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Her body was shutting down from a staph infection that doctors said was connected to the silicone injections. Her limbs were curling and turning black, the visible signs of necrosis. Brown recalled seeing her hands in the hospital, thinking, “Oh, my God. I am going to lose my hands. I looked at my feet ,and they were dead, too.”
Doctors had no choice. To save Brown’s life, they amputated her hands, feet and the flesh around her buttocks and hips in 27 surgeries. Somehow, she survived.
Brown is still embarrassed as she talks about the vanity that nearly cost her everything.
At the time, she was a successful hair stylist and owned a salon. When she wasn’t at her shop, she was busy raising two daughters. Life was good. But Brown always wanted to fix what she saw as her “flaw.”
Ever since she was a little girl growing up in Florida, Brown remembers being teased about having a flat butt. Growing up, she always wanted a fuller posterior and even had a mantra, “When I get me some money, I am going to get me some butt.”
In 2004, while she was working on a new client’s hair, she got her chance. The client happened to mention she did silicone injections cheaply. With a few sessions, she told Brown, she could obtain the shape she had always wanted. Brown was sold. A week later, she found herself in a house lying down in a bedroom receiving her first of four injections into her butt cheeks.
Following her second treatment, Brown remembers doubting her decision. “A voice just came to me like, ‘What are you doing? Are you serious? You are going to allow somebody to inject something into your body and you have no idea what it is.’” Brown decided that day to stop doing the treatments and never went back.
The true cost of the injections would come later, following years of pain and visits with doctors.
Brown’s story may be severe, but she is part of what the American Society of Plastic Surgeons calls a growing problem: patients bypassing doctors just to save some money on basic medical procedures.
“I think that’s awfully seductive to a person who doesn’t know there’s a problem,” said Dr. Richard Glogau, a clinical professor of dermatology at the University of California, San Francisco. He says he is seeing a disturbing trend, as patients turn to plastic surgeons such as him after getting botched facial filler injections.
The injections are used to smooth out facial lines. Some of the patients Glogau sees have traveled out of country and had these cosmetic procedures done cheaply. Others are purchasing cosmetic fillers from websites and self-injecting these dermal fillers into their faces. Often, the patients have no idea what’s in the dermal filler, nor do they receive the procedure from a licensed medical professional.
“People assume it’s just as easy as getting your hair colored, and at the end of the day it’s a medical procedure,” Glogau said.
Would-be patients need to know the facts
In the United States, there are only 21 FDA approved dermal fillers. These must be administered by a medical provider or under the supervision of a physician.
None of the FDA-approved dermal filler devices is approved for self-injection. There are hundreds of nonapproved dermal fillers available around the world. But Glogau cautions against having the procedure done out of country or trying to do it yourself. “I wouldn’t do it. I think you belong in a doctor’s office where a physician is supervising this and you can depend on where they have sourced the material.”
I do agree with your words. I know some of those people who went for a cheap, unprofessional surgical procedure. All of it finished in a disaster. One of my friend also went for a cosmetic surgery under Dr.Pirani,Toronto Plastic Surgery Center ( http://www.drpirani.com/ ). She is honestly happy with the procedure and outcome of the surgery.
Wow where to start! I have Lyme disease and alot of the symptoms are the same as silicone poisioning!
But today I learned I am allergic to my contact lenses. Which makes no sense to me. So after some digging,... silicone autoimmune issues make perfect sense. I have an IUD by mirena in for a year now(this is my second)
I have a strong family hx of autoimmune diseases.
muscle,joint, nerve pain
chronic fevers (daily) up to 102
to name a few
My bloodwork shows hig SED rate and off the charts CRP, positive ANA (mild)
Thinking about having formed antibodies against silicone, would explain the sudden allergy to my contacts.
it would explain many things.
I am calling my PCP and I already have an appointment withan allergist/immunologist
What do I ask for? Silicone ab IgM/IgG??
so I will get tested with the dumb mirena in. Then get it taken out. then what do I do? i want to keep it as evidence b/c if the stupid thing has caused all this someone is going to be held responsible.
I also have Lyme disease (diagnosed in 2008). I got my Mirena in Jan 2015 and removed in May 2015. It made me pretty mental. A few months after removal, I felt like my Lyme symptoms were coming back. Now, after some research, I think it is related to the silicone in the Mirena.
Just wanted to touch base - I'd love to know if you are feeling better and what kind of doctor you went to for diagnosis/treatment.
Ugh - getting a Mirena is the worst decision I have ever made.
I have been reading your post and a feel great relief that I'm not alone. I'm in the UK and no Dr will listen to me. I am now having MS symptoms and my neurologist says will mostly turn into MS as MRI shows some damage.
As soon as I mention more than one strange symptom a Doctor they switch off and say it's depression/anxiety! I have too many symptoms to list! Why oh Why do they night recognise the link with the mirena and autoimmune diseases!
There are no tests that I can find in the UK for silicon... with every lead brings a brick wall! I have send an email to Harley Street London this morning... it's my last hope!
There is a petition in need of many signature to protect women worldwide from the unknown physical dangers of silicone toxicity from breast implants. Your signature is greatly appreciated. Please see this link:
I have solid silicone implants in my lips and after a myriad of symptoms I am getting them removed on Monday and hoping things will begin to clear up. Does anybody know- if your impant is a solid piece of silicone does it all come out when it is removed or will there be any leakage or small pieces that have broken off? I have had the implant for 3 years and am just wondering if once I get them removed the silicone will have left my body for good.
