I have been diagnosed with intestinal Candida (confirmed by a stool test) and leaky gut. The naturopath also noted that my TSH was slightly high (3.8 and 4.2 during two separate blood tests). A few months ago I was diagnosed with lactose intolerance and SIBO and placed on antibiotics (Rifaximin), which helped my digestive issues, though they subsequently returned about a month later. With regards to the Candida, I have been placed on a very strict Paleo diet by the Naturopath I saw- I am only allowed to eat meats/fish and veggies (no potatoes, though sweet potatoes are okay) and two small pieces of fruit a day. This is supplemented by Oregano Oil supplements (10 days on, 10 days off), probiotics, and digestive enzymes as well as melatonin for insomnia. I have been tested for Celiac and gluten intolerance (via genetic test) as well and those were negative.
I am incredibly skinny and lost alot of weight earlier this year due to some personal issues and an attempt to eat healthier that in reality (and without realizing) was way too calorie restrictive, while also exercising way too hard for my calorie intake. I was never anorexic in terms of thinking I was fat but i definitely became too obsessed with eating healthy and my caloric intake was probably less than 1000 calories after working out for months. I think this may be the root of why I started to have digestive issues, though I have no idea (I also moved abroad, etc).
In terms of symptoms,I started with alot of bloating (especially during the evening), horrible gas, going to the bathroom rarely with loose stools, and feeling of fullness/pressure. I was also pretty easily irritable, depressed, have Raynaud's (cold hands/feet), trouble sleeping, and had alot of trouble concentrating/memory. Post the rifaximin, I felt much better for awhile but eating a "normal" and thus higher calorie diet caused severe diarrhea and abdominal pain. I am supposed to be going for a colonoscopy soon, as the Dr. suspects that the bacterial and now Candida Infection s point to digestive issues as the root cause.
Anyways, has anyone had success on the Candida diet? I have had less digestion issues since following the strict veggie & meat/fish (with some fruit) that I have been on but I find myself very tired and still losing weight.
To be honest, looking online is so confusing with regards to the Candida diet. Ie, Quinoa & grains is okay in some sites, not on others. Others say completely no grain and no fruits, others no. I'm willing to follow the diet if it will help cure me but I am honestly losing more weight and have very low energy, despite consuming spoonfuls of coconut oil and being very liberal in adding olive oil. I am 5'10" and have dropped to 100lbs so continuing to follow this diet and possibly lose more weight scares me. I have yet to see that it has really helped cure many people. Any thoughts/suggestions on how I can help cure my digestion issues?
I would like to incorporate some type of grain or carbohydrates if people have seen that it works for them in the battle against Candida so as to up my caloric intake. I just find the low sugar/low carb confusing, as I understand (though correct me if I'm wrong) that the body will convert fat and protein to glucose if needed so it seems like Sugar will eventually be in the body anyways for the candida to consume...
Thanks for any help and advice
"The diet seemed to help a little, but the yeast was still there. I sank into a depression after six months of “healthy living.” With every meal, I began to feel like I was just force-feeding myself so that I could get through the day.
“Why do you stick with it?” my boyfriend asked one day.
“Because I don’t want to be sick,” I replied.
“But is the diet even helping?”
“A little? Dr. Sal said it would take a few years. You know, baby steps.”
"At the end of June, after almost seven months, I went back to a regular diet. I’d lost 40 pounds. My cheeks were sunken, and I had dark circles under my eyes. I needed nutrients. I needed to feel normal again."
Agreed, the so-called candida diet (which doesn't even exist) or paleo diets are the worst possible diets you can follow, especially in your situation (addressing the original poster) of being underweight. The only benefit to paleo or low-carb diets is you will have less digestive discomfort because proteins don't tend to ferment in the intestines when your digestion is sluggish, however long-term low-carb diets will make everything 100 times worse including digestion, most people become totally carb-intolerant and develop other food intolerances on a low-carb diet because their digestion becomes extremely impaired. Avoid this diet like the plague. You need a healthy balanced diet with plenty of carbohydrates in your situation. It may not feel comfortable for now because you are likely not digesting most of your food and then it is fermenting in your intestines but that doesn't mean your body still doesn't need it. You need to correct your digestion and overall balance of your body. Any doctor that you go to should be telling you how they are going to get you back into balance. If they suggest paleo diets (or any other fad diets) or anti-fungals to treat candida, they have no clue how to treat the body as a whole and are no better than regular mainstream Western medicine (which is completely pathetic of course). The absolute key to curing candida is correcting your digestive function and immune system, it has nothing to do with starving the candida or blasting it out with anti-fungals.
Thank you very much for all your help. I understand that Paleo may not always necessarily be low-carb but the current version of Paleo that the naturopath has me on definitely is- I am only allowed veggies & protein and 2 fruits a day. I definitely have issues with Carbs as when I went home over Christmas I just decided to try eating normally (plus all the Christmas goodies) to see if digestive issues would just disappear if I ate normally. The result was severe abdominal pain and diarrhea for 2 weeks. It was awful. Shortly after was when I was diagnosed with Candida and the diet stopped the diarrhea and pain (though it comes back every once in awhile). I definitely agree that I dont think the diet is the best for me. I expressed my concerns to the Dr. and he just told me to eat more avocado and coconut to get more calories.
Any suggestions on how to improve digestion and avoid intolerances when transitioning to a regular carb or regular diet? I want to be able to eat carbs and everything but am afraid of returning to feeling horribly sick, as I need to work, live etc. I definitely have candida in the intestine... how can I eradicate it? Everything I see points to this diet...
I understand your situation very well and it is very difficult to correct your digestion once it has got to this state. It is important to understand that you have candida because your digestion is impaired, not the other way round. Most people think you just need to eliminate candida, then your body returns to a healthy state, it is the opposite, help your body to return to a healthy state and candida will also be removed. It is hard to give specific advice to you because I don't really know enough about you, but what I would say is that however you got yourself in this situation, do the opposite to get yourself out. So you were under-eating, over-excersicing, malnourished and that is what got you sick, so do the opposite to correct your health. Eat regular, nourishing, healthy meals, with a healthy balance of carbohydrates, fat and protein and keep consistent meal times. You should prepare your own food and it should be all foods in their natural state, unprocessed. As I said, yes carbohydrates may cause digestive issues currently, but that doesn't mean they are bad for you or that you should avoid them. This is a very common mistake people make, myself included, to avoid carbohydrates and you set yourself on a path to disease and suffering for a long time. I see the pattern time and time again on curezone of people that eat low-carb, they feel a bit better for a while but over time develop more and more food intolerances and eventually notice that even their low-carb diet makes them feel sick by this point you have dug yourself a very deep hole that becomes more and more difficult to get out of. Don't exercise too much, go for relaxing walks and do slow-paced yoga. No you can't just eat normal food, you have to take care, find the foods that give you the least amount of reaction, some people do well on potatoes and squash, for me white basmati rice is great. You may want to go easy on the fruits for now, but you have to find nourishing carbohydrate foods that you can eat on a regular basis. Coconut oil and avocados are fine but they should not be a staple of your diet.
