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At the urging of a friend, I am posting my health history here in hopes that someone may have some insight to help me out...
My life changed in an instant in 2002. I was a brand new scuba diver on my first dive trip when I was a very healthy 25 year-old man. First dive went fine, but on the second, I surfaced and when I took the regulator out of my mouth, it felt like I got hit by a ton of bricks. I was immediately dizzy and felt drunk / confused / out-of-it. I had a weird pressure sensation like someone was pressing on the top of my head. I discussed this with my dive partner, but we agreed it did not sound like the bends, so we continued on our vacation. I was miserable. The rest of the trip I slept 12 hours a night and still woke up feeling exhausted. I had strange pressure sensations in my head... on top, at the base of my skull, and in my face. The dizziness stayed too, to where I didn't feel comfortable driving. I developed a weird headache that was there 24/7 which my usual ibuprofen couldn't touch. And I just felt so crummy that I was extremely irritable, like my ability to feel any positive emotion just suddenly broke, leaving only negative ones.
Over the next few weeks my chewing muscles became chronically sore and tense, then the soreness crept to my neck and trapezius muscles. For a few days my eyes were incredibly bloodshot and had pain behind them, then that mysteriously went away. I started to get random pain in my face, jaws, and teeth. It was a burning pain that would shift around randomly to different areas. After a few weeks of this I felt my mood spiraling down into a horrible depression. All these symptoms remain (constant, 24/7), except the dizziness gradually went away over a few years. Somewhere along the line I also developed a 'nervous stomach', where it just always feels like it has a little knot in it, maybe like mild IBS (seemed to go away when I was on elavil for sleep). I can deal with the pain from the muscle soreness / tension, but NOT with the fatigue and the way it affects my mood: I feel brain fogged / can't focus / can't enjoy anything. I can smile and laugh but it doesn't even feel good. Every minute of my day is now an act, putting on a good face so others don't know what I'm going through. I feel like a zombie; a shell.
I started seeing doctors... I won't go into every single one, but rest assured I've run the gauntlet with ENTs, neurologists, infectious disease, scuba-specialists, chiropractors, dentists, osteopaths, naturopaths, massage therapists etc. No test has ever shown anything wrong with me. I've taken more pills than I'd like to admit, tried more treatments than I can remember, and spent tens of thousands of dollars out of pocket because all the cool doctors don't take insurance. The only things that have shown any positive signs are:
- Some dental appliances - Early on I found a dentist who made me an NTI device, which got rid of my chronic headaches. It even had me starting to feeling better for about a week, but then I slid back and have been stuck ever since (though I was taking antibiotics for Lyme at that time too, so I can't be completey sure the appliance was responsible, but I really don't think I have Lyme, though it seems impossible to be sure?). Other TMJ specialists have given me appliances with zero results or very minor ones. One guy would adjust my appliance every week and the next morning I'd awaken with a 10-20% improvement in tension and mood for 15 minutes, but then it would fade.
- Neuro Cranial Restructuring (NCR) - I've done two treatment rounds years apart (each consisting of the standard 4 visits... so 8 total sessions). Two days after the 2nd session, I woke feeling 30% better, the tension in my upper body seemed less and I could smile and it felt GOOD. I made breakfast with a huge grin on my face, finally enjoying something in my life for the first time in years, but within 30 minutes this faded and never returned, even on subsequent treatments.
- Ayahuasca - In desperation, I went to Peru to see shamans and drink ayahuasca. It was mostly terrifying and gave me some mild PTSD, but after my third ceremony, ALL the tension in my body released over and over and over. It was miraculous and I felt amazing; I felt completely cured. But this lasted only about half a day and did not recur with later ceremonies. I am too terrified to try this again, though I think of it often.
- Some supplements - I've tried a ton of supplements but tend to not handle them well, they give me stomach pain / upset and usually don't help at all. But last year I tried "The Way Up From Down" program (info available online for free). It mostly made me feel funky and hurt my stomach, but occasionally it would give me a few hours here and there of improved mood; it was very inconsistent and unpredictable. It even gave me my first two nights of refreshing sleep since 2002. But after a month or two, all positive effects stopped, so I stopped taking them (it was also causing me to lose weight... I am very light and can't afford that). I also did a hair test (showed just shy of counting rules for mercury, very high copper), and tried some ALA + DMSA chelation per Cutler as a trial. This tended to make my brain fog worse while on round; very rarely I would have small mood improvements for a few minutes here and there when off-round. But nothing consistent, and it could have been due to the supporting supplements, it's so hard to tell. I did 20 3-days rounds at 25mg ALA. I gave up due to lack of progress (note: I've never had any amalgams). I also tried a lot of zinc and Mo for the apparent copper issue, but it didn't seem to help. I'm getting another hair test soon to see if things still look the same now that it's a year later.
- Frequent deep tissue massage - I tried getting a deep tissue massage every other day for 2 weeks a few years ago. By the end, my trapezius muscles felt noticeably less tense. My mood wasn't much better, but my ability to think and focus was modestly improved. But this was really expensive and within 3 days of not getting a massage, everything was back to my 'normal'.
So for me, the tension in my face, neck, scalp, shoulders seems to be causing the issue, like the scuba dive somehow messed up these muscles and they won't go back to normal. Because when that tension gets released or lessened, I feel better immediately. Such rapid progress wouldn't be possible if this were really Lyme or candida or parasites etc, right? But if this really is a TMJ issue, why don't I have pain in the TMJs and why don't I respond to treatments very well? I'm willing to accept the idea that something else is causing the muscles to behave poorly (other heavy metals, infection, anxiety disorder etc.), but am not sure how to figure this out.
Just a thought, chiropractic? Although you mention treatments that involve moving the head bones (sort of), like TMJ treatments, have you ever tried an actual chiropractor, to see about the alignment of the rest of your spine?
I've been to many chiropractors over the years, and some did not do much for me, but a few did a lot for some odd things I had going on in my neck. Not the same as what you describe, but maybe an idea for you?
Thanks for the idea... I have actually seen several chiros (at least 5 or 6). I never saw and benefit from them, unfortunately, and one guy actually made me feel worse. He was an upper cervical chiro, and after seeing him my sleep got all messed up again.
I have seen a post about a guy who sounded similar to me and he got a ton of relief from a chiro who was very good at working the SCM muscles... I suspect it could help me. But it's hard to just bounce from one chiro to another hoping that they have just the right expertise. Not sure how to find the right one.
So you were just a 25 year old guy in good health who went scuba diving and suddenly, on your second dive, you developed some alarming problems and still have them 10 years later. Were you poisoned? You and your friend were probably using the same air and similar equipment but still it's possible you reacted and he didn't. Perhaps for some reason you have an intolerance to whatever was in the air or in the equipment. When I am exposed to some chemicals my muscles become weak. Often one of my neck vertabrae goes slightly out of joint and sometimes my jaw joint slips out too. My balance is poor, I don't feel well, sometimes I drool, I'm easily confused. I've learned to push both the vertabrae and the jaw joints back into place so most of these problems clear up. If you were using new scuba equipment it had a lot of organic solvents still outgassing. So weakened muscles and gripping the mouthpiece with your teeth displacing your jaw could have resulted in your problems and you could have had a systemic reaction to the pollutant (s). What I have found with my chemical sensitivity problems is that only avoidance of the chemicals helps. As a guide I used Dr. Hulda Clark 's clean-ups to keep as many as possible chemicals out of my living environment.
You can see why chiropractry, massage and some of the other remedies you have tried would have no lasting effect. First you would have to get whatever is causing the muscle weakness out of your environment before they would have a lasting effect. This is what I had to do and it took about 2 to 3 years and a big change in lifestyle.
I also had problems with rigid muscles and depression. I thought for a while that I had one of those strange autoimmune diseases that would have left me bedridden but it turned out I have Celiac Disease and it is at least controlled by using a gluten free diet. Although there are now other good detox and cleansing programs I used Hulda Clark 's programs and within about 2 years the muscle rigidity was almost gone. The depression was helped by using herbs (turmeric, cloves, cayenne) to kill off toxin producing bacteria in my intestine and by using supplements to help my digestion and especially taking a balanced Vit B supplement . Liver Flushes helped clear toxins and congestion out of my liver and bile system. (See the Liver Flush Support Forum ). Sweat baths helped me sweat out pollutants.
