I've had myasthenia gravis for 10 years i've tried nearly everything i can think of acupunture, reiki, herbal medicine, allergy tests, i detoxed e.g colonic irrigations twice a day for a week and fasted, did detoxed diets, i went to venezuela and saw a doctor there who said he had a cure as he cured himself this treatment didnt work.
I have ocular myasthenia gravis my right eye droops and i have double vision. I really want to try a raw food diet but dont know where to start i just started juicing fruit recently. Im not taking any medication from the doctor as i had bad side effects with steroids i really dont want anything thats not natural in my body. I really want to get better im still really young and have alot of things i want to achieve in my life.
Thank you for sending me your blog. All the symptoms you were mentioning were things I have experienced. The weakness is horrible and embarrassing too. Sometimes I would feel like a 90 yr old woman.
I just wanted to update you on what is going on with me.....
I also was told about a thymectomy (sp?) but I chose not to have that surgery.
After seeing MANY A.M.A doctors/neurologists etc. NOBODY COULD HELP ME.
So, I have been Liver Flushing EVERY month since June 2009. I have done 19 Liver Flushes (at the beginning I did a couple/month) and I just released 25 BLACK LARGE STONES. Since that release I have not experienced much weakness at all. I will continue to Liver Flush and I am hopeful that I will no longer have to deal with this weakness again.
I am 36yrs old.
Also as well as the Dr.'s thinking I have MG they also think I have Lymes Disease and a MAJOR CASE of Candida.
Thank you again for your email.
Hiya thanks so much for your reply and all the replies I have had I couldn't remember my login so haven't been on here in years I am still have the same issues double vision and lazy eye I been trying everything but I really haven't stuck to a strict diet like I use too and been goin bed late so I know this must be affecting it I'm gonna try a Liver Flush I've heard about this a lot and gonna go back on dr Joshi holistic detox as this helped a lot getting all the waste and toxins out my body I always have a constant knot in my stomach and every now and then when it releases my eye lifts up it's really strange think I'm constantly stressed lol I just wanna get better thanks agin x
I have Myasthenia Gravis as well but i'm 18 so i've had it since i was 14/15. I've been doing the raw vegan diet and been drinking green smoothies and i feel like it helps a lot and I have more energy, feel more alert, sleep better and lighter :) I was already a gluten free vegan but even then i was overeating and feeling weak so i suggest you give this a try. I know how frustraited you must feel. I felt the same way too. But i'm feeling much better :)
THANK YOU for the info. I have found that really paying attention to what you eat has helped with the symptoms. However, what is actually working to eliminate the disorder is Liver Flushing.
AMA Dr's won't admit that nor with they offer that as an opportunity for the person with an immune disorder like MG (or any disorder for that matter)
It works! and it is the only thing that has.
I see you posted this a while since so hope you are coping with your ocular MG. I was diagnosed with ocular MG (giving me double vision but not affecting eyelids) back in 2005 with a Tensilon test (although I had had double vision on and off since 1994). Like you I tried everything I could think of (acupuncture, diet, homeopathy, supplements etc) - anything rather than go on steroids. I knew it was worse in times of stress and affected by poor sleep so I wasn't suprised throughout my younger sister's struggle with Motor Neuron Disease 2 years ago to have really bad double vision no matter what I did. Just weeks before she died, I took a food intolerance test which suggested an intolerance with milk, among other things. I cut out dairy and substituted cow's milk for soya products. Within three weeks my double vision disappeared and hasn't come back for a year now. I'm so amazed at the result, especially given the emotional stress I was under at the time, I just wanted to let someone know. Food intolerance tests can be expensive but for me it was well worth it.
Just a thought...
THANK YOU for sharing your story. I have been working on my issues (some people say I have MG, some say lymes disease, some say candida) NOTHING IS DEFINITE.
So, I have been trying something that will help all of these thing PLUS. It has been helping greatly (slow process though but hopefully a permanent fix)
My family and I do not buy cow's milk (for the past 3-4 months now) we have been buying almond milk. (GREAT STUFF BY THE WAY....you might want to research the negative effects soy products can have on your system too.....)
THANK YOU again and I hope things keep going well for you. It is probably good that you are off of cow's milk right now anyway (with all of the radiation they are finding in cow's milk etc.) It is amazing how the body can react to different foods.
Hello just reading about your success with getting rid of the double vision. I have quite severe ocular myasthenia. I'm on plant food diet, got rid of dairy and gluten etc, just wondered what else you were allergic to. It would be so helpful to know of anything you took or did.