Out of curiosity, what are your symptoms? Curious because the chemicals inside the Mirena are enclosed by silicone, but the progesterone floats in silicone oil in the middle, which gets released thru the outside silicone barrier. It's interesting to read forums of women who've had problems with things like implants and silicone oil injections, and how similar they are to us Mirena sufferers....
I am tired all of the time and have no energy and I have had bouts with nausea. I also have tingling that goes through my body and my problems seem to get worse around my period each month. I am having the implants removed next week and am seeing a naturopath doctor to detox from everything that is in my body. When I had a toxic metals profile done my platinum levels were off the chart and I don't have anything in my teeth other than porcelain so the only place the platinum could have been coming from were the implants. I found out that they use platinum when making solid silicone and it is left on the implant. So I am crossing my fingers that after I get it out I will begin to feel better.
Thank you. I also found a product online by DNR that says it helps to detox the body from silicone and is recommended for anyone who has had a silicone breast implant that leaked. I ordered some and am going to try it after I get mine out so I will let you know if it worked or not.
I am a person that was basically used as a Guinea Pig @ UofM. I was born with a birth defect on the right side of my face. This effected my eye, nose, teeth, and cheek area. In the early stages they had planned out an extensive surgery taking a piece hip or rib bone to reconstruct my face. In April 1973 the FDA ruled the liquid silicone was NOT safe to be injected into any soft tissue area. I don't have all my notes i front of me so some dates may be a little off; however they can be confirmed.
I'm new here and I have a very hard time dealing with ravage silicone has done to my body.
In the Fall of 1973 my parents opted to listen to the Dr.'s when they advised them that silicone is so much better than a large scale facial reconstruction. I remember being 11 or 12 years old and the surgery was long and I came out mortified by my looks. They had placed a solid piece of silicone called a silastic implants. My nose was broken and straightened, and the first series of (maybe 20)injection treatments into my face.
To Be Continued because it's making me sick to talk about this. It's very hard for me to talk about and the ravage that silicone has done to my body.
The neurologist is restoring some of my faith in the medical community. I showed him some silcone medical journal stuff, and he wrote me a lab request for "silcone ab IGM." But we don't know if anyone around here knows what that is--I'll be calling around.
So what exactly did he say about the Mirena? Does he think it is a possibility that that is what caused your symptoms? Why does he not think it is early MS? I am just curious his reasoning and looking for some reassurance. My spinal tap results are still not back. However, I did go to my regular doctor today to get something for my anxiety over all this, and asked again about the Mirena(which i still have in me) and she was pretty definite that she did not think it was the Mirena, particularly because I had no problems until 8 months after having it. Most of you didn't have problems in the beginning etiher, so Why don't we have problems right away if it is the Mirena? She also said people are on progesterin in much higher doses all the time and don't have problems, and the Mirena is such a small dose of progesteron. I asked about the silicone too and she just seemed doubtful. What are all your thoughs on this? Thanks, and good luck Melanderso!
Melanderso--That is so fantastic that your neurologist is so open to what you are saying! So, this test that he is running...what exactly will it show? I'm anxious to also know what a neurologist would say about what he/she believes our future is like...things like if it isn't MS, does that mean that we are at a high risk to just get it later in life? Things like that. I am very excited to hear about your conversations with him as you proceed with these further tests. I'm so happy for you that you found him
Fabteach--Are you getting the Mirena out? I'm telling you....it IS the Mirena. Your doctor is saying what most of ours all said as well. I'm sorry, but on this one, they are not correct. As more and more of us come forward, they will have to admit that it is causing some very serious problems. It shocks me that your doc said that it isn't much progestin...it actually is the same as two progestin pills per day. That's a lot to have pumped in to your system daily for years. As far as the silicone topic....my doctor was doubtful too....until he had to call me with the results that I was right and there were elevated silicone levels in my blood. Oops.
Please get that things out and start on your recovery.
I forgot to say--he thinks the pattern of my lesions is not the classic pattern for MS. We've discussed the progesterone, but I didn't get a hormone blood test WHILE the Mirena was in. You might consider that for later evidence. It might show you have high prog. now and then in a few months it might go very low--that would be proof we stop making our own! Just write down what time of your cycle it is because the prog. level apparently jumps all over the place depending on time of month. . .
Well done-some good news for a change!I'm pretty convinced that silicone is responsible for my symptoms. When I've checked out the list of effects from silicone poisoning,25 of my Mirena side effects tally. That's just too much of a coincidence. And silicone also affects the auto-immune system, which would explain other weird illness.Why the hell does the Mirena release silicone into our bodies anyway?
I have a good feeling (for a change) about all the evidence we are collecting. All devices malfunction, so why not some of the 1000's of Mirenas they place??
fabteach--both my primary and my gyn. said it wasn't the Mirena, but that is because they believe what the drug reps say and don't even look up the known side effects reported by Mirena. I thought it was great birth control for the first 2 years and even recommended it to people! Ugh, how stupid. But as more and more things went wrong, I knew it was Mirena. I was reluctant to have it out because I'd paid $700 for it and I need really good bc because our son had med. problems and I couldn't risk it. So I left the posion in WAY too long. But there were signs at 14 months after I got it. I had the second migraine of my life right when I was finishing nursing. The first was the DAY I had the depo provera shot back in the 90's. My body just doesn't like this fake stuff. (BTW, are you a teacher?)