Your first sentence is correct, that is exactly what happened. You have some good ideas there... one of my first thoughts when it happened was "was I poisoned?". You can sometimes get a bad air fill in the tank, but usually you can taste this and it would affect you more at depth than at the surface. So it seems very odd that I was fine the entire dive, then had problems just as I removed my regulator. That is why I tend to focus more on physical issues, but of course I have seen little progress from that.
I plan on doing some big diet changes once the holidays are over... gluten free, anti-candida type of diets (elimination ones for a while). Thanks for your input.
hi and sorry for ur condition. at the age of 8 my daughter had a little cold and then began to complain that her "eyes are rolling". doctors thought she was having seizures. fortunately, i was told about Cranial Sacral Therapy, which drains fluids that may be putting pressure on the brain. the pressure from ur scuba diving may have done that. they place their fingers lightly over certain spots on the head that help the lymphatic or other fluids drain to relieve the pressure. very gentle and hardly seems to make an impression, but can do a lot of good.
Thanks for the idea... I have tried cranial sacral therapy several times by different people over the years and unfortunately I never noticed any improvements from it. I know some people swear by it, though.
Thanks for replying... that article is about divers suffering from decompression illness (the Bends). The first I did was get checked out by a scuba doctor and he was certain that what happened to me had nothing to do with decompression issues. Other scuba docs since then have agreed. I also underwent hyperbaric treatments last year as an experiement (mainly to see if a concussion I had a few months before the dive could be playing a role in all this) and it did nothing for me.
something tells me you got panic attack on that day
and believe me anxiety can bring you down....
Don't blame scuba, I scuba dive a lot and it's pretty safe
when you follow common sense rules. Tackle with anxiety
takes long time BTW.
Years ago I had a (horrible) psychiatrist say almost the same thing to me... "I think you surfaced from the dive and had a panic attack". I stared at him and said "that lasted for years?", and he shrugged. I had a strong desire to hit him... that dive was one of the most peaceful things I had ever done. It was a ton of fun in very safe conditions. I knew what he was saying was flat out wrong.
Since then I have learned a ton about what anxiety can do, mainly from other life experiences and reading a lot, so I can sort of see why he would say that. But I know I did not have a panic attack that day, or ever... though I think I came close a few years ago while withdrawing from some horrible meds. I am willing to admit that anxiety might be playing a role in making me worse (I worry that I'll never get better), but I know it didn't cause this mess, and I'm fairly certain it isn't the sole reason for my continued suffering.
I know millions of people have gone scuba diving for years and have no issues, but I've also had a handful of people see my story and contact me to say they were also messed up by it. I don't think it's scuba per se, but perhaps something lying dormant in the unlucky few that scuba somehow triggered...
Have you tried low level laser therapy/cold laser. There are several inexpensive healing laser pens available on the net for self treatment if you don't want to pay a doctor for it. It works very well for TMJ issues. My offer of a free sample energy healing session is also available to you if you would like to try it. PM me for that.
Hello, ... ... I suffered from what I thought was chronic fatigue syndrome (CFS) and fibromyalgia (FM) for 9.5 years. Below is a list of things that have helped me. I wanted to pass them along in hopes that they may help someone else. I am not a medical practitioner. Always consult a physician before starting/stopping any medication, etc. ... ... How It Started: ... On Thursday, Sept. 27th, 2001, I went to bed feeling fine. The next morning, Friday, I woke up feeling like I hadn’t slept. No matter how I tried, I could not get going. I went to bed very early that night and slept for 14-ish hours. ... [Audio Embedded Here] [This message is long. Retrieve the whole message]
Yes - I had a first time Scuba dive which left me in a similar condition.
I also surfaced (aborted the dive). I have had the gloomiest outlook since it happened 3 years ago.
The scuba companies don't want to acknowledge this as PADI and others make too much money from 1st time ('open water' dives). If you haven't trained in a swimming pool for a few moths you can give yourself:
- Damage to your CNS (see Swiss research).
Open water dives are criminal and have even resulted in deaths. I know a novice who was taken to 40 meters on HIS FIRST DIVE.
You can forget getting the safety authorities to change things as they are on PADI's pay roll.
I was wondering how you have been,
Also have you had any MRIs done?
If it was decompression sickness that messed you up all that time ago,It would show up on a MRI, Lesions on the brain and spine are sometimes caused by decompression sickness, Especially in people with PFO, Another thing you can check out/diagnose for yourself to try determine WTF happened that day.
I have no idea how this forum works or what thread to write on
But I just found shocking stuff in my poop and am totally freaking out
I had suspected I had parasites for a long. Time.
Just wondering if anyone can help me identify what I have and how to kill them and pass them!
Feel so gross!
Also have suffered with chronic fatigue muscle twitching memory issues and burning muscles and skin rashes. Headaches and crazy tiredness last nine months. Dr thought I had fibromyalgia but I'm not convinced. Could this cause some symptoms?
Yes. It's hard to say which parasite you have, it could be several.
Fibro and chronic fatigue are two very real symptoms of parasitic infection. Joint pain and brain fog too.
If you research cure zone you will find many possible treatments. The only one that has helped me is the protocol by Mattk3 and I tried many over the last 2 years.
After 4 months I'm stable. It's a long process because the bugs are encysted and hard to get the meds to them so I've got to be vigilant and keep the new births beat back... Frustrating at times but I'm in for the long haul. I don't know how to link anything on here so search mattk3 if you are interested in learning. Good luck and I'm sorry you had to seek answers for this.
There are a few sources identified on the CZ for Parasite ID issue. Some PowerPoint slides, a photo ID guy at one of the bulk antiparasitic powder guys, who also has his own Blog on the CZ.
There are a few on this Blog that are pretty good too.
As for your progression of symptoms I passed many of those milestones too.
Lets sort these out.
Chronic Fatigue stop Pepsi, take 2 GuaiAid 600mg caps per day to start, continue till whites of your eyes are white again. Eat some spinach.
Twitching is CNS issue, normally associated with peripheral neuropathy. Disseminated filarial species, filarial stage, red worm, in rare situations Flatworm species, blood flukes, liver flukes, tapeworms. This is normally the stiff neck or occasional headaches start, nematodes that are small enough can invade the hypothalamus, very sensitive area that routes signals. Early Id of a bad worm kind that attacks sensitive tissues. Normally Early Filarial Plan, short, med, and long term dosing schedule of several meds are required to lower the damage nematodes cause to the CNS and the circulation system. These include DEC, PPZ, IVM, ALB, and a early course of Moxi, low dose, less than a few weeks.
Crazy tiredness is the infection wiping out the last of your reserves, these critters are hungry, you body fights back and uses up critical stores of energy.
Take 2 caps per day NOW 3771 broad spectrum multivitamin Minerals and Metals Spectrum
Take 6 Source of life 3058 or 3059 Spirulina based broad spectrum antioxidant, amino food, amino cofactors.
Calcium Milk, Cheese, butter, cream cheese, Greek yogurt, fruit on the bottom yogurt.
Magnesium Citrate 133mg/D for a couple of months - tells DNA to default is the good programmed response, Magnesium is an emergency med.
Magnesium Sulfate Dr Hulda Clark 1030mg/D for a couple of months, Sulfur Vs Nitrogen Waste.
Potassium Citrate 99mg/D for a couple of months and a banana per day
Selenium chelate 400-800ucg/D total dose for oxygen, long term 400ucg/D.
Manganese Sulfate 133mcg/D on Saturday and Sunday only.
KGP Flush for slow kidneys.
CQ10 400mg in d alpha vitamin oil Now Foods
Two glasses of OJ per day to crank up citrate loop, increases urea loop activity
Choline 500 for slow liver, Valarian if emergency and Liver Vits to increase Bile salt if food not digested.
MSM in distilled water with a pinch of bobs red mill baking soda. to flush cellular membranes
Baking soda is an emergency med.
Up to 4 glasses or 7 grams of MSM per day unless emergency. 4 teaspoons of MSM powder and 2 teaspoons total in day of meds can be taken throughout the day, especially id tongue ph reading is below 5.5 typical 2 caps 1000 mg each, long term 1000 mg/D
Spirulina Powder in Greek yogurt (one heaping teaspoon is 5 grams, 8+ ounces of yogurt. Take up to 30 grams a day for a month till ph is 6.5, enzyme system on.
