trigger.
I'm suspected of having sibo and for years I get freezing cold and have terrible anxiety much of the time after eating. This looks like a very rare symptom and it is disconcerting as I don't know when it will ever go away
The symptom you are describing is a symptom of food intolerance, linked to dysbiosis and serious disturbance of the digestive tract primarily caused by use of antibiotics, artificial hormones and possibly some other prescription medications.
Dysbiosis causes leaky gut.
Leaky gut causes food intolerance .
On the long run, food intolerance may become food allergy and even initiate autoimmune diseases.
What exactly do you consume when it happens ?
Do you consume any of the foods listed below :
Canned foods ?
Industrially processed foods ?
Food additives ?
Sugar added to foods ? citric acid ? sorbates ?
Stearates ? nitrates ?
Fruit Juice ?
Fruit ? What kind ?
Herbal teas ?
anything else ?
I'm running a 30 day experiment. I'll be doing my 4th course of h2o2, in 5.5 years.
5.5 years ago, I had CF/fibromyalgia. I had 6 chronic infections that I used h2o2 to combat.
Over those years, I never went on antibiotics (which would have been prescribed many, many times over.)
I'll be doing full dose the morning, over the next 30 days possibly.
I'm in a very different place right now.
-I'm fully detoxed! I've purged my adult toxins (the pill, hep a/b vaccines, antibiotics), my teenage (tetracyclene, 2 courses of accutane) & childhood vaccines.
- And my body is so much stronger. I'm in healing mode. This month, I've noticed the skin under my eyes is much thicker. When I smile, I have very few wrinkles (at 42, which is amazing.)
-my muscles are very flexible in areas that have been damaged by my previous 5 car accidents. I'm very close to the splits, and a kick over.
-I haven't had cavities in 10 years.
-My eye whites are extremely white (sign of detox- cellular water is clean)
-My colon is very clean (many salt flushes, colonics).
-I can easily dry fast 1 day, water fast for 5 days, and master cleanse for 10 days, with no hypoglycemia symptoms, and without my PH dropping (below 7.2). It means I have plenty of alkalinity on reserve.
-My hair grows like crazy, thick, and no grey.
-My weight is in the middle of my bmi. At the bottom, I had very little muscle. Today I am very strong.
-I haven't had a cold/flu in 3.5 years
I'm hoping this round of h2o2 will help:
-my adrenals and pineal. I still have periods where I don't sleep.
-my thyroid. My temp is still low. (36.4C)
I took my dose this morning. It gave me a bit of a headache for .5 hour, but no big deal.
i have also taken accutane 15 years ago. i would like to start detox. from what i read, you seem to go pretty well. could you sum up the detox protocole that, in your opinion, is very efficient to detox the body from accutane ? i have dryness (eyes, lungs, mouth, aging skin), depression, hair loss, fatigue, leaky guts... . I went on a new healthy diet that helps but it's insufficient alone.
Last June I had been trying to detox heavy metals. I had taken Powdered Zeolite Pure and then started also on Humifulvate, Complete Metal Cleanse by Enzymatic Therapy.
In fairness to these products, at times I took more than the recommended dose of the Humifulvate because I thought that it was helping me and was simply a natural product, so less of a risk. Stupid me.
In July I started to get severe dizzy spells which lasted till mid August. Then I retried the Humifulvate to try to change whatever it had done to me. When I did the dizziness decreased significantly, but then I got these horrible jolts which occured at night right before falling asleep. They were like lightning convulsions!! Really horrible. Then I retried the Humifulvate to try to change this and I got less of the jolts, but shifts in my body during the day, pain in my hands, jerks and trembling.
When I finally got to a practitioner he told me I had depleted my electrolytes and to start taking salt immediately. The salt and other supplements helped, but the one thing that has been helping me has been iodine.
I can't express to you what a nightmare this has been. If it hadn't been for the Iodine (and the salts) I don't know what would have come of me.
What did the Humifulvate do? Or the preceding Zeolite?
Apparently, rid my brain of electrolytes. Or suck the Iodine right out. Getting these back has not been an easy road. I get Bromide detox symptoms and can only take very little of the life saving iodine at a time.
Perhaps these products are good in a certain context. Perhaps they are better than other things. But if you are already a sick person and happen to deplete your electrolytes while on them BEWARE!!!!
I had a different experience with humic acid. I'm taking the Active Liquid Minerals brand http://www.4alw.com/liquid-minerals/
Overall, this is a great supplement. This supplement reduces heavy metal and candida\fungus symptoms. The problem I have is when I forget to take the supplement, I experience severe constipation, lasting several days, even weeks. Does anyone out there know why humic acid causes these symptoms?
It could be die-off. I know both zeolite and humic and fulvic acids can create die-off if you are toxic enough. Constipation is common with die-off.
To the other poster, I have never heard of humic and fulvic acid doing this. What you described to me sounds more like die-off also. If you have heavy metals in your brain and you start to chelate them, you can go through a healing crisis. Dizziness, is not uncommon with a healing crisis and I'm pretty certain the being shocked feelings you are common too with heavy metal toxicity. I know I have them with lyme and sometimes my hand and legs will jerk by themselves, and it sometimes feels like a jolt. I also have heavy metal issues so I'm sure this could be contributing to it as well. I have been using zeolite which has humic and fulvic acid in it. This particular product has been getting lots of recognition and I think awards. I am definitely having die-off. I've wanted to sleep all day and I feel like I have the flu, i.e. runny/stuffed up nose, alternating sore throat, headache, feeling more tired than usual, asthma kicked up, etc. Besides the zeolite, I am also taking an anti-parasitic and stuff for candida, so it's probably just a big whammy hitting me all at once.
I don't doubt that die off can cause many types of symptoms including neurological ones like shaking and having your hands move suddenly. In my case though, I have certainly had die off symptoms before, but never with the neurological responses. I have also had symptoms from mercury exposure, as when I had my Amalgams removed, and they were also bad, but not the same sort of thing. At least in my case, no neurological symptoms.
Though I think the Zeolite Pure which I had been taking first did lower my electrolytes (at least a hair analysis at the time seemed to show this clearly) even though it was helpful to me!!, it was the addition of the Humifulvate to my protocol that seemed to really knock me into severe neurological symptoms (which I didn't have any of with the zeolite). And I mean severe dizziness, extremely severe jolts at night, severe shifts and convulsive movements and pain in my hands and on and on, a true waking nightmare.
It seems, like I mentioned, that the one key factor which is helping me has been taking Iodine (and iodide). Which could point to the Humifulvate having the effect of removing Iodine from the brain (at least in my case).
I am not saying that all humic and fulvic acids would have the same effect. I do not know! Perhaps the effect of each will vary according to chemical composition. One thing I read though is that the actual mechanism by which these act in the body is unknown.
So....please, if using any of these be Extremely Careful for your own sake.
It does though me wonder if the makers of Humifulvate ever heard of such cases in their own country??? And if so did they simply dismiss them as having to do with something else? Not bothering to look into it too much?
Does Humifulvate have an affinity for iodine?