Proudmama--what as the name of your silicone test? This one is for antibodies. I'm worried I won't find a lab to do it even though the Dr. ordered it.
I do have my Mirena, by the way. Since the surgery was the 3rd time they went looking for it, I'd told them I wanted it in my hand in a jar when I woke up, and they were kind enough to do that for me.
fabteach, I've been reading this forum for over a year, and I remember that there were definitely some women who reacted to the Mirena in a matter of days and weeks.
But it took me over a year to start. Except that I did have constant low-grade nausea and dizziness which started within a month of placement. My Dr. told me to stick it out, and I did. It went away after several months, and I was fine for awhile, and then started having new problems (autoimmune related) 1 1/2 years later.
I think the timing has to do with overall health of the individual body. Many of us finally started to react after a period of intense personal stress or severe illness (I had both).
Melanderso -I am a stay-at-home mom now, but I was a high school teacher for 6 years before that. That makes sense what your neurologist said about your spots, that is basically what my report said, but my neuro said You can still have MS even if the MRI is not clear that it is. He said it was up to me if I wanted to have a spinal tap to know more definitely, and I made the decision I wanted to know. When I asked him the chances this would be MS, he didn't really want to give me a percentage, but he did end up saying less than 50% but greater than 5% chance. Not sure that helps much. Still waiting for results. It has been a week now, and I am so anxious. If this comes back normal, there is still a chance it is MS apparently, but the first thing I am going to do is make an appt. to get the Mirena out and then make an appt with a naturapath to get me on the road to healing. Have any of you heard of nutrition response therapy? I went to a seminar on it that a natura path put on and it was interesting. I am not sure how to explain it, but basically they test if you have toxins of certain kinds in your body like mercury, and if you have sensitivities to certain things too. It was interesting. Praying I hear something soon, and that this is not MS! Good luck everyone. THis is no fun!
So bizaar that so many of us were teachers before all this. I used to be a vocal coach/singer and was employed to visit many schools to give private singing tuition. I also taught adults in the evening. I noticed my body changing early on but put it down to age, even though I have always been active and I was only 30 when I had Mirena put in. Don't know if I will ever beable to get back to my job which I loved. My body feels wrecked. What did you teach?
I taught 9th and 10th grade English, Foods, and a marriage and family class for 11th and 12th graders. Loved it, but am so happy to be home with my little ones now. If I could just get healthy and past this MS scare, I would be much happier!:)I have been waiting over a week now for test results. I am sure the secretary at the neurologist's office is very sick of me calling every day.:)
Don't you worry about annoying the secretary! Keep calling. It's important and they are more likely to get a move on if you keep badgering them. As we all know health services are absolutley useless. Good luck
I am having m.s. type symptoms that seem like they might be linked to the mirena as well. I am going to get mine out asap and also see if i can get the silicone screening blood test done as well. I also am waiting on a call from a neurologist to be tested fro neuropathy, ms and other things . i did find some videos on youtube that do some explaining that IUDs can cause silicon poisoning as well
Hello, I just joined this today because I saw your post, however I see its from 2 years ago! Silicone injections 100% do cause intestinal inflammation. I have been dealing with the same thing and I just recently took out my implants and did a lip reduction to try and get what we could out of my lips. I'd love to chat more with you about this if you are still around on this forum...
There was a recent discussion below on breast implants and i mentioned the article of what happened to my friend. I actually had two articles on breast implants are finally up on my website. So here are the links.
Great information. Thanks for posting those links.
My problems all started after having the Mirena IUD placed. I'm not exactly clear on where the silicone is in that device. My Dr. said it was made of "soft plastic" (does that mean silicone?), and I've read that the synthetic hormone is held in a silicone matrix. Does that mean the hormone is mixed with liquid silicone, or just held in a solid silicone holder? I would like to know if the Mirena has a way of leaking liquid silicone into the body, or if it's purely solid and is therefore completely removed from the body when the IUD is removed. Some women on the Mirena forum have had blood work done showing silicone in their blood, even when they haven't had the breast implants. One woman has posted recently about her success using the Standard Process detox system; her blood silicone levels went back to normal after doing it, and she felt much better, so I'm intrigued and would like to know more about Standard Process (at least I think that's what it was called).
One more question, if I may. I understand the connection between silicone antibodies and connective tissues. But so many of the Mirena reactions involve neurological problems (like mine). Is there "connective tissue" in the brain? Why do many of the breast implant reactions involve neurological problems similar to MS?
Great information. Thanks for posting those links.
My problems all started after having the Mirena IUD placed. I'm not exactly clear on where the silicone is in that device. My Dr. said it was made of "soft plastic" (does that mean silicone?), and I've read that the synthetic hormone is held in a silicone matrix.
Here is an old post I did with a description of Mirena:
Does that mean the hormone is mixed with liquid silicone, or just held in a solid silicone holder?
I have not been able to find out for sure how they are actually delivering the hormone.
I would like to know if the Mirena has a way of leaking liquid silicone into the body, or if it's purely solid and is therefore completely removed from the body when the IUD is removed.
I am not sure. If they are using silicone pellets with the hormone that are being released then yes. Of if the silicone is degrading from being attacked by the immune system then fragments may get loose.