Spirulina is an emergency med for pH
Papaya seed powder in yogurt is a good liver healer and nematode natural antiparasitic PM teaspoon.
DNA repair amino acid sources Spirulina, GI repair, Flaxseed in yogurt for GI wounds with Iodine and chromium.
B50 per day
Orange Zest, Rosemary bioflavonoid
2 Grams ester Vitamin C per day. Lemon distilled water glass AM if pH is less than 6
Vitamin A turns up volume of DNA, accelerates Liver, heals wounds.
Rosehip seed tea up to 4 cups per day RXR Noon to PM, chemo vitamin A rosehip retinol 13 heals wounds fast. less immune agony. master cellular accelerator is to focus immune on, cepting in the case of Ascaris, where prolonged Vitamin A Palmitate can delay deep kills of large worms. if Fluke infection heavy dose vitamin(s) A until flatworms are eliminated.
2000 IU of Vitamin E d alpha for a couple of months PM Membrane protection antioxidant.
Emergency meds 10AM CQ10 2 grams, ALA 2 gram one day pulse, normally do not do ALA, L Carnitine 2 grams a day, Pulsed this plan can flush DNA toxins.
L Carnitine 500mg up to 2000 mg/D for a few months, typically 500mg/D lipid detox. PM lipid detox, flush cell wastes.
1000 IU Vitamin D3 RXD, Supplement Calcium, Put calcium in suspension, make available to all salt chemistries of the body to be primary pH balance in chemistries.
Borage oil 1000 mg/D - GLA oil source. Feed the DNA information of the key of G, check DNA replications process - on, no cancer.
Magnolia extract 2 caps per day 600mg 4:1 C02 extract Amermed PPAR Gamma - G
Beta Glucan 1000 mg/D to force Interluken 2 normal tilter.
Shiitake or LEM mushroom extract caps up to 6 per day, Turkey tail in fungal emergency.
up to 6 Fucoidan caps per day if skin virus, mouth sore issues.
Stinging nettle root 3 caps per day RRR ligand lung issues and fluid issues
Dandelion and or with Milk Thistle for liver.
opt. Oregano oil for GI bacteria issues with 6 mg copper citrate per day, copper enzymes
opt. Caprylic acid 2 caps per day for yeast issues
Filarial Emergency issues,
nematode worm filarial stages can birth short durations,
worm sack rupture.
GERD, Acid Reflux, lung ooze, sinus drip, clogged sinuses, ears, etc.
Not really any help on ID, but clearing CNS one must assume Filarial, Vision fades.
Heart pain is another give away filarial, or heartworm.
Rashes indicate IGG response, either IE is high, immune e count is high, large shift in Immune balance.
Thread worms, red worms are really a significant issue, both can be invasive like the stronglyloides in skin family,
hookworms in GI, Ascaris in any direction, usually come with a concert of friends and co-infections.
IGG means in addition to
Rashes could also indicate a filarial worm like strongyloides, especially on but, mid section, look for starburst purple on feet. veins blue dots.
Chlorella 500mg to 2000 mg. Must be kept at 1/4 the Spirulina dose. Should do 500mg per day to prevent excess metals build up. Activated charcoal 500mg to 2 grams PPM in an emergency.
Imbalance, get a hair analysis for minerals and metals:
Metals like chromium, iodine, vitamins 9 Palmitate, others used for hard or severe septic situations.
Piperazine Citrate PPZ and natural piperazine nPPZ
nPPZ natural Piperazine 12:1 extract Bartlowe's is a nitrogen catalyst, removes worm pee from the body. Slows worms in body.
DEC Dimmitrol for filarial worms, 50mg extremely slow ramp to 400mg for filarial birth, or daily at 6 PM.
Watch for fast pulse, this is the start of a birthing hyperinfection.
Filarial meds to start:
I would test dose IVM if help, do daily.
I would dose 200mg ALB per day as a precaution
Challenge GI to give up worms:
I would dose PinX every 3 weeks, and have a camera with a macro zoom lens ready. Clean off with water and put on a white background any parasites for ID.
During the ID/Treatment time, could be months or a year or more, supplements are required.
After body, ph, enzymes, minerals, metals, are stable id the parasite(s) through challenge tests.
Hi everyone, just need some advice as I've seen a few dentists who haven't been any help yet.
My lower jaw will automatically slide out of place to the left when lying down on back, front, or either side (when it slides to the left I cannot open my jaw all the way in that position, I'll often have to slide it back into position in order to open my mouth fully), it's pretty uncomfortable, disturbs sleep, and get some minor ear pain while sleeping and well as minor pain in left side of jaw. Also have some pain in left side of jaw during the day when chewing, when I massage the area it's pretty tender and sore.
A dentist did a neuromuscular scan and gave the following report, though he no longer practices TMJ treatment:
• Both TMJ’s display ‘beaking’ especially on the LHS
• RHS TMJ appears to be positioned more anterior within the fossa
• Evidence of Mandibular notching on the inferior border
• Increased radio-‐opacity of the mandibular bone, commonly associated with parafunction
• Airway appears to be quite broad laterally however is somewhat narrow anteroposteriorly, this puts the patient at increased risk of airway collapse especially if there is concomitant SDB/UARS/OSA
• Elongated uvula with what appears to be a hypertrophic/hypotonic soft palate
• Sinus polyp/retention cyst on the superior border of the RHS maxillary sinus under the RHS Orbit, there is also evidence of a Sinus polyp/retention cyst on the LHS associated with an Underwood’s septa.
• Potential deviated septa with associated widened/hypertrophic RHS middle turbinate
• C2 Dens is somewhat centred in C1 albeit appearing too far anterior
• C2 & C3 appear rotated mediolaterally
• Unidentifiable radiopaque spherical foreign object present in one of the divisions of the Ethmoid sinuses
• Cortical walls of Sella Tursica warrants further investigation, at least by a medical radiologist.
2 dentists have recommended a night splint and if that helps then braces (or similar appliance), but they haven't really explained why I have this problem or what's going on.
Is this normal? would a night splint typically fix this issue? are there other options?
I'm not sure if this is good news or not but after getting a second opinion, it looks like I have gum disease, cavitation, and TMJ! I have a procedure this Tuesday but am in a lot of pain. Prior to this I thought it was the parasites causing all of this pain in my body (though the red marks on my body has me second guessing). What do I do in the meantime to relieve this pain of mine?
Rinseing with baking soda may help with the pain. If you google natural gum disease cures they can give you several ideas. I dont know of any thing to help with the tmj but if it is parasites causing the tmj rinceing the mouth with DE may help.
I've having a lot of pain in my neck and throat area and I'm not sure if it's parasite die-off related or TMJ/TMD or something else. Also having trouble turning my neck as well. Currently on ICU's Fluke protocol plus taking Ivermectin. Am I taking too many meds at once? On my second round and ready to quit, someone please help! I appreciate any advice, thank you cz.
Yes, yes I do. And I do not know have to treat it. All I ever read about for TMJ treatment is diet change, diet change, diet change. I'm on a Paleo, food combining diet, I don't know what better diet to do than that. I was thinking about doing Cold Laser Therapy but these neck pains, chest pains, heart palpitations are confusing me because I don't know where they're coming from....
How long have you had these pains and neck stiffness? Are you running a fever? My initial thought was that it could be meningitis from bacteria being stirred up during your cleanse, but I think your condition would have worsened by now if that was the case. Are you still taking doxycycline?
No fever, just a lot of TMJ/TMD related symptoms. It's been gradually getting worse, but at the same time getting better. Some days are better than others, but it's not a consistent, day in, day out pain. I have no idea what's going on. And yes I am still taking the Doxycycline, only one week and a half left until I can rest
You are going thru herxing , when the worms die the toxins cause inflammation, the more worms you have the worse it is , you will also simultaneously battle the reemerging encysted ones at the same time trying to re-infest and repopulate. There was a lady on monsters inside me that had strongyloides from Utah , it was a good episode , 1 concerned doctor went the extra mile to save a life, without him that lady would be dead. I hope you get better soon , I know you will beat them , it took me many many months for me to get my life back 😀. P.s. Be careful with the meds ,this is a very long battle and the tortoise always wins . If herxing gets frustrating or unbearable , skip a dose or few. I did many times in beginning and it is the only way to balance between too much meds and the right amount.