I have always eaten "regular" meals (3 times a day, 2 snacks a day) but I will definitely work on increasing the calorie intake in each meal by incorporating carbohydrates. Will probably lay off bread for now but will try to incorporate rice, oats, quinoa, etc until I feel like my body can handle gluten/bread. Any other suggestions on food? I usually snack on fruit or yogurt but had to stop the yogurt with the lactose intolerance. I recently tried tahini (though this technically wasnt allowed) but noticed my symptoms were worse with it so i stopped. Potatoes and sweet potatoes are definitely a good idea. Will try the sweet potatoes tonight.
Yes, I would agree staying away from bread is probably wise. Modern wheat is a toxic poison that shouldn't be consumed by humans. Anything with yeast in it will tend to ferment more in the intestines. Rice, oats and quinoa seem pretty safe, amaranth is also very good but the taste may not be for everyone, very nutritious though. If you eat fruit it should be eaten alone not combined with anything this will decrease fermentation in the gut. Some fruits will ferment more than others, see what you feel okay with. I find it strange that you have symptoms of lactose intolerance from yogurt, as the bacteria in the yogurt actually breaks down and digests the lactose so there is very little lactose if any by the time you consume it. You could be feeling a reaction of the probiotics themselves, some people can have problems with fermented foods.
I will say this and hope it is of help. Paleo diets and low carb/high animal protein was nearly the death of me. Sure, it stopped some of the fermentation symptoms at first and bandaided a few things for a while, but my digestion became so bad, my intestines so full of putrid fecal matter, and weight plummeted to 125 lbs... I was eating 3000 kcal of meat, butter, veggies and dying.
I then knew I had to drastically alter things. It wasn't until I went vegan, eliminating meat and mucous forming foods while cleansing my colon for the past 6 months that things have changed for me. I've gained fifteen lbs, lost lbs of mucoid plaque from me, and dead yeast is now coming out of me like nobody's business, along with the dead fecal matter it was hiding behind.
Sure, I eat a lot of fat right now, but also a lot of carbs (from legumes, veggies, avocados, nutritional yeast).
Base your diet around fresh, raw vegetables, greens, some good health oils (especially coconut) and make sure you get your nutritional yeast for B vitamins... black beans have also been a staple for me.
But like has been said, impaired digestion, lack of good bacteria, and putrid dead waste in the colon causing constipation are at the cause of a Candida Overgrowth . Address these with a balanced diet and colon cleanse, along with fermented foods, and you're on your way to healing this beast. I'm finally almost there... passing colonies of dead yeast daily and eating 200 + grams of carbs a day. :)
Sugar is definitely your enemy at the moment. It won't always be but while you have an overgrowth of candida it is the one sure thing that is going to make it much worse. I know this from experience. I have a reasonable suspicion that I got candidiasis from eating too many of those glace pineapples in the first place. Simply delicious but certainly not worth the 2 years of suffering that it gave me.
I also agree with the other posters here that refined carbs are also your enemy. If you check my other posts you can see how I finally got rid of mine. I think it's important to have good amounts of roughage .. cleans the bowels out apart from keeping you regular. That doesn't mean not cooking .. you still get roughage out of cooked vegetables and many vegetables you can't get the goodies out of them unless they are cooked.
I definitely have issues with digestion... I feel like everything just sits there, fermenting and feeding all the bacteria and yeast in my stomach (I previously had a bacterial infection in the small intestine). No matter how much veggies & protein I eat, I can´t quite seem to get rid of it. For this reason, I´ve been taking the pancreatic enzymes to help digestion.
I'd be happy to help. I know how this can ruin a life, so the more people who better understand how to regain their health the better.
First and foremost, there are too links that you should look into to getter a better understanding of what we're dealing with.
This explains the real issues that cause and exacerbate digestive issues and lead to overgrowth of harmful bacteria and yeast.
Basically, our intestines are a big tubing system, and when we eat lots of meat and things that have no fiber, it lays putrifying in the gut, and candida, the cleanup crew of our body, goes to work feeding on all of this matter.
The problem with the candida diet is that it only addresses the Sugar issue... and it never addresses the overgrowths true food source, dead and decaying food and organic matter... think fungus and mushrooms growing and decomposing dead trees.
So basically what I did was this. I was at a point where I needed ALOT of calories to maintain my weight early in July... like 3000 kcal of avocados, oils, beans, veggies, and have been able to be satiated and cut back on what I'm eating as I've been cleaning out my colon, as my digestion is improving, and I'm taking in more of what I'm eating.
Two products were God sends.
First, the herbal laxative that shakes off the dead and decaying mucoid plaque and matter.
Cascara Sagrada: Then...
The fiber/herbal mix to move the matter OUT.
ABC Bulk Aerobic Cleanse: I have been taking 1T a day since July.
Now, I would start slow. Start changing around your diet and start on the laxative... The worst foods to eat for your digestion are dairy and meat. What I did was go to mainly raw frozen or fresh brocolli and greens beans/peppers/etc etc... and enough black beans, pinto beans, etc for carbs.. Also making sure you get Nutritional Yeast for the B vitamins is very important when going vegan, because you aren't eating meat.
It took a few months to start really getting alot of plaque out, but now I am passing stuff that's been in my colon and small intestines for years in every BM... along with yeast colonies, which were hiding behind the plaque...
1) Go vegan, and make sure you're eating enough to stay full
2) Incorporate Coconut Oil (a few T) into your diet and any other healthy oils, avocados if weight is an issue
3) I would avoid grains at this point, but legumes are fine and have lots of fiber to push things through
At first the gas will be a lot. You may feel like it's getting worst, but it does before it gets better. I basically have no gas now whatsoever no matter what I'm eating (still vegan of course), but it takes a while... eating fermented foods that are raw is key, but you may want to wait until you clean your colon for a while.
I would also look into Bragg's Raw Apple Cider Vinegar.. it will help with hunger, digestion, is an antifungal, and helps dissolve and loosen plaque.
Any more questions, let me know :)
PS: It's scarey to change things drastically, but if I didn't I'd be in big trouble or worse right now. I'm now having 3 good bms a day with the laxative and Cleanse, but it will take a while to get my intestines exercised enough to do this on their own.
Many thanks for all the suggestions and support. I definitely have been eating the majority of my veggies cooked, as I think its easier for my system to digest. I will try to incorporate more raw veggies as well though.
It may be a good idea to start eating them very lightly steamed, and then work your way to more raw... Until you really get your digestion strong again, it may be hard to digest completely raw veggies, although I go hog wild.. I was eating like 4 lbs of raw veggies a day lol.