Some women on the Mirena forum have had blood work done showing silicone in their blood, even when they haven't had the breast implants.
The question though is was it actually silicone that was found or anti-silicone antibodies? It would actually be almost impossible to find traces of actual silicone or silicone oil in the blood, so I would expect they are actually detecting the antibodies.
One woman has posted recently about her success using the Standard Process detox system; her blood silicone levels went back to normal after doing it, and she felt much better, so I'm intrigued and would like to know more about Standard Process (at least I think that's what it was called).
Standard Process is only sold through licensed professionals and they are very big in to glandulars, which I disagree with using.
One more question, if I may. I understand the connection between silicone antibodies and connective tissues. But so many of the Mirena reactions involve neurological problems (like mine). Is there "connective tissue" in the brain? Why do many of the breast implant reactions involve neurological problems similar to MS?
There is connective tissue in the brain as well. But without knowing if free silicone is actually released it is hard to say if it is from damage to connective tissue. There was research back a while ago that found that leaking silicone from silicone implants did migrate in to the brain causing neurological issues. If free silicone or silicone oil is leaking in to the blood then there is a possibility that it is migrating in to the brain. But again I have not been able to find anything on whether or not silicone or silicone oil is actually released from Mirena.
Thanks James. I guess I have to be content with not having specific answers. If you can't the info, no one can. But if you do ever run into any specifics about Mirena and silicone, please do post :)
So if I avoid Standard Process and glandulars (I agree with avoiding glandulars), would basic use of bitters with meals, plus lots of water and a clean diet, be a good way to help my body detox in case of silicone issues? Is that all I can/should do?
Hi All, I have had an MRI scan come back showing white dots which the Neuro says is indicative of MS.. I am convinced this is all to do with my breasts leaking but no-one is listening to me... Can silicone leaking cause white spots on an MRI? I am having a lumbar puncture on Monday to assess the spinal fluid but am told even if it comes back as negative, I still might have MS as they have labelled me as having CIS.... They have totally ignored my slipped disc in my neck which I believe is the cause of my carpal tunnel type feelings in my arm and havent even diagnosed by leg which they now say is drop foot but thats only after I questionned whether it could be that.. my boyfriends mother is in a care home seriously disabled with MS and this is the last thing I want for myself, I am so scared.. could these dots be in fact the silicone from my implants do you think??
I have just got on here for the first time looking for some answers for myself and came across your post!
I too have had an MRI come back with lesions on the brain and have been having alot of symptoms that seem lilke MS. 2 docs have said they think I have MS and I have been admitted to hospital at one point because of how bad the sypmtoms got.....
I too have had silicone breast implants put in and only 10 months ago. I am beginning to wonder if I may be having issues with silicone???
Did you ever find out what was happeing with you? Did you find out what the causes fo your symptoms were? Were the lesions (white spots) silicone on the brain?
I truly hope that you have been giens ome answers that are easy to work with......
hope you are well.
As a Morgellons sufferer, I want to share this preliminary information for the possible CAUSE! I love this forum for allowing us to find help when we have been called delusional, when we have photos, samples, sores and so forth! We have all spent money on some things that worked, some did not!
If this is the cause and it helps us solve this, lets support this site for others.
If you have Morgellons, you have seen white fibers floating everywhere!
Although this is only one part of this, it may be part of the cause.
I do have a microscope and saw many freaky looking specimens of this.
But read up on Collembola and Spingtails. That's not new information.
However, I read deeper and learned there is a bacteria associated with this, stenotrophhomonas maltophilial that sends a pheromone ( bug cologne ) to attract this little ancient monsters. Thus, the are following us. But the other reason, I think, not positive, I actually found on this forum, from years back. The writers name is " The Truth Revealed" .
This person is much more educated than I am and shared the Gmo's concern along with some web addresses to read. Which shares the fungus portion of this. I have certainly noticed a my skin feels powdery. More important, I remember my puppy getting small black spots and larger white scaling spots at age 6 month. I have wondered if Immunizations played a role? Never certain. Seven Veternarians could not tell me what this was. Then I noticed what I could describe as dirty arm pits on the puppy. I pointed it out to a vet. Yes, fungus.
I apologize for jumping around. But I am hoping we can collectively work on this. I think the person on this forum is 100 percent correct. Go find the posts. Lets work on this together. I actually bought this machine months back with a cedar based product that I have never even tried due to being so ill. I am going to see if this gets ride of the massive white floating fibers, aka molting Collembola or springtails. By the way, what I found about these Collembola infestations : fatigue, brain fog, fibers from molting, biting, itching, immune disorder, joint pain, visual decline....hello!
Talk me smart folks. I have been sick for fifteen years, lets put a dent in the medical mystery. Imagine this! Love and optimistic resolution!
Thank you Cure Zone!
Does anyone know of a way to test for toxins in the body related to silicone or saline implants? I know that high levels of platinum are related to silicone problems because the 'set' silicone with platinum. Also, mold and fungus are related to saline implant problems. Just looking for a good reliable source to use to test for these.
I am seeing my gp this week and plan to ask her for my silicone levels to be tested. I am quite concerne3d that she will refuse and I need to be able to convince her of it. Am also seeing my neurologist tis week, who it has to be said this the most patronising and arrogant person I have ever met! I want to hit him.