Hi every body
My name is geovany
I was diagnosed with myasthenia gravis 9 years ago
I olny have problems with my eyes
But i heard some thing about
somebody try this before?
Let me know
Sorry for my English
I am from Mexico
For anyone looking for help and a cure google Dr. Mark Sircus and also YouTube has many of his videos on how to flush the toxins out of your body. He has written a lot of books but you don't have to buy any of the books just look for the videos that are a couple years old and watch them cuz he says everything pretty much what's in the books. This has nothing to do with food or Diet you don't have to spend hardly any money and it's for real it's awesome. I have a friend who's dealing with the same problems you here are and that's why I was looking online to gind out more about it. I've been very sick and after 5 days of doing what this doctor recommends I can't believe I'm doing so much better.
I was crusing forums using keywords, Lyme and Myasthenia Gravis. I found your post of 3 years ago. I'm curious to know if in the long run you had MG or Lymes or both? I suspect I have chronic Lyme and have symptoms of MG and feel the Lyme set me up for it. Just curous how you made out. Thanks if you can reply , I'd appreciate it.
I'm so sorry it has taken me this long to reply.....I haven't been on curezone recently. I'm still on my health journey. I am currently on Digestacure (supplent that cures autoimmune disorders) and I purchased the 6 bottle pack which lasted me 6 months and got me to 65% symptom free. I purchased another pack of 6 and that should take me to the end plus some leftover for maintanence. This supplement and a plant based diet (raw till 4) has worked wonders on me. I am detoxing quite a bit but minimal weakness so yeah!!!!!
Check it out......it is out of Florida.
Stay in touch too.....I'm gonna try to be on here more.
I am so sorry for such the late reply. I just saw your response. I am not on curezone.com very much because of what I am dealing with. It doesn't seem to be discussed much on the site.
I was inconclusively diagnosed with Myasthenia Gravis in 2002 at a well known hospital after enduring painful muscle testing. Just recently I requested from that hospital the medical records from those visits and tests. I found out that I DO NOT have Myasthenia Gravis. The tests were not inconclusive but VERY negative for the disease. Thank goodness I followed my gut during that time and did not have my Thymus removed (which was what the dr. wanted me to do at that time)
I have had NMD, ND, ODM, etc. do multiple views of my blood during my weak times etc. and NONE OF THEM can figure out what is going on with me.
What I experience is MAJOR muscle weakness at times. Stress, Heat, Exercise, Hormones etc. can be triggers but not always.
The one thing that seemed abnormal is a lyme test I had done that displayed an inconclusive tests. The MD I was working with at the time stated in his opinion I have chronic Lymes. I have been trying to deal with my illness through a plant based diet, supplements and digestacure.
This is all I have found that I can go on so I am trying to figure this out. It is extremely frustrating.
I don['t know if it is working for me....I am detoxing quite a lot and one of my major symptoms of detoxing seems to be muscle weakness. This is just so very frustrating. I feel like a 80 year old when I am half that age.
Has anyone used and would share reviews of a product called DIGESTACURE?
I have something going on with me that can take many autoimmune disease shapes. Mostly it takes the shape of Myasthenia Gravis but all of the tests have concluded I don't have MG yet I have a lot of the MG symptoms.
Anyway, Dr's are confused and stumped with what I have and I tired of dealing with this. I found out about Digestacure and was wondering if anyone had any experience with it. If I try it I was planning on trying it for 6 months with nothing else supplemental. PLEASE RESPOND TO THIS POST ASAP. THANK :)
"The symptoms of myasthenia gravis may include eye muscle weakness, eyelid drooping (ptosis), blurry or double vision (diplopia),unstable gait, a change in facial expression, difficulty in swallowing, shortness of breath, impaired speech, and weakness in the arms, hands, fingers, legs, and neck...."
You defined your problems perfectly..."I have something going on with me that can take many autoimmune disease shapes"
I don't know what Digestacure is, but I believe that bad digestion is a central problem to probably a number of illnesses, quite probably "Adrenal Fatigue". I believe that digestion problems can result in autoimmune disorder-like symptoms, if not actually lead to full-blown autoimmune disorders. The problems in digestion seem like they might be an imbalance in bacteria and intestinal permeability, but these are just guesses. From what I can tell, supplementing with yogurt or kefir, maybe kombucha and other probiotic foods seems to help. I'm testing this out now. Also, I'm paying closer attention to what peppermint and ginger can do.