My son has got cold hands and feet and possibly raynards which started when I gave him lactobacillus. Gg. He has candida. He has other issues to. He to has lost wait and recently has a bad seizure and spent 3 days in hospital. He is currently on an antibacterial but it is not curing the problem and we have to do the moat test in five weeks time to find out what damage the probiotic has done.
I know that When I increase my sons carbs to a higher level his nose starts to run and he starts to become unwell. He does have carbs but I constantly have to monitor the situation. He does well on low carbs but on higher carb grains they make him I'll, in fact they effect his brain and his gut.
Not all carbs are created equal. With some people, certain sorts of carbs can make them very sick while others are fine. If you google FODMAPs and Monash University, you'll see what I am talking about. Many, many people have been helped by sticking to a low FODMAPs diet.
Some good ones to start him on are raw garlic, raw onions, coconut oil, olive oil, kale, brocolli, brussel sprouts... and as far as probiotics... buy raw fermented foods like raw saurkraut. More effective and safe... natural.
What does his diet look like? and what do you mean by carbs???
Good thing to do also would be to buy some nutritious seeds like flax and chia seeds and see how he likes them.
Hi, hope things are better for your son. I've just recently come across socks with silver thread which are to reduce heat loss experienced by people with Raynards. If it's too late and you have painful, itchy chilblains, then you may want to apply an insulated tongue electrode (come with some vintage violet wand sets) this will genuinely relieve pain.
Raynards can be extremely painful due to the body tempreture being significantly colder - the right hand-hand belongs to someone with Raynards
It is fine to drink distilled water but not too much. It does react with certain minerals in the body by removing them. Excessive use is not good. I use it when i am full of toxins but not continuously. It can be used as a matter of prevention while travelling where water is not safe to drink. Bottled water bought is alsl safe usually, as long as it is sealed. Food or drinks bought from street vendors are not considered safe, but then again, many people are full of parasites without ever going to any 'unsafe' countries so who am I to say what is safe.
Distilled water is demineralised hence its name. Only natural mineral water contains trace minerals the body is naturally using, and i am only talking about water here, not food. Distilled water pulls toxins out of the body and is therefore a great tool but should not be overused as it can overchelate. Overusing means drinking many glasses daily for many years and not a few glasses occasionally. It is not harmful but not natural. It is a great tool when it is needed but i see no reason why it is necessary on a daily basis for a healthy person. The poster asked if they could use it occasionally and the answer is yes.
I must add that Colloidal Silver or Iodine do not destroy all pathogens from infected water. I have read reports here on people getting food poisoned or sick from water that they have 'tried' to treat with these substances.
Everybody is his own healer and for me everyone can do whatever they want. For me, you can drink distilled water as long as you live and as much as you like. I am not here to convince you or anyone otherwise.
Your Mercola report is all wet. Most doctors do not agree with that NONSENSE.
As I said, we get all the minerals we need from the foods we eat, and any supplements that we take. Dr. Williams agrees and says this:
@@@@ I've read that distilled water leaches minerals out of your body. Is that healthy?
A) This assertion is made because distilled water doesn’t have any minerals of its own. However, most of the minerals we take in come from food, not water. And the fact is that your kidneys do a fine job of keeping your minerals in proper balance. As long as your kidneys are functioning normally, you’ll have no problems drinking distilled water.
@@@ Dr. Paul Bragg says…
“The greatest damage done by inorganic minerals (hard)—plus waxy cholesterol and salt—is to the small arteries and other blood vessels of the brain (75% water). Hardening of the arteries and calcification of blood vessels starts on the day you start taking inorganic chemicals (and minerals from tap water) into our bodies.”
“When distilled water enters the body, it leaves no residue of any kind. It is free of salts and sodium. It is the most perfect water for the healthy functioning of the kidneys(83% water). It is the perfect liquid for the blood(83% water), the ideal liquid for the efficient functioning of the lungs(86% water), stomach, liver(85% water) and other vital organs. Why? Because it is free of all inorganic minerals. It is so pure that all liquid drug prescriptions are formulated with distilled water. Dr. Paul Bragg, N.D. Ph.T., from his book: “The Shocking Truth About Water”
@@@ Dr. James Balch says…
“There is only one water, and that is clean, steam distilled water. No other substance on our planet does so much to keep us healthy and get us well as water does.”
@@@ Dr. Teofilio de la Torre says…
So please stop promoting false information on Pure water. For every FALSE expert you find, I can quote 10 or more real doctors who promote & recommend distilled water. We can argue for months on end. But I will still provide many more doctors who recommend distilled water,
PS) Also, Mercola is a terrible reference and cannot be trusted,
- After we start drinking it, is it possible to have either bottled or even tap water for a day or two?
@@ Absolutely yes. We prefer bottled mineral water when on the road,
- Or it would lead to body's immune reaction to lead to fever or any other adverse impact?
Not to worry, unless you drink tap water in Mexico. Mexican tap water WILL make you sick. You must disinfect foreign tap water with a drop of Iodine or an ounce of Colloidal Silver .
- Family members have to often travel to other locations, while they could try to carry distilled water with them, sometimes some travel might be unanticipated.
@@ Use bottled water, beer or disinfect foreign tap water with a drop of Iodine or an ounce of Colloidal Silver .
As simple as that! I went to a million doctors and no one got it right. I fought this for 8 months and nothing worked. I got perscribed vaseline, cremes and other things meant to treat the problem from the outside instead of the inside, as it should have been.
It started with a small patch on my top upper lip and spread onto both lips. I was swollen and in horrible pain. I was depressed.. I couldn't kiss my boyfriend. I couldn't even look in the mirror without crying.
Thank god I finally found a doctor that got it right, right away. She told me that it was probably related to malabsortion. Looked at me up and down and said "make sure you eat lots of gluten, so if you are celiac, it shows up in your exam".
It's only a blood test and takes a few days to get the results back. It was positive, of course!
I WAS THRILLED. Hopeful for the first time. She told me that vitamins hadn't helped before because I couldn't absorbe them properly. I was put on a strict gluten free diet (I mean very strict.. I only ate home made food for a month because I was afraid of cross-contamination. Getting CC on your dish can be as bad as actually eating a gluten meal..). I also started taking vitamins again, to speed up the process!
- After 1 week: No longer swollen. All I was applying was olive oil all the time, as always (I needed something soft, because hard lip balms or vaseline made me hurt when I applied it).
- After 2 weeks: EC was half its original size.. I cried from happiness. Started applying the olive oil less often because lips didn't hurt, so I forgot.
- After 3 weeks: My doctor decided to put me on desonide to speed things up, because she knew that what we were doing was working. I only applied it once a day for 7 days. My EC became only a thin line on the inner most part of both lips.
- After 4 weeks: no longer on desonide, applied only olive oil in the morning and before sleeping. EC reverted only to top middle lip and very small bits on my lower lip that I only saw when I got out of the shower, because those bits still turned white in contact with water.