Herxing is when the worms squirt out there toxins to fight to live, if your on meds and an antibiotic you shld be ok and it does cause inflamation but not serious pain, atleast not in my experience. Its probably tmj related and u may want to consult your doc.
You might have been right about some sort of viral infection! I have up'd my dose of doxycycline from one to two times a day, still a bit woozy but feeling a bit better. I missed too many doxycycline dosages in the past which is probably why I am having these chest pains, heart palpitations etc.
Worms can cause pain when they are big, they can cause blocages, they can increase the pressure in some parts of the body, some big ones can bite or hook and it feels like a needle was planted in your body...
Damn near went to the ER Saturday night while I was studying, felt like the choking sensation was getting too much. So I rushed home and tried a different strategy. I combined Ivermectin & Albendazole together and the sensation went away. They are in my throat and neck area, so I am suspecting that I am swallowing eggs and they are going in and out of my lungs and stomach. Looks like I will need to go a few more rounds with this but I need to get off Doxycycline. In order for me to heal my body, I feel I need to get off the antibiotics; and that is not possible during this protocol. Are there not any natural alternatives for Doxycycline??! I know Bryon White has some strong herbs that are anti-viral, anti-bacterial etc. but I am not sure those herbs pass the BBB like doxycycline does. Any thoughts?
Why are you fiddle fuddling around and making thing worse and worse?? Just zap every day for 3 or 4 weeks (to kill any eggs hatching out) and do the deparasiting herbs Dr. Clark recommends for the first 2 weeks. You're just making your problem worse using drugs, for sure. Go back to the start. If you have to use drugs, the zapping and deparasiting aren't going to bother that.
And of course, there are way many fake posters here driving the pharmaceutical cartel's agenda to scare the heck out of people and keeping the sales of supplements/drugs going strong. I'd hate it if you were just one of those.
"The [homes of sore throat suffers or] childern invariably have an air pollution problem. Asbestos, formaldehyde, fiberglass, Freon and arsenic are the chief culprits. Clean these out of the house. Eating moldy food is especially conducive to respiratory illness. The immunity drop can last for weeks! Go off the moldy suspects to raise your family's resistance." CFAD page 159
She also says do the dental clean-up, but since I know she was coerced to push the cartel's agenda for scamming folks out of their money by faking the need to replace dental work, which is god awful expensive, I don't think it'll help. *cha-ching* I'm sure it's one of these other things, since I still have all my Amalgam fillings and crowns. I get a sore throat only if I'm fighting some bug (which has been years since I have). So if the fillings were actually a problem, I'm pretty sure, after 50 years of having said fillings, I'd be noticing something. Or maybe I'm magic?
I'm 31 from London and I have had two TMJ ops. That's two bilateral Arthroplasty-both sides. Jan 2015 and March 2015. The clicking and grinding stopped and the pain calmed for about 6months-but over Xmas its started up - more grinding sounds and total agony. Does anyone have any idea what the next step will be (seeing surgeon on Friday) feeling very lost. Thanks!
Hi. I'm writing from the UK where TMJ arthroscopies do not seem to be widely publicised. I thought I'd post here to ask for your guidance based on your TMJ experiences. After a mouth operation at the age of 11, brutal orthodontic work over several years as a teenager, and having my tonsils removed at the age of 22 (when the surgeon admitted he'd had problems getting at my tonsils because my mouth was small), I became aware of my jaw clicking and being unable to open straight down. As the years went by I became more conscious of it but it was several years before I associated the jaw noise and discomfort with the horrendous headaches that would hit from time to time. After spotting smthg odd in an x-ray, my dentist mentioned that my jaw didn't look right and recommended I see a maxillofacial surgeon. So, I went. The consultant gave me the impression that he just wanted to go home - I really felt like he hadn't given me his full attention. Anyway, he handed me a photocopy of things to do / not do (you'll all be familar with what was on there) and said that, if I followed those rules, I'd be better again in 3 months.
Needless to say, I meticulously did everything he'd suggested for several months without any improvment whatsoever. In fact, things continued to get worse. Since he had not told me that a lack of improvement indicated a much more serious problem, I did not go back. Ten years later, I have just been to see another maxillofacial consultant. On my first consultation he checked what I'd done previously, took x-rays, etc. Unfortunately, the additional 10 years of overuse have done extreme damage to the bone and he recommended having an arthroscopy so he could try to reposition the disc. I should have gone to see him years ago, apparently!
The good news from the arthroscopy is that the disc seems to be in pretty good shape so it was simply a matter of pulling it back and hoping that it stays there... I was told that, given the awful state of my joint after ten years of "abuse", things were actually looking quite good and they could do it all over again in a few years if required!
A week after the op, I went back for the follow-up appt and was given the all-clear - no need to go back (I couldn't believe this...). Provided I stuck to a liquid/soft diet for 6 weeks, the scar tissue would form to hold the disc in place and I wouldn't need to go back. I'd had a lot of noises in my ears and was told that was normal after the op and things would clear.
The following day, I started suffering from intense ear ache with pain all up my jaw in front of the ear (up to the corner of my eye and down as far as my lower teeth). I assumed that this was still just post-op effects. A week later I went to see my GP who confirmed that the ear looks healthy enough and said it's quite common to have earache after the op. Another week later I went back to see the surgeon because he said I shouldn't still be in pain. He didn't take x-rays or blood tests (to check for infection) - just pressed on the jaw (at which point I said it hurt) and he said "I think it's related to the jaw rather than the ear, continue with soft diet, heat, aniti-inflammatories, massage and exercise". So, I asked for guidance on the exercises I should be doing. The only one he told me does not really seem to use the muscles - I have to curl my tongue up to the roof of my mouth and then open and close my mouth slightly... He's sending me to my dentist for a soft splint for my lower teeth but, until the 6 weeks of not opening my mouth are up, I'm reluctant to get this.
Anyway, that's the background. I have some questions for you all now - I'm really interested in hearing what you think:
- is it normal to still have intense ear ache & jaw pain 5 weeks after the arthroscopy? It's not a constant pain but comes and goes, lasting any time from 20 minutes to all day.
- American websites/forums all seem to talk about physiotherapy and hospitals even insist on this from a day or two after the arthroscopy? There has been no mention of that to me. Should I be investigating this?
- when trying to brush the "insides" of my teeth, I am in great pain (possibly muscular but hard to tell) when squeezing the toothbrush through the gap between top and bottom row. Is this normal? I'm in my sixth week now so suspect that I ought to be starting to talk/eat more normally again. Without having actually tried (for fear of damaging the scar tissue at this stage), I'm concerned that I might not actually be able to open my mouth. Is this normal?
- I'm self-medicating with drugs that can be bought over the counter - paracetamol, codeine & ibuprofen but I'm not convinced these are really making any difference. Can you recommend anything else?
I wasn't given any guidelines on post-operative care or longer term guidelines on how to live with this other than those listed above so am keen to find out what you all think of my progress and whether these experiences are normal. My surgeon told me I'd be fine after 2 days!
Sorry for the long post but I thought I'd provide some of the background. Thanks very much.
Hi toofy, I've just posted a letter as well, sorry should have read yours first.
I also live in the u.k and had arthrocentesis yesterday for the second time, you can read the letter I posted for more on that if you like.
I was concerned as to how successful it will be, as Ive had it done before(6mths) ago, and its got worse since. I too have suffered joint, ear, neck, toofy and cracky small opening jaw. Nobody really believes me in my household I know, which is really great(not).
I'm really sorry that I can't offer you any suggestions, but I can offer an "ear", allbeit a little sore at the moment. Hope you've had helpful advise and encouragement from others though. Please do e-mail if you like, if for a bit of moral understanding support if nout else.
Help! I Realise you wrote this 7yrs ago so hope u might still get notifications.
I'm 31 from London and I have had two TMJ ops. That's two bilateral Arthroplasty-both sides. Jan 2015 and March 2015. The clicking and grinding stopped and the pain calmed for about 6months-but over Xmas its started up - more grinding sounds and total agony. Do u have any idea what the next step is, feeling very lost. Thanks!
