I am new here to post on Curezone, I have learnt a lot of helpful info here, so thank you for this wonderful site. I am in my 30's and have severe CFS symptoms, MCS, food intolerances, have for a long time now and having a very hard time now. To the point that I have not been able to study/work for a while and rely on relatives and caregivers for support. I do vitamins and minerals, and try to listen to my body. I am trying Ayurveda remedies and it seems to be helping.
It is more like AF now really. It is hard even to type this I have all sorts of symptoms and so fatigued and stress keeps getting higher and higher with people who don't fully understand my condition. They keep being abusive, and not listening to me even though I try to communicate as clearly as possible. They keep pressuring me to get better even though my health situation is complicated.
I am so upset and unhappy. Lately feels like my condition is spiralling, though I try to be positive and hopeful about my condition.
Tried conventional meds but have not worked for me, some having bad reactions like being floxed. Since I have only started alt therapies recently felt like reaching out to some who are wiser than me. Everything is new.
Some support, encouragement and kind words appreciated and I respectfully request please no unfriendly comments, since I am going through a really bad time now in every possible way. I will post more soon when I have the energy. Thanks for reading.
I'm so sorry there are abusive people you are having to deal with on top of this illness. Unless someone has been through it, it can be so difficult for them to understand what this illness is like. It is truly an awful illness, and you sure need some encouragement having to deal with this on a daily basis.
Here's a post by someone from the Daily Strength website I posted above. I love this post called "The Unsung Hero Award". Hopefully it will encourage you too:
I did my 14th Liver Flush last week and it was by far my most successful- hundreds of stones in different colors and even some parasites. However, since then I've had some new problems. I still feel generally awful after eating (fatigue, brain fog, muscle weakness, joint pain, fluish) but i just feel overall worse now. Also, i have foamy urine almost every day and when i do coffee enemas i have tons of gas which was never there before. Also, im passing mucus during the enemas. The only other new thing is that i feel noticably worse after eating protein now than i used to, especially at night.
My first thought was kidneys but im not sure. Could it just be a new stage in my liver being clogged and all these symptoms relate to liver? The only time i screwed up in my diet (low FODMAP) was when i had a couple handfuls of macadamia nuts and felt awful afterward.
Liver? Kidneys? Im going to continue flushing but any advice on what else to do? Thanks a lot
oily scalp is the giveaway...that "oil" is chock full of hair-killing hormones. You must wash your hair 2 times a day and never every go to bed with a scalp full of sebum and grease. When you are washing your hair scrape the sebum and gunk off your scalp until your fingernails are full of debris. Wash your hair in lukewarm water, not too hot. Warm is okay. Once scalp is dry scrape your scalp with your fingernails until it hurts. These micro-wounds pull up special healing chemicals that promote hair growth. You can use liquid castile soap or any shampoo. Get the darn sebum off your scalp now! Diet has nothing to do with hairloss except in very rare cases. Most impoverished populations have good hair. You are hormone sesitive, which means your folicles are genetically sensitive to testosterone. Best advice is to keep your scalp squeaky clean and dry of sebum. Most people with good hair, or most women have nice dry, clean scalps, most people losing their hair have shiny, greasy scalps.
At some point I suggest that you get a Metametrix or similar stool test. Several of the symptoms could be related to an imbalance down there.
You may need to see a semi natural doctor such as a Functional Med doctor. You can use the search feature at their web site.
Dr Hyman was much sicker than you when he was a young doctor. In his book the UltraMind Cure he writes that he went to ten other doctors before someone realized heavy metals were involved.
HMs might not be a major factor for you since you did not list psych or mood problems. However Hyman's videos will give you a feel for the medical philosophy of an FM doc. They are medical detectives. HMO/Obamacare doctors are tied by the balls by the system.
You Ph is very low. Do you have reagent paper at home? try to test it during the day, say, 4 times.
with such low Ph, did the doc run kidney tests?
You have low blood pressure, cold intolerance (could also be heat intolerance when it around 30C), probably you also getting dizzy when get up fast, mild depression. These are symptoms of low thyroid function.
Coated tongue - intestinal putrefaction according to TCM. It could be SIBO in our med terms. I had it pretty white myself. This also was the last thing I gotten rid of though it should be the first thing.
I would suggest you get rid of the "white tongue". This improves digestion, cleans you guts, restore flora. You will be able to digest and absorb!!! nutritions better.
Check under my name. I have posted how to do cleansing with castor oil. Do it once a week until white coating disappears from your tongue. Your digestion will improve, you will feel more energetic. Especially, the first time or two times.
Ask the doc to run complete thyroid profile or at least TSH, FT3, FT4. Check at DrRind.Com. Dr. Rind explains it very well. In my case, it was conversion problem. Hi normal FT4 below average Ft3 slightly high TSH. Ideally, TSH is 1.3 - 1.8 (Dr. Rind).