- After 5 weeks: EC almost gone. Top middle lip still turned white in contact with water but it was a very small bit. Applied absolutely nothing because I didn't need it.
- After 6 weeks: EC GONE. ABSOLUTELY GONE.
It has been 3 months and it hasn't returned. I feel better than ever. This is a miracle to me.. And all you have to do is be careful and shop for a different brand when you are at the supermarket. Totally worth it.
PLEASE GET TESTED. It is only a blood test. There is no excuse not to get it done, and it may change your life for the better! Like it did for me.
And hey! If it comes out negative, at least you can rule this out.
I didn't have any other symthoms (even though I now realise that I used to be a bit bloated, but it felt normal to me at the time, so it didn't count. I can only tell in comparisson). Statistics say that around 1 in 100 people is celiac! So the odds are in your favor if, like me, you have also tried everything and just want to get the proper diagnosis! :)
Congratulations. And yea, pictures would be great. It doesn't sound like the same thing many of us have here. My lips aren't really swollen all that much and the only time it kind of hurts is if I manually peel both lips. But that "pain" that I only feel if the lips touch subsides after a day or so.
Bradbutter, most of your posts are about how dumb, lame and m*o*o*nic people are or that people are lying.. like your latest post. Is that really necessary? Just because ibringgoodnews hasn't posted here before makes her a lier? I know EC can make you paranoid, but man, chill :-)
hey congrats like the others have asked pictures would be amazing and if your sincere im sure you would be happy to help a few of us out with some questions and pictures!
for example what kind of peeling cycle did you have and also did you avoid trauma during these 6 weeks. its kind of strange becasue normally it takes months and months for a diet to have such an effect straight away. especially a gluten free diet.
but anyways thanks for sharing! well done.
and also about what brad says you guys i know are really positive but unfortunately there are people that change there account names and play stupid ridiculous lame games on forums. which frankly i think is lame. and if somebody really cures there ec im sure they would be more then happy to hang around on the forum for a few days answering questions as im sure they know the pain and frustration ec brings and would just wanna help others out!
Thank you for the hope!!:) xoxo I also have celiac disease. I tried a gluten-free diet for only a few weeks, but my lips did not heal so I was not sure if it was the cause. Right now, I am living with others who get frustrated with me for not eating regular food and all the fresh food I need takes up too much space in our fridge. I was planning on moving sooner just so I can hog the kitchen with all my fresh food so no one will give me a hard time about not eating regular food. I am moving sometime this year for sure.
The steroid cream you tried just might make the difference to speed things up. I also have no other noticeable symptoms except for bloating. However, I have never known why I had brain fog meaning my head felt dizzy so I preferred to lie down instead of concentrate on work.
Are you skinny? When I told a medical practitioner that I had celiac disease, she said everyone she has come across with celiac disease is skinny like me.
I forgot to ask if you had raw skin with fordyce spots on top lip? My EC started with the middle of top lip peeling, then it became raw many years later. Now, just my lower lip peels. Did you have dark circles under your eyes (due to food allergies)?
Also, what type of doctor did you see? And do you eat dairy?
Well, I created the account only for this, so I feel pretty bad right now :( .. I'm sorry. I thought maybe this might help some of you..
Haha, I'm not skinny, I'm "normal" I guess :). I know everyone manifests it differently, so don't even worry about that! If your results show positive, that is good enough! I have a friend that gets a skin rash if he glutens, so everyone is different!
Also, I don't have any pictures! I never thought of that. To describe it, it was basically a peeling cycle (usually around 3 days), and my lips would go white when in contact with water. The pain only happened after they peeled, due to how sensitive the new raw skin was. The swelling was not huge, but was definitely there.
I was diagnosed by a clinical doctor, not a dermatologist.
Also, if your entire house is not gluten-free and you are eating out often, it is very likely that you are still glutening, which is why you are not healing as fast! (I'm not a doctor, but I am a Celiac :) and I'm VERY strict when it comes to cross-contamination). It only takes a small, imperceptible amount. If you have doubts, you can have someone take a look at your intestines, though I've heard its not a nice study to get done! But that will for sure tell you if you are glutening or not, depending on how hurt your intestines are :) !
Oh, my lip was sort of like that, but as I have thinner lips and the picture is small, I can't really tell! I do eat dairy, but I've heard some celiacs have a hard time tolerating it at the beggining of their diet :) !
Also, you said that now only your lower lip is peeling!! that means you are better, right? :) keep strong! vitamins can help you speed things up! Just make sure you get strict about CC!
I am applying Anti-Sebum cream to top lip so new skin grew on. It is only a temporary fix. I am currently eating gluten because i is too hard not to where I live now. Did you have fordyce spots on your top lip? And dark circles under your eyes?
Longterm, my lips are identical to his, despite his image being too small, but even in the form of peels on your lower lip is the same as mine, especially the division that makes the middle. Do you have some inflammation? In my case I never had inflammation and burns, only these peels just like you."Theory" of some people here that inflammation causes peeling and peeling to inflammation, does not make sense for my case. About Cealic seem to make much sense to me, I actually didnt test for this, but I have almost all the symptoms it causes.
I did a lot of blood test, I thought it was hypothyroidism. But all tests were normal, was just short of vitamin D and excess vitamin A.
@longterm: Oh no!! Please do not do that!!! Gluten is poison for us celiacs!! You can't eat gluten because other people mind!! It's THEIR problem!! I'm sorry, I'm really sad right now.. I believe you can also heal amazingly soon, and it makes me so angry that someone would pick on you for something as important as your health! We are what we eat..
PLEASE, I beg you, CHANGE YOUR DIET. I know it's none of my business, but as a celiac, I know the many complications that may arise from not sticking with the proper diet.. PLEASE. PLEASE RECONSIDER. :)
I didn't have the spots on my lips, but I did have spots on my knuckles.. Also, the dark circles are probably related to the celiac problem. Please ask your doctor.
@Richard05: Please get tested! And make sure to let us know if it comes back positive!! It may be all you need in order to heal :) If you make sure there is no CC, you can heal in only weeks, I know it!!
Thank you - I think its great you are letting people know what worked for you! My son wasn't tested, but followed a gluten free diet for months with no change - so I dont know maybe we should still have him tested and try again! So glad you are healed and hopefully will help someone else. It seems not everything works for everyone with this unfortunately.
Also - what kind of doctor did you see? And what was the test like?
Well, if he truly has celiac's maybe the gluten free diet was not *actually* gluten free, as CC may have been present. But I do believe that getting tested is way better and faster than trying and testing it for yourself!
Any doctor can write the orders for the test, and it's super simple! It's only a blood test :) ! The look for the proper antibodies.
Just make sure he DOES eat gluten in his diet before the test, otherwise, the antibodies may not show up.