Recently I have been having a sore, tight, clicking jaw, inner ear pain, and hair loss, among other things. I figured out that these problems have something to do with copper and zinc. I had a copper iud for a year and a half and had it removed once I realized that could be causing my problems. Then I started taking chelated zinc, and found that it helped my jaw immensely and it strangely evened my face out. My face has always been a little asymmetrical, especially my smile, and when I take zinc and magnesium, all of this goes away. I was thinking this could have something to do with my nervous system. Does anyone have any idea what is causing this and why zinc and magnesium help?
(I have metal fillings that I plan to replace with resin soon, if that matters)
I haven't ever tried it, but I do see many people for TMD. In my experience, a holistic approach is best as TMD is multifactorial. However, I am skeptical of anyone claiming to have found "the only way." Because TMD is so multi faceted, how can that even make sense?
Here is what we do at our clinic. Hopefully you can find someone in your area who knows how to work with TMD via massage. The great thing about massage for TMD, which IS a holistic approach to it, is that if it doesn't work, then you can move on to the next thing without having lost anything besides a couple weeks of time (unlike shaving teeth).
I have several MT contacts around the country (USA). If you let me know where you are located, I may have someone that I could send you to.
Dr. Shemesh Alleged Tinnitus “Cure” / Fake-Cure False-Hope “Fallacy”
My commentary is a discussion about my trip to Israel in an effort to find the “secret cure” for intractable chronic tinnitus. Yes, there is a correlation to my story as told in the movie “Jules Verne’s, Voyage to the Bottom of the Sea.”
Three years ago, I was diagnosed with intractable chronic tinnitus. I traveled from one doctor’s office to another only to hear the repeated phrase “you will have to learn to live with this condition, there is nothing that can be done medically.” Shocked and dismayed, my anxiety lead to serious depression and I further developed sleep deprivation. My emotional light bulb was turned off to a dark and dreary reality.
It is unfortunate for the 260-million tinnitus sufferers in the world that the majority of ENT and Otolaryngology physicians do not know much about the physiological mechanisms of tinnitus. The subject matter is barely discussed in medical school, limited to a brief few hours of study.
Many patients who develop chronic severe tinnitus become emotionally handicapped and very vulnerable because there is a deep sense of isolation; it is a loneliness, which can lead to suicidal ideation.
The medical community is lacking in the area of patient education, selective counseling and emotional support for patients with chronic tinnitus. None of the doctors I visited ever told me about the ATA (i.e.: American Tinnitus Association)!
The ATA website was my initial source for discovering and reading information concerning the different methods / modalities for managing the symptoms of tinnitus.
Tinnitus is mostly a psychological challenge, by this I mean how we “react” to the bizarre noises in our head determines the state of our emotional temperament.
Well, I was on over-load and my reactions were that of fear and bewilderment.
In desperation, I searched for clues on the internet. I was playing a bad game of monopoly; eventually I would loose everything on the boardwalk. I wanted to find the magical “cure”, to put an end to my misery. Now, I knew from my reading of many medical textbooks that in “reality”, there is “no cure” at this time for tinnitus. There are several clinically proven methods, tools and mechanisms to improve and manage the condition.
Vulnerability was my middle name and the logical side of my brain was on a long-term hiatus. As I searched through the onslaught of websites on the internet, I came upon the website of a Dr. Shemesh located in Israel. As I read the information on Dr. Shemesh’s website, I noticed the words “cure” “curative process” “healing process” strategically placed and repeated on several pages of his website. The website also displayed several anecdotal videos presentations by former patients who spoke highly of Dr. Shemesh and told of their personal stories.
Well, to make a long story condensed, I traveled to Israel and I met with the doctor of magic. I performed Dr. Shemesh’s “curative protocol” in a most disciplined manner, for a two-year period I took his medicinal capsules and subscribed to his dietary suggestions. I spent $3,600.00 for the doctor’s consultation fees, $1,200.00 for required laboratory tests and $1,000.00 for initial supply of capsules.
Overall, I spent $12,600.00 for my trip to Israel, which covered a six-week period. Over the two-year period, I spent an additional $1,500.00 for monthly capsules.
Conclusion: As of this writing, my tinnitus symptoms have not improved even to the slightest degree. This fact was confirmed by the results of my recent hearing and tinnitus test performed by my Audiologist, PhD.
The so-called “cure” has eluded me in the same manner that a criminal-mind / con-artist eludes an investigative process, which seeks to discover factual evidence.
The magical cure has escaped me. Additionally, it has escaped the six (6) other tinnitus patients I met in Israel; we have continued to correspond throughout the two-year period.
Time for a Reality Check:
On Dr. Shemesh’s website, he discusses the silver-bullet word of a “cure.” Argument: No other licensed doctor or medical clinic in the entire world makes such a statement. Considering that, Dr. Shemesh did not major in ENT / Otolaryngology or Neurology, his statement of a “cure” can only be considered assuming and questionable.
Being that Dr. Shemesh has “never” subjected his tinnitus treatment protocol to clinical trials, random study trials, double-blind placebo trials, etc., perhaps it would be correct to call him “ludicrous.”
Dr. Shemesh sells to his patient’s prepared medicinal capsules made of vitamins, minerals and herbs. An “individual” pharmacist prepares the capsules. The name of the pharmacist is secret; this information will not be revealed to any patient. There is no way of determining the quality, consistency, purity, and shelf life of the capsules because they are not prepared in a manner, which is regulated by Israel State Pharmaceutical practices. Argument: What is truly in the medicinal capsules; they have never been tested for ingredient composition by a licensed testing laboratory.
The website of Dr. Shemesh shows pretty pictures of Hadassah Hospital and other Israel medical facility buildings. This is very deceitful because Dr. Shemesh’s office is in a very small medical building in an isolated area of Bane Braq. He no longer is involved with Hadassah Hospital. Argument: Is the website layout designed to be miss-leading and to capture the eyes of vulnerable and gullible tinnitus sufferers?
Dr. Shemesh will verbally tell you the patient has an 80% chance for “cure” in a two-year period. However, on the paper work agreement, which the patient signs, it states that 90% of patients have been cured. Argument: 80% is not 90% and 90% is not 80% - so please make up your mind. Now, remember there is no substantial medical data to back up any of these claims.
With in the paper work is a signed agreement, which expresses that Dr. Shemesh has no obligation to offer the patient a “refund” should the protocol not work (No Cure). Argument: With a 90% cure rate, why would the good doctor be so concerned about a small 10% failure rate?
Several patients that I know asked Dr. Shemesh for a “partial refund” because the process did not work for them, his answer was an “absolute” not possible you signed an agreement.
With over 260 million tinnitus sufferers in the world is it not possible that the good doctor had a brainstorm. “If I suggest that I hold a “cure” for this most difficult brain and auditory condition, then people will flock to me as if I am the Messiah.”
“With the avoidance of legitimate clinical study and comparative analysis they will never be able to disprove my magical cure.”
“What a great idea and who does not trust a man with the initials Dr. (Doctor).”
“With all of this in mind I can create a most financially rewarding business model.”
I sincerely suggest to any tinnitus sufferer who is searching for the non-existent “cure” to repeat these words aloud – “Buyer Beware.”
On a personal note, I do question the very basic fabric of this man; what is his motivation and what is his standard of ethics.
I've spent over 30,000 trying to find a cure, and indeed found it--for free. And you can as well.
1-. Stop buying anything as there is nothing that will work. Food is irrelevant you can eat anything.
2.- If you are desperate request the doctor give you some valium to get you through.
3.-Vitaminas, minerals, potions and lotions --zero. I even did a two week session with a hyperbaric chamber, I also went to supposedly the best tinnitus doctro in the world...results: zero.
4.- Get busy, go out, have fun, and you will habituate to the point that it becomes totally insignificant.
5.- Stop talking about it, stop visiting any sites, stop reading.
Don't waste time and money. I tried everything for you and there is nothing. You name the procedure or product and I did it. Every massage, reiki, bowman, accupuncture, homeopathy, feedback, etc, etc, etc, etc....
I basically agree with your points 4. and 5. but would not agree on eating "anything". We should eat for overall health.
And while there is no one magic bullet, a few people have found certain things helped them.
Low level laser light therapy looks quite interesting. It's expensive and long-winded to have done on you. There are devices one can buy to do it yourself, and people who have treatment are also encouraged to buy the gadgets they can use at home to extend the treatment.