A lot of times when people say "I lost 80% of my hair in 3 years" they didnt really lose 80% of their hair. Do you have pictures from 3 years ago and current to show that you literally have gone from a full head of hair to having only hair 1 inch from the edges of your hairline and only in the back? Because that would be 80% hair loss.
If you actually lost 80% of your hair and it was patchy then you're dealing with an autoimmune condition. If you've thinned out a bit or begun receding then youve probably lost about 10% of your hair density and thats typical male pattern baldness, which is almost always associated with the things youve listed (oily skin, etc)
You my friend sounds like you have a systemic Candida Overgrowth , probably in conjuction with parasites and a toxic liver. (which is mainly caused by overload of toxins on the system from candida and parasite excretions which are toxic) Please contact me for a Yeast Parasite Test kit to confirm what you are dealing with and a natural program to become well again. Joshua. http://www.jordanhealth.info
I had all these symptoms and my TSH levels were all normal. Reg. doctors only do 3 checks on the Thyroid...have heard there are 12 that can be done to get a more accurate reading. I took it upon myself to consider it was my thyroid and started taking Thyroid Support at VitaCost (not expensive) and it has worked wonders. No more symptoms after about 1 month.
I actually stopped taking it...thinking I was now better...and all the symptoms came back after a few months. It took a while for me to remember that it was what had worked and as soon as I went back on it, the symptoms again went away. Can't hurt to try it. I tired all the other things suggested by the others in the post and nothing worked except Thyroid Support. Not working or recommending the company, just was the one I tried and it worked. Others probably may also.
from your symptoms I’d say there’s a good chance you have Candida, lack of probiotics in your intestines, mental stress which causes you to tense up your facial muscles which pulls down the scalp which limits blood/lymph flow which has bad effects on hair roots, stress caused high cholesterol, food allergies causing dark eye circles, low thyroid hormone causing coldness, overly acidic diet causing the low PH. Message me if you want to discuss further.
Do not give up! When meeting people, I don't believe in coincidence. Maybe I chanced upon the forum to help you and I have something that can be a solution to your problem.
I guess there was no diagnosis for you yet. Normally, diagnosis is essentially in order to determine the treatment. Without diagnosis, it is hard to give prescription drugs right for you. We may think that it is the only way.
But do you know that there is a research company that found a molecule that would transmit immunity to your body. It took 40 years of scientific research to make it commercially viable. Yes, this is science-based.
This molecule might address your hair loss problem, but more importantly boost your general health concern as well. It focuses on boosting, educating, and balancing our immune system particularly our natural killer cells.
I don't want to make this message any longer. You could check this link to know more about it:
tinyurl . com/zu58z8x
(just remove the spaces between, and type it in your address bar)
Last June I had been trying to detox heavy metals. I had taken Powdered Zeolite Pure and then started also on Humifulvate, Complete Metal Cleanse by Enzymatic Therapy.
In fairness to these products, at times I took more than the recommended dose of the Humifulvate because I thought that it was helping me and was simply a natural product, so less of a risk. Stupid me.
In July I started to get severe dizzy spells which lasted till mid August. Then I retried the Humifulvate to try to change whatever it had done to me. When I did the dizziness decreased significantly, but then I got these horrible jolts which occured at night right before falling asleep. They were like lightning convulsions!! Really horrible. Then I retried the Humifulvate to try to change this and I got less of the jolts, but shifts in my body during the day, pain in my hands, jerks and trembling.
When I finally got to a practitioner he told me I had depleted my electrolytes and to start taking salt immediately. The salt and other supplements helped, but the one thing that has been helping me has been iodine.
I can't express to you what a nightmare this has been. If it hadn't been for the Iodine (and the salts) I don't know what would have come of me.
What did the Humifulvate do? Or the preceding Zeolite?
Apparently, rid my brain of electrolytes. Or suck the Iodine right out. Getting these back has not been an easy road. I get Bromide detox symptoms and can only take very little of the life saving iodine at a time.
Perhaps these products are good in a certain context. Perhaps they are better than other things. But if you are already a sick person and happen to deplete your electrolytes while on them BEWARE!!!!
I had a different experience with humic acid. I'm taking the Active Liquid Minerals brand http://www.4alw.com/liquid-minerals/
Overall, this is a great supplement. This supplement reduces heavy metal and candida\fungus symptoms. The problem I have is when I forget to take the supplement, I experience severe constipation, lasting several days, even weeks. Does anyone out there know why humic acid causes these symptoms?
It could be die-off. I know both zeolite and humic and fulvic acids can create die-off if you are toxic enough. Constipation is common with die-off.