Whatever it does it seems it could possibly put a susceptible individual through HELL and cause very real damage, as in my case. Or even at low doses can it cause some sort of undetected low grade injury? Even in otherwise healthy individuals?
The research to answer this will probably have to wait for many years to come.
an update with some good news and perhaps a treatment that could further help anyone experiencing brain difficulties
so it has been over 2 years since I posted these emails
I have been on the Sea Salt and Iodine protocol which has continued to help me, though at a very slow rate
the damage I wrote about has continued to get better, less soreness, but the upper left portion of my brain still remains very very sore and I have difficulty driving and still with moving (even walking more than half a block) or lifting (because the lifting seems to cause? pressure in the same area), in summary it has been a very slow hellacious healing process
though perhaps some good news:
some potential help for brains and good news is that a treatment based on phosphatidyl choline (which I take as liquid sunflower based lecithin) and also a combination of sunflower and flax oils seems to also (besides the iodine) be helping my brain!! it seems to have sped up the healing process and I have less pain/soreness and greater ability to move!! which has been life saving for me
so I thought I would report this along with these entries
if you are having brain complications like I have reported here perhaps it could help you as well?
I get the oils from Lekithos and Body Bio (and don't make any money whatsoever from it)
also, I learned this from the Patricia Kane protocol which is related, but I only have taken the oils orally and not intravenously (as they do in that protocol), I think for me it might be way too much to take anything intravenously at this point
well, I hope this may be of help to anyone going through a similar experience, it seems as part of all this complication, my brain was starving for oils???
Hello everyone, here to shed some light on my health situation and get some advices.
I'm litteraly desperate to find a cure for myself, some days i tell myself i have to be strong to recover but some other days i feel the fight is too hard.
I've tried several stuffs, i've been eating strictly raw with lot of fruits and very few fats for 2 years (this made me much worse and brought me new symptoms), liver flushes, some supplements, coffee enemas, colon hydrotherapy...
I'm a 25yo woman who suffers from the following symptoms since a few years already.
-Hair loss + greasy scalp
-Inflammation of the scalp and other parts of the body
-Always cold + Cold feet and hands
-Bad breath some days
-Depression and mood swings(very depressed before my periods)
-Pain and mucus in the throat most days.
-Pain in the articulations when it's rainy
-Tired after meals
-Blurry vision some days
Used to suffer from autoimmune thyroiditis, now the antibodies and hormone levels are in normal range but i still have all the above symptoms.
I do test positive for H.pylori
My family and friends think the reason 'm that sick is that i'm crazy and depressed...
Is there anyone with the same symtoms that found Something to help ?
You have symptoms of hypothyroidism, toxicity, food allergies, and possibly candida. Use the pulse test to find out which foods you are sensitive to (see http://www.dragonfly75.com/eng/pulsetest.html), eat more fruit for cleansing, drink spring water, limit protein intake (symptom of too much is mucus in throat), and do something for your low thyroid (sometimes there are helpful supplements in health food stores). Go to http://www.dragonfly75.com/eng/candida.html to read about candida.
Yep, I've had many of those symptoms, and I did figure a lot of things out. The main thing is ignoring all the stuff online that says we can't have nutrient deficiencies if we live in the developed world. It's just not the case. Especially if we have thyroid issues, and h.pylori puts you at greater risk for nutrient deficiencies too.
Raw foods are especially hard to digest. Many have "anti-nutrients" which can even take away vitamins from you during the digestion process. It's better to eat cooked or fermented foods, at least until you get past these current symptoms.
There are some great lists out there which can help you determine which nutrients you are lacking based on symptoms. From there, you can decide what to eat more of, and what supplements to try.
If I just look at your symptoms, and think off the top of my head, here's what I think you need more of:
-Hair loss + greasy scalp: zinc, B6, biotin
-Inflammation of the scalp and other parts of the body: B6, vit C
-Acne - B6, vit A, zinc
-Dry skin - vit A, C
-Food sensitivities - l-glutamine, thiamine, zinc, digestive enzymes, apple cider vinegar with meals.
-Always cold + Cold feet and hands - b-vitamins, iodine, selenium, iron, copper, zinc
-Chronic fatigue - vit A, iron, b-vitamins
-Bad breath some days - selenium
-Depression and mood swings(very depressed before my periods) B6
-Pain and mucus in the throat most days. B2, iron, vit A, zinc
-Pain in the articulations when it's rainy. Thiamine, B6
-Tired after meals - thiamine, zinc, digestive enzyme, apple cider vinegar with meals.
-Brain fog - thiamine, B12
-Blurry vision some days - vitamin E
I see a lot of B6 up in that list. If you have a B6 deficiency, you probably have a protein deficiency as well, even if you have been eating protein. This is because B6 is required to metabolize protein. So you will want to work on getting lots of protein, and you might want to supplement with tryptophan, glutamine and taurine (vision).
It's also really important to take a high quality multi-vitamin. Do NOT just take a few nutrients. Too much of one thing and not enough of another, over time, can put things out of balance. To much iron can affect copper and zinc. Too much zinc can affect copper. Too much vitamin A can interfere with vitamin D and E. So it's important to take a complete vitamin. A multivitamin and then add a b-complex.
Take extra B12, extra vitamin A, D and E. Choline and Magnesium. This is in addition to your multi and b-complex.
I'd also consider eating beef liver. It's probably the most nutrient dense food. I grew up thinking veggies were the healthiest thing to eat, but if you look at the actually data on vitamin content, meat and organ meat in particular, has more than any veggie.
If you test positive for H. Pylori you must get rid of it because it is compromising your whole digestive system. Making protein digestion extremely difficult because H. Pylori is urease positive and produces ammonia by using the urea in your saliva to neutralize your stomach acid.
Urease enzyme+Urea(saliva)-> Ammonia+Carbon Dioxide which usually means burping while you are trying to digest protein because your stomach acid is being neutralized with every bit of saliva that you swallow. The high histamine levels and cortisol trigger saliva release.
If you have a Pylori infection then you will also have Leaky Gut which is why you have the food sensitivities. High histamine levels which stimulate the release of saliva which they want so that they can convert it to ammonia to neutralize your stomach acid. Be aware that such high levels of ammonia, enough to neutralize strong stomach acid stops energy production which is why you feel tired after meals. Carbohydrate foods such as fruit and veg which do not need stomach acid should be easier to digest and should not produce as much tiredness. Although they will produce an immune reaction which will lead to some tiredness. This might also produce SIBO and can lead to parasitic infection because your stomach cannot protect you from harmful organisms being ingested. Pylori is not the only bacteria which can do this and there are no tests for the other Urease positive bacteria.
I urge you to do everything you can to destroy the Pylori infection. Fortunately there is quite a lot of information on treating Pylori, even natural treatments and herbs which can treat it. Look for eflux pump inhibitors specific to Pylori as these will help destroy it.
Taking some Omega 3 would be helpful and might help reduce inflammation.
Your liver and all body systems will be under a considerable load which will require high levels of nutrients.
Digesting protein properly should help a lot but you might not be so keen on doing that because the high levels of saliva are your enemy to protein digestion and normal stomach function.