Some people appear to have been helped by it.
At the other end of the scale, I've seen a couple of people on another T forum who seemed to cure themselves eventually by dealing with what turned out to be inflammation in the Eustachian tube. It took a lot of time and patience, and used things like supplements and some drugs and neti-pot-type rinses. So sometimes there is a relatively simple physical reason for it and a possible solution.
With a few people, just removing ear wax does it.
So I don't totally agree it's just a question of managing the symptoms. It's true you can usually habituate yourself to it, and most of the time I don't notice it.
But after an ear infection earlier this year, my long-standing low level T became noticeably worse, and it seemed pretty obvious this was related to the infection. It has settled down somewhat since, but I believe it is generally worse than it was before the infection.
Maybe there is still a low-level infection lurking, and I suspect my Eustachian tubes are at least partly blocked. And my hearing loss is worse than it was (although it has recovered somewhat).
So there can be genuine physical causes or factors at work, and it's definitely not all in the mind.
No one should go into taking a treatment thinking that it's going to cure them of their tinnitus symptoms. I think the problem is that a lot of people just want it gone and they're desperately searching for something that will completely eliminate it, which we all know to be nonexistent. What I think needs to be the main focus of tinnitus sufferers is to work on managing the symptoms. Lipo-Flavonoid is really good at doing this and it's helped a significant amount of people decrease the ringing in their ears. https://lipoflavonoid.com/
Been having a lot of body twitching and fluttering lately but especially at the top of my liver area and near my heart, but I think it's my liver. Magnesium and Bromelain aren't helping. Not sure if it's parasites or not but I can't take any drugs because I just had a cavitation cleanup so I still have to heal up.
I have the same feeling and I noticed it comes right after I get some sweet things. The other day I did juice from broccoli and guess what? I felt very strong pain in the same area. It is weird,yes, as if something moves around there.
I had to tolerate that same exact experience for years. Every Doctor saying it was indigestion.
Nope...Those are ascaria. If you can feel them moving around in your stomach and near your heart they are already disseminated because the population is so large. You probably drool at night. The Ascaria will actually come out your nose and mouth when you are asleep. They start in your lungs. It will take years to get all the eggs out of your lungs.
I don't see how a cavitation would be a problem with treatment.
The first dose of Fenbendazole killed most of them and the thumping stopped.
Had a BM with hundreds of Ascaria. In fact it was all Ascarias. Several pounds. I was so traumatized at the sight of the large wads of worms in the toilet I nearly lost my mind. Never felt the thumping or wiggling again.
Fenbendazole is very safe. AMA papers state that dosages at 10X had no adverse reaction.
You can use green Black-Walnut but I don't think it is safer than Fenbendazole.
Just another reason I hate Doctors. Genocide with the extra benefit of getting rich from cancer
I used the horse paste. I only took about a tablespoon every 2 hours. On the secod day is when all the Ascaria made their dramatic exit.
But I knew it wasn't over. Had to be millions of eggs and larvae still present.
I am not a believer in the idea of taking a big dose twice a day. I think the key to treatment is to take a full days dose in small increments throughout the day. The objective is to maintain a level of med sufficient to kill all the time.
This may be too much for some people to calculate but I look at the half life of the drug and try to keep the level at peek rather than allow the bell curve to bottom out before the next dose.
Sorry too complicated.
I just took a little every couple hours. Never exceeded 57g, full tube of powerpac in a day.
I had to start taking a anti-fungal to get rid of the majority of the eggs and larvae and it took 2 years.
I had no miracle. I was just extremely infested.
If you take horse paste or safe guard the fat is already in it. Same with Valbazen (Albendazole)
It puts a lot of stress on the body coming straight from surgery to start a parasite cleanse. I want my body to heal up from the cavitation cleanup then get tested for heavy metals and parasites. Fenbendazole goes deep into your muscle tissues and passes the bbb. If I do have Ascaris or any type of larva in my brain area I want to be prepared for it
Moritz has been de-apostlized since he died. Your grandmother is beyong reproach though. The best laxative is no laxative, just take stronger parasitics until they relinquish - 1 entire garlic bulb per day if need be.
I have contemplated Moritz' demise and come to the conclusion that he had too much dogma. He should have eaten *some* meat and nixed the vegetable oils. I think vegetable oils did him in. I do not buy the official story.
Castor oil is a good purgative, and a so-so parasitic. Very good for emergency situations like when you have a ball of Ascaris or you haven't crapped in 5 days, or when you're doing panchakarma. But for regular everyday use there are better safer things for most people.
Ricin is somewhat toxic, I personally don't worry about it because I've taken Castor oil maybe 5 times in my life. I would worry a little bit if it became a regular thing. It's probably one of those situations where it's much more dangerous for the parasites than it is for us. I still advocate quintuple strength coffee as the underdog parasitic.
I have no idea who Moritz is? Also, nobody in my family ever gave me castor oil, or cod liver oil?
All I ever remember was vaguely hearing about those 2 things.
I really hate garlic, (I'm not Italian,,,lol) don't know if I could ever eat a raw bulb?
I've been taking a coupla garlic gels a day, and force myself to add garlic powder to my spaghetti when I occasionally eat that.
Oh, another thing. I'm a tea drinker, have been for life. I don't care for coffee, although I like it once in awhile with a smoke, on it's own, but can't tolerate eating anything with it. So, I guess that puts me at a disadvantage for killing parasites :(
Moritz wrote some amazing books and helped thousands with his Liver Flush book, his death is a mystery indeed and he will never be defamed in my book. He had the most gorgeous skin for a man in his 50's from his photos. He looked to be in the height of perfect health, skin doesn't lie at that age.
I think I read 600,000 gallbladder surgeries a year in America, could he have been a major threat to their bottom line?
Ricin is not in castor oil, it is a byproduct of the production of it, and is indeed toxic. This is why consuming the beans is a no no, it's still in there.
The OP said he/she can't have stronger parasitic treatments as a cavitation surgery was just performed. So me thinks Castor Oil could save the day to knock down the mysterious fluttering until more serious measures can be undertaken.
I love your quintuple coffee approach, can't hurt! I'm needing one now!:)
Yeah, my grandmother had 13 kids so I do tend to lean toward her advice, that woman was wise:)
All the best!
p.s. if you are reading this and pregnant, don't take castor oil unless you are trying to induce labor for a full term pregnancy.
I just want to share what worked for me. I recently came upon an article on the internet published by the San Mateo County Times, June 24 (see below). This article featured a new product called TheraFlex TMJ. The article made some claims about how this product could reduce TMJ pain by 60%. Moreover, the article stated that TheraFlex TMJ was clinically studied by Tufts University School of Dental Medicine. I then located an abstract of the study at Cranio: The Journal of Craniomandibular Practice (search Cranio). According to the abstract, TheraFlex's pain relief is so effective that it lasts five days after the last application. I couldn't believe that so I called Tufts. They told me that what I read was correct and that they were giving TheraFlex to their patients at their orofacial pain center.
Still in disbelief I contacted the manufacturers and told them how I couldn't believe the results of the study. I told them that my disbelief was rooted in having been railroaded by the medical industry. I've had more unnecessary procedures for my tmj than I can list and I frankly couldn't believe that for $25.00 and change a large portion of my tmj woes would be alleviated. I've been to the whizard of TMJ pain, sat in his office and paid his heavenly bills. I just didn't arrive to this tmj scene.
They patiently listened and told me they had invested every penny they had into their TheraFlex and my $25.00 wasn't even a drop of water on a hot pan. My sale wouldn't bring them anywhere near the black. So they told me to keep my money. Instead they would send me samples in exchange for two $.37 stamps.
I tried the TheraFlex and was very surprised. First, you only need a little bit--about a dime size. It is greaseless and absorbs fast. The pain relief is real. It is not magic bullet but it is something I use twice a day--a treatment.
I recommend anyone with tmj pain to e-mail them for their free samples. Their e-mail address is Nabobrx@sbcglobal.net. The article from the Times is below. The abstract is at the Cranio site.
If anyone gets and trys their samples, please let me know what you think.
San Mateo County Times
Pain cream connects with the jaw bone
San Mateo company brings relief to jaw pain sufferers
By Laura Cunningham
Thursday, June 24, 2004 - SAN MATEO -- More than 10 million Americans suffer from a serious condition that limits speech, generates lower jaw and neck pain and often requires surgery.
