Hello Happy in Love, I have been unwell for a number of months with the most bizarre symptoms....that was until I found your post. It was like reading my symptoms book (which I have been keeping for the past month) -SOOO SIMILAR (down to the feeling well upon waking and gradually feeling worse over the course of the day, the reactvated EBV,, sore eye,etc)
Did you ever receive a diagnosis for you condition? I have been tested for Lyme (came back negative here in Canada but positive from a lab in US). I have seen endocrinologists, neurologists and have several X-rays, MRIs and ultrasounds and everything looks fine except some swollen glands.
If you ever did resolve you sickness (or I suppose even if not although ihope you not still dealing with an illness) I would love to hear from you.
Thank you in advance for your time - hope you are well!!!
This sounds exactly like my situation! I have an almost definite diagnosis because of a copper iud I have for a collected 4 years. It started the same way for me and turned into pancreatitis. The first ER dr didn't check my blood and just assumed it was IBM after the xray. Gave me Bentyl and it almost killed me! 1.5 years of drs that just want to do tests and now I'm suffering greatly because I had no idea and decided to cut red meat out of my diet. My levels went through the roof and I'm now suffering going through the "dumping" process =(
I seem to be stuck between a rock and a hard place. About 6 months ago, I went to see a Naturopath for help relieving muscle pain I was having from Epstein Barr virus. He was very helpful in removing my pain.
He diagnosed me energetically with parasites (dwarf Tapeworm and ropeworm) which I successfully removed using herbs, medicine and coffee enemas. After removing the parasites, however, they released bacteria, and then I developed SIBO. We treated the SIBO with Oregano oil and Mastic Gum. It is better now.
During this time with SIBO, though, I developed really bad muscle pain, liver pain and then hair loss. I was taking 4 oregano oils per day and then we cut down to 1, and I am no longer taking Mastic Gum. The liver pain is gone.
My hair loss is now really bad. My Naturopath says it is due to low zinc and copper (I have a mineral test at home). He says the low minerals are fueling my Candida which is revving up the EBV and causing pain and massive hair loss. My head is now itchy as is my skin.
I believe my low mineral status is due to coffee enemas. I did MANY of them (some back to back) while removing parasites over the past 4 months. I did not always drink a fresh juice right after but did drink salted water.
During the past month, my weight really started to plummet due to my diet (Paleo) which I have been on for 6 months. I have lost 22 pounds and am down to 98 lbs. Because of this, I had to add grains and fruit back in to gain weight. Of course, now pain and other symptoms are back. Now I feel I am STUCK. Please help....not sure what to do next. My Naturopath wants me to do a hair mineral analysis as a next step. Thanks for any insight.