High doses of vitamin B12 eg Methylcobalamin can be helpful. High doses as in 20mg+ a day. That suppresses the immune function, especially IgE (allergic) antibody responses. This information used to be on Wikipedia until someone edited it out, no guesses as to who did that. I am glad that I read it before it was removed.
High dose Biotin might help your skin, particularly the dryness. I used to get dryness a lot before I increased my biotin intake. It's not gone entirely but it is much better now.
It sounds like you have read the GAPS book. I read that too and it did nothing to help because it does not address the problem. I suggest that you discard all the nonsense online about taking Glutamine and all the other supplements which claim to heal leaky gut because they cannot and do not work. If you can successfully destroy the infection you will fix your leaky gut! Anything else is a waste of time and money IMO. All the immune complexes antibodies will most likely be causing your body problems and that will not change and will not improve until pylori has been beaten. You can waste your time on the GAPS protocol or anything else but I guarantee that nothing will improve until you beat pylori.
I will tell you the state of your digestive system. Pylori creates a biofilm in the stomach which protects it. It can filter out ANYTHING! Antibiotics alone do not harm them. Any toxin which gets to the bacteria will destroy the bacteria near the surface of the biofilm and these will release their DNA and the deeper bacteria will use this to build resistance to the toxin. You will never beat them unless you use what is known about them to enable their defeat. That means finding known pylori efflux pump inhibitors and quorum sensing inhibitors to affect their chemical signalling to control their behaviour. Efflux pump inhibitors will stop them eliminating toxins and quorum sensing inhibitors can stop them strengthening/rebuilding their biofilm. There are different strains of pylori so you may need to find different substances which influence each of these which work on the different strains. DO NOT underestimate how difficult these are to defeat! Doctors use triple therapy for a reason, it shows how difficult they are to defeat. Your digestive system will not improve until they are beaten and your normal stomach mucosa can heal. Bone broth will not solve anything, it will have zero affect on your digestive permeability. Avoiding milk is a good idea because casein ie milk protein is very slow to digest.
The biofilm replaces a section of your stomach mucosa which is where the food sensitivities come from.
The more you change your diet the higher the immune reaction will be. Not changing the foods you eat each day might be helpful. Restricting your diet until you have beaten pylori might help, it certainly does for me. The more I alter my diet, adding new foods, causes me increased tiredness. While eating the same foods provides less of an immune system challenge and less tiredness.
You definitely need a high nutrient intake and your liver could do with all the support that it can get as it will be under a heavy burden. Milk Thistle extract might be helpful, I take it. Your body needs glutathione promoting amino acids in order to increase production and help with your high detox demands. Glutamine (can cause tiredness), Cysteine such as NAC, Glycine (can cause tiredness) and Methionine are the required amino acids. I take L-aspartic acid amino acid to counteract the sedating amino acids as it is a brain stimulant. NAC is known to have an effect on bacterial biofilms, it is used in some antibiotics. Interfase plus is an enzyme formula which can help. Taking this with Bacillus Subtilis might be helpful as BS produce tiny amounts of d- form amino acids which have been shown to be effective at triggering the break up of biofilms. BS is used in many probiotics because of the effect they can have on biofilms and they are part of the probiotic supplements Taking the enzymes shortly after should force the biofilm to take up those amino acids which can trigger biofilm break up. You need to time it all well to get the maximum effect. Efflux pump inhibitors, any quorum sensing inhibitors you can find, BS, Interfase plus and then hit them with strong antibacterials. I do suggest that you investigate natural treatments for Pylori as there are a number of things which can be helpful. Quite a bit is known about Pylori. Unfortunately for me I was negative for pylori so I know I do not have it, my torment is caused by a very similar but currently undetectable bacteria which shares a lot in common with pylori.
It is important to consume high quality protein but in a form which DOES NOT REQUIRE CHEWING! Chewing adds saliva which Pylori will used to neutralize your stomach acid. You need to raise your stomach acid levels in order to full digest protein. HCl capsules are useless as any saliva will lead to ammonia production which will neutralize the acid and leave you feeling tired afterwards. That is unless you deny them the saliva that they want. This is the dilemma. Have you noticed your nose running after eating and the saliva in your mouth increases? Stressful situations and cortisol release promote this. Preventing yourself from swallowing saliva while you digest protein is a temporary solution which will help provide your body with the amino acids it needs. This should help with the hair loss and healing. Taking Pancreatin with protein will help speed digestion but raising stomach acid is important for complete digestion. I mentioned that you might not be keen on the idea. I use Pea protein powder which has a nice texture but taste is not great. Hemp protein powder I use and I was using Rice powder protein but that has a nasty fine powdery texture which is horrible to use. I stopped using that and now concentrate on Pea protein powder which is 80% protein. That can be purchased from many bodybuilding suppliers online and it is fairly inexpensive. I add various culinary herbs to the mix such as Rosemary, Turmeric, Basil which I love, Cinnamon and a few others. These all make the protein powders taste quite nice. I add some fibre such as Xantham gum and Konjac which helps bind it all and soaks up water making it firm but can be quickly swallowed so needs no chewing. Add some Ascorbic acid, amino acids as Pea is fairly low in sulphur amino acids such as cysteine and methionine. If you take a pancreatin capsule before taking it and then have some Omega 3 oil the pancreatin will speed up digestion of the fat which will allow your stomach to empty quickly. I can digest two high protein thick "shake" with 3 to 5 dsp of oil in about 2 hours providing that I deny them saliva. A liquid could be swallowed more quickly but I prefer the "shake" in a thick consistency rather than a liquid, it works well for me. Very little burping and rarely any tiredness following the meal. That is with a Glutamine, Glycine and Magnesium which are all relaxing and/or sedating to some degree. Also a lot of added lecithin which can also cause a little tiredness in high doses. Aspartic acid stimulating properties helps counteract any sedating effects of the other supplements a bit. The other supplements such as the sulphur amino acids and lecithin are needed by my body.
If you do use the bone broth, which can be a useful protein and amino acid source in a good combination, but it will not solve the hyper permeability despite what some people claim. I would suggest that you liquidize the meat so that you do not have to check it. It will aid the quicker breakdown of the proteins and make the job for your stomach much quicker. It might be best to take vegetables separately away from the protein. Vegetables can then be checked without issue.
MSM MethylSulfonylMethane can be helpful as it provides Methyl groups which many people with Leaky Gut are deficient in. Supplementing with MSM can be very helpful and it could help your mood as part of methylation, which is frequently compromised, the methylation process creates SAM-e which has quite potent mood improving properties. I supplement with quite a bit of MSM.
the H Pylori burrow deep into the stomach wall and so herbs and vitamins and Colloidal Silver and anything else you can think of doesn't work. If it does then it wasn't H Pylori. Usually even a long course of antibiotics don't get rid of it. But I know how to get rid of it using microcurrents. Down here in South America stomach infections are common because they don't put enough chlorine in the city water. I get an infection about once every month or so and always get rid of it using electricity. ask me for details by messaging me.