I there anyone in the uk, anywhere who has been able to get this done and how did you approach it. My current situation as that my MRI and previous blood tests have come back with nothing significant. I have a nerve test coming up.
My main aim is just to know what has been left in my blood and then to treat it appropriately! At the risk of sounding crazy to my gp, I want some anwers! Just need to work out how I can get round her!
Have printed up sections of this site, iformation on silicone toxicity (particularly related to Norplant) and all symptoms of poisoning. I want her to read these and then tell me it's just the internet and it should be taken with a pinch of salt, when I have most of the hideous symtoms!
Anyway ladies, any tactics would be much appreciated!
Happy new Year and may it be a better one for us all!
I wish you all the luck in the world with this, ClareBear! I'm in the US myself, and can't even find a laboratory that tests for silicone. I'd be more than happy to pay for it myself (do you even have that option over in the UK?), if I could just find out where to have the test done. I'm sorry I can't be of any help to you (other than moral support).
I do wish we could get all of us who are suffering with these horrible symptoms together in a room with all the doctors who poo-poo our symptoms and try to tell us they're all in our heads. If we could show them our sheer numbers and get them to listen to the same story over and over from thousands of different women, maybe they'd realize we can't all be crazy.
The neurologist said if my brain MRI showed anything he would do further testing on things that attack myelin (nerve sheaths). I did bring up silicone and Lyme's disease and he seems open minded. Here are a few more articles for the fire. The first is very technical, so maybe it will carry more weight with drs. They tested for silicone antibodies.
I tell every dr. I see that I visit 2 Mirena websites, and in total there are over 24,000 negative comments on Mirena. I usually leave it at that, or sometimes I say, would you buy a car if it had 24,000 negative reviews? The one time I tried taking the first page of this site (showing the 6 million page views, etc.), the woman wouldn't even take it from my hand. But hey, maybe a seed has been planted. I pray everyone has a better year for 2011!!!
Great to hear from you! The doctor Myhill report that you posted is the one I am taking with me to my doctor! It makes perfect sense and is the only thing I have seen which completely fits my symtoms. I have been tested for auto immune diseases and Lupus which came back negative.
I like your line about not buying a car with .... Very good! I might try that one! I think my main plan is to try and stay calm. I have tended to get either extremely angry (to the point where I was scared that I might be violent) or to cry (or both). Maintaining control has to be the key otherwise they seem to assume we are mental. Thank you for you comment and good luck on this roller coaster!
Great articles - thanks for posting them! With my continued neurological issues and muscle weakness, I've become more and more worried about other diseases I might have developed. Reading these articles makes me remember again that the silicone reaction might be playing more of role than I realize. I guess it's just that because I'm 13 months post, I feel like my recovery should be further along (or finished!) and that because I'm not back to normal, something else must be wrong.
I continue to believe that adrenal weakness/fatigue play a large role in autoimmune/hormone/thyroid/autonomic dysfunction. I've been reading from here:
This explains so much of what I'm experiencing with autoimmune issues, allergies, autonomic dysfunction, and obvious hormone imbalance. And it even points out that for someone in this state, lab work and tests can be fairly normal even though one definitely is not functioning normally.
If the adrenal fatigue is the reason for the body's reaction to the silicone (and subsequent autoimmune condition) and hormone imbalance, it makes sense to work on strengthening the adrenals as a part of the recovery. Maybe that's what helps the body to "burn out" on the silicone reaction in time. Maybe women with stronger adrenal function are the ones with the Mirena who have NOT had a reaction (yet, anyway!). Maybe it explains why I started having a more severe reaction after the strep throat infections I couldn't get rid of last year. Maybe the Mirena weakened me, which allowed me to develop the strep (which I had NEVER had before), and then this weakened my adrenals sufficiently to allow the downward spiraling of my health and development of autoantibodies. Maybe the hormones in the IUD further upset the adrenal/hormonal balance in the body (which is addressed in the article). Maybe this is why many women have finally recovered in time. They get the IUD out, try to focus on healing, which strengthens their adrenal system, and then they stop posting on this forum! ;) At least I'd like to think that many of the women, especially from a few years ago, no longer post because they are better.
Any thoughts? Does this make sense? Sorry to ramble. I'm just thinking out loud on my keyboard.
It's a complete nightmare isn't it! I've found form a doctors report that there is only one test available in the uk concerning silicone, so I'm I'm going to tell the doctore the code of this when I see her.
Why does this have to be so difficult. As if we haven't already got enough to deal with! I wish I had some answers for you! There must be a place someone that will do it for you. I have become so suspicious of the medical profession that I don't believe they tell the truth about anything much!
I think that this test must be available, but that they are protecting themselves! Verging on paranoia I know, but it's not paranoia if it's the truth. Good lucki and don't give up! One day this thing will come out. It will probably be very cleverly covered up and the Mirena will just disapear off the market.
Anyway, I'm praying that I don't scream at My neurologist. That wouldn't be a good move! He'll deffinately think I'm mad then!
Hey Clare! How are you? Any luck getting your silicone levels tested? I plan to see a neurologist bc I noticed my speech has been slurred, my train of thought has been limited and panic attacks came back so I'm asking they test my silocone levels too hopefully they will but anyways have u gotten any better since ur mirena removal. If so, what have you done to improve. Please help by replying!