Now, however, a San Mateo-based company named NaBob/Rx has developed Theraflex-TMJ, an herbal-based topical cream that's used to ease muscle pain in the joint connecting the lower jaw and skull, specifically the temporomandibular joint (TMJ).
The compound is rubbed on the skin like any other lotion. It absorbs quickly and has a potent wintergreen aroma.
Though it is not a cure-all, a recent Tufts University study showed that patients who used Theraflex-TMJ experienced 60 percent less pain after two weeks. The findings were published in the Journal of Craniomandibular Practice.
"We found it was effective in reducing TMJ-related pain," said Dr. Noshir R. Mehta, who worked on the study. Mehta is a professor, chairman of general dentistry and director of the Craniofacial Pain Center at Tufts University School of Dental Medicine in the Boston area.
"We're proud of the study," said Dr. Robert Gross, one of the product's three co-founders, who lives in San Mateo.
"We know it works. If we can help 10 million people, we want to do it," added Gross, a longtime researcher who has studied alternative medicine in this country and abroad.
But the little company faces some big hurdles trying to get the product to the masses.
John Reid, a partner at NaBob/Rx, said the process of developing a new product and getting it out there is lengthy -- and expensive. The Tufts study alone cost $50,000.
"We've tried to get this into stores. We've given Walgreens copies of the study's abstract, but when you look at retail, you're looking at shelf space -- and you actually have to buy shelf space," Reid said. "You can see why every time we find a dime on the ground, we feel like we've won the lottery."
Theraflex-TMJ is not a prescription medicine and doesn't need approval from the Food and Drug Administration; it would be sold over the counter if it ever made into drug stores. The company doesn't know when that might happen. For now, the product is being sold over the company's Web site for $24.95.
Commonly, people with TMJ disorder experience symptoms such as speech complications, limited facial mobility, lock jaw, pain, and swelling in the face and neck.
Because 90 percent of people seeking treatment for TMJ disorders are women of child-bearing age, 47 of the 52 subjects who participated in the Tufts study were female.
"You can use a little bit and it goes a long way," said M.J. Sands, a biofeedback technician from Boston who specializes in home pain management and muscle testing of the face and neck at Tufts University School of Dental Medicine. Sands uses the product herself and has recommended that doctors administer it to their patients.
"I use a little bit on my shoulders, neck and back," said Sands. "We've used it for arthritis in the fingers and on the jaw joint for patients. It gets tremendous results." She said the relief is immediate.
Dr. Silvia Lobo, assistant professor at the Craniofacial Pain Center at Tufts University School of Dental Medicine, also worked on the study. In terms of treating TMJ disorders with herbal components, Lobo said, Theraflex-TMJ "is the first of its kind."
TMJ disorders can be so serious, an association was formed to help patients cope with the trauma.
"We don't understand all of the ramifications of TMJ," said Terrie Cowley, president and co-founder of the TMJ Association, a nonprofit based in Milwaukee, Wis.
She said she had not heard of Theraflex-TMJ.
"If you think a miracle cream is going to help our patients," Cowley said, "I would like to see it."
i am going to try this it sounds good, just been to chiro twice in 2days ear on right full of wax so need to get syringed. jaw pain not to bad base of skull still numb and hand and feet a all needles and pins, also have blocked nose on right, if someone could take my right side away and give me a new one i would be a ok
have a nice easter
I was just listening to a public radio show dedicated to the subject of companies buying ads in newspapers that look like they're reports. same with network news. you'll see a reporter doing a news story about say, a new miracle drug or how caffiene is actually good for you or whatever and it's actually paid for by the company that would benefit from the profits. it's unlikely that a newspaper is going to focus on one drug unless they're paid to.
this post stinks of advertisement.
"They patiently listened and told me they had invested every penny they had into their TheraFlex and my $25.00 wasn't even a drop of water on a hot pan. My sale wouldn't bring them anywhere near the black. So they told me to keep my money. Instead they would send me samples in exchange for two $.37 stamps."
Great! I have an alternative solution for TMJ pain. Physical therapy! Physical therapy is one of the best treatment methods for TMJ pain. I had taken my treatment from a TMJ pain relief center in Toronto, they had tried jaw exercises and alternative therapies like heat, ultrasound, ice along with the muscle relaxant drugs and other medications. It really worked. Now, my muscle pain is reducing and I’m happy with this treatment. but if anyone is opting physical therapy for TMJ, you have to strictly follow the instructions of your therapist and should take care of your food habits and lifestyles.
Hi, i have had both jaws replaced and before it i had lovely teeth, after my second Op i could not move my jaws from side to side or backwards and forwards. My upper jaw badly overlapped my bottem jaw and caused a lot of problems for my lower teeth which sadly i eventually had to have them out i have been to hell and back dentures wont stay in and keep breaking. The one bottem tooth which is like the eye tooth just digs right in my upper gum so painfull i have now got an appointment for to have implants which is going to cost me a fortune, i just wondered if anyone has had this problem and they got any help from the NHS to pay for implants i need 2 or 3 with a bridge and i feel upset that its not my fault my teeh are ruined.
Many Thanks Lynn x
Recently after a NUCCA doctor pushed to hard, my jaw cavitation symptoms worsened, I became neurologically dysfunctional for a while (sphenobasilar issue) and then after light sucking the next day my jaw fell out of the joint and since then I would wake up to catch my jaw falling in my sleep.
Lots of teeth grinding ever since and even chewing or opening mouth for dental work causes more headaches/neurological dysfunction. Electrosensitivity has gotten worse (I have Lyme).
Basically it is the bowling ball syndrome but even more complicated.
Now I just found out I have 2 more jaw cavitations on my left side at the wisdom teeth sites, using a Cavitat machine (probably caused by the NUCCA doctor as this does not show on Panorama X-ray, indicating a new infection?).
Is it safe to remove these cavitations and wisdom teeth while still having the above TMJ issues? My muscles/joints are still very weak.
I am having trouble finding someone locally in Toronto to fix this TMJ/cranial issue. I just started seeing a CranialSacral Therapist but not sure if she can help with the jaw issue.
If anyone has recommendations even outside of Canada please let me know.
Can anyone recommend a TMJ specialist? (or a few of them) I live in Toronto, Canada but willing to travel anywhere for the best.
My TMJ got worse after my third NUCCA adjustment. I think the chiropractor pushed too hard and afterwards I found myself waking up to catch my jaw during sleep. The joint has since become tight and stiff so it doesn't drop anymore.
I do not have clicking so it might be a cranial issue.
Also is it recommended to remove wisdom teeth before fixing TMJ? My jaw cavitation surgeon says they need to come out, one of my cavitations was underneath an impacted wisdom tooth.
Thanks for your reply! So it really is a sphenoid issue? Eventhough a recent osteopath checked and says I do not have sphenobasilar dysfunction. I do recall my electrosensitivity and mercury excretion temporarily improved after her cranial massage. I will get a second opinion from a local CranioSacral therapist.
I do have exactly this symptom as stated in your links : "back into an S-shape resulting in extrusion of the disks. It also causes one arm and one leg to appear shorter than the other. It causes pelvic rotation."
Except I am not sure about extrusion of the disks, and I only know one leg is shorter than the other, but not the arms.
My cranial is misaligned as one ear appears higher than the other, it also shows on the X-ray.
I have looked into Neurocranial Restructuring, would it be good for me and is it safe for someone with Lyme? Anyone got worse from it and what was the reason?
Oh and my electrosensitivity got worse with each NUCCA, or at least especially after that third NUCCA session which made my TMJ worse after it popped out the next day (I heard and felt it). I was also using Rife machine at the same time so that also may have had something to do with it.
I was also neurologically dysfunctional for a bit after the third NUCCA. NUCCA doctor says this is normal and is called retracing. Is he correct? I thought this indicated a sphenoid issue.
Before that TMJ popped out, that night after the third NUCCA adjustment I woke up with electro-pain in my bottom palms, then fell back asleep and when I woke up again I felt a lot less negative energy in my body! I felt so calm and amazing the next few days, my boyfriend noticed a difference too!
I am not sure why the NUCCA doctor said nothing is wrong with the sphenoid as he can see.
I really wonder if I was born with a sphenobasilar issue because even as a kid I would always get into trouble and don't know why, and have a "failure to thrive".