Pylori persister cells are what enter the stomach wall. Their biofilm replaces the normal stomach mucosa and is what makes them so difficult to eliminate. It's not that they enter the stomach wall, it's the biofilm which protects them. The biofilm eliminates anything which is toxic to them and provides a shield against most things.
It sounds like you still are dealing with thyroid issues. I would find a naturooath or alternative practitioner who specializes in hormone issues. That's what I had to do to finally get answers. Regular doctors were a waste of time.
So I'm 22 years old and I've struggled with my health most of my life. This is probably gonna be really long, but I'm very ill and really need advice.
My history: I was born a couple weeks late, always had social issues, I was terrified of social situations. Developed OCD late elementary school and had throughout middle school. I realized I was constipated all the time in middle school and started having insomnia and always had nightmares when I did fall to sleep. I also ground my teeth in my sleep. Also I had trouble concentrating and difficulty urinating.
By 14 I started getting discoloration around my eyes and feeling more tired than usual. I didn't get my first period until almost 16 and got very sick and threw up a lot on it. I did not get another period til a year later and they have always been highly irregular and painful and unpleasant. A little later I struggled greatly with anorexia and ended up being hospitalized and put on a feeding tube. I lost a great deal of energy during this time and never regained it despite gaining all the weight plus more back. I only got weaker and felt very depressed too. I developed sleep paralysis. I also developed orthastatic intolerance that never went away as well. I also started to lose my hair.
18-19 I went away to college and soon developed anxiety and started having gas a lot more and my bowels got messed up. I started having a lot of mucus in them all the time and I started having pain under my ribcage as well. I also developed chronic postnasal drip after being on an antibiotic. The discoloration around my eyes worsened and my minor acne became severe. After responding to no acne treatments at 20 I was put on Yaz for my acne because I tested to have slightly high testosterone. 3 months in my acne cleared completely but I also got pinkeye, tonsilitis and became sicker than ever. I was given some antibiotics for this. I also got strep a couple times in the following months and was given more antibiotics. Around the same time my bowels got even worse. They became thin undigested (sometimes yellow or clay colored) and hard to get out yet always urgent. I finally stopped birth control, but I felt no better and some acne came back.
Up until that point no one ever believed I was sick and I'd never been diagnosed with anything. I thought for sure I had Chronic-Fatigue-Syndrome because I could barely get out of bed, but decided to get tested for lyme disease since I heard that can mimic it and it came back positive. I was given two weeks doxycycline for that which did nothing. Since then I have been retested for lyme three times. Testing negative two of the times and positive once more.
The past year and a half I've changed my lifestyle in order to help myself. I've done coffee enemas, ACV enemas probiotic enemas, given up gluten, dairy, refined sugar, artificial sweeteners and added fruit and vegetables into my diet a lot more. I've also taken probiotics and antifungals orally in attempt to help. None of this has made much difference the enemas relieve my constipation and allow me to feel less congested briefly, but that's about it.
I have no family support and little money but finally saved up enough to see a lyme doctor who put me on an antibiotic protocol taking a few different antibiotics a couple times a day. I made it two weeks into the protocol until I made myself stop. I was throwing up everyday and having intense stomach pain. Even with taking tons of probiotics and doing probiotic enemas to combat them I still felt like I was destroying my intestines and I wasn't even sure I had lyme so I stopped.
I think my problem may be heavy metals. My mom had around 20 mercury fillings put in before she got pregnant with me and I also had tons of vaccines over the years.
So I went to a place that specialized in chelation. They ran a lot of tests on me. My Lymphs was low only 48 normal range is 60-360. Vitamin D was low. I'm deficient in b12 and iron (but not anemic) probably because I'm not absorbing food right cause of my digestion. My ANA was positive abnormal with RNP antbibodies for Mixed Connective Tissue Disease which were high. They were 1.1 normal range is 0.0-0.9 so just outside of that. I also have adrenal fatigue, as shown by a saliva test my cortisol levels are low at almost every time of the day.
My stool test showed scant growth of candida albicans, heavy growth of nontoxigenic e. coli, borderline high h. pylori, heavy growth of enteroccus gallinarum, low total salivary SIgA (good bacteria) and ongoing colonic inflammation all throughout my intestines.
My urine test for heavy metals (the unprovoked one) showed almost all of them in normal range, except cesium which was borderline out of range. I could not have a provoked test to really know if I heavy metal toxicity because the doctor there said I was not a candidate to take a chelation agent needed for the test due to my bowel issues. So I guess I have no way of knowing if I have heavy metal poisoning. Although I do have a "mees" line across my fingernails which I read signals it.
So the past month I have been taking antibacterial, antifungal, and probiotic stuff recommended by the doctor there to heal my gut. This being propolis, grapefruit seed extract, caprylic acid, l glutamine, vitamin d and some probiotics. I've also been drinking some bone broths, but I don't really feel like any of this is really helping.
I'm now at a loss for what to do. I feel like I've tried everything. I thought chelation could help, but I don't think I can get approved for that unless my gut issues magically heal. And if I do have lyme I don't know what to do about that. I felt like antibiotics were destroying me.
Does anyone have any advice on things to try? It would be really appreciated!
Other things to note: My joints crackle in my knees when bending, I have serious discoloration around my eyes and get accused of being on drugs frequently, my hair falls out a lot and never grows longer despite not cutting it in years. I have chronic genital pain and irritation. I have memory problems. I'm always cold, I have muscle aches, and poor posture. Neck goes too far forward. And I'm blood type A. I can't gain weight and am very thin. I used to swim in a lake a lot as a kid (don't know if I could have parasites). I most likely have had some cavities for awhile as well, but have never done anything about them (not sure if these could have resulted in health issues). I don't know if this stuff means anything, but I thought it might be useful.
Also autoimmune issues are not uncommon on my mom's side of the family.
I am 22 and in a similar predicament, although not as severe I would say. First of all I would be taking Betaine HCL and a comprehensive digestive enzyme formula. It seems I am getting some weight with these and eating tons as well. Undigested food gets much more scarce on these supplements.
Next... if you want to detox and get energy back, probably exploring methylation can help a great deal. Go to the Phoenix Rising forum and learn about this popular protocol for CFS.
Other things to consider which can be huge are leaky gut (basically inflammed epithelium and food intolerances),thyroid and adrenal fatigue, adrenals need to be treated first if you have problems with both. And gut needs treatment the first of anything but wont get completely cured if you have thyroid, adrenal or methylation (glutathione) issues.
I am still trying to decide what the f*** to do for myself, but I am aware one of the things above holds the key, or a combination of these. I have tried a good array of things for these problems with no success but because of testing and symptoms I know I need to persevere.
Yeah, definitely start taking Betaine HCL and digestive enzymes with each meal
Those two supplements are the best thing that ever happened to my health, they have done wonders for my energy, constipation, weight
The undigested bits in your stool make me really think that enzymes and Betaine are the right suggestion, I used to have large undigested bits come out before I started supplementing. It's rather unsettling to see a corn kernel come out looking exactly the same as it did when it was eaten
When you suffer shocks, when you can feel your adrenaline kicking in, take a deep breath. Reduce your anxiety. Meditate. Seriously, meditate frequently. Find activities that allow you not to be anxious, especially ones where you can immerse your experience in full body movement. Eat a little yogurt or kefir with every meal, have a little when you go to bed. Just a little, like a spoonful.