Basically detoxification is happening all of the time in your body. The process is 100% dependent on the proper nutrients for the biochemistry to work right. When we have an excess of toxins in our body and a deficiency in the nutrients to process them out, these toxins back up and are stored in our tissues and wreak havoc with our physiology. For example, xenohormones, which are environmental chemicals that mimic estrogen in the body((from plastics, makeup, pesticides, herbicides (which are on nonorganic food), pharmaceutical hormones, etc.)) are one of the things that can put you into estrogen dominance, symptoms of this are imbalances in menstruation, anxiety, anger, mood swings, agitation, depression, cravings, little red dots on your skin (cherry hemangiomas), facial hair growth(peach fuzz) and a ton of other symptoms. Just google estrogen dominance symptoms. This is but one example of excess toxins (in this case xenoestrogens) building up in the body. The toxic load has overwhelmed the detox mechanisms and lots of weird symptoms result. The main detox mechanism is called the Cytochrome P450 enzyme system, the main detox organ is the liver. There are two phases. Phase I is the oxidation,reduction, hydrolysis, hydration, dehalogenation step, this produces reactive oxygen intermediates referred to a primary metabolites, that are actually more toxic than the initial molecule. Phase II is the Sulfation, methylation, glucuronidation steps of the primary metabolite formed in Phase I. This makes them water soluble to then be excreted in the bile through the gut, and in the urine via the kidneys. You don’t need to know all of the biochemistry of this, all you need to know is that both of these steps are 100% dependent on nutrients, and without the nutrients it will not work, and a toxic load builds up in your system causing all kinds of weird seemingly unrelated symptoms. The detox products we use are from Standard Process (a whole food nutrition company), Cruciferous Complete, SP Cleanse, Folic acid B12, B6 niacinimide, Gastrofiber, and SP Complete. You can read about them on http://www.StandardProcess.com.
It is a very complex system, but at the same time quite simple. How many times one needs to do a detox depends on how much toxic load there is. I compare symptoms of before and after, and just use common sense.
You can email me with questions
I was thinking of getting silicone pads for baking cookies on, as seen on Martha Stewart all the time. They make baking dishes and spoons too. Does it leach into food?
No, I have never seen any evidence of this. And there should not be anything in silicone to leach. I made some one time by accident working on another experiment. Pretty simple actually, react sodium silicate with an alcohol. Silicone does not need plasticizers that leach like plastics.
Reminds me of the silicone breast implant question of leaching. I'm sure there are other prosthetic body parts made of silicone also, like joints.
This was actually leakage both by ruptures and migration through the silicone sack. Exposed to the immune system the body does create antibodies to the silicone, which is why women with silicone implants can end up with autoimmune disorders.
I have read several things from women about silicone in the mirena device and silicone poisoning. I have a friend who, three months after mirena was placed, developed a bunch of neurological symptoms -- weakness, twitching,swallowing problems, etc .... She had an EMG done and it came back abnormal. Doctor's are telling her it is ALS. She has found several posts by women about mirena and neuro symptoms. She had her mirena out a couple weeks ago.....
I just found this article today about silicone poisoning. These women were told they had ALS diagnosed by EMG but later were found to have "motor neuron disease SYNDROME" due to silicone poisoning from breast implants!
MIRENA IS BAD NEWS and if there IS a possibility of silicone poisoning from mirena, something called "motor neuron disease SYNDROME" and permanent nerve damage IS a possibility.
Wow! That explains some serious stuff. I so wish that Drs./scientists would be willing to explore this. I know that the Mirena is not a breast implant, but we are left to do our own research and try to find explanations for our problems. If my neurological problems have been caused by myelin damage (although my MRI was clear), maybe that's why I'm feeling better now that it's out and I'm taking cod liver oil and lecithin everyday (to rebuild myelin). It's how my friend (who does have MS) has been treating herself, and she is now in remission without using drugs. I just hope I can heal completely and use my right arm normally someday.
Well im nearly one year on after having that evil device out that has ruined my life.I only had the mirena in 8 weeks and have ended up with a diagnosis of rheumatoid arthritis,most of my joints were swollen,now im 50% better but only from the help of a strong dose of methyltrexate,20mg at present.I live in hope that one day my arthritis might burn its self out,would love to here from anyone in my position that this has happened to.As many already know the mirena coil is a silicone device,its made up of different lengths of silicone in order to achieve its softness,the short chain silicone have the potential to migrate and be absorbed systemically,this phenomenon is well documented in the case of silicone breast implants,in most cases the body will ignore the silicone unless you have a sensitivity to it,which i do,then it is perfectly possible that it can switch on an inflammatory reaction.Maybe this has happened to me,i guess i will neva really know the truth,all i know is i was a fit and healthy nurse before i had this device.
I am also a nurse. I believe I had an autoimmune reaction to the silicone with symptoms of RA. I had severe migrating joint pain accompanied by inflammation. After getting the Mirena removed, the "attacks" became fewer and fewer. It took about 6 months for it to burn itself out and I'm free of that kind of pain now. I have high hopes for you now that the evil device is gone. I also believe the Mirena caused my hypothyroidism, pressure urticaria, sinus problems, carpal tunnel syndrome symptoms, bouts of nausea, PVC's, and HTN. Hope you're better soon!