It's very easy and you can get it done tomorrow :) if it comes back negative, at least you can rule this out! :)
I haven't gotten tested but this proved to be the cure for me for awhile. I have very similar symptoms to yours and when I went gluten free I was able to control it. But then I noticed nuts also made me react and in the past few months everything seems to make me react, like you said, kissing my husband, eating spicy or salty food or just not moisturizing, so it seems to be getting worse again. But i am on a very strict diet. do you not have any gluten products in your house at all. My husband refuses to stop eating it so we havent really made out in like three months! :) I will def get tested for celiacs. I just got back from the derm and she gave me desonide and suggested a patch allergy test - has anyone done this? It tests for different substances found in products and also fragrances.
"After the main food intolerence (gluten) has been eliminated, then the minor food allergies can show up. For me, acne is the way my body tells me to avoid certain foods."
"Folks with digestive issues often have bodies that have not been able to cleanse normally due to digestive imbalances/possibly constipation issues/etc. for a long time before going gluten-free. Once they remove the gluten and give their bodies a chance to heal and return to normal function, "carrying out the trash" through any available exit including the skin may be a predictable reaction. Over time, sometimes a weeks or months, this reaction may taper off."
"I have recently found out a lot about B5 or Pantothentic Acid and its effectiveness on acne."
"Gluten - Acne Connection
So how does gluten contribute to acne?
First let me say acne is a result of blood Sugar problems and chronic inflammation. These trigger hormonal reactions that lead to increased sebum production, blocked pores and overgrowth of acne-causing bacteria.
Gluten contributes to acne in two ways. First, it causes damage to the small intestine, which could lead to nutritional deficiencies and an increased toxic body load (through leaky gut syndrome).
The second link between gluten and acne is inflammation. People with gluten sensitivity cannot digest gluten effectively. As a result they absorb incompletely digested protein molecules. The immune system treats these as invaders. As it attacks these 'invaders' the white cells release histamine, which increases inflammation. Inflammation increases insulin resistance in the nearby cells.
Insulin resistance leads to blood Sugar problems, which is linked to acne.
As this happens once in a while, the body can deal with it. But most people are exposed to gluten 3 or more times a day. This, coupled with other inflammatory agents, spreads inflammation all over the body. Suddenly cells all over the body start becoming insulin resistant.
Most people are not aware of their gluten sensitivity. Even fewer are aware of its link to acne and other skin problems. Second, gluten lurks in many foods and it's very easy to get exposed to it -- even if you try to avoid it.
With most food allergies, it's reasonably easy to avoid exposure. Usually you just have to read the labels carefully.
Not so with gluten. Thanks to modern food processing you can find gluten in most processed foods.
Avoid the obvious, such as breads, pastas and pastries, and you've cut out the biggest sources. But did you know there can be gluten also in cheese, butter and teriyaki sauce? Many processed foods contain vegetable starches and other additives that may contain gluten.
So gluten could be lurking in close to 90% of the items in your local supermarket.
Outside of grains, most food products contain only small amounts of gluten, but for people with severe sensitivities even these can make it difficult to cure acne.
As a rule, don't assume anything. If the food is not raw and fresh fruit or vegetables or does not clearly state gluten-free (wheat-free is not enough), it may contain gluten.
And if that's not bad enough, it's not just the food items that contain gluten. Your toothpaste may contain gluten. Same with your shampoo. And what about that new lipstick you (or your girlfriend) have. That also may contain gluten. Finally even the capsules of your nutritional supplements may contain gluten.
Research has shown two interesting facts. First, people with celiac disease have DIFFERENT bacterial gut microflora than healthy people. Second, supplementing with probiotic bacteria may reduce the damage gluten causes and accelerate healing.
Researchers at the Department of Science and Technology, University of Verona in Italy studied the differences in the composition of bowel microflora between celiacs and healthy people. The researchers concluded the following:
"The diversity of the faecal microbiota was significantly higher in coeliac children than in healthy controls. The presence of the species Lactobacillus curvatus, Leuconostoc mesenteroides and Leuconostoc carnosum was characteristic of coeliac patients, while that of the Lactobacillus casei group was characteristic of healthy controls. The Bifidobacterium population showed a significantly higher species diversity in healthy children than in coeliacs. In healthy children, this population was characterized by the presence of Bifidobacterium adolescentis. Overall, the results highlighted the need for further characterization of the microbiota in coeliac patients, and suggested a potential role of probiotics and/or prebiotics in restoring their gut microbial balance."
The composition of the bowel microflora may hold the key to celiac disease and gluten sensitivities. Probiotic bacteria have been shown to digest gluten into peptides, and thus make it harmless.
Researchers in Finland studied the effect of probiotic bacteria on cultures of epithelial cells (cells that line the intestine) to find out their effect on gluten-induced cellular damage. The researchers found that probiotic bacteria called Bifidobacterium lactis countered the harmful effects of gluten, and that it may be a helpful addition to a gluten-free diet.
A diet full of processed food, sugar and animal products cultivates unhealthy bacteria.
Reducing inflammation is the second part in coping with gluten sensitivity and curing acne.
The same diet that cultivates healthy bacteria in the gut also helps to reduce inflammation.
Fighting inflammation is not just about diet. Proper sleep, maintaining a positive attitude (or at least avoiding stress) and steering clear of chemicals and pollutants are equally important. Regular exposure to sunlight also has an anti-inflammatory effect.
Careful! A patch allergy test would test for wheat allergy but NOT celiac's! You may get a negative allergy test and be celiac (actually, this is very common). The test you need is a blood test that looks for the antibodies found in celiac patients.
The patch test doesn't test for wheat allergies. This one would test for chemicals, fragrances and other common ingredients in many products. I was thinking that I would do the test for celiacs in addition, although it really doesn't matter because I don't eat wheat anymore anyway! Btw, a great side effect of being gf, I lowered my triglycerides from super dangerously high to below normal in 6 months! I had inherited high triglycerides (double that of a morbidly obese man - but I weigh 110 pounds) and could never get them down till now.
For me, sometimes the wheat prick test comes back positive at allergist's office. there are several kinds of wheat and one may have eaten a wheat that is not tested by the allergist. Allergist usually only test one kind of wheat.
Yes, my symptoms went away when I stopped gluten. I've been gf for almost a year. I'm sure that it is cross contamination but I also get lip burning when I eat nuts so I'm not sure what that's about. I seem to be getting more sensative lately because at first cross contamination was not a problem. I'm also really struggling to keep weight on, I've lost way too much weight in the past six months. Thanks for your encouragement, I figured tht I didn't need to get tested cause it wouldn't really matter cause I'm gf anyway. But, it would be good to know so that I can be more aware. I've got to get all that gluten out of my house!!!! I just looked at a forum for celiac and ALOT of those people have lip symptoms. I think people should really consider it.