Don't eat lots of saturated fat and refined sugar. I know you're already skipping the sugar. Don't eat any hydrogenated oils.
Sleep as best you can. Get to bed at the same time every night. Try to let your body wake when it wants to.
Practice cortisol-lowering "power poses". Look it up.
I think you need to heal your digestive tract and sympathetic nervous system at the same time. I think that's basically what "Adrenal Fatigue" is. Sounds like you've got something like it.
Anxiety is both psychological and physiological. It's not all in your mind, rest assured. Don't take it personally that others don't understand. But also understand that you can make substantial changes in your body with your mind.
I wouldn't supplement with anything but maybe a B complex and digestive enzymes. Maybe vitamin C. There are other things that can help some, but you can get better by addressing your sympathetic nervous system with intentional relaxation practice and your digestive issues with eating well and using yogurt.
I'm biased because it's these things that seemed to have helped me. I used to be a mess. I'm much better now.
Oh, you might try zinc. If your stool turns black, I think you needed it.
Type A? Suggestion...look up on line or get the book "Blood Type diet" eat only Highly Beneficial foods, pick 2-3 see if you feel better. If yes stay on them. Out of all the things suggested and tried, SCD yogurt is amazing! Most current health tip I'm following, at least a cup a day. There are specific instructions to get it "right" (or correct):) not too hard for me to do with serious brain fog going on though... look at SCD 24hr yogurt
Book "Eating Alive 2" is helping me understand all this a lot more...Ileo-cecal valve
...also lots of distilled or R/O water always... hope this helps : )
"You have mercury poisoning most likely.
Check your dental fillings, if you have any.
Either those teeth must be totally removed, or even more money spent at a special biological dentist to remove the Amalgam filling and replace it with something that is not toxic.
Look up Mercury on Dr. Mercola's Website. He has a link that talks about it with Dr.Chris Shades.
Chris Shades talks about it in some complicated but informative videos.
Youtube has more videos with Dr. Boyd Haley talking about the toxicology of mercury in dentistry.
Then on yahoo forum groups there is the frequent dosing chelation group as well as mercury autism groups.
Dr. Andrew Hall Cutler has the most precise effective treatment protocol to remove Mercury. However, you will need the products Chris Shade sells on Quicksilver website. You will need to learn and understand International Association of Oral Toxicology and Medicine IAOTM with the people like Boyd Haley. This will help you find a special Dentist. These dentist are hard to find, they have to hide from the FDA and federal government.
I recommend you listen to Gary Null on progressive Radio Network. He talks about nutrition, and the government trying to take it away.
The bottom line is, there is a protocol to remove mercury. Part of this includes diet, which the other people on here already told you about. That information still applys.
It takes a lot of sulfur to remove mercury. So the diet needs meat and cruciferous vegetables.
Two things are the most important.
1. You must not take Alpha Lipoic Acid ever, incorrectly, other than how Andrew Cutler specifies. It will redistribute mercury back into your brain if done incorrectly.
2. You must remove those teeth with dental Amalgam fillings first or see a dentist first, before your body will start to heal or tolerate a protocol to remove mercury from the body.
Look up those names,
You can go to Peartree and look up Sam7777
I have a library worth of information there.
Pm me if you have any other questions. This is a lot to look up and interpret, but you must do it if you want to get well, as well as what you were told to do by the other people.
The mercury, lead, and other heavy metals are the root of the other symptoms and ailments you have.
It absolutely affects you. It is passed into the unborn. If you have mercury, than it is no doubt the more insidious variety obtained from the mother. I wouldn't rule out other heavy metals either.
This is not easy stuff to work with or treat. The people on curezone, and phoenix rising, and Dr. Larry Wilson's website, are just about the only group of people I have encountered with knowledge on the subject.
It is a subject that is near impossible to believe. Almost utterly impossible. It is rooted in hard peer reviewed science. Genetics, toxicology, and environmental health journals publish about these issues. However, it is a battle of media and corporate sponsored news. I can only urge you to seek out primary evidence on the internet and internet communities to try to see the truth and question actual science. There is no actual Science in the media, when they push pharma drugs, it is said as though its factual. I would even argue, that people WITH heavy metal poisoning, are probably much more faithless and skeptical in general (I can say this about my self in all honesty). It hurts the nervous system a great deal.
But none the less, with people like Dr. Gary Null constantly reviewing internationally renowned and notorious scientist like Andrew Wakefield, and a solid underground community on the internet exposing the research of independent scientist communities, the vaccine affairs in the media, books like Dr. Kenneth Bockman's on childhood autism.
There is another book about autism called Starving Minds Starving Hearts. It has some particularly disturbing data showing the similarities between mercury poisoned individuals from occupational exposure, and those with autism.
I always point out peer reviewed international studies and published works over autism, because autism is well researched. Many forced at work try to deny the connection between autism and mercury, but the body of evidence largely suggest pollution in general with heavy metals being the largest culprit.
Actual mercury poisoned people in general do not simply have any body of research comparable to autism to fall back on for support against the skeptical society.
Mercury is indiscriminate in causing chronic diseases, like your symptoms. It does not give people autism always. Autism has many many physical symptoms that are unmistakably similar to mercury caused symptoms.
I wonder what kind of health problems your mother has? This could say a lot about what you have occurring.
In any case, I urge you to look into the hair mineral analysis tests from Trace Elements, Doctor Data, or elsewhere.
Chronic conditions and stories like you are having are just far too commonly associated with genetic and pollution based diseases that involve nutrient deficiencies. You should read the Celiac.com forum as well, and get a antibody test and/or Genetic test to determine for Celiacs (gluten/wheat autoimmunity disease).
Still, often the autoimmune problems caused by food, only serve as a reinforcing sign of the inevitable presence of heavy metal poisoning. No single thing more so than metals is known to create such severe food allergies to so many normally harmless foods.
Chronic liver pain is not a small thing. It will not be easily diagnosed or treated, the mainstream medical approach will require specialist, likely Rheumitologist and Immunologist. It sounds autoimmune. But, once again, metals cause autoimmune diseases.
I simply want to inform you as well as I can, that underlying root issues can never be "cured" even if the experimental autoimmune drugs manage to suppress it.
Whatever you have going on in your body desperately needs an alternative diet plan and alternative health."
So in effect, you MUST take alpha lipoic acid at a low dose.
FEW FEW people would tolerate more than 2.5 to 30 mgs of this first 3 months of chelation.
I haven't been on curezone in almost 8 months, because I tried to chelate in November with 200 mg every 2 hours, and it's a wonder I'm not dead.
I'll tell you one thing though, I learned the hard way alpha lipoic acid is no Sugar pill. It does things, and in the wrong context, it will hurt you.
I know you posted this awhile ago, but I was going back through my profile and saw a post of yours i had responded to at one point.