If you want to try a commercial product aimed at helping digestion, I say you stand a fair chance at benefit. But this could be a long battle, so you might want to look more closely at the details so you can learn from your trials.
I'm using digester care I try to trial bottle couple minutes ago and it started working five days on Kindia eczema leaky gut. I just got the regular size bottle because it's expensive I couldn't afford it for a while I'm on day three I am getting a hexing effect which is not too bad. The first to make sure I did it start to clear my skin within a few days so I do feel it does work it's anything to help me so far my diet is clean I need a lot of plant-based foods no grains no gluten no dairy,no sugar. I juice once a day. Hope this helps. I love digestaqure
I have been on digestacure for about 7months now. I did buy the 6 bottle pack first and when that ran out I bought another 6 bottle pack. The first pack took approx. 60% of my symptoms away so they said probably another 4 bottles and the the other 2 would be for maintanence. I have increased my daily dosage to the 12/day and man am I detoxing. I am vegan/plant based diet.....actually raw till 4pm. I agree that it seems quite pricey but I stopped taking other supplements except for D3 and living oils.....so minusing my other supplements has made the cost that bad.
Are you still on this? I'm sorry I haven't replied to you sooner....I haven't been on curezone recently.
Firstofall, I thank you for spending your valuable time in reading this email.
I am unmarried woman aged 33 years. I am suffering from congenital myasthenic syndrome or CMS and taking treatment from NIMHANS, Bangalore.
My symptoms of congenital myasthenic syndrome are as fallows:-
1. Drooping of both eyelids. no movement of both the eyeballs.
2. No Respiratory problem, can breath easily.
3. Little bit of swallowing and chewing problem.
4. weakness in whole body
5. No Double vision.
6. Can see clearly.
No one in my family has CMS or myasthenia gravis or no history in my family had CMS or myasthenia gravis.
Now, I am taking Pyridostigmine bromide 60mg daily 5 tabs.
From 2002, I was taking Corticosteriods 30mg daily for about 3-4 yrs. With Doctor’s advice, from 2005, I tapperdown Corticosteriods and with God’s Grace, now I completely stopped taking Corticosteriods.
Three years back,for some days, I took Cellcept tabs and now, I stopped it completely. At present, in addition to Pyridostigmine bromide tablets, I will take Meganeuron OD Plus and Antoxyl Forte and Potklor syrup and Gravitor SR tabs. This four medicines I will take (as and when required) whenever I go outside or when there is more work or when there is more weakness.
At present, I am having moderate weakness.
We are non-resident of Bangalore. Suddenly, my sister's marriage has been fixed and there is no time to go to Bangalore and consult my doctor and also ask for any more powerful adjunct medicine (powerful medicine/general medicine) other than the above four mentioned by me. I don't have any other diseases other than myasthenia gravis.
Please tell me the name of any powerful adjunct medicine (supplementary medicine) other than the above four mentioned by me, so that I will be very grateful to you.
In a Google search of the terms: myasthenia gravis gluten Lancet on a single line, this is some of what came up. They want $36 for a reprint and refused that offer. But what it shows me is that the medical community KNEW over 35 yr ago of a gluten connection.
Is it too much to ask that you do a trial of 2 months gluten-free?
Although modern wheat is the greatest offender, my MD says even a little gluten in foods can do a lot of harm. Gluten sensitivity if far more common than most realize. See some of my previous posts below.
I don't know if this condition fits this forum, but I am selecting various forums that someone on those forums MIGHT know or have heard of this condition:
I have a friend who has a condition that comes on suddenly where he goes into severe pain all over his body. He then is down on the floor, cannot move.. not even one joint. Every joint in his body is in severe pain and is rigid.
The hospital put him on HUGE dose of muscle relaxers, which did not work. They also tried traction.. that did not work either. They told him it is like he is in rigor mortis.
At one point, he fell asleep and when he awoke, he was then perfectly fine.
This was not the first episode of this he has had.
I'll base my response on the assumption that the hospital has ruled out a brain tumor or other sever neurological disorders via imagery and diagnostic testing, if not, he needs to see a neurologist ASAP.
In Chinese medicine, as you have described it, I would suspect this sort of pain to be an aspect of severe "blood" stasis, where the 'blood" stasis is and its origin would require a proper evaluation. Other things to look for is fascial pain syndromes (myofascial dysfunction, trigger points) and the autonomic phenomena that can come with it, these conditions being western explanations of qi and "blood" stasis and can be be treated effectively by a well trained Chinese medical practitioner with the use of acupuncture, moxibustion, physical manipulation and therapy, and herbal medicine.