Thanks for your message Jane the problem is its been about 11 months now since i had the device removed and most peoples joints seemed to have got better in about 4-6 months so im worried that mine is permanent.Did u start any treatment for your Ra? Also i tested positive for anti ccp which is a test that indicates you have ra,not sure if mirena could cause this?I just dont know.I really do hope your feeling better too.What a horrid time we have had,i have been unable to work now for seven months,i still have two swollen knees,an arm i cant raise above my head and a swollen finger,i still have a battle on my hands.
My labs for RA were somewhat elevated but not conclusive. Long story short, I didn't even bother seeing a doctor when the symptoms were at their worst. I believed the Mirena was the cause and the doctor did not so I had it removed. I only used IBU, no other RX. There are just too many cases of autoimmune diseases related to silicone to believe it's just a coincidence. Women with silicone breast implants and the Norplant (nothing more than a differently shaped Mirena implanted in your arm) had the same autoimmune problems. My heart goes out to you. I hope you feel better soon. Keep in touch.
I hope you ladies don't mind if I jump in here. I have a question about the labs for RA. My blood work in October showed a level of 12 for rheumatic factor (0-13 being normal, I was told). It went up to 13 a month later, but the Dr. said the levels were still normal and not indicative of disease. My sed rate and CRP were normal. The only problem I've had is wrist tendonitis (which has been somewhat better since the Mirena was removed, although it flares up with hormone cycles).
Then I read somewhere else that the presence of RF itself is indicative of a problem (like the ANAs I have). So, is there a "normal" range, or should I worry that I have it (rheumatic factor) at all? How high do these levels get for you women who have really struggled?
I live in a small town and have not ventured out to see a rheumatologist 3 hours away. My GP knows very little about autoimmune disorders. I did see a neurologist who comes down to once a month to where I live (she ruled out MS for me).
Hi there well i will help u if i can erm my RF factor was normal but this does not indicate u dont have ra, u can have a negative rf but still have it.However my anti-ccp which is a more sensitive test for ra was 18,i was told by a doctor that normal range is 9,i have also been told that if u test positive for this its a more destructive type of arthritis.My esr has been at its worse 100,i think its meant to be around 12 and my crp has been up 125.hb has been low all along at 8.9.I really hope u get better soon and this does not prolong for u like it has me.
I had Mirena for a year and a half.
Its been out for about nine or ten days now. My joint and muscle pain is horriable. My doctor is exploring the silicone idea. That is what she thinks. Im waiting on all my blood work...
Many women have an allergic and negative response to silicone. These women develop an antigen to silicone,. Researchers at the NIH clearly have established that antigens and antibodies to silicone are real and exist. Anyone involved in silicone complications is well aware that blood tests are need to evaluate for these reactions to silicone. To not test for the antibodies and antigens is not acceptable science. However, none of the current implant companies have studied for this response. This test is available to all. Yet the gynos and plastic surgeons never order this test for their patients with complaints
(i think this means us too since my silicone levels are same as woman with breast implants!)
Hi Ladies...Perhaps someone has already stumbled across this, but if not, and you're suffering from physical side effects from the Mirena, you should do a search on "Human Adjuvant Disease." I found numerous articles on women developing autoimmune diseases including lupus, MS, rhuematoid arthritis, hypothyroidism, connective tissue disorders,etc., as the result of silicone. (Breast implants, silicone injections, and even one woman who had a nose job with silicone)It's horrifying that with all this research, the FDA would allow another silicone device to be marketed.
You are a sleuth! I am pissed too and sitting here with my sister who's going "why don't the doctors know this stuff?" It's so frustrating and part of the problem is that the doctors who need to know it are the ones who don't want to know it. The most receptive doctors I've had so far are the ENT and allergist. It is so exhausting to keep telling the whole story to doctor after doctor and not getting anywhere. Oh-the one other person totally receptive was the acupuncturist. I only went twice and I'm thinking of going back. It probably helped me the most so far and took away the anxiety. I'm going to that hormonal specialist but the appt isn't until July. My gut is so distended right now. My husband just asked what is wrong with me and agreed that I loook pregnant. It's horrible.
I cant tell you how bad I want the acupuncture! Just no $$$$$. even the Mayo clinic lists it as the #1 alternative remedy for connective tissue disorder (for the pain). My back is sooo sore lately. they also acknowledge silica can cause this. I'll respond to the liver comment here, cause I post too much, lol. Yes-our liver function is related, and I cant imagine why yours would be fatty. I am going to be doing the bitter herb treatment recommended for liver cleansing-seems pretty innocuous. I tried bitter melon today, cause it was all I could get on short notice-and if I didnt try cleansing today, god know when the next day will be I can stay in all day (3 kids and all). dont think the melon will really do the trick though....
I AM DEFINITELY PISSED! Okay, Mamaj, new assignment:-) (Cause it's the one I am working on right now) How long does silicone stay in body?
My preliminary information states that silicone isn't broken down (I am imagining it staying intact--hmmm like fat!) and this could be why high levels of fatty liver--both norplant and mirena potential users warned regarding cholesterol LDL issues.
Just a thought!
this is from the autoimmune thread, conversation with Hveragerthi , who really seems to "get it". yeah, not good news.....
Also, do you know if/how long it takes for the silicone to clear from the body? Is there anything we could do to move it along? several women here swear by the various body cleanses-but I have always been on the fence about them.