Honestly you sound like me in many ways. I have been sick since I was 18, and I am 34 now.
I was told I had chronic fatiuge, then fibromyaglia, then it was all in my head. Obviously psychiatric problems.
I developed a lot of neurological issues and had a lyme test, one was negative, one was positive. We decided to treat for the lyme. I am happy to report that my neurological issues are gone, but not others.
I was on IV antibiotics for 3 months, rocephin and flagyl. Before that zithromax and ceftin orally.
I would recommend finding a good integrative physician. I I hadn't, I would never have known that my anemia was due to babesiosis. I was negative for babesia microti the most commone one, but positive for babesia duncanni (labcorp tests for this, it's called WA-1).
I also found out that I had a ameoba in my intestines, and whipworm. The GI doc told me my muscusy stools and constipation was just IBS. I had a chronic whipworm infection and had no idea, because my stool tests were negative.
I ended up going to see Dr Cahill in NyC, he goes 14 inches up into your colon and takes a scraping off the music layer and looks at it under the microscope. Very thourough. The test cost $500 without insurance, but I can poop for the first time in years without stool softeners so it was worth every penny.
I also had my house teated for mold and found elevated levels. We had to remediate our attic as i am highly alleric and this can cause systemic inflammation..which can manifest itself as allergies, gut issues, depression, etc. I highly recommend making sure your living area is not contaminated because it will make treating anything else difficult if you are sensitive like me.
I also just did a heavy metal test, you take a pill the night before than pee in a cup first thing in the morning. My blood test for heavy metals were negative so I wanted a more comprehensive test.
Other things to look for are lyme, babesia, bartonella.
I was tested for the mTHFR gene, and found I am heterozygous..so my enzyme activity is only 50%, so now i take b vitamins like methyl folate and P-5-P.
I too tried gluten free diets without success. I have eliminated dairy in a last ditch effort to get rid of my ance. I have had acne steadily since high school, it goes away if i am on birth control or antibiotics, comes back with a vengeance if i am not. My last resort is accutane for a third time.
The gut issues really bother me, I take probiotics, digestive enymes (pancreatin and ox bile). Lots of fatty acids.
I don't know, I was extremely shy growing up and have anxiety issues, sometimes i wonder if i take it out on my gut.
I am doing accupuncture now to see if it helps. Mindfulness therapy.
Sometimes i wonder if my chronic problems are from unknown gut viruses..like a enterovirus that no one knows about yet. I am tired of feeling sick but i don't know how to fix it.
I can only suggest finding a good doctor who will help you peel layers of the onion back, corrected things as you go along. The worst part is, a good doctor is expensive. I travel 5 hours to see mine.
I don't know what specific forum to post this in...I'm struggling with being chronically fatigued. I'm looking for suggestions...herbs, supplements, homeopathy, etc...of things that may give me the energy to get through the day, while I work on healing my gut and recovering from autoimmune issues. Thanks in advance
Perhaps if you have autoimmune diseases you need an overhaul, which means gradually changing every part of your life.
Chi Kung if you can do at least 1 hour a day, will do this fast.
Taking herbs and supplements etc... can help here and there ... but in the end you are only tweaking a tiny part of your life and you aren't responding to emotional / mental / spiritual / physical parts of you.
Speaking generally, it seems many people end up taking things for many years and what really changes. Everyone has to own up and tell the truth about this.
But ... if you want to live well until the end of your days, you need more power. Much more power.
You need a systemic solution, you need to change everything, one day at a time.
And believe in being great once again.
In this universe it seems everything rusts on its own. They call it entropy.
And what this means is things go wrong quite easily, but if you want to improve things you have to try 3 times as hard.
Do you have the type of fatigue where you wonder if you will be able to get out of the house if there is a fire, or lack motivation to get anything done unless it is really interesting or urgent?
Do you have symptoms other than fatigue and autoimmune issues? For example, have you grown more introverted, have more intolerance for foods, gut problems such as candida, weaker intellect especially short term memory and pull muscles more easily?
Also iron, and B-vitamins should also be considered anytime fatigue and autoimmune diseases are an issue.
You can get tested, but if you don't want to wait, you can try some of these one at a time and see how you feel. Try some B6, tryptophan and iron together for a boost in serotonin.
Vitamin A and selenium together can be a powerful energy boost, as both help convert thyroid hormones into their active version.
B12 is another big one for fatigue. Try 1000mcg today and see if you feel a difference. If you get a headache about four hours later, it's a sign of deficiency - so just take more. You can't overdose on B12. I've spent like 20 hours researching this.
Iron and vitamin A together are pretty powerful for fatigue.
Your response to all of the above suggestions will completely depend on your current nutritional status with each nutrient. Maybe vitamin A won't do much but vitamin D will. Maybe iron won't do much but a b-complex will. Trial and error is sometimes the best way to figure out what you need.
Long term, it's really important to get some of all the vitamins each day. And not to take just one or two vitamins on their own, because they all work together. Taking one vitamin may increase the requirement for another vitamin. B6 may increase requirements for B2, B3 and iron, for example.
Zinc can lower cortisol levels, which is good, but can make you sleepy. Something just to be aware of. If you try 15mg of zinc in the morning and feel tired, you probably are deficient in zinc. And for the short term you'll want to take it at night just to avoid that daytime drop in cortisol.
Limit tea, alcohol, sugar, coffee (even decaf), and raw foods as these all have anti-nutrients and will suck away your vitamins.
I wish everyone with the viral form of Chronic-Fatigue-Syndrome would follow in my footsteps and be done with the demon virus causing it. I went thru 16 years of hell, always so tired. wanted to die to escape. no fun. Sometimes we have to look in the most unlikely places to find the answers we look for. I had read about microcurrents from batteries being successful at helping the body rid itself of all viruses and other microbes. I thought it was "far out there" but I tried it any way. Good thing I did because 2 months later I was a new man. Just Google Beck blood purifier to read more about this device. I still do blood electrification for the clearness and energy it gives.
National Institute of Allergy and Infectious Diseases, National Institutes of Health
Physicians have been mystified by chronic fatigue syndrome, a condition where normal exertion leads to debilitating fatigue that isn’t alleviated by rest. There are no known triggers, and diagnosis requires lengthy tests administered by an expert.
Due to this lack of information, some people have even suggested the disease may be psychosomatic.
Now, for the first time, Cornell researchers report they have identified biological markers of the disease in gut bacteria and inflammatory microbial agents in the blood.
In a study published June 23 in the journal Microbiome, the team describes how they correctly diagnosed myalgic encephalomyeletis/chronic fatigue syndrome (ME/CFS) in 83 percent of patients through stool samples and blood work, offering a noninvasive diagnosis and a step toward understanding the cause of the disease.
“Our work demonstrates that the gut bacterial microbiome in ME/CFS patients isn’t normal, perhaps leading to gastrointestinal and inflammatory symptoms in victims of the disease,” said Maureen Hanson, the Liberty Hyde Bailey Professor in the Department of Molecular Biology and Genetics and the paper’s senior author. “Furthermore, our detection of a biological abnormality provides further evidence against the ridiculous concept that the disease is psychological in origin,”
Ruth Ley, associate professor in the Departments of Molecular Biology and Genetics and Microbiology, is a co-author.