Now that you mention it, I did have a lot of fordyce spots but they seem to be less now. What is the connection? I don't really have raw skin except above and below part of my lips, the area that gets enflmed and the peeling starts.
ALSO!! VERY IMPORTANT!! In order to get tested you need to eat gluten! otherwise, your antibodies may not show up and you may get a false negative result! BUT please ask your doctor before doing anything :D
I'm so excited :) And it's probably not that everything makes you react, it may be cross contamination :)
Everyone email me right now! I completely healed my exfoliative cheiltis and I would be honored to help you all. I have before and after pictures and everything... I first started suffering from exfoliative cheilitis in the winter and I had it for approximately 7 months. It was caused by licking my lips, which then turned into white dead skin forming on my lips and then because I hated the new look of the white dead skin on my lips, I would use my sleeve and run my lips. I realized that I had to continuously rub of the skins with my sleeve every two days. Then I stopped for a few days and some skin grew on my bottom lip. I got frustrated and annoyed by it so I forcefully pulled of the skin very hard and my lips bleed and hurt a lot. I thought that my lips would just heal on it's own but it didn't. I used all of the lip balms out there, and hydrocortisone cream and none of that seemed to work :((... I had to deal with this for 7 months (which I know isn't a lot compared to you guys who had it for years). It made me feel terrible. I had to keep pulling of the skin and it did some damage... I also had to check on my lips all the time during the day and I hated looking peole in the eyes and socializing because I was afraid they would judge me about my disgusting lips.. After about the 5th month of dealing with exfoliative cheilitis and reading all these forums I was convinced to put a complete end to this asap! I left my lips alone for one week and then peeled.... My lips looked pretty good for the first time in 6 months so I thought it was done... But no it came back lol (after 3-4 days). So I have up for a bit and I just kept peeling (really gentle peeling, every time the peeling cycle started to catch up)... After each peeIing session I would put AQUAPHOR LIP REPAIR FROM EUCERIN onto my lips (VERY important) I noticed that the peeling cycle would persist but not as fast as it used to... And the amount of skin that grew on my lips would decrease each peeling cycle... I repeated the process of peeling once every 7 days followed by the aquaphor lip repair for about 6 weeks. On the 7th week I did the process again...this time I put the aquaphor lip repair on before I got into the shower... I put my lips under the shower head (with the aquaphor lip repair on) for Exactly 1-2 minutes (nothing more)... I then got out the shower 15 minutes after doing so... (after the two minutes of getting my lips wet under the shower head, I never let any more water touch my lips until after I got out the shower) when I got out the shower I went to the bathroom sink and I wet my lips and gently peeled the skin of my lips (from the middle of the lip to the left corner and then from the middle of the lip to the right corner of my lips) I noticed that my lips looked and felt completely healed!!! No more white lines, white clumps of skin or any dead skin at all!! I then wet my lips once more (after gently peeling them) and My lips with a paper towel so they could be damp.. I then put on another layer of aquaphor... AFTER all of this (like 20 minutes after this whole process), get a sheet of bounty paper towel and wet it a bit.. Fold it up.. And pat your lips with it every time they start to feel like they are dry.. Continue to do this for a few hours... Drink two glasses ( a total of 32 oz.) of water through a straw while patting lips with the damp paper towel every time it gets dry ( water is great for the lips and drinking it through a straw will ensure you are not getting too much water on your lips) DO NOT LICK YOUR LIPS! continue to only pat the lips with the wet paper towel and apply the aquaphor lip repair while patting the wet sheet of bounty paper towel onto the lips... Don't rub the lips with the paper towel... Simply just pat the water onto them... After a few hours of doing this ( on the 7th week of the "leave it alone" peeling cycle day) you will be completely cured!!! I swear on everything this is what worked for me and I just wanted to share this with all of you guys because I know it is VERY hard to live with and socialize with... My suggestion is to do this once the summer starts and to socialize as little as possible while doing this (only 7 weeks worked for me.. We are all different and had EC for different amounts of time) but I'm just stating what worked for me and I think it should work for everyone with time... I think the main reason this is so hard to overcome is that we are not allowing the layers of skin on the lips to grow back properly because we are constantly under stress, or peeling the crusty skin to early, bothering/ messing with the crusty skin or wetting it too much... just sit back, relax and enjoy life (although it is very hard) by not socializing and staying inside and out of the sun as much as possible you will cure this really fast... Eat healthy (drink fruit smoothies, take multivitamins, drink lots of water and practice good hygiene) which will speed up this whole process for you.. I promise if you do this for the summer your lips will be fresh and smooth going into the fall.. (I've been cured for a month now!) wish you guys the best! Email me if you have any questions or want pictures of my lips during and after EC.
You do _know_ that you have celiac disease and you still eat gluten because others get frustrated if your don't eat "regular food"? I'm sorry for saying it so clearly, but that seems just stupid to me, sorry. Why do you care what others think about what you eat? Wow.
While shopping today, I thought of you!
You don't really need to eat only fresh food! You can have everything everyone else eats, just made with different flours :) This includes pasta, pizza, cookies, everything! They just need to be labeled gluten free.
This is one of my favorite brands. Check it out! they make DELICIOUS stuff! ALL gluten free! http://www.schaer.com/en/gluten-free-products/sweets/
One more thing..
Please name the specific tests you went through (& what all was tested therein). Could u also tell us something abt urself like where are u from, how old r u & was ur Ec preceded by chronic sort of dryness on the lips.
I was simply tested for celiac's (and a few related diseases but I can't remember them cause I didn't pay attention and they came out negative), which is done via a blood test. Here's a pic of my results that indicated it. (sorry it's in spanish)
Just wondering if you had an intestinal biopsy? My doctor said 80% of people have celiac disease who tested positive for the sensitive test I had done. However, I think GI docs like to make more money by doing a biopsy.
About water not absorbing- Can you ask your doctor is this might make one urinate more frequently because the water does not get absorbed? Did you have to urinate frequently? How about now?
OP only stated that he did blood tests but I thought you need to do an endoscopy to confirm it is celiac's. My brother did a blood test a long time ago and had some high IgA (i think it was A) and the doctors kept telling him to do the endoscopy so he did it and they said his intestines looked normal and there was nothing wrong. Still don't know whether he even has celiac's or not, maybe he didn't eat enough gluten before the endoscopy. I never got tested but I haven't eaten any gluten (I started a diet 3 months ago, haven't eaten gluten, eggs, beef, seafood, processed food, and tons of other stuff) and my lips haven't gotten any better :(. I just got into a new free healthcare so in March I can go take all kinds of blood tests and other tests for free. (still think healing's moisturize method is the way to go for me.. gotta wait til summer for that though)
You should ask your doctor, but I know celiac's disease can "trigger" at any given moment, so I have no idea if that changes anything.. He might wanna get checked again, since both antibodies came back positive.. Also! It runs in the family! So that is even greater news for you!! You may also have celiac's!! Get tested, please! If it comes back positive, your EC days will soon be over :D!