The bad news is that liquid silicone is pretty much permanent. They have found that it can migrate in to the fat tissues, and even the brain making it next to possible to get out. The only thing that I feel will help for sure is ozone, which can break down silicone. Unfortunately the concentration of ozone required is not very safe. If you are talking about solid silicone, such as for the IUD, then there should be no free silicone in the body. So it comes out with the implant. The antibody levels will drop over time since the antigen has been removed. This is a rather slow process, but keeping the adrenals up will still help prevent the overproduction of low affinity antibodies, and will therefore help to reduce the risk of side effects.
Woman Dies Following Botched Silicone Injection
Family Convinced Cosmetologist Friend Played A Role, But Woman Denies Allegation To CBS 2 HD
Cause Of Death: Silicone Pulmonary Embolism
NEW YORK (CBS) ―
A seemingly harmless cosmetic procedure turned deadly for a Bronx woman. She died one day after receiving silicone injections in her thighs, allegedly administered by someone without a medical license.
Fiordaliza Pichardo's husband never thought she needed silicone injections to make her more attractive and would often tell her:
"'Hey, why you do that? Stop doing that.' She'd tell me, 'Oh let me do this a little bit,'" Fausto Rodriguez told CBS 2 HD.
And the 43-year old tried to keep her injections secret, especially since they were allegedly being administered by her unlicensed friend, Elsa Then.
"She trusted this lady so health-wise, no worries," said Kelvin Rodriguez, the victim's son.
But the worries became real on March 16 when the family says the woman then paid a visit.
"I seen the lady and her preparing. What I saw was the towel," Kelvin Rodriguez said.
Mother and friend went to the bedroom, where behind closed doors, another injection, this one to the thigh, took place. But then hours later something started to happen to Pichardo.
"She told me she got problems with her chest, breathing and then she told me she wanted to go the hospital," Fausto Rodriguez said.
Pichardo was rushed to the hospital but died the next morning of what the medical examiner's officer said was a silicone pulmonary embolism, caused by so much silicone injected that it was clotting in her lungs.
CBS 2 HD caught up with Elsa Then, who told us she's a cosmetologist and that she was questioned by police. When asked if she does silicone injections, she said, "No, never."
CBS 2 HD: "You're telling me you never injected this woman, in the thighs, in the buttocks?"
Then: "Yes, I never did."
Then admitted to knowing Pichardo and even visiting her in the hospital, a place where the family says Then could have told doctors about the injection, but never did.
"She didn't say anything, at all," daughter Marines Rodriguez said. "I'm positive. The doctors had no idea."
The family admits it, too, didn't tell doctors about the silicone injection because they didn't think there was any connection.
Now the connection is all too real -- a silicone injection turning so tragic.
"We're missing one person. Nobody can replace that hole," Fausto Rodriguez said.
Police said so far no arrests have been made, but they are investigating.
The Mirena IUD is made from silicone. In 1992 silicone breast implants were banned because thousands of women reported serious side effects from leaking silicone including brain, nervous system, and connective tissue diseases such as Lupus and arthritis. I don't think it's a stretch to surmise that Mirena users could be absorbing silicone into their systems from their highly vascular uteruses. Perhaps we're getting a double whammy from the artificial hormone AND silicone. I believe placing a foreign body made of silicone into our uteruses could be producing autoimmune disorders in many of us causing rashes, joint and muscle pain, arthritis, hypothyroidism, glucose problems, etc. Who knows what else it's doing to our brains and nervous system. I happen to be a nurse and I'm mad as hell!!!
Yes...I'm aware of Norplant. As far as I'm concerned, a Mirena IUD is exactly the same as Norplant (silicone and progestin) only it's shaped differently and inserted in your uterus instead of your arm. Aargh!
So what does that mean? Sorry I don't know what the long term effects were of silicone breast implants. Once the silicone was removed did they tend to make a full recovery? I have found it reassuring to see myself getting better and better each month (albeit slow-going) but I'm really curious to know where I'll be a year or two from now.
quick search on silicone-this is what I have found. did not look extensively though. I was under the impression that the actual t was made of silicone-however-upon looking at the Mirena site-is this stuff released WITH the levonorgestrel?
VERY interesting. I had no idea silicone was involved. I don't know about all of you, but right before I got the Mirena removed I truly felt like my body was rejecting it. It felt like my body was screaming, "GET THIS THING OUT OF ME NOW!" Months later, my naturopath found my vitamin D levels to be low (among other things). The article mentioned giving large doses of vit. D to counteract the effects of the immune response. Just a couple of observations on my end. I hope we get some solid answers some day to this horrible riddle called Mirena so we can put this behind us and move on with our lives.
In 1969 I had cysts removed from both breasts and silicone implants inserted. Later, in 1982 the silicone was replaced by saline filled inserts. Now I am 77 years old and these implants have ruptured. I have decided to have them removed altogether and although my instincts tell me it is the right thing to do I really have no idea what to expect of the operation, or how it will be afterwards.
If anyone has had this kind of operation and can share their experience I would be very interested to hear.
This page has lists of things you should do prior to surgery, do's and dont's after surgery, contains a list of 20+ abstracts regarding explantation surgery, lists of specialized pathology and radiology laboratories, and has a collection of 'before and after' explantation photographs. There are also links on this page that will address certain related aspects more closely.
If you would like to address other questions and concerns you have, please email me at Lany25@webtv.net. I would be glad to help you in anyway that I can.
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