“In the future, we could see this technique as a complement to other noninvasive diagnoses, but if we have a better idea of what is going on with these gut microbes and patients, maybe clinicians could consider changing diets, using prebiotics such as dietary fibers or probiotics to help treat the disease,” said Ludovic Giloteaux, a postdoctoral researcher in both Hanson’s and Ley’s labs and first author of the study.
Researchers have evidence that an overactive immune system plays a role in chronic fatigue. Symptoms include fatigue even after sleep, muscle and joint pain, migraines and gastrointestinal distress. One hallmark of the condition is post-exertional malaise, meaning patients may take weeks to recover from minor exertion. To test for ME/CFS, clinicians may give patients a cardio-pulmonary exercise test where they ride a bike until they become fatigued. If the test is repeated the following day, ME/CFS patients usually cannot reproduce their performance from the first day..
“That’s very typical and specific of people with ME/CFS, because healthy people, or even people who have heart disease, can reproduce the exercise on the second day, but these people cannot,” Giloteaux said.
In the study, Ithaca campus researchers collaborated with Dr. Susan Levine, an ME/CFS specialist in New York City, who recruited 48 people diagnosed with ME/CFS and 39 healthy controls to provide stool and blood samples.
The researchers sequenced regions of microbial DNA from the stool samples to identify different types of bacteria. Overall, the diversity of types of bacteria was greatly reduced and there were fewer bacterial species known to be anti-inflammatory in ME/CFS patients compared with healthy people, an observation also seen in people with Crohn’s disease and ulcerative colitis.
At the same time, the researchers discovered specific markers of inflammation in the blood, likely due to a leaky gut from intestinal problems that allow bacteria to enter the blood, Giloteaux said.
Bacteria in the blood will trigger an immune response, which could worsen symptoms.
The researchers have no evidence to distinguish whether the altered gut microbiome is a cause or a whether it is a consequence of disease, Giloteaux added.
In the future, the research team will look for evidence of viruses and fungi in the gut, to see whether one of these or an association of these along with bacteria may be causing or contributing to the illness.
Co-authors include Julia Goodrich, a doctoral student, and William Walters, a postdoctoral researcher, both in Ley’s lab.
The study was funded by the National Institutes of Health.
I worked out the cause over 2.5 years ago! So much for the intelligence of these researchers when someone with no equipment, little background scientific knowledge could beat them by many, many years. They are not even in the right ballpark! Not even close to finding the cause. I will say that no one will find this quickly because I know exactly where it is located. Affecting multiple locations! Science and medicine does not know how the human body functions and ignores all the clues. Therefore the puzzle will continue for many years. BTW it is a bacterial infection which replaces sections of the digestive mucosa with a biofilm in order to provoke an immune response setting up a feedback loop which benefits the bacteria.
I could solve this in the space of a few months! I have had Chronic-Fatigue-Syndrome for over 30 years and the infection is incredibly advanced with my digestive system extremely permeable. Rather than being able to achieve, I have to spend my time countering all the effects of these damn bacteria. It's stalemate while attempting to find ways to destroy them without further damaging my digestive microbiome. All avenues keep being blocked, I cannot get 4 d- form amino acids to help bring down the biofilm, no company will sell them to me. Important tinctures to deactivate efflux pumps that I am being prevented from purchasing. Frustration upon frustration.
ALL autoimmune illness and not just Chronic-Fatigue-Syndrome could so easily be ended. Millions of people who are in pain could be restored so easily and humankind could being to eliminate this plague on humanity that has taken advantage of humans since early humanity. Where they are getting into the human food chain needs to be found. Their natural enemies identified, none pathogenic and then introduced to control them. Identify their quorum sensing, efflux pump mechanisms in order to make destroying them easier and less damaging on the human digestive system. Localized treatments are needed in order to limit the damage. Unfortunately I doubt that the medical profession has what it takes to do this.
The abnormal bacteria are a consequence of the illness which no one seems able to get their head around. I noticed the connection between these things, a sequence of events that allowed me to decipher the cause.
These bacteria are extremely common and I say that as a collective whole because they no only cause CFS, they are also responsible for Arthritis, Asthma, Eczema, responsible for type 1 diabetes and all other types of autoimmune illness. Is just a question of the exact location that they attack! Just a fraction of a centimetre dictates whether it is CFS or Asthma, Arthritis etc etc. Yes CFS suffer from Joint and muscle pain but it is the location that affects the hypothalamus/pituitary and the resulting effects.
I did want to prove this but until I am back up to speed, free of the burden of time spent treating this, I can not put the time that is needed.
There are plenty of people in heavy metal detox groups who report CFS, and messed up gut ecosystem. Some of them reported impressive gains after detox plus other interventions such as support for methylation, adrenals, healthier gut balance, etc.
Once a person has started eating a healthy diet and has detoxed sufficiently I wonder if a "gut make-over" could be done. I suppose some people use Miracle-Mineral-Supplement since it kills such a wide variety of microorganisms, unfortunately, both beneficial and less desirable ones.
I assume probiotics and prebiotics will be important.
I disagree with your underlying hypothesis that Chronic-Fatigue-Syndrome is basically an infectious disease issue (it is not). It's way way more complex than that. At the very least, we all have to spend alot of time and energy trying to strengthen our own bodies, clean our bodies, nourish our bodies, and so on. It's the age old debate of whether our illness is the microbe, or the terrain (hint, it's both).
I realised this four years ago, bacteria does indeed cause problems with the immune system and in some people even taking the wrong strain of probiotics can cause havoc on the immune system causing problems with fighting illness, tiredness, cold limbs, circulation problems, mitochondria dysfunction, antibiotics can change your gut bacteria too leading to dysbiosis, seizures, low testosterone, rapid weight loss, hair loss etc... Your bacteria determines your overall health and how your immune system functions.
A great thread. If I may add that bacteria could be a problem but so can parasites, yeast/fungal strains and even viral strains.
The gut holds 70% of the immune system and Dr. Galland states there is a reason for this in that the gut has a high probability of infection. Also the gut is a microcosm to itself in that the variety of different organisms are all creating a microuniverse.
When a pathogen enters this arena then the immune system goes nutso and creates a toxic milieu of immune factors which cause damage to the gut lining which provokes further inflammatory immune responses elsewhere in the body. Which in turns sets off the adrenal response, neurological and everything else.
Galland states that when he sees a Chronic-Fatigue-Syndrome patient, the first he looks for is the gut and in his case, parasites.
I have found that avoiding high lactose containing dairy and processed foods makes a big difference. It is tricky to try to balance the gut as one poster said meaning that if you kill off the bad, then you may throw off the balance.
Colostrum, Vitamin A & D all support sIgA which is a key immune factor that is present in the gut. Probiotics are tricky in that you may be adding some that can further provoke immune responses. Personally I think that pre biotics such as apple cider vinegar may provide a better choice. But this requires experimentation since there is not a one size fits all.