To the other poster, I have never heard of humic and fulvic acid doing this. What you described to me sounds more like die-off also. If you have heavy metals in your brain and you start to chelate them, you can go through a healing crisis. Dizziness, is not uncommon with a healing crisis and I'm pretty certain the being shocked feelings you are common too with heavy metal toxicity. I know I have them with lyme and sometimes my hand and legs will jerk by themselves, and it sometimes feels like a jolt. I also have heavy metal issues so I'm sure this could be contributing to it as well. I have been using zeolite which has humic and fulvic acid in it. This particular product has been getting lots of recognition and I think awards. I am definitely having die-off. I've wanted to sleep all day and I feel like I have the flu, i.e. runny/stuffed up nose, alternating sore throat, headache, feeling more tired than usual, asthma kicked up, etc. Besides the zeolite, I am also taking an anti-parasitic and stuff for candida, so it's probably just a big whammy hitting me all at once.
I don't doubt that die off can cause many types of symptoms including neurological ones like shaking and having your hands move suddenly. In my case though, I have certainly had die off symptoms before, but never with the neurological responses. I have also had symptoms from mercury exposure, as when I had my Amalgams removed, and they were also bad, but not the same sort of thing. At least in my case, no neurological symptoms.
Though I think the Zeolite Pure which I had been taking first did lower my electrolytes (at least a hair analysis at the time seemed to show this clearly) even though it was helpful to me!!, it was the addition of the Humifulvate to my protocol that seemed to really knock me into severe neurological symptoms (which I didn't have any of with the zeolite). And I mean severe dizziness, extremely severe jolts at night, severe shifts and convulsive movements and pain in my hands and on and on, a true waking nightmare.
It seems, like I mentioned, that the one key factor which is helping me has been taking Iodine (and iodide). Which could point to the Humifulvate having the effect of removing Iodine from the brain (at least in my case).
I am not saying that all humic and fulvic acids would have the same effect. I do not know! Perhaps the effect of each will vary according to chemical composition. One thing I read though is that the actual mechanism by which these act in the body is unknown.
So....please, if using any of these be Extremely Careful for your own sake.
It does though me wonder if the makers of Humifulvate ever heard of such cases in their own country??? And if so did they simply dismiss them as having to do with something else? Not bothering to look into it too much?
Does Humifulvate have an affinity for iodine?
Whatever it does it seems it could possibly put a susceptible individual through HELL and cause very real damage, as in my case. Or even at low doses can it cause some sort of undetected low grade injury? Even in otherwise healthy individuals?
The research to answer this will probably have to wait for many years to come.
an update with some good news and perhaps a treatment that could further help anyone experiencing brain difficulties
so it has been over 2 years since I posted these emails
I have been on the Sea Salt and Iodine protocol which has continued to help me, though at a very slow rate
the damage I wrote about has continued to get better, less soreness, but the upper left portion of my brain still remains very very sore and I have difficulty driving and still with moving (even walking more than half a block) or lifting (because the lifting seems to cause? pressure in the same area), in summary it has been a very slow hellacious healing process
though perhaps some good news:
some potential help for brains and good news is that a treatment based on phosphatidyl choline (which I take as liquid sunflower based lecithin) and also a combination of sunflower and flax oils seems to also (besides the iodine) be helping my brain!! it seems to have sped up the healing process and I have less pain/soreness and greater ability to move!! which has been life saving for me
so I thought I would report this along with these entries
if you are having brain complications like I have reported here perhaps it could help you as well?
I get the oils from Lekithos and Body Bio (and don't make any money whatsoever from it)
also, I learned this from the Patricia Kane protocol which is related, but I only have taken the oils orally and not intravenously (as they do in that protocol), I think for me it might be way too much to take anything intravenously at this point
well, I hope this may be of help to anyone going through a similar experience, it seems as part of all this complication, my brain was starving for oils???
I had a question regarding the humic/fulvic acid drink you were taking. I also suddenly have severe constipation from drinking it. How long did it last for you and was it all the time? Is it permanent?
Has anyone heard of Robert Von Sarbacher's product called "Methuselah" for biofilms? It is supposed to be very effective for killing biofilms but it appears to have some kind of secret ingredients and it is almost impossible to find anyone who will reveal what is actually in this stuff and if it really works. Has anyone out there heard of this Methuselah stuff and if it works. Also, does anyone know what is actually in this stuff? I would really like to hear some feedback on it as I have a lot of biofilms. I heard about this stuff on One Radio Network and Extreme Health Radio.
hello, did you find out more about the product. i am trying to find out too. i saw someone posted, "Saponin complex is used for the biofilms." i haven't looked into it…. saponin complex. what i heard was it is organic soap for your insides, saponified minerals, …. but i still lack clarity as to what that is, like you said.