No, I didn't get that done. My doctor said something like "if they are really bad, I'll tell you to be strict with your diet. If the results are not that bad, I'll tell you to be really strict with your diet".
So it made no sense to get it done :P
Well, I tried drinking LOTS of water so I was in the bathroom often.. I still felt dry. Water is absorbed on the intestine like everything.. so if you have that damaged due to celiac's, it may generate the problem, I think. The only thing I know for sure is that I wasn't absorbing nutrients properly.
Did you have any chronic fatigue or brain fog? With celiac disease, you can have neurological or gastrointestinal symptoms. Sometimes, you even are affected both ways. Since my nutritionist has gluten sensitivity and her sister has celiac disease without peeling lips, I was not sure if this was the cause. However, information on the internet shows that many people suffer from peeling lips due to gluten sensitivity. The difference might be that my nutritionist's sister gets severe cramping and diarrhea whenever she eats gluten. But I do not have those symptoms. I just get bloated. And she does not have peeling lips symptom. I also do not think Elisabeth Hasselbeck "The View" had peeling lips. Again, people with celiac disease can experience different symptoms.
I have all the same symptoms ive cut gluten out best I can for a few days and im seeing improvements already im never eating gluten again its been making my stomach bloat and making me tired all this time
oh my f***ing god who are you ...you have saved my life ive cut gluten out my stomach pains have gone and my lips are half healed in a matter of a week and a half. 8 f***ing years ive had this .. i owe you my life i think ina few weeks this shit will be cleared up .. whats your email i need to send you my love and you are a life saver .who are you i need to know !!
There is no proper treatment for Exfoliative Cheilitis in allopathy.
I am Suffering from this for the last 10 years.I have a peeling cycle of 3 days. I had visited several dermatologists. They all prescribed some medicines and oilments. But using that oilments my condition was getting worser.
Now i am under Ayuvedic treatment. Doctor said this is due to problems in intestines.He said this can be treated and will be cured fully within 90 days. He gave me some medicince and one herbal oilment. Now i am feeling better. I have no peeling for the last 5 days :)
if food intolerance is a trigger for EC, in order to eliminate EC, you must eliminate all foods you are intolerant of.
If you are only intolerant of Gluten, and if that intolerance is the only EC trigger, the only reason why someone have EC, elimination of Gluten from diet may naturally eliminate EC.
That is the case for ibringgoodnews (the person who started this thread), and also several other people who replied inside this thread with having similar experience after eliminating all gluten.
The problem is when someone is intolerant of more than just one single food, and in the same time that intolerance is a trigger for EC.
I believe you actually may be the person who falls into that other category.
"I have been GLUTEN FREE FOR 2 years. I still have this. I never had pain or swollen lips. I think you had something else associated with Gluten."
If I got it right, after 2 years of being GLUTEN FREE you still have EC?
Here are 3 possible logical explanations for your experience:
1. You have never been intolerant of Gluten (not very likely, most people who are gluten free for 2 years do have some form of intolerance ), and Gluten intolerance was never your EC TRIGGER, and because of that, elimination of gluten is not curing or helping your EC.
2. You are gluten intolerant BUT gluten intolerance was not actually EC trigger, and because of that, elimination of gluten is not curing or helping your EC.
3. You are gluten intolerant, and gluten intolerance is actually EC trigger, BUT gluten intolerance is not the ONLY ONE SINGLE trigger or the ONLY ONE SINGLE REASON why you have EC.
Because of that, elimination of gluten is not curing or improving your EC, as you still have some other triggers that you need to eliminate or some other health problems that you need to fix.
"I think you had something else associated with Gluten."
It sounds as if you got it actually all wrong.
ibringgoodnews , the person who started this thread, actually figured out his EC trigger correctly, and achieved cure, but it is you who still need to figure out what it is you are intolerant of, or what else beside gluten you need to do to fix your EC.
Read messages by longterm, she is gluten intolerant, but that was not enough to fix EC, she also needed some vitamins and minerals in order to fix it, as her intestines have been damaged and she may have problems absorbing vitamins, even when available in her diet.
In other words, your case of EC is far more complicated than ibringgoodnews case.
Please feel free to correct me if my logic and my reasoning is wrong.
Our eyesight is a precious gift, so no matter what your age, taking care of your vision is essential to good health. The brain is primarily responsible for managing the vision process. The brain processes the light information our eyes collect to create the images that allows us to see. In order to make sure our brain's vision process maintains optimal performance, we need to nourish our eyes with healthy foods rich in vitamins and minerals. If we include vegetables, herbs, spices and fish in our diet, then our eyes will be in a proper condition. On the contrary, if our diet is loaded with saturated fats and sugar, then it may be doing nothing but contributing to the build up of free radicals in the body. Find below some of the best foods for good eyesight:
Carrots: Carrots are a powerhouse of the antioxidant beta-carotene. It is a substance that gets converted by the body into vitamin A, an important nutrient for maintaining good eyesight, and for preventing diseases such as night blindness, macular degeneration and cataracts.
Avocado: This tropical fruit contains an antioxidant called lutein, which is known to protecting eye health. Moreover, the fruit’s richness in vitamin A, B, B6 and E shields the eyes from various disorders.
Broccoli: This vegetable is loaded with antioxidants like lutein and zeaxanthin along with certain degree of vitamin C beta-carotene, all of which have eyesight improving properties.
Spinach: This green vegetable is also a rich source of lutein and zeaxanthin, and a good source of beta-carotene. Lutein and zeaxanthin are naturally present in the retina and the macula of the eyes. They act as sunscreen for the eyes. So everyday intake of spinach increases the levels of these antioxidants in the eye, and help in preventing eye problems.
Eggs: Chicken eggs are rich in the antioxidant lutein. According to experts, consuming one egg a day adds to the blood levels of lutein and zeaxanthin in the body, and that too without raising cholesterol levels.
Tomatoes: Not only they look good in salads, they also help in keeping the vision sharp. Tomatoes greatly benefit the eyes due to their richness in vitamin C and lycopene. Lycopene is a carotenoid that is believed to protect the eyes against oxidative damage.
Oranges: Oranges do more than just protecting the eyes. They are rich in vitamin C, potassium, folate, calcium and fibre. A combination of these nutrients helps improve and maintain good eyesight.
Some of the other foods that are considered well for eyesight include sweet potatoes, strawberries, almonds, sunflower seeds, mushrooms, berries, kidney beans and many more. These foods are not only good for your eyes but also benefit other organs of the body. So if your diet contains all these foods, then you need not worry about your eyes. However, if you experience any disease pertaining to eyes, consult an ophthalmologist immediately.