Another thing to keep in mind is the gut/brain axis which has been studied extensively. When you are having a bad head day then likely it is coming from the gut.
I find a great help in neutralizing the acids in the gut by adding some alkalinity (baking soda). Acidity comes from the strong oxides that the immune system produces due to activation. Bulk charcoal is a godsend for me since it sweeps out the junk quite effectively.
Mitochondrial function should not be confused with mitochondrial disease.
Mitochondria are energy, there are different types of cell in the body (brain, muscle etc), the energy supplied to them is the same by mitochondria.
If mitochondria is not working properly then all muscle function is impaired. This includes the heart and can lead to huge problems with blood circulation problems and cold limbs, poor temperature regulation. Low cardiac output can lead to chronic fatigue symptoms. Low blood pressure.
I have often read postings on curezone asking why do I have cold limbs, often put down to circulation problems, it is the mitochondria not working properly that is the answer.
Biocare sell preparations targeting the mitochondria. A good antioxadant is Cellguard forte.
Antioxidants are very important if you suffer from mitochondrial dysfunction.
Toxins can effect the mitochondria too, bacterial or viral, peptide complexes,
Dysbiosis can effect your mitochondria.
Mitochondria have very specific nutritional requirements. Biotin, B vitamins, vit c, co Q 10 alc, d ribose etc...
Really, so my son is not suffering from it then even though he has all they symptoms, I don't have anything to do with Myhill, my son was under another Clinic at the time although no longer, what has my son got then because he did all the tests and they came back positive for it.
He tested positive for mitochondrial dysfunction and negative for mitochondrial disease.
He has cold limbs, blood circulation problems, seizures, thyroid problems, pubertal arrest, fatigue. He has a lot of other problems and there are other people on this forum who have agreed with mitochondrial dysfunction just type it in search box.
He is under university level for his health checks and has taken part in the latest research, he is under two professors because the national health system can't help him, I posted some of the latest news coming out of the University the other day but sadly Curezone was not ready for it, I was not surprised though.
I find this forum stuck in the past, nor open to new ideas, if it was not for getcuredordietrying posting up to date research I would believe it to never move forward.
I believe Myhill and other colleagues did publish their research on pubmed, but I don't worship it, I go by the results of my tests, alternative tests just like the ones most people take on here for candida etc like Great Plains and all the other one not recognised by the health system, why do you think it an untruth because the mitochondrial meds he is taking have helped him a lot.
I also disagree with some of your postings about probiotics, they did serious harm to my son but that could never be because I am on Curezone, I mean c'mon let's face it, where could you go wrong !
What is your opinion of Dr Charles Forsyth, he is booked up for the whole year, you could not get an appointment if you wanted too, he offers the following tests,
Tests relating to Mitochondria
it is thanks to Dr John McLaren Howard's pioneering work that the following tests are available,
Dr Howard co founded Biolab in London by the way.
ATP profile Acumen
This test measures various aspects of mitochondrial function
Mitochondrial Membrane / Translocator Protein Acumen
This test examines mitochondria in much detail
measures cardio lipid, vitally important for function within mitochondria.
Mitochondrial Respiration Studies
Test to identify when oxidative phosphorylation is uncoupled from the electron chain.
To say these tests have no function is like saying all alternative tests are no good that the health system does not recognise, that would mean tests like the OAT test, etc... These are all alternative tests. Your saying all these tests are a waste of time because the health establishment will not recognise them. So people checking for gut bacteria, dysbiosis and candida must be wasting their time too ! The health establishment will not support the candida claims that this forum makes, your treading in dangerous water making a bold claim that mitochondria tests are no good !
I would appreciate a reply after making such a bold statement. Especially if you are going to make the rubbish claim, at least back it up with something ! As something is better than Nothing !
Please accept my apology for not replying sooner but I have been having PC problems after starting constructing a reply which I never got finished on my other PC. Something has damaged a PCI express connector on the motherboard and no card works correctly in the slot. My PC crashed and after restarting the card would not work and no card now works in the slot. I now have two broken motherboards but at least this one is working to some degree but not 100% as the SATA connectors are not functioning correctly and I have been having problems with the display going into standby and not resuming no matter what I have tried. The reply I was constructing was on the other PC and ATM that is very unstable.
I do remember that I suspect that your son has a problem with his pituitary which might explain some of his problems with regard to his development. How old is he?
One herb which can improve the pituitary function is Tu Si Zi (Dodder Seed) which is frequently taken with Gou Qi Zi (Goji berry/wolfberry). In animal tests Tu Si Zi increases the weight of the pituitary gland and hence improves it's function. Together they can tone the kidney energy as well as improve the pituitary function and Tu Si Zi is meant to help with elevated liver enzymes which are common when Increased Intestinal Permeability Syndrome aka Leaky Gut is a problem which I think your son must be experiencing.
Dosage is up to 15 grams /day and two cups a day is usual. I boil a large pan which lasts me about 3.5 days. I would not be without it and I have been taking it for many years. It helps to lower cortisol which is often elevated and has many negative effects in such conditions. Cortisol increases saliva production which needs to be kept to a minimum! I bet that your son gets increased saliva whenever he eats due to histamine production. The only real negative is that it can be a little constipating. Taking some lecithin should deal with that better than any of the things you have been using because it addresses the causes of the constipation. Taking too much can loosen the bowel too much. I use powdered sunflower lecithin but there is a shortage of it ATM and the prices have risen quite dramatically due to that. Even the American sites have no stock of it ATM and the place I was getting it from also has no stock so I have had to go to ebay but the price is far too high IMO.
Why do you suspect pituitary problems, nothing has shown up for it. I have had loads of tests done on him and he has had brain scan.
All problems started with intestinal dysbiosis wreaking havoc on his immune system. I had the alternative tests done and he seemed to fit in with mitochondrial problems, antioxadant has been a real help.
He sees one of the best endocrinologists for his testosterone problems.
I won't go into what it's cost because many people on here might not be able to afford to go to the places I have accessed
but I have reached out for help. He has been lucky enough according to my local MP to have seen some of the finest people in the country within the NHS.
I have not been on these forums for a long time since recently but I have always been messaging people and in contact with people on Curezone ever since I first came onto the forums a number of years ago. I wanted to say something when I noticed the quality of the forum was suffering but seems to be running well now.
Why are most "national" institutes behind the times?
Stanford found viruses to blame and actually cured people with antivirals.
Over 20 years ago, they also found blood clumping to be the problem. As blood clumps into a rouleaux formation, it can't make it to the small capillaries very well. Numerous things cause clumping like poor GI health, radiation poisoning, and proteins leaking into circulation.
Let me boldface MITOCHONDRIA for everyone and a molecule called OXYGEN.
If oxygen fails to be delivered, how is mitochondria supposed to function?
To add to the first sentence: Physician's aren't mystified by anything, they primarily treat problems with drugs. Researchers that are also physicians may be mystified, but there's too much research out for mystification to continue.
And, there ARE known triggers, including stress and infection.
The cure is obfuscated and treatment of symptoms is still king.