I daily have aching jaw muscles and then headache...the problem. One of the suspected culprits is a voltage in my mouth..sounds weird..first let me give you the background. Except for this problem I am in very good health & 65 years old. I had a titanium tooth implant done for #19 (bottom left molar). The implant was placed with no problem and 6 months later a porcelain over gold crown was installed. The day after the crown installation, when I started to eat, I noticed jaw ache, both sides of my mouth. That was the first time I noticed such an ache. That was more than 4 months ago and have been suffering since. The implant & crown look and are suppose to be identical to the one done on #30 (right bottom side) earlier. The #30 crown & implant has never given any problem. The problem is often aggravated by chewing BUT NOT CAUSED BY IT! **I can awake in the morning withOUT any problem, and after 30 minutes or a few hours, the problem appears by itself...NOT having eaten or chewed anything. The problem is always relieved by laying down or sleeping. My blood pressure & heart pulse are good. I have no tooth pain or gum inflammation. I can bite down on a toothbrush handle, contacting #19 & #30...with no discomfort or pain. Keeping a baby stainless steel spoon in my mouth....the right front side....seems to relieve the jaw ache by maybe 50%. A plastic spoon did not have the same effect. I had to stop that practice after about 9 days because of possible toxic reaction. I have measured a consistent DC voltage, maybe 50mv, between the tip of my tongue, sitting in its normal position, and the back roof of my mouth..more positive one. Reversing the location of the probes brings the voltage to zero or negative. With the metal spoon in my mouth the voltage disappears...the spoon didn't short out the meter probes. I do NOT clench my teeth. Except for the start date of the problem, I would think the problem is medical, not dental. Per ** bad bite is ruled out, and my dentist observed NO bad bite. Since #30 & #19 are identical, toxicity is ruled out. Two possible culprits I can think of are infection and constant & tiring jaw muscle stimulation by mouth voltage. Because of the jaw ache, tetanus comes to mind...a very mild form of tetanus...probably suppressed because of my otherwise good health. Tetanus is anaerobic...it might have liked the environment under the implant cover. Consequently I took 30 x 150mg Clindamycin capsules over the span of 5 days but it had no effect even after 5 days. My jaw ache reminds me of an overused & tired muscle. It is NOT a spasm and I have NO involuntary bite down reflex upon touching the back of my mouth...2 things which indicate tetanus infection. Perhaps it is some other type of infection. The last tetanus booster shot I received was probably more than 20 years ago. Another possible culprit is an electric field (voltage) has developed in my mouth with the placement of the #19 crown. The crown has metal in it & so does its abutment. I have at least 2 different metals in my mouth...gold and titanium. The electric field could be in such a direction (my bad luck) so as to continually stimulate and tire the jaw muscles. The presence of a metal spoon could alter the direction of the field in such a way that it no longer stimulated the jaw muscles? Any ideas or similar experience? I am contemplating removal of the #19 crown, but not the implant, very reluctantly. 9/4/13 update..I found relief ..but not a cure...is obtained by taking Stinging Nettle herb 300mg every other day..on the other days I take evening primrose or borage oil, which also helps
I have been having Tmj for a while now and I have seen numbers of different natural doctors, dentists and so on. I now kinda got the feeling that my Tmj is actually causing a big disharmony not only in my neck but all over my body. I think it has something with the nerves at the temple and in the neck.
Could it be that Tmj is disturbing theese nerves so much that it creates healthproblems other places?
I really feel that if my neck and jaw totaly release almost all the tention I get back to feeling good in my whole body.
Unfortenetly this only happens breifly for me and the tention comes back fast.
Some symtomps of mine I Think could be caused by tmj:
- digestive problems
- pressure in head neck and back
- breathing changes
- heart beat changes
- a sence of half my body feels different than the other half
- pain in nose and forehead
- weakness in my left leg
I would like to hear your view on this cos I somehow feel this is all conected to the jaw and neck.
Some has also mentioned that there might be a problem with my gallbladder aswel, but I wonder if this could also be becouse of nervedisturbances.
Hoping anyone have any thoughts and comments around this!
Have you checked for jaw cavitations through a good surgeon who has a cavitat machine? My digestive problems went away immediately after the surgery. Breathing changes, heart beat changes, etc are all a sign of sepsis in your body (which is what a jaw cavitation is like).
I bet the meridian of your infected tooth/cavitation matches to that of the left leg.
I have pretty much all your symptoms, except "pain in nose and forehead". I also have Lyme, mercury, etc.
ok thanks Phelp! I am going to stick with this DDS for now, it is supposed to be a cone CT Scan, panoramic. It isn't too costly so I will try it out since he isn't too far from me and the only doc that Huggins recommends in the entire state of FL, which amazes me (16 million people).
The other method is just for you to concentrate on your jaw for a couple days and ask yourself if its infected-the human body has more biofeedback mechanisms than any scan ever will. You will be right.
It sound like this dds actually finds cavitations as part of his practice-which is good. If not don't waste the money
Oh I totally agree with you Phelp! Yes, I am getting the natural "biofeedback" that I do indeed have a cavitation in the area of molar #2. Whether it is the source of all of my Chronic-Fatigue-Syndrome remains to be seen but I have been employing the natural modalities like salt water swishing and coconut oil pulling ever since I read your posts, so I am very grateful to you for sharing your info!!! Thanks so much.
His office mgr says he does definitely find cavitations, so we shall see. There is another DDS a few hours away that has a cavitat scan if this doesn't pan out, but the Huggins guy is closer, so I'm going with it. It won't be for a few weeks, and knowing my body, I could heal up before then who knows! My lips are peeling too, so I switched to brushing with salt, we'll see:)
it may or may not be your cause but its,for sure, blocking you from getting better. People who have cavitations never regain their health until they take care of their dental. their symptoms may get some better but never healthy.
Good luck-I got to run. Margolis in an hour!
cone beam ct I think. I had it done at exactly the area where I had a cavitation, and it was completely invisible. Actually worse than regular x-ray because it had less definition. Maybe hospital CT with its much higher levels of radiation can give better images.
Who is the dentist in FL? I had 2 root canals (thyroid & breast meridian) removed by Bio dentist Dr. Behm in Tampa 3 months ago. I have been suffering ever since with worse symptoms than before I had them removed. The pain is much worse and has gone up into my ears and now eyes. I have multiple nodules in my thyroid and salivary glands that are still growing, and now a Breast Cancer diagnosis. The inflammation behind my eyes is so bad, I wear sunglasses in the house. I started a raw food diet, oil pulling with coconut oil, charcoal and clays, nanosilver & GSE, and am taking far and near infrared saunas almost daily, but it's not enough. I went back to Dr. Behm, he took an xray, said there was no infection and that I needed to go to a naturopath for DMSO IV therapy. DMSO is sulfur, and I am allergic. I now have 'pimples" on the gum where the root canals were removed. Was your dentist Dr. Behm or someone else? Did you ever find your infection? What method was used? Thank you so much!
Hello, I was wondering if there was less invasive cavitation treatments. I have terrible tmj ear plugging, gum sensitivity, chronic fatigue and had a root canal extraction a year ago when this occured. Every conventional dentist said it was just tmj. Went to biological and they said i have a cavatation. Anything i can do that is not so invasive to get out of this pain. I am too nervous to have it done. I already feel awful. Any help would be appreciated. I hear about ozone therapy etc. but wanted to know of any success stories. Thanks.
Surgery plus ozone is the best way I think.I have had many jaw issues and doing both surgery and ozne gave me the best results. I have tried both alone with mixed results.
Its an infection-waiting does not make it better-my opinion
actually the surgery was successful for me but i still feel like my body is still not completely healed. still suffer with ear swishing neck pain and gum pain but not nearly what it was prior. i would say it helped sixty percent... prior was so painful everyday... i wish you well and i did use oxygenated olive oil after surgery.. any questions dont hesitate...
I had cavitation surgey, but it was a dozen years or so ago. In the mean time the company that devised the cavitat machine filed for bankruptcy after legal battles with Aetna insurance. My dentist was involved and ended up losing his state licence to practice.
More to the point about whether surgery is necessary, i found this link that should explain the reason surgery is needed. The bone needs cleaned, and oxygen is needed to kill the type of bacteria involved.