I have been a vegan for 20 years, but now started taking meat. As of now started with bone broth. Later would like to move to chicken and lamb. A few questions:
- While cooking, the smell of meat is a lot, can some precaution be taken? Similarly, can something be added to the meat while cooking? Some herb (I'm also doing parasite and candida cleanse, therefore can't taken unhealthy stuff).
- In home, after cooking the smell becomes more like of meat. Would someone suggest some way to keep the smell subdued?
- Utensils also have that smell, anything for that?
- Trying to eat this, learning curve is long primarily due to the smell. Anything to suppress the smell?
My limitation is due to the parasite and candida cleanse, I can't take gluten based or dairy based products. Sugar or any junk stuff is also not suggested for me. Ideal would be some herb or maybe some spice that doesn't interfere with the parasite and candida cleanse.
Add lots of coriander to your soups to help familiarize your nose to the smell, and add the meat slowly. It's a case of the amygdala (the nose brain which prepares your gut for digestion) telling you it's not food, because your gut's fully primed for digesting veg. Literally, the bacteria which populate the small intestine tell your gut what's good and what's not.
Your bone broth is perfect for adding trinkets of meat to. If it's bones from a local slaughterhouse or butcher, you can ask them to leave the cartilage and a little bit of the meat on the bone. The slow boiling of the bone broth should give some amino acid content to the water, that helps start you as well.
At 1 full day of simmering on low from the slow cooker, I find the meat from my cow bones to be very tender and light. If you get the same, I suggest reserving the meat to add back to the water after you put your veg into the broth. Porportion helps- aka, a lot more veg than meat to begin with.
Boiled meat also gives a LOT less odiferous content- aka, less of the charred and cooked scents that can be troublesome with roasting and frying.
Biblically it was /the/ reccommended method of cooking meats for the levitical families, there was some problems for Samuel's family when his sons got cruel and addicted to roasted meats (they were spoiled brats, aka, disrespectful.) There is warning in proverbs against eating too much meat because of problems of grumpy behaviour, ('do not be lovers of meat'-)
It's a question of balance. Alkiline minerals to smoothen out the intake of amino acids. :-)
Speaking of which, egg yolks in OJ's one of my favorites for both long-chain fatty acids and protiens. :D
The egg white also has a very good amino acid profile.
I'll try to make this as concise as possible. I'll start with teasing out the details of the symptoms of my exfoliative cheilitis (chronic peeling lips), then explain what has cured me.
-chronic peeling (4-5 day cycle)
-build-up of skin (looked like yellow cornflakes)
-inflamed raw-looking skin underneath dead skin
-turned white when in contact with water
-taut feeling skin, little elasticity
I've been battling this for about 4 years. After trying every possible treatment under the sun and going to several doctors to no avail, one day, I decided to restrict all grain (gluten, rice, corn) from my diet. After 1 week, i noticed significant improvement. The build-up ceased, and other health issues seemed to resolve as well. I've always had purple, swollen toes which i've gone to doctors about.They said it was nothing to worry about, and nothing i could change. But after a week of a strict no-grain diet, my toes have miraculously assumed a normal color and size. My acne also cleared up. After 2 weeks, my lips have generally normal elasticity, does not turn white when in contact with water, and only requires 2 applications of lip balm (i use vaniply lip ointment) a day. The skin that becomes dry is significantly thinner than what used to peel off. And it easily comes off.
I'd love to help:
After 4 years of dealing with this, and finally finding resolution to this nightmare, I feel a strong obligation to help anyone else who is plagued by this awful affliction. I understand the frustration of not knowing what direction to go in, not knowing whether or not a treatment is working, not knowing when you will be cured. I understand the frustration and anger towards doctors that do not take this condition seriously. I understand the self-consciousness, low self esteem, and depression that this condition causes. I understand the weight this condition puts on your shoulders whenever you're in public... avoiding certain people, feeling the urge to check yourself in a mirror every 10 minutes... I understand it ALL. The thought of never seeing the day that my lips be normal has crossed my mind countless times, so I want to make sure that anyone else who is going through this has a shot at beating it. This may not be the cure for everyone, but the correlation in my case has been so unbelievably evident, that i feel like it may be the cure for many. In light of my empathy, please feel free to email me with any questions at veronicamanga27@gmail.
Did a quick research on the negative health effects of grain and found this.
"Modern grains and modern disease
Increasing numbers of scientists and medical
professionals are beginning to make the
connection between modern wheat and chronic
digestive and inflammatory illnesses.
Inflammation is the body’s natural response to
pathogens and wounds, but persistent low grade
inflammation (LGI) or continual activation of
immune cells through incessant exposure to
triggers is associated with a host of diseases
including cardiovascular disease, metabolic
syndrome, cancer, autoimmune diseases,
Alzheimer’s disease, schizophrenia and
Inflammation in response to injury is good,
but a low continuous burn from constant
triggers can be deadly
Phytates – Phytates, also found in lesser
quantities in nuts and seeds, are not inherently
damaging, but they do bind to dietary minerals
and prevent their absorption. They’re not as
harmful as gluten and lectins if the rest of your
diet is mineral rich. To help break down
phytates, you can soak food in yogurt,
buttermilk, or water combined with lemon juice
Gluten – Gluten is a protein which enables bread
to rise by forming gas cells that hold carbon
dioxide during fermentation. Modern technology
has increased the amount in wheat so that it
now contains about 80% gluten.
Lectins – Lectins are so small and hard to digest
that they tend to bio-accumulate in your body.
They damage the gut lining which leads to leaky
gut and other disorders. Lectins also cause leptin
resistance, which means that your hunger signal
is suppressed and that you’ll be hungry even
when your body has had more than enough
calories. They’re resistant to heat and digestive
enzymes and can bind to almost all cell types,
causing damage to tissues and organs." http://paleoleap.com/what-is-wrong-with-grains/
'The skin that becomes dry is significantly thinner than what used to peel off. And it easily comes off.'
so your still peeling? it just comes off thiner and easier?
i avoided all grains dairy and did full health diet for almost 7 months and was so strict didn't see any results whats so ever.. i even tried anti-candida diet and also vegan diet… none of them showed any results let alone in 1 week..
but if your lips have improved and your happy well done. best of luck
"The skin that becomes dry is significantly thinner than what used to peel off. And it easily comes off."
I don't want to be negative but that's not really healed right ?
EC is a auto immune condition and it's known that with some people grains have a negative impact on their immune system, causing inflammation , so maybe in the long term this method can help some people...
I don't think this should be labelled a cure because the OP still has peeling lips to a lesser degree.
I think restricting the grains is a total red herring. It sounds as though the lips were on the way to healing themselves and are still in the process of healing. There is nothing to suggest this is anything other than a placebo effect. It is very common to see people making progress with their EC during a change they have made to their lifestyle, the trouble is often they change many things at once so it's next to impossible to determine what, if anything, made a difference.
It would be useful to know more from the OP ; whether they are still picking/biting the lips. More information is needed.